September 16, 2001
Hi friends! I haven't been around much lately. Life seems to have a habit of filling up with a thousand details, all of which
seem very important, and then something happens like this past week, and you realize that nothing is as important as the
friends and loved ones in your life. May God bless you all, and keep you safe in the palm of his hand.
I have recently started taking Mirapex, and I think I have had the worst week I have ever had with pd. I realize that this has been one incredibly stressful week for every one, and that is going to make pd worse, but is it unusual to feel worse
immediately after you start on these drugs?
I hope Sandy soon gets back home safe and sound. This whole disaster has made me want to draw close with my family and friends, and just be home.
Bless you all, and keep smiling! Sue
September 16, 2001
little wing-your abiltiy to know my moods and my feelings from such a long-distance is nothing short of miracilous! friday
was the worst day of an extremely long, hard, emotionally gut wretching week. as i sat in the office, awaiting the outcome
which would afffect, not only my life, but also my marriage and my life in my happy home, i reached into my purse for a
kleenex and pulled out your beautiful book of quotes (all handwritten so beautifuly), which had come in the mail just as i was heading out the door. it gave me such strength and courage at a time when i had no more to draw upon! it told me that, no matter the outcome of this interview, i would have the courage and the fortitude to deal with the consequeneces and that everything would work out...and it did! Besides turning 50 this week and i now accept that as something over which i have no control, i have gotten other areas of my life whipped
back in shape. and i'm hoping that my life will soon be back to normal. how can i ever thank you for such beautiful, timely and wonderful gift. you are indeed my soul sister. joan,
September 15, 2001
9-15-01 5:10 PM
Dear Porch Friends
I just had a phone call from Sandy and she is still in Las Vegas. It looks now like she won't be able to get home until
Tuesday, 9-18th and she doesn't have any idea what time that will be. I have been asked to notify the Angel Team of her
problem and request that any Angel Team requests be forwarded to Diane Kerbow, Martine Semal, Melissa Jernigan, Judy Dykes, Nancy Mullen, Mike Koontz, Diane Hall and David Vaughan. I hope I haven't left anybody off the list; it is
unintentional if I have. In the meantime, if I can help with anything at all, my e-mail is seasongood1@msn.com.
Sylvia
September 15, 2001
Dear Sandy;
Sandy you are a woman who is beyond belief in the wonderful department. I just was to thank you for the "parkie
encourager". It was a most beautiful surprise the day the mailman brought it and really made me smile to know someone out there cares for me in a special way. I am so grateful to you for the porch where I can be myself and find people as special as you to share part of my life with. You are an angel.
Carolyn
September 13, 2001
Tried to post this before. I'll try again. This is a slow way to do this, you know. We could do a conference IM if you want. Anyway, I'm here.
Sylvia
September 13, 2001
OK, Carolyn, I'm here.
September 13, 2001
Dear Members of the Porch Family
Should we try chat again.....maybe 7:30 est. For those that can make it you're all welcome. Sorry I don't have voice at the
moment. Hugs, Carolyn
September 13, 2001
WOW...AWESOME NEW SITE...LOVE IT...GREAT JOB!!!
kmt
September 13, 2001
Dear Friends;
None of this makes sense to me. It is hard to be and feel uplifted. As many of you know my oldest daughter lives in Sweden with her husband and baby. It received an email this morning and at least we could find something positive to dwell on. Following is a portion of her letter:
The whole situation is so unsettling. It has been nice to see people from several middle eastern countries donating blood and having vigils for the loss of human life. We saw young children holding signs asking for the suffering to end and that their hearts our with us. It reminds you that there are so many stereotypes, but no matter where you are in the world there are good people wanting peace.
I found myself not feeling angry but genuinely sad for those attackers who were so cruel and heartless, and for all those who celebrated their victory. I have been praying to God to forgive them, and to have mercy on all of the souls that they
prematurely took away from mothers and fathers and loved ones. I have been trying not to judge, for it is not for me to decide, and one day my hour will also come.
I feel very fearful for what has happened and of what is yet to be, I fear this is only the beginning. May God be with all of us. (end)
My own thoughts and prayers are with anyone who has family/friends that have suffered at the hands of these people.
May God's Peace Reign Again, Carolyn Gambino
September 12, 2001
5:30 a.m.
Hello my friends;
Yesterday was the most difficult day for every American will never be the same whether touched by loss of life or the loss of freedom as we once knew it. None of us will ever be the same. Through the years we have seen personal freedom diminish due to crime. I can remember taking public transportation at age 8 to go to school miles from my home, or walking to the liibrary a good distance from my home and my parents were not concerned. Now we lock our doors, some people believe in arms, and in the back of consciousness we will remember yesterday
and never be the same. I am angry at the senseless loss of life, I am angry at the loss of freedom, I am angry at the foreign clergy that support the terrorist acts of these countries.
I pray for all those affected by this tragedy. The victims, their families and friends and every American.
Somehow I can't say Joy be with you today. I will end by saying God be with us today, much love Carolyn
Sorry about not making chat last night, my husband was a Marine Reservist and we survived Iran/Irag and 3 Mile Island and came close to leaving for the Gulf War and knowing what could lie ahead for America is overwhelming.
September 12, 2001
hi! Oh thank u to all who may this site possible. thank u sandy for the book u made me. I hope u all have a fun time going
west. please take pictures!
This tragedy in NY is very upsetting to me. Just got an email from my child. He just got back from donating blood with some friends from the university. They left at about 2 PM and got back at 12 midnight. His friends in the city are all fine Thank God. I just feel for this whole mess.
love, nancy
September 11, 2001
Dear Friends,
In light of the circumstances of today's terrorist attacks, chat has been cancelled. We may rather spend our time in prayer for all the victims and their families. God Bless America and grant us peace.
Carolyn
September 11, 2001
Good Morning all. I guess with what's going on in our U.S. today we can all say a prayer for those killed, injured or affected by the bombings. My daughter just called and they closed up business so a group of them are off to give blood. She made me proud. Carolyn I hear you about grandchild getting to you some days. Brendon is 3 and when he gets tired nd cranky it just goes thru me and I want to stuff my ears. Will try to make it to chat. Is that eastern, or central time? Dianne, I wish I was closer, I'd take you out to lunch and we could talk
sewing for hours. Sandy enjoy your vacation. God Bless you all.
Caz
September 11, 2001
3:30 a.m.
Dear Friends;
If anyone would like to join me to sit back, relax and rock for awhile, I'll be dropping by the chat room today, Tuesday,
September 11, at 7:30 p.m. est. Bring yourself, your favorite snack, thoughts, ideas, jokes and humor and lets have some fun.
Carolyn
September 10, 2001
This has to be the most beautiful sight that I have been in. So peaceful, so perfect I love it. Well done Carol and Sandy for
this wonderful gift.
Eileen
September 10, 2001
Hello my friends;
Luvstosew Sandy is right on the money. Look at all the stressful events in your life as of late. Be good to yourself sweetie and try to rest and relax. I know when I'm having a bad day with PD the feeling that you cannot cope with another thing settles in. It fills me with anxiety and restlessness. That is why I do not like large gatherings. The noise levels, interactions, etc. just wear on me. Sometimes as much as I love my grandson, I want to send him home because he's into the everything stage and I'm tired out for the day. Yes, and doesnt
it seem unfair that our bodies are old before their time. There are moments I shamefully admit that I wish I was someone without health problems but then again there could be other circumstances given to me that are more challenging.
Take care my dear friend, Joy be with you every moment of your life,
Carolyn
September 10, 2001
Luvstosew,
Hello, sweet girl. I am taking a wild guess that you were the one posting about your body falling apart with little things. I am sick of it too. Especially 10 days before my cycle. I want to explain why any other little thing is such a taxation to our bodies as pders. Our body already fights PD 24/7. It already pulls on our immune system. Whenever anything else assaults us that draws even more energy to fight something else besides the PD. This in turn will cause our pd symptoms sometimes to worsen for a time. Really until we are further
recovered and some simblance of "normalcy" has been restored.
Diane, honey I hear your weariness. I feel your weariness. I am there with you, in thought and prayer. Hang in there, girl. I am a full believer in saying I am mad as hell and I am not gonna take it anymore! It is perfectly human to even scream
ARRRRRGHHGHHHHHHHH! I love you sweetpea. Take care and may God Bless you.
I am about 3 hours from leaving to go on vacation. I am using my Dad's computer. I am going to go and rest for a bit. I surely am going to miss the porch and my lovely friends and family.
faith and hope,
Sandy
September 10, 2001
Good morning everyone, well i spent an exciting weekend with 19 other ladies at a sewing / quilting retreat. Didn't get much accomplished, body didn't want to cooperate but had a terrific time anyway. I won the "last one to bed" sewing award heheehe! I would have accomplished more but my secret pal saw something i am making for some special parkie friends for New York and she kept commenting on it. so, you guessed it, she got my first creation. That's ok, it gave me experience making one,,,,,,,can't tell you what it is, will ruin surprise. Just
took hubby to the airport. He will be in Vermont for the next two weeks. Just middle dtr. and myself for next two weeks. Knee is doing better but still slowing me down. Going to the dentist today. Boy does he have his work cut out for him, ugh no pun intended.
Do any of you ever feel like you are falling apart? I have felt this way lately. By george, I am too young to be falling apart. A dear quilting friend told me this weekend "It's hell getting old". Well I'm not ready to throw the towel in yet. Do you ever feel like you are learning to live with PD but it is these other minor inconvenienes like teeth, knees, falling, constipation, etc., that are what's getting you down? These thoughts have been on my mind lately. This same friend who is an RN at a local hospital in Labor and Delivery, found out
she has an illness that causes her eyes to be bloodshot all the time. She said this makes her really mad. I found myself thinking, I'm not mad at Pd but I am mad at these other things. I feel like, hey, our lives are full as it is with PD, we don't have time to be bothered by other not so major health concerns.......but this is life, right. Just wondering how you guys feel about the not so trivial things that creep up on you while you are learning to cope with the biggie in your life, Parkinsons' disease.
Pauline, I just sent you an email. You are a truly talented and gifted writer! The words flow from your pen with such ease and grace. I am enjoying reading your story. Your faith in God is refreshing and so uplifting. My life has already been touched by your loving words. Take care dear friend. You have definitely fouind your niche in life.
September 09, 2001
Dear friends,
I just wanted to let you know that I am going out of town tomorrow. My family and I are going out West for a vacation. I will be gone from the 10th-16th. Then on the 19th I will be travelling to Maryland to travel with Sylvia Cable to the Unity Walk. If you wish to get a message to me you may let Sylvia know. Have a pleasant and blessed week coming up. God Bless You all!! faith and hope,
Sandy
Faith makes all things possible. Hope makes all things bright. Love makes all things easy.
September 09, 2001
Toadie,
If your daughter wishes to write to me I would be delighted to hear from her and you!! Rest and be well my friend!
faith and hope,
Sandy
September 08, 2001
9:25 PM Saturday Evening....
Today has been one more roller-coaster ride. I am up one minute, down the next. I hate being like this. I am trying to put a
finger on "it". That is what is so persnickety about this unwanted disease. It is so difficult to pinpoint the "whys" and the
"therefores". I am beginning to believe that I may be suffering from separation anxiety. I fly out west with my parents on
Monday for vacation. I will be gone from the 10th-16th. I will not have access to a computer.....I am fearing definite
withdrawal symptoms.....at any rate....tomorrow is another day. I am gonna be counting on you guys and dolls to keep the
Porch going....You did a super job when I had all my surgery done. I believe in all of you!
God Bless You!!
Faith and hope,
Sandy
September 08, 2001
Thank you Sandy for that! I can see why you have so much traffic here... I think I'll pull up an old rocking chair and join you all here!(pwnkle)
September 08, 2001
9/8/01 (around 2:00 p.m.)
My dear friend Sandy, I got your packet, it is absolutely one of the most thoughtful, considerate things anyone has ever given to me. Thank you so much for all of your effort and kindness. My daughter would like to write to you if it's ok, I'll write you anyways,lol take care,
love toadie
September 8th, 2001
4:30 AM Saturday
Good morning!! Well it looks like Carol has been hard at work again. Yesterday evening I was cruising the internet and
found the quote about friends being like the pillars on our Porches. I thought it was so fitting, I asked Carol (pwnkle) to add it in my favorite color of purple. Friends do you realize how very blessed we are to have the friendship and dedication that Carol McLeod so freely gives us? Each time I think of Carol I am reminded of a Lehrman quote...."Within ourselves is a deep place at whose edge one may sit and dream." Carol's gift of webspinning frees each one of us to search out that "deep place" within ourselves and gives us a chance to dream.
There is like an energetic quality to Carol that instantly sets a person at ease, that allows one's inhibitions to be tossed to the winds and imagination to take flight! Oh what a precious gift! We love you Carol!! The Porch looks great! Not to worry about some lost posts....many times in life moving forward requires taking risks.....
Enjoy the day everyone and count your blessings!!
Faith and hope,
Sandy
September 3, 2001
2:20 pm
Hello dear friends and family,
I hope everyone is having an enjoyable Labor Day holiday. I am having a fairly good day. I have had a doctor's appointment, I have been to see Mama and Daddy today, worked on Parkie Encouragers, and I am in the beginning stages of packing for my up and coming trip out west with my family.
I am also watching the Atlanta Braves play the Montreal Expos. In the top of the 5th inning the score is 4-0. Braves are
winning. Lets see if they can maintain it enough to get the win. There is still a whole lot of ballgame left to be played.
Nan what kind of tea would that be? Long Island ice tea? LOL
Carol.....again, we cannot thank you enough for all of your hard work.
faith and hope,
Sandy
September 03, 2001
Hi all. This porch is so comfortable. I just think I will just pull up a rocker and come sit for a spell! Sandy how about a cup of tea?
Love Ya
Nan
September 02, 2001
Hi Sandy!
It's nice to see you in the pink! It's so beautiful here, warm user-friendly colors and thoughtful designs,just gotta love it! A big Thank you to Carol! Congrats (can't spell the rest,lol) to Nan and Bren. Check your e-mail my dear friend,
love toadie
September 02, 2001
Hello good morning!! Diane, I sure hope Pam comes to the Porch for a visit. It was very kind of you to encourage her and
welcome her.
I love the colors on the Porch. I am wondering though if we are going to have a counter and whether or not our archived
months will be transferred over. Also where is Carol going to place the introduction to the Porch. I am gonna go and e-mail Carol now. We clap our hands and send loads of hugs to you Pwnkle for the job well done. Our new home is absolutely beautiful. The Whole site shows all of your hard work.
faith and hope,
Sandy
September 2, 2001 4 a.m.
Good morning Sandy, i love the new site design. WOW! think i may just "rock" the night or morning away heheheh! I really miss you guys. Seems like the past few weeks i haven't gotten to visit with any of you much. mike and i had our weekend with his parents and we all had good time. his parents are doing better, just slow process of healing but their spirits and attitudes are super. thnks for continued prayers for them. for those of you who do not know, both of his parents have been diagnosed with cancer. mom is still getting chemo and dad
hasn't started his shots yet. this has been hard for entire family but spirits are soaring high.
hey Sandy, I met another parkie in real life yesterday. Pam Michels from Flower Mound, TX. She graduated from TWU a
year before me with a degree in music therapy. Super lady. She has only been diagnosed since April, I think that is what she said. i encouraged her to come to porch and sit and visit. we talked for an hour and half. well got to get some more shut eye. take care my dear friend, and hope everyone has a wonderful rest of holiday weekend. Luvstosew
September 02, 2001
Thank you for a beautiful site.
