A MESSAGE

FROM BRENDA AND NAN

 

 
 

Hello again Dear Friends,

The older we get, the more profound all the clichés become.  Clichés like “time flies when you’re having fun” or “the older you get the faster time goes by.”  Here it is the first of August, almost football time again!  It seems as if it were only yesterday that we were singing Jingle Bells.

The on-line family is out in the sun these days, enjoying life, as it should be.  This is a good thing, and we know we will all be back settling in and catching up with each other when the good weather starts to fade. Even though things have been quiet there has been a lot going on. We have been keeping our husbands busy with a lot of “ honey do” weekends and we know that they are glad to be back at work getting some rest!!  The Rochester Golf tournament to raise funds for PLWP just happened in July and was a great success. Patti and Ron Hager are busy working on the 3rd annual Golf tournament in Kentucky, which is scheduled for October. Thanks to Sunshine and Jane Martha we have several PLWP’s getting together in October at Myrtle Beach for conversation and fun.

We have also begun putting together our presentation that we will give November 9th at the Pri-Med Conference in Boston. This preparation has caused us to reflect on the progress PLWP has enjoyed since April 1, 2000.  Our presentation is about the creation and growth of PLWP entitled "The Future of Internet-Empowered Patients: New Relationships between Providers and Patients".  We would be interested in hearing from those wanting to participate regarding your personal observations as to how the Internet has effected your involvement with the physician.  We would very much enjoy incorporating some of your thoughts in our presentation. 

We have also been invited to attend the Morris K. Udall Centers of Excellence in Parkinson’s Disease scientific meeting August 11-13.  Scientists from the 11 Udall Centers, along with Program Directors from the National Institutes of Health, will discuss scientific advances made over the past year and directions for the coming year.  This proves to be an interesting and educational experience, one that we will share with you in the next issue of Virtuality.  Hopefully we will be able to take photos on the tours of the labs and facilities that we can also share with you.  The optional tours include:

  • Isaccson Udall Center Core B: fMRI laboratory

  • Lansbury Udall Center: Laboratory for Drug Discovery in Neurodegeneration

  • Clinical Innovations – DBS cases & Transplant video

  • Isaccson Udall Center Core B:  Animal PET lab

Beth Bennett and Mike Pohl are going to be working together on the membership team. We have several new members that we want to welcome and set up some personal chat time with. Beth and Mike are very enthusiastic and we are looking forward to their participation and suggestion. Remember, we are constantly trying to improve and grow so if you have any suggestions or want to volunteer, please contact us at PLWP2000@yahoo.com

So until next time, be well and be safe.

Love and Hope,
Nan & Bren

Together We Make a Difference

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