September 02, 2001
oh, this is too cool Sandy! Chasmo
September 01, 2001
I love the new look! And it's even in my favorite color! This is wonderful.
Sylvia 9-01-01 10:49PM
September 01, 2001
Hello everyone how do you like our new home?
faith and hope,
Sandy
September 5th, 2001 2:20 am
Hello family and friends,
This is my second night in a row without sleep. The dreaded insomnia. Anyone up with me?
faith and hope,
Sandy
September 4th, 2001 4:23 AM
Good early morning!! I have been awake all night. I have not been sleepy so I did not even try to go to bed. I know that I
would just toss and turn. I have been perusing our new site and loving every bit of it!! Is there anyone awake with me?
faith and hope,
Sandy
September 05, 2001
Hi Sandy , I hope this stays fixed now ... lol ... The order of the posts in here will have to make its way back up to the top.
The order is from the newest down to the oldest posts, but since I interupted it to look at it , there's a break in the sequence. It
looks ok now though. Uh ....er... can you send me a new copy of your words of welcome to grace the top of this friendly
oasis?
September 05, 2001
Wow! and hello all...it is 12:08 wednesday afternoon. Pwnkle has spiffed us up a bit. I love it. I hope everyone is finding
their way around okay. I will post more later today. I hope all of you are well.
Faith and hope,
Sandy
September 05, 2001
Hello Carolyn girl,
Oh no...hillbilly city....I am sorry about the difficulties. Gee PC trouble....teeth trouble...I am glad you are up and running and posting. I am really in love with our new Porch home. Carolyn...sit and visit awhile and get caught up. Take a big deep cleansing breath...relax....I will be remembering you in thoughts and prayers dear one.
faith and hope,
Sandy
September 05, 2001
7:12 p.m.
Hello Porch Family;
The new site is awesome. Carol did a superb job and sure gets high praise for her hard work.
Well the news is I've joined our Hillbilly club. You guessed right, I looked in he mirror and a piece of my tooth was gone. How many of us does that make. What a coincidence.
My PC was down again, I've been down more in the last few weeks than on but hopefully it is running in tip top shape now. I've missed posting and hearing from all of you.
Take care everyone, hope your weekend was great.
Joy be with you all, Carolyn G.
October 30, 2001
09:03 AM
Hi Sandy and friends, it's me back again testing a snippet of html code I picked up. this may do the trick . so this is a test .
October 29, 2001
08:40 PM
Cross Posted for Tenacity from MGH. ................................................................................... Hello Everyone, Today has been
one of those days! I woke stiff and wobbly. I apparently choked in my sleep last night which worried my husband
tremendously. To make a long story short, I spent the day in the hospital and at a neurologist office. The outcome was nothing
new. My MSA is getting worse. It is rapidly sucking the life force out of my body. I have been turned down for experimental
research and a DBS because of my age and this being atypical Parkinson’s. My speech is bad, I have lost almost all
endurance, I am in pain all of the time, I am rigid, slow, clumsy and forgetful. As of today, I even am having trouble sitting in
a chair. Have any of you thought about time… quality vs quantity? What do you want? How do you face that thought that I
know I kept shoving to the back of my mind, “If this is as good as it is going to get, how will I ever have the fortitude to
continue to be strong.” I hurt physically and that affects my mental state. I feel my body dying. Quality? How do you define
quality? Is it the friends that you make along the way? For a moment in time, I wish that I could be someone less admired and
more well! LOL! You know what I mean. Being admired for strength. Yes, I am strong and I do my best but I don’t know how
to endure. I admire Tim Foley for his battle with MSA. I hope and pray that I can be half of what he is in this process of
dying. He truly is my mentor. I also am grateful for David Vaughn and Charlie and for my new found friend Sandy. All of you
are such wonderful people. You are always there when times get rough and also when times are good. I also truly thank you
for the kind hand you have reached out to my new husband to help him along this journey. Quality? Quantity? Time? What do
they mean to you? What are your REAL fears? Not the fluffy words that we say to encourage ourselves but the real you. Talk
to me, tell me how you feel. Tenacity But for the grace of God, go I! ------------------ Tenacity
October 29, 2001
08:22 PM
Dear Family; As we try and sit together for awhile and chat on the porch, it seems like we're all finding the pits in the bowl
of cherries in our laps. Diane precious one you are being prayed for and I hope your heart and soul feels lighter. Some
doctors fail to remember "first do no harm" whether it be physically or emotionally. I'd give the ortho a boot in the behind
but.....they don't call me Sparky for nothing. Tenacity I sincerely hope you get to feeling better quickly. In the meantime, sleep
gently in the arms of your guardian angel. We all will continue to pray for a quick response to the prayers that have been
lifted up in your name. Sandy my girl, your words have strengthened me and given me more courage to face the future. You
are a dear one. Sometimes we never know the positive effect our words can have at a given moment. Me, well I'm still
plugging along and very tired from the virus and trip. A few days of R&R seem to be in order. Right now that rocking chair at
the top of this page looks pretty good....all I need are a few more of you next to me as we chat and gave at the heavens tonight
and pray the family will be taken care of spiritually and physically. Joy can be found in the tiniest recesses despite the night.
Love Carolyn
October 29, 2001
07:25 PM
Hi, I'll let you know about everything tomorrow. I am out of the hospital but the news is not good. Tenacity
October 29, 2001
12:47 PM
PRAYERS ARE GOING UP TENACITY!!! faith and hope, Sandy
October 29, 2001
08:06 AM
Started the day off bad. My husband is taking me to the hospital. Prayers please! Tenacity
October 29, 2001
07:41 AM
Goodmorning all, just a quick note tothank you all for your love, thoughts, prayers. i'm still kicking but not too well. Don't
know if the PD or stress or all other stuff. the hand surgery went good i gueses but hand still stiff, not very flexible.
orthopedic doc said come back after i loose 80 lbs. and he will rethink my knee situation. so i have to hang in there right. us
parkies are tough. not happy with job. but will hang in there for awhile. if not fired first. ha ha ha1 I think STATE will be
here today. Please keep the prayers coming. i had a really goodvisit with joan yesterday and shesuggested i start working on
getting disability. may do that since moving isn't good these days. i read the post from oct 22 about going off meds. i think i
messsed myself up and am having to redo meds now to get straightened out. so listen to your body and doc. got torun to work.
hahahh i never run. love you all and will post more tonite after i see how today goes. love you all. Luvstosew
October 28, 2001
09:18 PM
Hey Hey (snake) oops I mean PHX. I think it has come to a point where ou need to feel comfortable telling friends,
neighbors, etc. that you have PD. It ain't going away girlfriend, and since it's now nice enough for you to get outside please
think of your safety. I know you are a private person but please keep in mind others are there to help, especially us here on
the porch. Hang in there sweetie and know I love you CAZ
October 28, 2001
07:13 PM
Hi Porch Family: Darn it is good to say that! Carolyn, Sandy, I agree with your advice to Nancy. I guess that I have
approched how I deal with crowds in a different manner. I came to the conclusion a long time ago that God must have thought
me strong enough to handle this disease so I am not going to second guess him. I also came to the conclusion that HOW I
present myself to others will help someone somewhere, somdaay and it doesn't matter if I ever know who, how, when or
why. Yes, I shake, wobble, fall, talk like I'm drunk and exibit all of the horrible manifestations of PD when I am out in
public. This is just me and how I am. Again, God thought me strong enough to handle this. So, when people stare... I use
humor to help them feel at ease. I explain what is going on with my body and I keep my head up high. People react because
they don't understand. It is amazing the kindness that comes from these strangers that pass through my life. The stories they tell
me about what is going on in their lives. Attitude is so very important. Don't be afraid to be the gimpy you. You are special
and you possess the ability to help others just by being you. If you want to know some of the one-liners that I use... well, I
would be more than happy to share them with you. The one that I made up, (yes folks, if you have heard this one before, I
started it) and the one that seems to put people to ease the fastest is "You are absolutly right, Parkinson's IS totally wasted on
me. Just think, if I were a guy, I wouldn't need viagra because I'm stiff all the time." I have others but that is my favorite. Hang
in there girl. You just being yourself is a blessing for those who get the opportunity to meet you. Love, Faith & Hope,
Tenacity But for the grace of God, go I!
October 28, 2001
01:02 PM
Dear Porch Fammily esp. Phx.; Have been way under the weather and now have internal tremors as I try to type. This I find
disturbing but thats PD. Crowds, parties, and a ouseful of company has the effect on myself and many parkies I know Phx. that
you described perfectly. At some of those moments I take a break, go in another room or outside and catch up with m internal
self. The positive effects of friends and family gathering causes the body not to differentiate between good and bad stress. It
just makes those sypmtoms we suffer from escalate or meds to wear off sooner. I wondered why I felt waves of ant-social
behavior through the year but now have shared this with close family and they understand. Telling your neighbors is a
personal choice but I have told mine because of the following event. I exercised in my above ground pool. I felt fine in the
pool but getting out was extremely difficult. Then the charlie horses and sciatic pain started and I could not move. I called for
help and no one heard. The pain continued, I was in a wet bathing suit shivering and finally crawled through the house to bed
but could not coordinate changing clothes till my husband came home from work. Total time spent in misery about 1.5 hours.
My point is that I'd rather tell the neighbors. I recently have taken two falls outside and didnt want the new neighbors thinking
I was wasted at 10:00 a.m. You have nothing to be ashamed of because of PD and telling might even save your life if not your
reputation.... It's a personal choice but thats my perspective on it and we are all entitled to deal with this monster in our own
way. Your doctor might want to give you a mild tranquilizer for such large events. It takes the edge off a little. I hope this
helps you out. Joy be with you always in your heart Carolyn Diane, where are and how are you; Caz how are the grand kids,
Sylvia I know you're keeping busy, Sandy bet your working on those Encouragers that everyone so loves, and those of you
that have not posted recently, know that you in my prayers. Joy today and always on our journey together. Love Carolyb
October 28, 2001
12:22 PM
Howdy Pheonix, It is good to hear you are staying busy with life. It is not necessary that you write everyday. Knowing you
are placing one foot in front of the other and facing the challenges that PD brings into your life gives my heart a smile. Now
on to your questions....Yes it is hard to function in crowds, especially when the dyskinesia hits unexpectedly. I have a
suggestion Pheonix that could help. Why don't you tell the neighbors about the PD? This would take a lot of pressure off of
yourself. Getting the pressure off of you will alleviate your stress levels. Maybe the dyskinesia would not be so severe.
Nancy....you need to know that every situation you go into there is always a chance that something unexpected could happen.
Having this foreknowledge will allow you to consider the possibility of a plan B to your Plan A. You are a survivor Nancy.
Remember the seashell? I believe in you. Give yourself time to adjust and accomodate your new life since leaving work.
How about cutting yourself some slack? If I can help with anything Nanc....you know where I be. Keep up the fight...we are in
this together!!!! faith and hope, Sandy
October 28, 2001
07:53 AM
well how time slips by and before too long it will be another year! I have not been the best at writing here...things just got too
complicated. Had company for 2 weeks need I say more? Fall in the desert is so nice...what makes the summer so much
easier ot deal with. Have been trying to keep myself busy as since i "retired" from the workforce, I cant seem to stay
motivated. SO i have been getting involved with the neighborhood Fight Back. Yesterday we had a picnic for the
neighborhood....a chance for neighbors ot get to knwo each other and ot voice concerns. Had about 75 households out of
300,,,lots of kids. It was fun yet i aam finding that my stamina doent last long anymore. But what i would like to discuss is
does anyone else find it hard ot function in crowds? how does one get past the dyskinesia that intensifies around people,or
the balance tthat suddenly seems non existent, or even internal muscle quiivers that make you appear to be suffering from lack
of alcohol lol? Now these neighbors dont know about my pd nor will i tell them unless tis needed. But the gorgeous weather
and all could not take away hte stiff face muscles that refused ot show how much fun it was or hte uncooperative muscles that
made every small task a major effort or speech that slurred more than usual and thought process that was going faster than
mouth could keep up with! Has anyone else found that they haave more problems in crowded events or is it just me? sending
sunshine yoour way. Hugs! phx
October 28, 2001
03:30 AM
TEST 1,2,3 TEST 1,2,3 TEST 1,2,3 faith and hope, Sandy
October 27, 2001
10:28 AM
sandy : thank you soo much for your booklets! So proud t o be your "friend" thank you so much ! fig and donna !
October 27, 2001
09:44 AM
Shakeedave: Here it goes: 1)Lollypop- Sept 2001 2)Warm rain standing- don't remember when 3)Drove 300 miles- July
2001 4)Slick's Art- everyday! She did my pdhangout logo 5)Robin Wlms film- Last weekend- Patch Adams 6)Random act of
kindness- try to do 1 daily I ditto the "thanks for the encourager" statement. THANKS SANDY! You are truely beautiful!
Well, it looks like I am back to the insomnia stage. 1.5 hours last night. MSA is really kicking my hind side these days. I can't
wait to see my new neuro next week. I think that I will give in to pain pills. The pain has become overwhelming. Today is
going to be a slow day. I'm going to stay home in bed and rest. My husband is at work so it is not safe for me to walk around
the house unassisted... so lemonaid out of lemons- here I come. Sandy, I would love for you to call. Hugs to everyone.
Tenacity But for the grace of God, go I!
October 27, 2001
09:29 AM
I see you are trying Carol. We are still patient my friend. I will be remembering you today and keep positive thoughts and
prayers going up. faith and hope, Sandy
10/27/2001
7:03:32 AM
testing spacing 123. 789. xxxxxxx. ffff. zzzzz
October 27, 2001
07:00 AM
spacing test test 123. 456. 789 pwnkle here.
October 27, 2001
02:00 AM
NO Carol it isn't working. It is not allowing for us to make double spaces between our paragraphs. We are still waiting
patiently. Faith and hope, Sandy
October 27, 2001
01:57 AM
You are welcome ShakeeDave!!Do you actually want answers to your questions? Hey Carol...it is working!! Thanks from the
bottom of our hearts!! Tenacity Neuro appointment went very well. Had a medication tweaking. I go back in 6 weeks. I have
missed your posts. I hope you are well. I may call you today!! I HAVE MISSED EVERYONE'S POSTS!! faith and hope,
Sandy
October 27, 2001
01:14 AM
Sandy, THANK YOU SO MUCH FOR THE ENCOURAGER....I DO HAVE A FEW QUESTIONS FOR THE PARKIE
COMMUNITY.. WHEN WAS THE LAST TIME ANYONE HAD A LOLLIPOP ? OR STOOD OUT IN THE WARM RAIN
? DROVE 300 MILES JUST TO DRIVE BACK? ADMIRED SLICKS ART ? WATCHED A ROBIN WILLIAMS FLICK ?
AND HAD A SUDDEN URGE FOR A RANDOM ACT OF KINDNESS ? THANK YOU SANDY !!!! CARPE DIEM
SHAKEEDAVE
October 26, 2001
11:20 PM
pwinkle: Resident computer geek, (I would have said God but it sounded so pretentious) at your service if you need a second
brain to bounce things off of. Just email or call me. Sandy, I missed being able to have my posts "stick" these last few days.
How did the doc's visit go? Hope to hear from everyone soon. Tenacity
October 26, 2001
10:53 PM
oops ! that post was from me, pwnkle
October 26, 2001
10:52 PM
Hi Sandy and friends, I'm having a heck of a time trying to get this porch to left-justify. I'm trying everything I can think of ,
and I know I'll get it fixed. I know it must be frustrating for you all, and you are being very patient. I wish I were smarter
about this stuff, but I'm learning more as I go and I will get this porch to straighten up and do right ! :-) thanks again for
hanging in with me and know I do appreciate it very much. part two of this post : Please check out the link to the member info
form on the front page here. You can enter your info directly and we'll get the email list updated, and get a count of the
membership. I hope you'll take a minute and fill it out, even if you're already a member. Thanks
October 26, 2001
09:22 AM
test test test the Porch is having some technical difficulties. Carol said she will get things taken care of as soon as she can.
Let's be patient dear friends and family. faith and hope, Sandy
October 26, 2001
12:23 AM
test test test test
October 23, 2001
06:40 AM
Please allow me to caution all of you ....it is not advisable to come off of one med and up the dose of another. On my
previous visit with my neuro we discussed coming off of Tasmar. I have come off of Tasmar before so I knew what to do. I
came off of the Tasmar. Please, please seek your neurologist's opinion before ever stopping a drug. Remember research,
studying, and more research is power. Knowledge is power. Love ya guys and dolls!
faith and hope,
Sandy
October 23, 2001
06:34 AM
Rise and Shine.....I would but I have not been to bed yet. But that will not stop me from singing to all of you....
"You are my sunshine, my only sunshine, you make me happy when skies are gray. You'll never know dears how much I love
you; please don't take my sunshine away".......
Did that wake you up? Caz you remember that song don't ya? How is everyone this morning? I hope all of you had a good
night's rest with plenty of sweet dreams.
I am counting the days until Thursday. I see my neuro at 11:15 am. I have a feeling it is gonna be a very long visit. I always
anticipate a positive outcome to all neuro visits.
I have been battling figuring out which of bradykinesia/freezing and dyskinesia is the lesser of the two evils. I have stared
both of them in the face these past two weeks. So much so that a slow, but sure and sinking realization is settling in. I do not
want to put it into words today because I really do not want to give those words any power at this point. I am continuing to
walk by faith with huge amounts of hope. There is always a possibility of tweaking my meds.
I imagine I am going to get a lecture from my neuro. Why? Because I went off one med and upped another. I believe that is
where the extra dyskinesia is coming in. We shall see...again stay tuned....
Everyone, please have a blessed day....let's sit and rock a while and have coffee cake and apple/cinnamon/tang tea. Our talks
are so good for the heart....don't ya think?
faith and hope,
Sandy
October 22, 2001
07:03 PM
Hello Pauline,
Good to see you. I am glad you got a positive response from ex-husband about your book. That is one less road block. One
foot in front of the other girlfriend!! I am betting the bank on your book....I believe in you sweetie!!
I really am unsure if I am feeling better. I see my neuro this thursday. He and I have a lot to discuss. Stay tuned.....
I pray everyone is doing okay....please remember I am always thinking of you and keeping you in my prayers.
faith and hope,
Sandy
October 22, 2001
04:29 PM
Hi Sandy, Carolyn, Caz, Tenacity and LUVSTOSEW!!
So glad you are back at the porch Luvstosew, it's sew good to see you! I was taking Baclophen (sp?) for a while for leg
cramps, it helped a little. My worst time for muscle pain is if I have been sitting for a while and try to stand up again. So, I
try to keep moving, or when watching TV in the evening, at least get up in the commercial breaks and tidy the kitchen. I
would really like a new body!
Sandy, hope you are feeling OK today. Guess what you guys, my ex-husband read the first six chapters last week and actually
gave his blessing, so I don't have to worry about a law suit!! lol
It's raining heavily today, no wonder they call this part of the country a rain forest.
Have a great day everyone. God Bless. Pauline.
October 22, 2001
03:51 AM
Luvstosew,
Honey I am just now seeing your question about muscle relaxers. Yes, I do take Soma. It helps a little bit with the pain but not
much. I wish there was something I could do to help you get through all this "other" medical "stuff". Please take care and
keep us informed. God Bless you sweetie.
faith and hope,
Sandy
October 21, 2001
11:45 PM
Anyone interested in joining Carolyn and I at 10 EST in Porch Chat.? See you there. God Bless!!!Caz
October 21, 2001
07:50 PM
quietly reflecting today....
The rainbow of God's promises is always above the trials and storms of life.
Charles Shepson
After the darkness, the daylight shines through. After the showers, the rainbows in view. After life's heartaches, there comes
from above the peace and comfort of God's healing love. ~Kristone~
The soul would have no rainbow had the eye no tear. ~Anonymous~
faith and hope,
Sandy
October 21, 2001
11:03 AM
Well folks, I wish you a great day! Hubby and I are off to the hills to look at the leaves changing colors. Believe it or not, this
Louisiana girl has never seen "Fall"! Back home we have two seasons, hot and less hot. LOL!
It looks like kitchen duty is not in the plans for today. We are going to pick up some fried chicken and have a picnic! Yumm!
Tenacity
But for the grace of God, go I!
October 21, 2001
06:19 AM
Ooops........forgot to sign off ..........Luvstosew 5 a.m. 10/21
October 21, 2001
06:18 AM
Good morning Sandy and porch friends, yep im still alive and kicking heheheh. Surgery went good, hand still stiff but to be
expected i guess for awhile. Been trying to slow down at work. it hasn't slowed just me. Went to see new orthopedic doc
who said come back after i lose about 80 lbs. So much for sore knee. guess i'll have to hang in there and fall apart another
day hehhehe! love you all and miss you terribly! Please keep me in your prayers that good health will come back.... Sandy,
got a question for you....do you take muscle relaxers and do they help? let me know, thanks. My computer internet acess has
not been working. using hubby's today. hope to have fixed soon and then will get back with everyone. love you and thank you
all for the wonderful cards and prayers during surgery. you guys are the best!!!!!!!!!!!!!!!!!!
October 21, 2001
02:57 AM
Sandy my dear, I wish I could be there to rock and chat and ease your pain somehow. That's the greatest frustration to the
people that love you. Having another insomniac night. Its stuffy in the house but other relatives are elderly and cold so.........
Went to the flea market again, picked up some outdoor flags and a cute Bear tsirt for grandson that has USA flag on it.
I want to sleep in my own bed so when I wake it wont take me time to figure out where the bathroom is.
For those whose children/grandchildren can have peanut butter, I will post a copy of a secret edible play clay they can eat. I
know its 1 cup peanut butter. 1 cup confec. sugar, 1 cup non dairy creamer. I think thats all but I will double check when I get
home.
Tenacity feel free to add me to your list, sometimes I get my most inspiring ideas about 4:00 a.m.
See you all soon. Joy today to all who look at themselves and others with an open heart. Love Carolyn
October 20, 2001
07:26 PM
Girlfriend, I am making like Fred Flinstones now. Just a peddling as quickly as I can go. I guess I will have to dream about it
in my dreams tonight. Bon apetite.
faith and hope,
Sandy
October 20, 2001
05:47 PM
Dinner will be served at 6:30... if you hurry Sandy, you might just be able to make it...
October 20, 2001
05:25 PM
Tenacity, you did not leave the time when dinner will be ready....
faith and hope,
Sandy
October 20, 2001
05:00 PM
Thanks Pauline! Cookies are a comin' The banana bread sounded good but I just made soem last week.
Sandy, you are correct.. I neeed something other than sweets. But, sloppy joes are forever out for me. The last time I ate one,
I choked on the ground beef and my daughter in law called 911. I wound up with a fire truck with 4 firefighters on it and an
ambulance with 2 guys in it at the house. That taught me not to play with my food...LOL.
I think that dinner will be pan seared steak with a mushroom wine sauce. Green beans, garlic bread, salad.... and of course...
Pauline's peanut butter cookies for desert.
Hugs, Tenacity
October 20, 2001
04:24 PM
Yummy yummy yummy I got love in my tummy....oh darn Pauline back to the kitchen I go...I made a manwich pie. Simply
put..it is a sloppy joe upside down pie. You dolls are giving me a sweet tooth! Hey I gotta put it on someone. It is good to see
you Pauline. God bless you honey!
faith and hope,
Sandy
October 20, 2001
02:34 PM
Hi Sandy and parkie porch friends,
Sandy, pleased to hear you are doing a bit better today.
Tenacity, here's a recipe for peanut butter cookies for you: 1/2 cup butter, 1/2 cup crunchy peanut butter, 1-1/4 cups all
purpose flour, 1/2 cup sugar, 1/2 cup packed brown sugar, 1 egg, 1/2 tsp baking soda, 1/2 tsp baking powder, 1/2 tsp vanilla.
Beat butter, p.butter, sugars & egg, add dry ingredients & mix by hand until well combined. Roll into 1-inch balls. Place
balls 2 inches apart on ungreased cookie sheet. Flatten with fork dipped in sugar. Bake at 375 deg. for approx. 7-9 mins or
until bottoms are lightly browned. Cool on wire rack. Enjoy.
God bless you all. Pauline
October 20, 2001
12:39 PM
So Caz are we gonna have a battle with our taste buds today....well I am off to the kitchen ....you gave me a yummy growl to
my tummy....
faith and hope,
Sandy
October 20, 2001
11:35 AM
Peanut butter--yummy--my favorite breakfast is pb&j toast. I think I'll make banana bread today and have some fresh from the
oven with peanut butter on it. Babysitting grandson right now so we are off to the sandbox. Goc Bless!!! CAZ
October 20, 2001
06:07 AM
Good Mornin Tenacity,
I do not have any particular peanut butter cookie recipes. But I do know that man cannot live by bread alone; He must have
peanut butter too!! I have not slept yet. In fact I have not been to bed. I needed to get a few things done in order to get them in
the mail this morning. Post office is open until 12 noon and the last mail pick up is at 11:00 am, after that no mail will move
until Monday.
I hope to make it to the library and pop over to see my parents today. I have not had any dyskinesia for about 12 hours now.
So please keep your fingers crossed. I truly appreciate all of your kind thoughts and prayers. I love all of you. May you all be
blessed today.
faith and hope,
Sandy
October 20, 2001
05:14 AM
Good Morning Everyone! Sandy, I hope you found rest last night. I made it until 4:30 this morning. Caz, would you bottle
some of that sleepy stuff and send it my way. LOL!
OK, I know from visiting here that food and grandchildren seems to be the hottest topics. Well, I don't have any grandkids
yet, but I can cook and I can repair stuff.
I think that today feels like a peanut butter cookie day.... Who has the best recipe?
Tenacity
But for the grace of God, go I!
October 19, 2001
10:59 PM
I love you Caz!
faith and hope,
Sandy
October 19, 2001
08:50 PM
ewwwwwwww 10 day old dishwater. I hate it when somethng soaks overnight. Sandy I feel so bad for all of you that can't
sleep. I, on the other hand am the complete opposite. I fell asleep last night at 7, woke up at 1030, took my meds, put on pj's
and slept til 5:30 this a.m. Laid down with grandson this afternoon and slept an hour and right now it's not even 8 and feel I
could sleep. But I'm baby sitting Brendon and promised I'd watch a movie with him. We did sped some time outside today as
was a beautiful fall day. Will do some crocheting as I watch the movie. Right now I'm doing some filet crocheting over
colored christmas balls. Very pretty. I'm of to watch a movie. Hope you all get some rest tonight. God Bless!!!!! CAZ
October 19, 2001
08:22 PM
God Bless You Tenacity!! I will add you now to my yahoo friends' list.
faith and hope,
Sandy
October 19, 2001
08:15 PM
Oh Sandy, how I feel for you! I hope that the day brought you some relief or at least enough exhaustion from all of the
exercise that you will be blessed with sleep tonight.
MAJOR ANNOUNCEMENT: I slept last night! LOL!
OK, here is a dumb question... Where can I find all of you online when I wake in the middle of the night? You can find me on
Yahoo instant messanger with the username of tenacitywins2. Funny, I was also tenacitywins but I lost the password and
nerver could recover it.
I found a site online that may be of interest to ya'll. http://www.sfn.org/briefings/ I ran across it during my search to find out
more about what I can do to fight my Multiple Systems Atrophy.
Well, I wish everyone here on Parkie Porch a restful evening and am sending each of you a great big hug.
Tenacity
But for the Grace of God, go I!
October 19, 2001
01:01 PM
Short but sweet.....I feel like 10-day-old dishwater today. Another day of dyskinesia from hell. Would really appreciate your
prayers....from my heart...hope and faith, Sandy
October 18, 2001
04:33 PM
Hi Sandy, Carolyn, Caz, Tenacity, Toadie and parkie porch friends,
I seem to be joining the club in the lack of sleep department. I have been waking up really early (sometimes 3:00 a.m.)
feeling stiff and sore. This morning I was up around six, so made coffee and sat in the living room. I heard a faint meow from
outside and discovered 'Sterling' my outdoor stray cat was also up and about and wanting his breakfast. So I fed him, and
about half an hour later the racoon came by to see if Sterling had left any crumbs (he doesn't usually). I love watching the
wildlife early in the morning, but my friend Lillian says, "Pauline, you have to get a life!". lol
Well, my dears, I had better go, I'm making sweet & sour meatballs with rice and corn for supper.
God bless you all. Pauline
October 18, 2001
06:53 AM
Almost 7:00 in the morning....rise and shine....nope I have not been asleep or even to bed. It is my prayer today that you all
have a blessed day. Pamper yourselves. Stop and smell the flowers along the way. I will be thinking of all of you....
faith and hope,
Sandy
October 18, 2001
03:56 AM
Good early early morning,
I have not been to bed yet. I have been doing the encouragers and crocheting. It has been just one of those nights. I have been
watching Home Shopping Network. The hosts on the show are really nice. Eventhough I can't buy anything their hosts have
been keeping me company. Now I bet you are calling me strange.....oh well...
faith and hope,
Sandy
October 17, 2001
09:57 PM
It is so good to hear that your PD feet are on the move. Fabric store of delight huh? WOW sounds like you got some deals. I
wish I could sew ...but I believe I will just stick with my crocheting. I don't believe I have it in me to even begin to sew. I
admire those of you that can. All of you do it so beautifully too. Talent ...so much talent. Aren't we blessed?
I hope you rest well tonight Carolyn. Enjoy the rest of your trip. Be careful and God Bless you.
faith and hope,
Sandy
October 17, 2001
09:47 PM
Hello Everyone,
These PD feet were on the move again. Back in Florida tonight. Stopped at a discount fabric store luvstosew that you would
have loved to see. The tapestries were gorgeous and reasonable. I went home with four Robert Allen samples that each are
big enough to recover a dining room chair - and the ends are already serged. Now that is a bargain!
Keep in touch everyone Im shoving off to dreamland soon.
Joy be with you in your dreams,
Love Carolyn
October 17, 2001
12:49 PM
Caz,
I cannot begin to express the joy reading about your grandson brings me. He is a hoot. Sounds like he gets his sunny
disposition from his grandma. Thanks girlfriend for the shared laughter, even accross the miles it means so much.
faith and hope,
Sandy
October 17, 2001
10:38 AM
Well, I am still laughing at my grandson. His mom left for work this morning while he was still sleeping. I heard him come
down the steps and as he came out of hall I looked up. there he was standing with orange sun glasses on and a big grin.
Yesterday his mom had an eye appointment and Brendon said his eyes weren't working right either and when I asked him
what was wrong he ssid "Well, they open and shut all the time" He is off to daycare right now. what a joy he is. I'm going to
do some sewing and crocheting today. Hope you all have a good day. God Bless. Caz
October 17, 2001
08:53 AM
Just a note to say Hello! to my dear friends,and to let you know I've been thinking of ya. Take care, rest well and in comfort,
toadie
October 17, 2001
05:20 AM
Good Morning,
The depictions of the children brings a smile to my face. Children are such a joy. I am very thankful that you come to the
Porch to talk about them. I am half awake this morning and I am considering going back to bed. I do not seem to be thinking
too clearly this early morning.
I wanted to make a suggestion to Tenacity about your hubby. On the PLWP Neighborhood Home Page you will see over to
the left the list of topics. One of them is titled Carepartners. This Team may possibly be able to help your hubby get his feet
planted. The carepartners are very special. You have Virginia aka Bella, then there is Carl McLeod, and Chris Hall, and Ron
Hager. They all are or have been in the same position your hubby is in Tenacity. I hope this suggestion helps. It cannot hurt to
e-mail them and see what they can do to help support hubby and encourage him.
Well gang ...I am gonna give it up and go back to bed. Who knows I might get a pleasant surprise and catch a little nap. May
all of you have a blessed day, with no pain and aggravation from the PD. We can hope can't we?
Luvstosew....yooooooohoooooooo......how is the hand feeling? We love you honey and are continuing to pray and think
positive thoughts for you and yours.
faith and hope,
Sandy
October 16, 2001
11:28 PM
Hello everyone;
Sandy thanks for your CD suggestion. I appreciate it.
Today I was rewarded by my special nephew with a wide smile and good morning. That was a joy I'll remember because
this doesnt happen often. I helped feed him, one spoonful for grandma.....and in a flash he was done. Then helped him get
dressed and he was way ahead of his normal schedule for school much to his mom's surprise. We even played a game
together after school where he tried his darnest to cheat. It was too funny. Helped sis in law with cleaning window blinds
and hanging curtains. We looked at some used houses with a realtor in the p.m.. Hubby indulged me with some antiqueing and
I found out the tea cups I told you about the other day are worth 20 - 30 dollars and I paid $12.50 Already a good investment.
Bought a Monet pin at an affordable $2.00 Last of the big spenders here.
Glad to be of help here but its time to go back to Florida tomorrow. Too cold here, he he only about 75 today.
Tenacity my husband has the same difficulty understanding. I think its the hardest thing for him to cope with. I sew, read,
search the web, etc.........
Joy be in your heart
Love Carolyn
October 15, 2001
11:08 PM
OK Sandy if this is long its because you asked about grandson. lol He thinks every party is a surprise party so when guests
arrived he insisted they yell surprise. And of course he loved the dessert table. I think that's all he ate---had a little sugar rush
going til 10:30 when Grandma said she had it and since his mom was having a good time yet I took him to bed with me. He
did make it up for Sunday School and sang in church. They sang "Jesus loves the little children" Of course being a boy he
stood there with his hands in his pants. Him and I then spent the rest of Sn together while the rest went to the Packer game.
While he watched videos I did some crocheting and for supper we had leftovers. Oh yeah we had the same thing tonight. lol
Maybe tomorrow I'll add something to it or make sloppy joes into chile with homemade bread. I did send all the dessert with
college daugter except for some cake which is delicious. Well since I'm one of the sleepy lucky ones I'm off to bed. Hope you
all get some sleep. God Bless!!!!!Caz
October 15, 2001
09:23 PM
Brownies.... Ummmmm. Send me a cyber one. I usually reserve my brownie making for 2 A.M. insomnia rounds.
I am one of those parkies that does not sleep. I usually get about 4 hours, sometimes 5 a night. This is really difficult for my
new husband to adapt to. He goes to sleep before me and wakes up after me. He could use some support letters from other
parkie partners so that he can have someone to identify with. He is trying to ajust though. Over coffee each morning, I read
him the posts from here, mgh and a couple of other sites.
Carolyn, my suggestion after your day is A BUBBLE BATH! Get some rest tonight.
Tenacity
But for the grace of God, go I!
October 15, 2001
08:38 PM
Just to tease anyone.....or I could just say come on over...I am baking homemade Brownies......yummmmmmmm
yummmmmmmmm!
Sylv, yes it will have all of the extras on them...just for you my friend! OOH they smell soooooo deeeeeliiccccious!
faith and hope and munchies too,
Sandy
October 15, 2001
08:35 PM
Hello again Carolyn,
My favorite of all CD's is the LIVE WORSHIP FROM HILLSONGS AUSTRALIA "All Things Are Possible"
The songs listed on the CD are: 1.All Things are Possible 2. Shelter House 3. People Get Free 4. Love You So Much 5. I
Live To Know You 6. In Your Hands 7. Lord Of All 8. Before The Throne 9. Can't Stop Talking 10. The Love Of God Can
Do 11. I Know It 12. Glory To The King 13. Your Love 14. So You Would Come 15.All Things Are Possible (Reprise)
That is all for now Carolyn. God Bless everyone.....
faith and hope,
Sandy
October 15, 2001
08:14 PM
Hello my dear friends;
Its been a physically and mentally exhausting day. I don't know how sis in law does it. Her autistic son has therapy right after
school till dinner, then its a battle to eat the dinner, then its running off a little steam, onto baths, then bed. And the cycle
begins again. I tried to help with baths and baby but I know it was only a little shovel in a mountain of work. We took the
kids for a walk along the Savannah River in downtown Augusta. It was a weather perfect day. Praise God if your children
and healthy. I feel overwhelmed here. I even took a time out for ten minutes by myself outside and stared at the night sky
asking the good Lord why. Stimulation overload I guess for me. Thanks to everyone for your prayers.
Caz I am glad your party went so well, it sounds wonderful. With all the food sounds like you were expecting all of PLWP.
Now that sounds pretty good too doesn't it.
Since we have fans of spiritual music out there, would anyone like to list their favorite titles. I'd like to add a few more to my
collection.
Well good night all and God Bless.
Joy to all and God Bless everyone.
Love, Carolyn
October 15, 2001
06:34 PM
Hello to you Caz and Pauline,
Sounds like the two of you are staying busy. I am glad to hear, Caz, that your hubby's retirement party went well. Maybe you
can get back to some sewing and crafting. I am so very thankful Caz that your sleep is not disturbed by the PD. My heart goes
out to anyone who battles insomnia. You know that is an answer I don't know. I will have to ask my neuro next week why
some of us battle insomnia so badly.
Pauline, "exercise" is a double four-letter word. I know exactly what you mean about the Praise music. I have a lot praise
CD's that I pop in the computer and listen to. It is a good thing to lift the spirit as well as the body. I know when my body,
mind, and spirit is in one accord the Pd is not nearly as troublesome. I will be looking forward to seeing your post thursday.
Caz, how is that adorable grandson? Since you unplugged your chair did everything else survive? I love your visually
descriptive posts. I love ya girl.
faith and hope,
Sandy
October 15, 2001
06:08 PM
Hi Sandy and parkie porch friends,
I was at my Parkinson's support group meeting this morning - what a great bunch they are. We even did some exercises for a
while. Some of you already know my thoughts on that: "Whenever I feel like exercising, I just lie down until the feeling goes
away!" (just joking) I love exercising to praise music, that way I lift my spirits at the same time.
I'm off to the dentist tomorrow at 2 p.m. (just for cleaning and scraping - uggh!).
Bye for now, I'll post again on Thursday.
God Bless everyone. Pauline
October 15, 2001
04:58 PM
Hi all you wonderful Parkie Parch Pals. Well hubby's retirement party is over with so I can now relax. We had it here at the
house in the garage this past Sat. Had over 100 people here and of course I always cook way too much so we can now serve
another 100. lol Actually, college daughter took enough home to feed a dorm. And we still have enough so I don't need to
cook for a few days. One of my sisters did come 2 days last week to help me clean and prepare food so I thank God for her.
It was a very nice party except it rained so kids were running through the house and they thougt my electric chair was a fair
ride til I unplugged it. (I"m so mean) lol Another nice thing is the garage finally got cleaned. YIPPEE Now on to PD. Why do
some have trouble sleeping and others not? I sleep at least 8 hours at night and take a 2 hour nap in the afternoon most days.
Carolyn the little baby is indeed in my prayers along with the mom and autistic child and you. Dianne hope you are doing
well along with the rest of the Porch. God Bless you all. Caz
October 15, 2001
10:15 AM
Absolutely Carolyn, you can count on the prayers going up for the sick little baby. We serve an awesome God.
Thanks again for the words of encouragement Carolyn. I gotta get busy here. Hmmmm, what to do first.
faith and hope,
Sandy
October 15, 2001
05:54 AM
Hi all; Thought I'd share some thoughts about the porch with all of you. The choir at church sang Christ is in this room =
which reminded me that Jesus is with us at all times together on this porch. Sitting back with us and giving us the spirit to
know who needs encouragement the most and the gift of tongues to say just the right thing. Something to think
about........awesome isn't it.
Wish neuro's could figure out why we can sleep longe.....
In GA right now. Just tried to help sis in law with sick baby who has an ear infection. Pray for her and her family. Her 6 year
old son is Autistic and this family sure could use a few extra prayers.
Going back to bed now. Maybe to an antique store later.........
Take care my friends
Joy be in your heart today and always,
Love Carolyn
October 15, 2001
02:15 AM
Hello dear family and friends,
It is a little after 2:00 am Monday morning. Is anyone up with me? I am beginning to be aggravated with the inability to sleep.
I never think about it during the day. But then the night creeps up on me and my eyelids are stuck open. I believe I am gonna
get in touch with my neuro today. My "to-do" list is getting longer and longer for this monday the 15th of October. You would
think looking at the rocking chair at the top of the post screen would hypnotize me and put me to sleep. Hohum no such luck.
Counting sheep? Hmmmmm.....Maybe I will bump into one of you night owls passing like two ships in the night. Rest easy,
God Bless You.
faith and hope,
Sandy
October 14, 2001
01:54 PM
Dummy me....Tenacity the person asking for your mailing address is Sandy. I was dyskinetic and hit "enter" before I had
completed my post. I hope you are well today.
faith and hope,
Sandy
October 14, 2001
01:14 PM
Tenacity,
It is good to see you back. I have a question for you. Could I please have your snail mail address? If you could e-mail me
your address, I would appreciate it.
sassypwp@statesville.net
October 14, 2001
12:30 PM
Sandy,
I hope today is much better for you than yesterday. You are so correct about attitude. I don't remember where I saw it but I
read something about attitude somewhere else today also. Hummm, wonder if reading this in two different places means
something.
I guess my attitude has not been as good as it could be lately. I am so tired of hurting and complaining. I guess that I have
been spending too much time as of late, wishing that I could have a day in which I could say that I don't feel my body... the
stiffness, the aches, the unsteadyness, etc.
Well yesterday, I got my wish. I had a good day. It was the first time since June that I have been able to not only walk w/o a
cane or my walker, but was also able to wear heals!!! YEAH!
I am greatful to God that he gave me 15 minutes, so to speak, off of the PD merry-go-round. Anyway, have a blessed day and
thanks for the warm welcome.
Tenacity
October 14, 2001
07:43 AM
Rise and Shine Porch family and friends. I have been up since 5:00 am. I hope everyone has had a decent night's rest. I am
looking forward to today being a better day. Yesterday was a struggle for me. I am thankful to say that I was not defeated
though. Even if today is similar to yesterday it will be okay. Yesterday's energy levels were next to none. I feel better rested
so we shall see. God is so good and kind. He has blessed my life with friends that stand faithful and true. The understanding
and acceptance and also the lack of judgement is precious beyond compare. I know the deeper I get into this walk with PD
the deeper the level of the awareness of my blessings becomes. I acknowledge what "bites" about this horrible, wretched
disease; but my strength lies in my blessings. I believe it is healthy to acknowledge the "not-so-good" aspects of PD and then
immediately look at all the positives that I have left in my life. For each negative I can find at least one or more positives.
It is my prayer today that we all will be able to count our blessings. It is simply a matter of choice. It is a free will to choose.
Can you count your blessings today?
Have a beautiful and blessed day my dear ones. Remember to keep up the fight! We are all in this thing together. One step at
a time, one moment at a time.
faith and hope,
Sandy
October 13, 2001
10:56 AM
I am sorry to have missed you Carolyn. My body surprised me and I was gently snoozing. It was not a deep sleep; but I
rested. I hope you were finally able to rest. During the hours that I am awake I am either crocheting or doing the Parkie
Encouragers and of course watching the news about the war. Prayer...Prayer....Prayer is the best thing I can do to support our
nation and military men and women.
Carolyn, I thank you for posting your cheery post. I love the way you sign-off speaking of joy. Being joyful does not allow
room for the negatives the PD can bring to us. You take care and have a blessed day my friend.
faith and hope,
Sandy
October 13, 2001
05:04 AM
Greetings from the Night Owl
Dave congratulations on the newest addition to your family. Be sure to send us all a picture when you are able. What a
wonderful blessing to an already beautiful family.
Speaking of rockers, mom in law Gambino gave me my husband's for our children. (pee wee size). They were never big on
rockers but Grandson Jake is. Except he rocks rather unusually. Sits backward and slips legs thru back of chair for move
leverage. It works!!! lol But it too is an antique. 50+ years/ So we will pass on to another generaion.
There is a hoax email going around about staying out of malls on 10/31. If you receive such email see the following URL
http://urbanlegends.about.com/library/blxterror.htm.
If anyone else is up I'll be around for awhile. Take care my loving family.
Joy be with you all today, Love Carolyn
October 12, 2001
04:48 PM
Hello again,
Well my Southwestern Soup is finished. I will be baking homemade cornbread later. Sweet cornbread.
It is good to see you Dave. Yes a new baby can add alot of love and life to a person's life. Big baby boy!
I have not been watching much football. I am watching baseball. After baseball season I will probably start watching hockey.
So, how are the dolphins doing so far?
Thanks for stopping by Dave. It is always good to see you and hear that you are continuing to put one foot in front of the other
and keep on fighting the PD challenges that we are faced with daily.
Take care...and God Bless!
faith and hope,
Sandy
October 12, 2001
03:56 PM
Hey Sandy, how have you been? Been a busy little camper myself.....new boy added to the family Izack Brady Cox born
08/28/01. Best birthday I have had in a long time (08/29). How bout those Dolphins !!!! shakeedave
October 12, 2001
03:30 PM
Good to see you Carolyn. HHMMMMMMMM....antiquing and collecting tea cups. I don't collect anything but I do love old
furniture. I don't know a hill of beans about it but I think old furniture is classic.
It is good to hear you are doing as you wish while in Florida. Mom Gambino sounds nice.
I have put on Southwestern Soup homemade from scratch. Later I will bake a cake of sweet cornbread. Anyone wish to come
over? You do not have to put on glad rags or anything such as that. Just come as you are....gotta go and check soup...love ya
Carolyn,.....come on Diane ...how is that hand today?
faith and hope,
Sandy
October 12, 2001
03:30 PM
Hi Sandy and parkie porch friends,
I'm pleased to hear luvstosew is recovering from her operation. I will keep her in my prayers.
Carolyn, sounds like you are having a good vacation - I have a few china cups that I've collected over the years, including a
tiny one with forgetmeknots on it that I purchased in Alaska.
Hi Tenacity - I'm your neighbor to the very far north (B.C. Canada). It's raining heavily today, so I'm watching CNN, having a
cup of tea and relaxing a bit.
Sandy, I've caught your charlie horses and insomnia, but until I update my own computer, I can't talk to you in the middle of
the night without driving over to Michaela's place. (I'm still using Windows 3.1 at my house, as I'm scared I won't be able to
learn the new programs.)
Keep safe everyone, and have a great weekend.
God Bless, Pauline
October 12, 2001
02:19 PM
Greetings;
Well I discovered something new that I like. Shopping and looking at antiques and even purchasing a few. I found wonderful
teacups, says made in Japan, green and white mother of pearl and made in Japan. Looks to be before WWII. Anyone else
collect tea cups let me know. I've got about five now.
Also found some dessert dishes. Only 4.50 each nothing really unusual, just heavy glass with a repeating swirl.
Also discovered a doll that I have at home is worth about $50. Not bad huh.
Mom Gambino and I had lunch and a pleasant afternoon.
The days are just passing so quickly but its nice to relax and do nothing if you want to.
Glad you did so well Diane in surgery. Hang in there girl. Caz how are all the pets and grandchildren. Pauline I cant wait to
chat with you. Everyone out there you're the best.
Take care and joy be with you today and peace be with us always.
Love Carolyn
October 12, 2001
01:00 PM
Hello Tenacity....yes I live near you. I live in Conover, NC. I guess I am about 45-60 minutes drive from you. I am glad you
have found your way over to the Porch. We hope you feel comfortable here and you will come sit with us and chat. Take
care....
faith and hope,
Sandy
October 12, 2001
08:54 AM
Good Morning Sandy, I too was up all night. I had the opportunity to chat with shakeedave and he told me that you live close
to me and that I should leave you a post. I just moved to Charlotte 3 weeks ago and don't know anyone anywhere around here.
Anyway, I wish you the best today.
Tenacity
October 12, 2001
06:35 AM
Good Morning Porch friends and family,
I have been up all night; but I stayed busy crocheting and doing the Lil' Parkie Encouragers. I thought I would pop in and see
if anyone was here. I know alot of people are going to be busy with the Parkie Palooza dance in Canada. I hope the dance is a
blast and raises a lot of awareness and money. Anyone that is traveling to Canada we will be remembering you in thought and
prayer for safe traveling.
I have several errands to do today. Plus I will probably go by and see my parents today. My Mom is still weak from her
hospital stay and slowly but surely she is on the mend.
I spoke with Diane (Luvstosew) last night. Her surgery went well. She was somewhat uncomfortable but doing okay. We
love you Diane.
Ok lets see....Carolyn G. how is Florida treating you? I hope you have a nice relaxing visit. Please leave a post and tell us
how things are going for you.
Well enough said for now...maybe you guys are still playing with the sandman. I say good for you!! Any sleep that we can get
is so very precious to us. Remember, don't give up....keep up the fight...we are all in this together! Love you all dearly, hugs!
faith and hope,
Sandy
October 11, 2001
02:47 AM
Good morning dear ones,
It 2:45 am early thursday morning. I am wide awake. All of us need to be remembering Diane (Luvstosew) today. She is
having surgery for the carpal tunnel. I surely hope this will take care of the pain and aggravation she has been experiencing.
We love you Diane. Best of thoughts and wishes to you today. Please have Mike e-mail me and let me know that you are
okay. Then I can pass it on. God Bless You!
faith and hope,
Sandy
October 10, 2001
04:39 AM
Well here it is 4:00 am on Wednesday morning. Is anyone up with me. You feel like getting together? I may not talk much. I
am in a quiet mood this morning. It is strange. I have a need to be with friends. You know; for comfort. I am in need of
assurance this morning that all my family and friends are okay. It would suit me to sit here and have a cappuccino with a
whole porch full of loved ones. We would not have to talk. The simple fact of my being able to visibly see you would
satisfied that need in me to know how you are doing, to know that you are safe, to know that you aren't suffering today, to
know that if you are hurting I could at least make contact with you and tell you that you are not alone. I need to sit and hold
hands with you. I need to look deeply into all of your eyes and read what and how you are feeling. The answers can always
be found by gazing upon someone's face and looking deep within. Please know today, that whatever it is that you are facing
or feeling, you are not alone. Let's let go of our PD uncertainties and listen to the wind in the trees. Smell the "fall" scents.
We can look at the fall colors and watch the squirrels scamper about. The squirrels will be jibber jabbering in their language
of chitter chatter.
I am thinking of all of you, hoping and praying that you "all" will be able to find the comfort that you need today. Even if you
say you don't need comfort or touch today, I pray that someone will come to you and look deeply into the windows of your
soul and make you aware that you are not alone. Compassion is the word of the day, my dear ones.
Come, let's sit and rock for awhile. Can you smell the fall scents? Can you hear the squirrels scampering about? Can you feel
the passion that beats deeply within me desiring to know that you are okay and not suffering today? I am here praying for all
of you.... Praying for your peace and comfort today.....Praying for your happiness....Praying for contentment to be yours today.
Please take the time today to know that you are cared for and thought about. Be well my friends. Keep up the fight. Please
remember that we are all in this together!
faith and hope,
Sandy
October 10, 2001
12:34 AM
October 10, 2001
12:33 AM
I note comments from Sylvia and Sue that you tried Mirapex and have had trouble with it. I had the problems when I first
tried it and gave up on it. Then, my doc asked me to try it again several months later and I was, then, able to tolerate it. I am
now up to 4.5. If you are able to tolerate it, be sure that as soon as you are up to the max dosage that your script is for the
larger dosage, as they will charge you the same for the small dosage as they do the large. I was taking nine .5 a day and
paying three times as much as for the one 4.5 per day. Maybe this is a well known practice, but this was my first encounter
with it. Shuey.
October 10, 2001
12:23 AM
October 10, 2001
12:23 AM
October 09, 2001
03:22 PM
Dear Sandy and friends,
You won't believe what I did this morning - I painted a ceramic mug! Now to ordinary folk that may sound like no big deal,
but to PDers like me, with shakey hands and sore muscles, it was an effort of monumental proportions - but I loved it. My
daughter had invited me to one of our local churches where women meet every Tuesday morning for coffee and crafts from
9-11 a.m. We both had a blast!
Luvstosew, I am sorry to hear about your health challenges of late. Please know that you are in my prayers, and I don't want
you to worry about a thing - just rest and relax as much as possible. I hope the wrist operation goes OK. I had a lot of
problems with my right wrist when I was working, but it seems to be OK now. I still get a lot of pain between my shoulder
blades and my family say I am becoming more stopped (I mean stooped). lol
Sandy, I just wish I could come over and make a nice cup of tea for you and maybe bring some goodies from the Europa
Bakery, which is just down the street from me. May the lord cradle you in his arms and bring you peace and rest.
Funny story: Want to know the real difference between a dog and a cat? When you go to bed at night a dog will sleep on your
feet because it loves YOU! A cat will sleep on your feet at night because it loves your BED!
Take care my friends, we are all lifelines for each other. God Bless. Pauline
October 09, 2001
03:18 PM
Dear Sandy and friends,
You won't believe what I did this morning - I painted a ceramic mug! Now to ordinary folk that may sound like no big deal,
but to PDers like me, with shakey hands and sore muscles, it was an effort of monumental proportions - but I loved it. My
daughter had invited me to one of our local churches where women meet every Tuesday morning for coffee and crafts from
9-11 a.m. We both had a blast!
Luvstosew, I am sorry to hear about your health challenges of late. Please know that you are in my prayers, and I don't want
you to worry about a thing - just rest and relax as much as possible. I hope the wrist operation goes OK. I had a lot of
problems with my right wrist when I was working, but it seems to be OK now. I still get a lot of pain between my shoulder
blades and my family say I am becoming more stopped (I mean stooped). lol
Sandy, I just wish I could come over and make a nice cup of tea for you and maybe bring some goodies from the Europa
Bakery, which is just down the street from me. May the lord cradle you in his arms and bring you peace and rest.
Funny story: Want to know the real difference between a dog and a cat? When you go to bed at night a dog will sleep on your
feet because it loves YOU! A car will sleep on your feet at night because it loves your BED!
Take care my friends, we are all lifelines for each other. God Bless. Pauline
October 09, 2001
11:53 AM
Greetings from sunny Florida;
This post is especially for you my dear because your thoughts reflect mine so well and you said it so perfectly. For
depression I am on Effexor. I've been on it for about 6 weeks and did not realize how depressed I had become. I can now
laugh again, crack jokes and relax in general.
Your right about God being with us. He's always there behind, under, in front, of us doing what is necessary to get through
this temporary life.
If your pc has been down, please go to MGH and read the thread I started about the positives of PD. I am not Pollyanna but I
can tell you I was smiling from ear to ear when I read the posts from fellow parkies. It got them to think, think about the good
in our lives. Also my column this month in Virtuality reflecting on our caregivers might be something you might like to read.
Its good to have you up and running again. I hope my post can help you out in just a little way. For right now that is my goal,
if I can make someone smile, brighten their day just a little, do something nice for them to make their life easier, well then I
have purpose to my life and feel fulfilled. I now realize like you that a job brought in the money for bills but never can it
replace the time I have for and with others. That is a most blessed gift. When we give of ourselves, we give Christ to one
another because He lives in each believer.
Joy to you today Laura and to all my porch family.
Diane, be uplifted on the wings of your guardian angel today, Love sis
October 08, 2001
06:32 PM
Hello Laura,
I am sorry to hear of your computer difficulties. Battling the blues is a constant with PD. I am encouraged and inspired that
you refuse to give up girlfriend. I have to admire your "fight". You definitely have the right attitude. I have been struggling
myself today. I have felt like a dark cloud has been following me all day. Like you, my faith always gets me through though.
(and of course very close friends) Counting our blessings and knowing that God has a perfect plan for us helps. I get stubborn
though and when God's little shove comes I realize I did not have to make things so tough for myself.
I have not been able to put my finger on the why's and the therefores of these blues. I thank you Laura for posting. Your insight
and open honesty is always like a breath of fresh air.It is wonderful to see you here sitting and rockin' with us. Please keep
posting.
I gotta check on supper .....love you girl and God Bless You!
faith and hope,
Sandy
October 08, 2001
11:06 AM
Hi All. 78harley here.. aka Laura...
I have twice had to reload my entire computer due to the two viruses that crashed it.. so, I have been quite out of touch with
everything.. including the porch.. missed it here, I must say..
Have been struggling with pd depression quite a bit.. God has been kind, He lets me wallow in pity, pops me on the head and
says.. "Hey! Look around you! See what you have? Feel blessed!I am with you, and will never let you fall!" And, He
doesnt..He is always there, holding me, even when I am doin the "poor me" boo hoos.
I have so much to be thankful for. Pd is hard, yes.. but, when I sit and think about it, I wonder what my life would have been
like with out it.. I had to quit working 10 years ago.. before that, I never saw my family, I was a workaholic..When I did, I
was too tired to really give them the quality time that they desperatly needed, and deserved..Now, because of pd.. I cannot
work, but I spend time with my family.
I also used to really resent housework.. I mean I HATED it!!! I would clean with a bitterness that was unhealthy.. "Why
should I be the only one cleaning?" i used to say... "Just because I am the mother, and the wife? I hate cleaning too, but I have
to do it cuz nobody else will!" Well, as pd progresses, I am happy to clean. Why? Because I can. Tomorrow, next week,
maybe next year.. I may not be able to...
I have had to change the way I do things since pd has become a factor. Too me, this is not as bad as to some. I call it
re-inventing myself. It is a challenge, to be sure.. I cannot eat much protein now, but since I love to cook, it have given me
opportunity to learn what wonders vegetarian cooking can offer. And, it is so much healthier. Being a meat lover, I never
thought I would give up my steaks.. but, due to pd..
It is difficult to feel sunny with this disease.. my poor hubby has had to learn to duck when I let out frustration by throwing
objects his direction. (Lately, there are only light ones such as pillows in my computer area where alot of frustration is spent)
It is important, almost a necessity, that those of us with pd try to remember that life is not all bad..
God is with you,, He only has GOOD things in store for you.. That doesnt mean pd is good, but maybe if you look hard,
something good has come as a result of having pd...
take care.. Laura
October 07, 2001
09:26 PM
NON-STOP PRAYERS ARE GOING UP DIANE!! WE LOVE YOU! JUST TAKE CARE OF YOU HONEY!
faith and hope,
Sandy
October 07, 2001
09:11 PM
Hi everyone! Goodness it seems like such a long time since visiting on the porch. I MISS you all tremendously! Been
working many hours, too many, still can't see the light at the end of the tunnel. We are expecting STATE any moment. There
just aren't enough hours in the day. Been feeling lousy lately, think I'm falling apart. Started back to chiropractor last
Wednesday and already feel better. Hip waas out of whack and knee still giving me problems. Been using a cane now for
over a month. Going to see a different orthopedic doc on Wednesday. Guess I'm scared of knee surgery. I am having the
carpal tunnel surgery on left hand this Thursday. I hear its nothing but to be hoest I am nervous about it. I went off of one of
my main PD meds to start taking Zoloft and haven't started it yet. But think i may have made a mistake cause I'm moving at a
snail's pace these days and not my normal self. Also doc had changed me to the time release sinemet and not sure if that is
working right. Guess I just need your prayers guys. I'm too young to be falling apart. It may be the stress at work too. I love
the job if I could ever catch up. Sorry to have laid all this on you guys. I just need your prayers right now. I'm not used to
physically feeling like this. I have prided myself in being able to handle my PD but all these other things are what's getting to
me. I thought I could tackle the world and accomplish most anything, well i burst my own bubble. It is hard to accept one's
limitations or atleast it is for me. Never thought I would be asking for support. But I am so thankful for you guys. You have all
touched my life in so many ways. Thanks for listening to me whine. I love you all. And life is good and things are getting
better. The chiropractor is also working on my knee and it is helping. I got some rest this weekend and that has been a
blessing. I will write again and on a more positive note, I promise. I just needed to share from the gut today. Luvstosew
October 07, 2001
01:47 PM
so true chosh ....so true...
faith and hope,
Sandy
October 07, 2001
01:16 PM
Sandy: While researching quotes I came across these that made me think of your day.
Only he who has seen better days and lives to see better days again knows their full value.
- Mark Twain Notebook, 1902
Oh Death where is thy sting! It has none. But life has. - Notebook, 1894
Life: we laugh and laugh, then cry and cry, then feebler laugh, then die. - Notebook, 1898; also More Maxims of Mark,
Johnson, 1927
October 07, 2001
08:43 AM
Hi Sandy,
It sounds like you had quite a day. Why don't you come over here and we'll sit and listen to a new day starting for a while.
It's a cold, damp, murky kind of day here, the sky is gray and overcast.
But we can make it a bright sunny day just for you.The leaves are changing their colors to a flouresent mix of reds, yellows,
greens, and vivid golds.
Can you feel how warm the sun is?
If you look close, you can see a tiny little humming bird buzzing around the brightly colored flowers.
There, can you hear the other birds? Tiny peeping finches, chickadees, wrens, and blue jays squawking.
Squirrels barking at each other as they romp through the branches of towering maples.
Chipmunks chattering as they steal dog food and stuff it into the exhaust pipe of Johnny's Harley. When he cranks it up, black
smut covered dog food blasts out of it hiding place. Can you hear that roar? You can watch the bike's engine vibrate in the
motorcycle's frame with a boom-chaka laka-laka-boom-chakalaka-boom.
I hope today, is a better day hon,
love toadie
October 06, 2001
10:01 PM
Hello Porch family and friends,
I knew when I put my feet on the floor at 5:00 this morning that it was gonna be "just one of those days". The day has gone in
a whirlwind. Several times today I have just about thrown in the towel, but I said "no! heck no! I am not giving up!" I was at
the grocery store by 7 a.m. That errand went smoothly. After coming home and resting I then proceeded to go to K-mart, what
for I have no idea! I know that may sound "kinda off the deep end" but darn it all I went to K-mart twice and the Dollar
General Store once and I have not figured out what I needed yet. Are we having fun yet? Well....then I had the dyskinesia 4
times today. Does anyone feel like playing connect the dots of bruises on my body? Yes I am laughing....hilariously.....Oh
then.....I get the bright idea to vacuum! I had to. YES HAD TO. I broke a dessert plate of my Grandmother's china. Then
realizing I didn't even have dessert I cried until I laughed. I laughed that I did not think to take all the trash to the dumpster at
one time. I have three trash cans....you got it....I made three trips....I laughed because my bedroom looks like a cyclone has
been through it because I changed clothes three times today due to the sweats from the dyskinesia. Clothes thrown
everywhere. You try changing clothes with arms and legs going every-which-a-way! I did get my bed made today with clean
linen. Then I found myself laughing again because I made myself a nice cold (plastic) cup of pepsi and could not find it. I
went looking for it and found it sitting in the bathroom sink. You tell me! I have dropped stuff, I know, 50 blue-million times
today. I looked at that positively though; I thought of all the calories I burned by bending over and picking stuff up off the
floor. Even though I wanted to crawl back in the bed today, I am glad I didn't. I would have missed out on the laughter.
Imagine what my neighbors think! It is cool here today, I leave here three times today. All three times I have on different
outfits. I am gone long enough for who knows what....wink and grin....plus I am all sweaty when I get back then I end up
taking out the trash on three separate trips. I think I gave new meaning to the phrase "Let's give 'em something to talk about."
I love you guys....remember we get up tomorrow and do it again! God Bless.....
faith and hope,
Sandy
October 06, 2001
01:13 AM
Dear Sandy and Parkie Porch Family,
It's my daughter & husband's 10th wedding anniversary today, so I volunteered to do an evening childcare instead of the usual
afternoon, so they could go out for a nice relaxing dinner and movie. With Hayley, step-sister Megan, and the pets, Candy,
nibbles, cinder and smokey, I have my hands full. I sure wish I had the energy from days gone by.
It's been a good week though, I had a lovely letter from the Canadian Parkinson's Association today. I had asked them for
some info to put at the back of the book. I sent them a copy of the foreword, and this is what they replied:
"Would it be possible for you to send us a review copy of your book when it's published? We would like to include it in our
data base of resources available to people affected by Parkinson's. Thanks very much. Good luck with the launch of your
book."
Please forgive me for rambling on, but I am so excited by this letter. The exposure will be an incredible asset. (I just had to
tell you all about it). I was quite shaky this afternoon, but have calmed down now.
I hope everyone has a peaceful and blessed thanksgiving weekend. God bless. Pauline.
October 05, 2001
11:17 PM
Greetings from Florida:
Yes, I made it safe and sound. After about five minutes in the air I settled down and actually dozed off a bit and left my fear
of flying to God. He's better at it than I am.
My neuro keeps tweaking those meds. Sinemet is now every 3 hrs and the Comton and Mirapex is every 4. I volunteered for a
drug study on short term memory loss but I still dont know if I made the right decision. Im taking many meds already and am
teeter tottering now on this issue.
Its blissfully warm here and I hope my bones respond kindly for the next few weeks.
HAPPY BIRTHDAY DEAR SYLVIA..........YOU'RE ONE GREAT LADY.
Hope to chat with all of you soon.
Joy to you as you watch that wonderful moon rise. Love Carolyn
October 05, 2001
05:51 AM
I keep posting but nothing seems to go through. I hope this makes it because if it doesn't I don't know what to try next.
LVParkie(Sara)
October 05, 2001
05:37 AM
Hi Sandy and everyone on the Parkie Porch. I posted but I don't think it went through. Sandy, I wish I had known you were in
Vegas. I would have loved to met you and offered you the hospitality of my home while you were in town. It has been quite a
while since I was here last and boy has the Porch ever got a great new look! Sandy, the last time I posted you asked for my
e-mail address. Unfortuantely I never got a chance to give it to you. It is LVParkie@vegasvalley.com. So much has happened
since I last posted and I would really welcome a chance to talk with you. I look forward to spending time on the "Porch" with
you and all the other great people here.
Hugs to all, LVParkie (Sara)
October 05, 2001
05:22 AM
Hi Sandy and everybody! It has been quite a while since I was here last. Lot of things have happened, some good, some not
so good. Oh Sandy, I sure wish I had known that you were here in Vegas. I would have loved to have met you while you were
here. And I sure would have loved to have offered you the hospitality of my home or whatever else you might have needed
during your stay.
Sue and Sylvia, I am so sorry to hear that you weren't able to take Mirapex. I was on 1mg 3 times a day along with Sinemet
CR 25/100 2 times a day. It was like a miracle drug for me. Unfortunately my insurance would not pay for the Mirapex and it
was costing me about $180/mo. Once I retired I couldn't afford it any more, so I am just on Sinemet now.
It is good to be back and I plan on spending time on the "Porch" again.
Hugs to you all LVParkie (Sara)
October 04, 2001
09:47 PM
9:45 pm Thursday evening
Please forgive me for being scarce today. I have battled dyskinesia from hell today, all day long. I just got in from the grocery
store and I will be dog gone if I don't have the dyskinesia again. I have some eggrolls in the oven and I am watching the
Atlanta Braves play ball.
Did anyone notice when the moon started rising this evening it was a bright orange? It was beautiful.
Carolyn G. what did your neuro say today? I hope everything is peachy. Let us know please.
I hope everyone rests well tonight. I love yall.
Faith and hope,
Sandy
October 04, 2001
01:33 AM
My neuro has me on B12 He had me do a Shillings test when I was 1st dx'd and found I was deficient in B12 which can lead
toParesthesias-most often in fingers and toes. The most common symptom of vitamin B12 deficiency. Diminished vibratory
sense Gait ataxia Increases deep tendon reflexes Memory loss Personality change Orthostatic hypotension Caz
October 03, 2001
09:11 PM
Hello Everyone;
Luvstosew I'm thinking about you and hoping life gets smoother.
Pauline you may be on to something re: Vitamin B. A few years before my diagnosis I was told to take extra B and it made
me feel jumpier, more anxious. Its worth further investigation.
I've been very tired the last few days but a nap around my house has been impossible. Just a busy house with people in and
out.
Take care everyone Joy be with all of you, Carolyn
October 03, 2001
04:32 PM
Hi Sandy, Carolyn, Luvstosew, Sylvia, Caz and parky porch friends.
It's a beautiful sunny day and I'm feeling quite good today. I was visiting a girlfriend yesterday and she showed me a nutrition
book, which had a page on Parkinson's disease. This particular doctor thinks PD could have its roots in malnutrition. I know I
had a lot of illness as a child and my brother says I was very frail following the bout of whooping cough I had at five years
old. Has anyone else ever heard of this?
This book also said to stay away from Vitamin B because it interferes with the Sinemet. I recommends the following foods be
eaten ONLY in moderation: bananas, beef, liver, whole grains, oatmeal, etc. because they contain vitamin B. I always
wondered why oatmeal tends to give me the blues (bananas too) now I know.
Luvstosew, please take care - you are in my prayers. God Bless. Pauline
October 03, 2001
11:50 AM
Well it is day 3 of clouds and the old threat of rain...20%...and i am loving every minute of opening up the house, putsing in
the yard, and eventually reading by the pool. THis confirmed desert lizard admits that it is a nice change of pace. Sitting here
listening to the outside world while the pups are trying ot be brave starts me wondering. These pups are full grown and are
not much bigger than a large cat, which is why the birds dive bomb them. Yet inspite of the pecks on the head they continue to
not let the birds rule their life. They continue to do what they can ot enjoy themselves in their world all the while making sure
that i am still close by to share in the fun! We cna all take heed of the life of pups....enjoying their little piece of the world
without complaint; the spirit to keep going in spite of hte odds; the need to have others share in their pleasure adn quiet time;
but most importantly to give unconditional love. Think about it....wouldnt we all have a better life if we could remeber to
live life as they do? Phx
October 03, 2001
07:01 AM
7:00 a.m.
Dear Friends;
I received a forwarded email from someone who works in the Pentagon. I cannot share the whole message but the following
is so inspiring and positive that I wanted everyone to see this.
"The mood here is very upbeat in regard to the future. Many people here believe the country's leadership will do what needs
to be done, the right way. Please pray for them as well because they need every prayer they can get. Regardless of politics,
many of us here, and many others that I have spoken to, are very grateful that we have the President and First Lady we have at
this time. He and she seem to be very much the right people that we need now, and up to the tasks at hand and ahead. At the
risk of moving away from my belief, as an officer serving in the United States Army, that it is an inherent duty of mine to
ensure that my opinions in this general arena are not put out for public consumption, good or bad, regardless of who is in the
White House, let me leave you with a small, but true story to give you an idea of the kind of man and the kind of woman we
have in the White House right now. (I have condensed this story, so many of the details will hopefully be filled in sometime
in the future by those who were actually there.) As you may know, the President and Mrs. Bush visited the Washington Burn
Center on Friday 14 September. Among those they visited was LTC Brian Birdwell, the XO to Ms. Menig, who was badly
burned. Mrs. Bush went into Brian's room, spoke to him for about a minute, all the time as if they had been life-long
acquaintances. She then turned to Brian's wife Mel, who at this time had been at the hospital for probably 2 1/2 days, and
apparently according to Mel herself, was dirty, grimy and had blood on her shirt. Mrs. Bush hugged Mel for what Mel said
seemed like an eternity, just as if Mel were one of her closest family members. Mrs. Bush then told Brian and Mel that there
was "someone" there to see him. The President then walked in, stood by Brian's bedside, asked Brian how he was doing, told
him that he was very proud of them both and that they were his heroes. The President then saluted Brian. Now, at this point in
time, Brian is bandaged up pretty well. His hands are burned very badly as well as the back of him from the head down. His
movements were very restricted. Upon seeing the President saluting him, Brian began to slowly return the salute, taking, from
the accounts so far, about 15-20 seconds to get his hand up to his head. During all of this, 15-20 seconds, President Bush
never moved, never dropped his salute. The President dropped his salute only when Brian was finished with his, and then
gave Mel a huge hug for what also probably seemed like an eternity. No further comments. Pray for our leadership. Thank
God for what we are, have, and will be."
Joy be with you all today, Love Carolyn
October 03, 2001
03:14 AM
Hello, good mornin', and howdy,
I am in my third day without sleep. I have been up puttering around my apartment. I have crocheted, read, and worked on the
Lil' Parkie Encouragers. I was hoping that I would get some sleep because I go to my periodontist at 11:30 am today. Dr.
Brown is going to try and save my bottom teeth. Lets hope and pray that he can save them.
Caz, it sure is good to hear that you are doing so well and staying busy at that.God is truly good to us. When I am up with
insomnia like this all of my parkie friends will come to my heart and mind and I will whisper a prayer for all of you. I pray
that all of you will have a blessed day with little pain, and symptom-free. Each and every day all of you continue to bless my
heart. Your fight and determination is inspiring. If I could leave you with a smile today I would tell you that you are my
encouragement and I love you all. Thanks for continuing to be a part of my life and continuing to share with me here on the
Porch. We certainly have a lot to be thankful for. Well, I am gonna get back to my crochet and doing the Encouragers.
Remember to stop and smell the flowers today. Look for your blessings and count them.....till next time.
faith and hope,
Sandy
October 02, 2001
12:25 PM
Morning everyone. I had my yearly physical yesterday and so far so good. found out tho that I have arthritis in left knee. Not
bad enough to have bum right leg huh? will be going in for mammogram Oct 17th. Have been feeling really good. Must be our
beautiful fall weather. Have cleaned and re arranged bedroom, I made some flag pins with beads, crocheted a bit and now I
hear sewing machine calling. Hope everyone feels as good as I do. God Bless. Caz
October 02, 2001
11:36 AM
morning from sunny AZ!!! LOL the first 2 days of Oct have been cloudy and the threat of rain...all i can say is come on
down,,, my car needs a bath, the foilage is shivering in anticipation,the birds are singing and the pups are frisky!!! COuld this
mean summer is finally over? YIPPEE. Now i need ot live up to my promise ot myself...that when the weather cooled down i
would start doing some volunteer work ot keep me busy. Thinking of trying to do some work with hte local Habitat
group...duct tape by my side lol. any other suggestions of ways to keep my mind (dont even think it Caz lol) busy whiile
dealing with dyskinesia would be appreciated. Thanks for all the words of welcome as it si GREAT to be back & looking
forward ot rekindling seasoned friendships as well as beginning new ones. As if having PD isnt enough,remember it is breast
cancer awareness month...so be sure to check yourself and have your mammo done!! hugs,love, sunshine ot you all
PHX
October 02, 2001
11:13 AM
Hi! Just stopping by for that scond cup of coffee on a beautiful fall day! Hope all is well in your part of the World! ATOBarb
October 01, 2001
10:58 PM
Hey Phx, Welcome to the porch. you rock with the best of them. Love ya, Caz
October 01, 2001
07:16 PM
Hugs back at ya phx. Long time no see. I sure have missed you. Please drop by often and catch us up. Take care....
faith and hope,
Sandy
October 01, 2001
02:34 PM
Well it has been awhile since i wrote anything but am really glad that i "found" the porch. Have not felt like being social due
ot recent events but then pdrs are thee best friends ot have as they accept you as you are at any given moment. BUT i hope that
with a rock or two, sharing a drink nad talk i will be back in "control".Hugs to you all. phx
October 01, 2001
07:11 AM
Rise and shine. It is now 7:02 am Monday morning. It is already October. Can you believe it? I tell you; time sure is flying. I
only rested about an hour last night. I got up and was surprised by the Virtuality Magazine for the month of October. Lets hear
it for our Carolyn Gambino!! Wonderful, wonderful job on your broken cookies for this month. We certainly do appreciate
all of our caregivers and love them too. You know all of us here on the Porch are caregivers. We love and take care of each
other's hopes and dreams; we ease hurting hearts and we celebrate life together. It is my hope and prayer that we all have a
blessed week, one filled with joy and an ease of our PD symptoms. It is good to see you Caz. It is okay if you are a recovered
computer junkie. It is good to hear you are staying busy with living life. Hi ya Pauline...luvstosew, sue, sylvia, and all of our
other family and friends. Shakeydave, your message is too short. You need to catch us all up. What wouldn't I believe about
your crazy and hectic life? Thanks for stopping by. Oh kia, darlin, where ya keeping yourself?
Take care my dear ones....
faith and hope,
Sandy
September 30, 2001
10:59 PM
Hi everyone, Guess I'm a recovering computer junkie. It is now 9'45 p.m and this is first I've been on computer today. I
cleaned and rearranged my bedroom and did a bit of crocheting during Packer game. I think of all of you every day. Pauline,
thanks for pupppy story. It's not that I don't like animals, it's just that now we have 2 fish, 2 cats and 2 dogs. I also recently
got ew living room carpet and yup the pup has now peed on it. He's actually a very quiet puppy but being here by myself
during th day I really didn't look forward to traning him, but I admit it's not so bad. Luvstosew please take care of yourself
and know you are in my prayers. Carolyn, I'll catch you tomorrow sometime. I really enjoy our friendship and all we have in
common. Sandy, I love you. God Bless. Caz
September 30, 2001
03:48 PM
oh my goodness!!!! almost 11 thousand hits sounds like a popular gal to me...How have you been ? Me, boy if you only
knew...... You have a wonderful day ...
Shakeedave
September 30, 2001
11:43 AM
Dearest Sandy;
You have been equally missed from our lives. I find that having company, parties and overnight guests is physically
exhausting and the feeling of wanting to find a quiet corner and being all alone overcomes me. Someone told me this is due to
sensory overload. There have been times when in the midst of family get togethers that I'll just take off till the feeling passes.
Those that are close to me know this and let me go and recoup. Acceptance as we are is so important and true friends will let
us be us.
Admission to Insomniacs, Inc. in free so any time you are up at night, I'll be online. The last two days have brought me
blessed and much needed sleep.
Sis, I hope you don't mind that I give everyone an update on you. We all miss and love you and are concerned about you. You
can beat me with a wet noodle if I am out of line. So here goes... Luvstosew has taken another spill but landed softly. She is
taking care of Mike's parents this weekend and will be touching base on Monday. She will be having carpal tunnel surgery
and seeing another doctor regarding her knee. We'll all pray for her as this is truly a hard time in her life. The job hours have
been extended to 10-12 a day and she has worked Saturdys too. Sheer exhaustion.
Pauline you are the sweetest. I truly enjoy hearing from you and can't wait till you get chat set. It will be wonderful to hear
your voice.
Caz its been a few days, how are you doing girlfriend.
I did so enjoy everyone's thoughts on control. It was a good topic and got everyone to think..... If anyone is interested I started
a post on the good things we can find in our lives despite PD. I havent gotten many responses but the ones that did come in
made my day.
October's Broken Cookie column is on "Gem" cookies - which is a.k.a. my salute to our caretakers.
My family cannot understand how we have never seen or touched hands (many of us that is) and still have formed such close
bonds. Maybe this is another bright side to having a chronic illness, there is trust, compassion and love for our neighbors
mutually given through shared experiences, pain and joy.
Love Carolyn
September 30, 2001
11:40 AM
Dearest Sandy;
You have been equally missed from our lives. I find that having company, parties and overnight guests is physically
exhausting and the feeling of wanting to find a quiet corner and being all alone overcomes me. Someone told me this is due to
sensory overload. There have been times when in the midst of family get togethers that I'll just take off till the feeling passes.
Those that are close to me know this and let me go and recoup. Acceptance as we are is so important and true friends will let
us be us.
Admission to Insomniacs, Inc. in free so any time you are up at night, I'll be online. The last two days have brought me
blessed and much needed sleep.
Sis, I hope you don't mind that I give everyone an update on you. We all miss and love you and are concerned about you. You
can beat me with a wet noodle if I am out of line. So here goes... Luvstosew has taken another spill but landed softly. She is
taking care of Mike's parents this weekend and will be touching base on Monday. She will be having carpal tunnel surgery
and seeing another doctor regarding her knee. We'll all pray for her as this is truly a hard time in her life. The job hours have
been extended to 10-12 a day and she has worked Saturdys too. Sheer exhaustion.
Pauline you are the sweetest. I truly enjoy hearing from you and can't wait till you get chat set. It will be wonderful to hear
your voice.
Caz its been a few days, how are you doing girlfriend.
I did so enjoy everyone's thoughts on control. It was a good topic and got everyone to think..... If anyone is interested I started
a post on the good things we can find in our lives despite PD. I havent gotten many responses but the ones that did come in
made my day.
October's Broken Cookie column is on "Gem" cookies - which is a.k.a. my salute to our caretakers.
My family cannot understand how we have never seen or touched hands (many of us that is) and still have formed such close
bonds. Maybe this is another bright side to having a chronic illness, there is trust, compassion and love for our neighbors
mutually given through shared experiences, pain and joy.
Love Caroly
September 30, 2001
03:46 AM
I am just reading the complaints about Mirapex. I was on a study with mirapex, I didn't know for four years if I had a placebo
or the real thing. After almost 5 years of weight gain and some sleepiness at bad times I found I was indeed taking the
mirapex with the sinement. I have had pd for the time I have taken these drugs. I can only tell you my symtoms have
progressed at a slower rate than others I met about the same time I was dx. I didn't realize how much the mirapex was really
helping until the phamasist ran out over a holiday weekend. No Mirapex around here!! I took the sinemet with out the
mirapex.....after a day or two without the mirapex I was so stiff and couldn't even walk out of work. I had to be taken out. So
for me mirapex has been a miracle drug. I didn't know it until this happened. It was a struggle at times with the side effects,
but well worth it all! Everyone is different, but it has saved me!! Now I'm into another study......hope it works as well! Suzea
Return to the form.
September 30, 2001
03:46 AM
September 30, 2001
03:39 AM
September 30, 2001
03:38 AM
I am just reading the complaints about Mirapex. I was on a study with mirapex, I didn't know for four years if I had a placebo
or the real thing. After almost 5 years of weight gain and some sleepiness at bad times I found I was indeed taking the
mirapex with the sinement. I have had pd for the time I have taken these drugs. I can only tell you my symtoms have
progressed at a slower rate than others I met about the same time I was dx. I didn't realize how much the mirapex was really
helping until the phamasist ran out over a holiday weekend. No Mirapex around here!! I took the sinemet with out the
mirapex.....after a day or two without the mirapex I was so stiff and couldn't even walk out of work. I had to be taken out. So
for me mirapex has been a miracle drug. I didn't know it until this happened. It was a struggle at times with the side effects,
but well worth it all! Everyone is different, but it has saved me!! Now I'm into another study......hope it works as well! Suzea
September 29, 2001
08:14 PM
Mama came home from the hospital Wednesday. It is gonna be awhile before her strength is restored. Thanks for all the
prayers.
faith and hope,
Sandy
September 29, 2001
08:12 PM
I have had a very strange and unpleasant past few days. I had a friend, or what I thought was a friend, just pop in without
calling. I had not seen her in about 10 years. She stayed from Wednesday until early this morning. As each day passed I
became more and more tired. I have yet to catch up on my rest from my family vacation to Vegas. I am exhausted. Please
forgive me for complaining; but I feel the Porch is home and that my friends and family here will understand me. So anyone
feel like pulling up a rocking chair? Sharing a glass of wine, or your choice of beverage, and chatting and allowing our
trusted friendships to comfort our weary bodies?
I have missed all of you dearly. I am hoping that my cloudy, foggy, brain will clear soon and I will be back to my normal self.
Pauline, honey, I am remembering you in thought and prayer. Give your precious granddaughter a hug and when she hugs you
back her hug will be a hug from me. Luvstosew honey, where are you? Sylv, is the sinemet going any better? Carolyn, maybe
we can bump into one another this week at the Parkie Porch Chatroom. Everyone of you is where my heart calls home....and
calls friends....Ilove you and am thankful each and everyday for you.
faith and hope,
Sandy
September 29, 2001
01:01 PM
Hi Sandy and Parkie Porch Friends,
I know it's Saturday, and I'm not supposed to be here, but my son-in-law is attending a course in Vancouver for the next few
Saturdays, so I am here looking after Hayley (who is still sound asleep in bed at 9:45 a.m. on a Saturday morning) Has she
got grandma trained or what!
Carolyn, thank you so much for adding me to your e-mail list, I absolutely love reading your messages.
Caz, I meant to reply to your puppy problem a few weeks ago (I actually replied to Carolyn by mistake, but she loves dogs
anyway, so it was OK). A few months back my daughter got a new puppy for Hayley - part golden lab, part shepherd I think. I
was really upset because the kitchen had to be blocked off, and I was always wiping up puppy pee. Anyway, the puppy grew
up into a beautiful dog and I recently found a very good use for her. I has knelt down on the kitchen floor and couldn't get up,
so I called 'Nibbles' over to me, told her to stand firm and she allowed me to lean on her shoulders and push myself up. So I
am training her to be a PD helper. I hope this little story at least gives you a chuckle.
Sandy, I know just what you mean about it being more difficult being alone with PD. That is why I love all of you so much,
your messages are a real life saver. (I have said very nice things about you all in the book).
The past few weeks my emotions have been very much on the surface, but I'm starting to come out of it now. Talking things
out with my daughter last night was a real blessing. I have to learn to ignore my doubts and not worry so much about things
that haven't even happened yet.
God bless you all and have a peaceful weekend. Pauline
September 28, 2001
09:53 PM
My love to you dear Carolyn. Amen and Amen!!
faith and hope,
Sandy
September 28, 2001
08:44 PM
We are born with a free will, Americans have shed their blood so that personal freedom of speech, worship, and the ability
to live in the neighborhoods we want to, all lead me to believe we want control over our lives and will even sacrifice our
life to retain that control. PD is the antagonist in our lives. It is an uninvited ailment that unfortunately we had no choice in
receiving but we do have the power to alter how it effects us and the amount of control we give it. I think PD could suck the
very life out of us if we let it. But it is the spirit that lies within us that takes hold, shakes our shoulders and says get on with
your life. Remember the advertisement, I haven't got time for the pain. Well I haven't got time for PD and neither do the rest
of us. So my belief is that no matter how hard this disease tries to root itself to take charge, the essence of ourselves will
remain strong till the end and make us the drivers of our life, the controlling force of our happiness, the directors of our short
time on earth.
Joy to you today and always and remember you are in control always,
Love, Carolyn
September 28, 2001
12:02 AM
Sandy, thank you so much for the little book of encouragement. You are so sweet to think of me. I will treasure it always. Caz
September 27, 2001
03:18 PM
It Takes Courage - Author Unknown
It takes courage To refrain from gossip When others delight in it, To stand up for the absent person Who is being abused.
It takes courage To live honestly Within your means, And not dishonestly On the means of others.
It takes courage To be a REAL man or a TRUE woman, To hold fast to your ideals When it causes you To be looked upon As
strange and peculiar.
It takes courage To be talked about, And remain silent, When a word would justify you In the eyes of others, But which you
dare not speak Because it would injure another.
It takes courage To refuse to do something That is wrong Although everyone else May be doing it With attitudes as carefree
As a summer song.
It takes courage To live according To your own convictions, To deny yourself What you cannot afford. To love your neighbor
As yourself! ~~~~~
September 27, 2001
09:19 AM
Toadie,
Good morning. You did not shut down the discussions. With my mom in the hospital things are kinda hectic. I got out of town
company yesterday. A very dear best friend dropped in that I have not seen in 10 years. It was a wonderful surprise. She and
I will be catching up today. Then I will go see Mom later. Mom's breathing was some better yesterday. Please keep in her in
your prayers. I will catch up on news later today. I love you all. Be blessed and take care.
faith and hope,
Sandy
September 27, 2001
08:39 AM
uh-oh sandy, i'm sorry, i didn't mean to shut down the discussions.
where is everybody?
are they all out playing?
i hope everyone is doing well, take care all, love toadie
September 26, 2001
12:06 PM
Hi Sandy, Control, eh?
Honestly, I find the more I fight with pd, the more it fights with me. So, I've had to embrace it as my own ugly beastie.
Everyone has their own ways, but it works for me. At any rate, control can be an illusion at times with pd. (Life too, at
times)Just when I think the meds ar adjusted and are doing what their supposed to, bang the bottom drops out. You end up
with dyskinesia, not enough meds, or they start failing again. But, I have to agree with Caz, we just do the best we can with
what we are able to do. There's my 2 or 3 cents in the pot,lol
take care, love toadie
September 26, 2001
10:58 AM
Hi all, Control mmmmm that's a good one. Do we allow PD to control our lives or do we give up the control because of PD?
Do we find it easier to give in than to fight to keep control? Some physical conditions of PD we have no control over. We are
all very emotional but not weak. We are fighters. Do we feel PD is taking control when we are having other problems? Or
are we finding an excuse to blame it on PD? Life is tough enough without having a progressive disease but we are tough. We
just need to keep getting reinforcement from each other. My very good friend Joan says "Hang tough. There ain't no way
through it but to do it " We can get through it and keep our power of control, but there are times we neeed to admit we can't
do everything as before. We make changes in our life and keep control. Well that was my 2 cents on the subject. Love you all.
Caz
September 26, 2001
07:17 AM
Hello Everyone
Where have you been luvstosew and just about everyone else, I miss all of you. I hope all is well, worry like a mother hen
here.
Joy to you today, Carolyn
September 25, 2001
09:56 PM
Carolyn, I believe you realize that scramble is the same thing as Scrabble, only it is in PD language. Wink and grin!!
God Bless America! Continue to pray for America!
Love you all....hugs....nitey-nite!
Sandy
September 25, 2001
09:53 PM
Scramble sounds good Carolyn. I may not be up tonight. I have decided to take a little bit of help (Ambien), so maybe I will
sleep. I am sure there will be another endless night again and I will be sure to look for you dear friend.
I have an interesting question to ask all of you. I was in a conversation with a dear friend and our discussion was on
"control". She and I were in agreement that PD has the tendency to make you feel as though you are losing "control" in your
life. Now here is my question........
What do you do during these "tug-of-war" times to TAKE BACK THE POWER and gain back the CONTROL in your life? I
would be interested in knowing and I am sure by our sharing of ideas we can all learn from one another. Happy
thinking....TAKE BACK YOUR POWER!! WE CAN DO IT! TOGETHER!
Faith and hope,
Sandy
September 25, 2001
03:28 PM
Dear Sandy;
Look for me on line on those nights that seem endless. It looks like you've joined my Insomniacs, Inc. board members, lol.
May be can play scrabble.
Joy over the thought of a full night's sleep Carolyn
September 25, 2001
02:06 AM
Wide awake at 2:00 AM. Frustrated. Tired. And very much alone. Living alone and having PD is definitely challenging. I
believe on the nights that I cannot sleep the "aloneness" seems most profound.
I hope all of you are being blessed with a decent night's rest with many sweet dreams.
faith and hope,
Sandy
September 24, 2001
09:41 PM
September 24, 2001
03:41 PM
Hi Sandy and Parkie Porch friends,
My message of Saturday doesn't appear to have posted, so I'm not sure if this one will get through.
Anyway, I'm praying for you all.
God bless. Pauline
September 24, 2001
03:11 PM
Thanks Pwnkle for adding the quote I requested to be added. I hope you are well.
faith and hope,
Sandy
September 17, 2001 1:00PM
Sue, my neuro put me on a low dose of Mirapex and titrated me up slowly from .125 to .025. The titration took 3 weeks and when I went in for my appointment I had more complaints than the last time I had seen him. He immediately took me off the Mirapex (you don't have to titrate down with Mirapex). I am now taking only selegeline (5mg X2) and sinemet (25/100 X3). Also titrated up on both of those. I see my neuro in two days, first time since I started the sinemet. I haven't had any nausea or felt worse than usual but I have been disappointed in
the effects of the drug. I was really hoping this was going to be a
miracle drug for me. Maybe it still will be. I do remember that Sandy had a terrible time titrating up on Requip but is doing really well with it now. Maybe I should have hung in there longer w/the Mirapex.
All Porch Pals: I talked to Sandy two days ago. They won't be leaving Las Vegas until Tomorrow (9-18). They don't know what time or when they will get home. She's promised to call me as soon as she walks in her door and I promise to post it here when she calls. Not to make light of the events of 9-11, but if you have to be stranded somewhere, I can think of worse places than Las Vegas, which, by the way, is going all out to accomodate their customers who were supposed to leave but could not.
(((Hugs))) to all, Sylvia
September 16, 2001
Hi friends! I haven't been around much lately. Life seems to have a habit of filling up with a thousand details, all of which seem very important, and then something happens like this past week, and you realize that nothing is as important as the friends and loved ones in your life. May God bless you all, and keep you safe in the palm of his hand.
I have recently started taking Mirapex, and I think I have had the worst week I have ever had with pd. I realize that this has been one incredibly stressful week for every one, and that is going to make pd worse, but is it unusual to feel worse immediately after you start on these drugs?
I hope Sandy soon gets back home safe and sound. This whole disaster has made me want to draw close with my family and friends, and just be home.
Bless you all, and keep smiling! Sue
September 16, 2001
little wing-your abiltiy to know my moods and my feelings from such a long-distance is nothing short of miracilous! friday was the worst day of an extremely long, hard, emotionally gut wretching week. as i sat in the office, awaiting the outcome which would afffect, not only my life, but also my marriage and my life in my happy home, i reached into my purse for a
kleenex and pulled out your beautiful book of quotes (all handwritten so beautifuly), which had come in the mail just as i was heading out the door. it gave me such strength and courage at a time when i had no more to draw upon! it told me that, no matter the outcome of this interview, i would have the courage and the fortitude to deal with the consequeneces and that everything would work out...and it did! Besides turning 50 this week and i now accept that as something over which i have no control, i have gotten other areas of my life whipped
back in shape. and i'm hoping that my life will soon be back to normal. how can i ever thank you for such beautiful, timely and wonderful gift. you are indeed my soul sister. joan,
September 15, 2001
9-15-01 5:10 PM
Dear Porch Friends
I just had a phone call from Sandy and she is still in Las Vegas. It looks now like she won't be able to get home until Tuesday, 9-18th and she doesn't have any idea what time that will be. I have been asked to notify the Angel Team of her problem and request that any Angel Team requests be forwarded to Diane Kerbow, Martine Semal, Melissa Jernigan, Judy Dykes, Nancy Mullen, Mike Koontz, Diane Hall and David Vaughan. I hope I haven't left anybody off the list; it is unintentional if I have. In the meantime, if I can help with anything at all,
my e-mail is seasongood1@msn.com.
Sylvia
September 15, 2001
Dear Sandy;
Sandy you are a woman who is beyond belief in the wonderful department. I just was to thank you for the "parkie encourager". It was a most beautiful surprise the day the mailman brought it and really made me smile to know someone out there cares for me in a special way. I am so grateful to you for the porch where I can be myself and find people as special as
you to share part of my life with. You are an angel.
Carolyn
September 13, 2001
Tried to post this before. I'll try again. This is a slow way to do this, you know. We could do a conference IM if you want. Anyway, I'm here.
Sylvia
September 13, 2001
OK, Carolyn, I'm here.
September 13, 2001
Dear Members of the Porch Family
Should we try chat again.....maybe 7:30 est. For those that can make it you're all welcome. Sorry I don't have voice at the
moment. Hugs, Carolyn
September 13, 2001
WOW...AWESOME NEW SITE...LOVE IT...GREAT JOB!!!
kmt
September 13, 2001
Dear Friends;
None of this makes sense to me. It is hard to be and feel uplifted. As many of you know my oldest daughter lives in Sweden with her husband and baby. It received an email this morning and at least we could find something positive to dwell on.
Following is a portion of her letter:
The whole situation is so unsettling. It has been nice to see people from several middle eastern countries donating blood and having vigils for the loss of human life. We saw young children holding signs asking for the suffering to end and that their hearts our with us. It reminds you that there are so many stereotypes, but no matter where you are in the world there are good people wanting peace.
I found myself not feeling angry but genuinely sad for those attackers who were so cruel and heartless, and for all those who celebrated their victory. I have been praying to God to forgive them, and to have mercy on all of the souls that they prematurely took away from mothers and fathers and loved ones. I have been trying not to judge, for it is not for me to decide, and one day my hour will also come.
I feel very fearful for what has happened and of what is yet to be, I fear this is only the beginning. May God be with all of us.
(end)
My own thoughts and prayers are with anyone who has family/friends that have suffered at the hands of these people.
May God's Peace Reign Again, Carolyn Gambino
September 12, 2001
5:30 a.m.
Hello my friends;
Yesterday was the most difficult day for every American will never be the same whether touched by loss of life or the loss of freedom as we once knew it. None of us will ever be the same. Through the years we have seen personal freedom diminish due to crime. I can remember taking public transportation at age 8 to go to school miles from my home, or walking to the liibrary a good distance from my home and my parents were not concerned. Now we lock our doors, some people believe in arms, and in the back of consciousness we will remember yesterday
and never be the same. I am angry at the senseless loss of life, I am angry at the loss of freedom, I am angry at the foreign clergy that support the terrorist acts of these countries.
I pray for all those affected by this tragedy. The victims, their families and friends and every American.
Somehow I can't say Joy be with you today. I will end by saying God be with us today, much love Carolyn
Sorry about not making chat last night, my husband was a Marine Reservist and we survived Iran/Irag and 3 Mile Island and came close to leaving for the Gulf War and knowing what could lie ahead for America is overwhelming.
September 12, 2001
hi! Oh thank u to all who may this site possible. thank u sandy for the book u made me. I hope u all have a fun time going west. please take pictures!
This tragedy in NY is very upsetting to me. Just got an email from my child. He just got back from donating blood with some friends from the university. They left at about 2 PM and got back at 12 midnight. His friends in the city are all fine Thank God. I just feel for this whole mess.
love, nancy
September 11, 2001
Dear Friends,
In light of the circumstances of today's terrorist attacks, chat has been cancelled. We may rather spend our time in prayer for all the victims and their families. God Bless America and grant us peace.
Carolyn
September 11, 2001
Good Morning all. I guess with what's going on in our U.S. today we can all say a prayer for those killed, injured or affected
by the bombings. My daughter just called and they closed up business so a group of them are off to give blood. She made me
proud. Carolyn I hear you about grandchild getting to you some days. Brendon is 3 and when he gets tired nd cranky it just
goes thru me and I want to stuff my ears. Will try to make it to chat. Is that eastern, or central time? Dianne, I wish I was
closer, I'd take you out to lunch and we could talk sewing for hours. Sandy enjoy your vacation. God Bless you all.
Caz
September 11, 2001
3:30 a.m.
Dear Friends;
If anyone would like to join me to sit back, relax and rock for awhile, I'll be dropping by the chat room today, Tuesday, September 11, at 7:30 p.m. est. Bring yourself, your favorite snack, thoughts, ideas, jokes and humor and lets have some fun.
Carolyn
September 10, 2001
This has to be the most beautiful sight that I have been in. So peaceful, so perfect I love it. Well done Carol and Sandy for this wonderful gift.
Eileen
September 10, 2001
Hello my friends;
Luvstosew Sandy is right on the money. Look at all the stressful events in your life as of late. Be good to yourself sweetie and try to rest and relax. I know when I'm having a bad day with PD the feeling that you cannot cope with another thing settles in. It fills me with anxiety and restlessness. That is why I do not like large gatherings. The noise levels, interactions, etc. just wear on me. Sometimes as much as I love my grandson, I want to send him home because he's into the everything stage and I'm tired out for the day. Yes, and doesnt
it seem unfair that our bodies are old before their time. There are moments I shamefully admit that I wish I was someone without health problems but then again there could be other circumstances given to me that are more challenging.
Take care my dear friend, Joy be with you every moment of your life,
Carolyn
September 10, 2001
Luvstosew,
Hello, sweet girl. I am taking a wild guess that you were the one posting about your body falling apart with little things. I am sick of it too. Especially 10 days before my cycle. I want to explain why any other little thing is such a taxation to our bodies as pders. Our body already fights PD 24/7. It already pulls on our immune system. Whenever anything else assaults us that draws even more energy to fight something else besides the PD. This in turn will cause our pd symptoms sometimes to worsen for a time. Really until we are further
recovered and some simblance of "normalcy" has been restored.
Diane, honey I hear your weariness. I feel your weariness. I am there with you, in thought and prayer. Hang in there, girl. I am a full believer in saying I am mad as hell and I am not gonna take it anymore! It is perfectly human to even scream ARRRRRGHHGHHHHHHHH! I love you sweetpea. Take care and may God Bless you.
I am about 3 hours from leaving to go on vacation. I am using my Dad's computer. I am going to go and rest for a bit. I surely am going to miss the porch and my lovely friends and family.
faith and hope,
Sandy
September 10, 2001
Good morning everyone, well i spent an exciting weekend with 19 other ladies at a sewing / quilting retreat. Didn't get much accomplished, body didn't want to cooperate but had a terrific time anyway. I won the "last one to bed" sewing award heheehe! I would have accomplished more but my secret pal saw something i am making for some special parkie friends for New York and she kept commenting on it. so, you guessed it, she got my first creation. That's ok, it gave me experience making one,,,,,,,can't tell you what it is, will ruin surprise. Just
took hubby to the airport. He will be in Vermont for the next two weeks. Just middle dtr. and myself for next two weeks. Knee is doing better but still slowing me down. Going to the dentist today. Boy does he have his work cut out for him, ugh no pun intended.
Do any of you ever feel like you are falling apart? I have felt this way lately. By george, I am too young to be falling apart. A dear quilting friend told me this weekend "It's hell getting old". Well I'm not ready to throw the towel in yet. Do you ever feel like you are learning to live with PD but it is these other minor inconvenienes like teeth, knees, falling, constipation, etc., that are what's getting you down? These thoughts have been on my mind lately. This same friend who is an RN at a local hospital in Labor and Delivery, found out
she has an illness that causes her eyes to be bloodshot all the time. She said this makes her really mad. I found myself thinking, I'm not mad at Pd but I am mad at these other things. I feel like, hey, our lives are full as it is with PD, we don't have time to be bothered by other not so major health concerns.......but this is life, right. Just wondering how you guys feel about the not so trivial things that creep up on you while you are learning to cope with the biggie in your life, Parkinsons' disease.
Pauline, I just sent you an email. You are a truly talented and gifted writer! The words flow from your pen with such ease and grace. I am enjoying reading your story. Your faith in God is refreshing and so uplifting. My life has already been touched by your loving words. Take care dear friend. You have definitely fouind your niche in life.
September 09, 2001
Dear friends,
I just wanted to let you know that I am going out of town tomorrow. My family and I are going out West for a vacation. I will be gone from the 10th-16th. Then on the 19th I will be travelling to Maryland to travel with Sylvia Cable to the Unity Walk. If you wish to get a message to me you may let Sylvia know. Have a pleasant and blessed week coming up. God Bless You all!! faith and hope,
Sandy
Faith makes all things possible. Hope makes all things bright. Love makes all things easy.
September 09, 2001
Toadie,
If your daughter wishes to write to me I would be delighted to hear from her and you!! Rest and be well my friend!
faith and hope,
Sandy
September 08, 2001
9:25 PM Saturday Evening....
Today has been one more roller-coaster ride. I am up one minute, down the next. I hate being like this. I am trying to put a finger on "it". That is what is so persnickety about this unwanted disease. It is so difficult to pinpoint the "whys" and the "therefores". I am beginning to believe that I may be suffering from separation anxiety. I fly out west with my parents on Monday for vacation. I will be gone from the 10th-16th. I will not have access to a computer.....I am fearing definite withdrawal symptoms.....at any rate....tomorrow is
another day. I am gonna be counting on you guys and dolls to keep the Porch going....You did a super job when I had all my surgery done. I believe in all of you!
God Bless You!!
Faith and hope,
Sandy
September 08, 2001
Thank you Sandy for that! I can see why you have so much traffic here... I think I'll pull up an old rocking chair and join you all here!(pwnkle)
September 08, 2001
9/8/01 (around 2:00 p.m.)
My dear friend Sandy, I got your packet, it is absolutely one of the most thoughtful, considerate things anyone has ever given to me. Thank you so much for all of your effort and kindness. My daughter would like to write to you if it's ok, I'll write you anyways,lol take care,
love toadie
September 08, 2001
September 8th, 2001
4:30 AM Saturday
Good morning!! Well it looks like Carol has been hard at work again. Yesterday evening I was cruising the internet and found the quote about friends being like the pillars on our Porches. I thought it was so fitting, I asked Carol (pwnkle) to add it in my favorite color of purple. Friends do you realize how very blessed we are to have the friendship and dedication that
Carol McLeod so freely gives us? Each time I think of Carol I am reminded of a Lehrman quote...."Within ourselves is a deep place at whose edge one may sit and dream." Carol's gift of webspinning frees each one of us to search out that "deep place" within ourselves and gives us a chance to dream. There is like an energetic quality to Carol that instantly sets a person at ease, that allows one's inhibitions to be tossed to the winds and imagination to take flight! Oh what a precious gift! We love you Carol!! The Porch looks great! Not to worry
about some lost posts....many times in life moving forward requires taking risks.....
Enjoy the day everyone and count your blessings!!
Faith and hope,
Sandy
September 3, 2001
2:20 pm
Hello dear friends and family,
I hope everyone is having an enjoyable Labor Day holiday. I am having a fairly good day. I have had a doctor's appointment, I have been to see Mama and Daddy today, worked on Parkie Encouragers, and I am in the beginning stages of packing for my up and coming trip out west with my family.
I am also watching the Atlanta Braves play the Montreal Expos. In the top of the 5th inning the score is 4-0. Braves are winning. Lets see if they can maintain it enough to get the win. There is still a whole lot of ballgame left to be played.
Nan what kind of tea would that be? Long Island ice tea? LOL
Carol.....again, we cannot thank you enough for all of your hard work.
faith and hope,
Sandy
September 03, 2001
Hi all. This porch is so comfortable. I just think I will just pull up a rocker and come sit for a spell! Sandy how about a cup of tea?
Love Ya
Nan
September 02, 2001
Hi Sandy!
It's nice to see you in the pink! It's so beautiful here, warm user-friendly colors and thoughtful designs,just gotta love it! A big Thank you to Carol! Congrats (can't spell the rest,lol) to Nan and Bren.
Check your e-mail my dear friend,
love toadie
September 02, 2001
Hello good morning!! Diane, I sure hope Pam comes to the Porch for a visit. It was very kind of you to encourage her and welcome her.
I love the colors on the Porch. I am wondering though if we are going to have a counter and whether or not our archived months will be transferred over. Also where is Carol going to place the introduction to the Porch. I am gonna go and e-mail Carol now. We clap our hands and send loads of hugs to you Pwnkle for the job well done. Our new home is absolutely beautiful. The Whole site shows all of your hard work.
faith and hope,
Sandy
September 02, 2001
September 2, 2001 4 a.m.
Good morning Sandy, i love the new site design. WOW! think i may just "rock" the night or morning away heheheh! I really miss you guys. Seems like the past few weeks i haven't gotten to visit with any of you much. mike and i had our weekend with his parents and we all had good time. his parents are doing better, just slow process of healing but their spirits and attitudes are super. thnks for continued prayers for them. for those of you who do not know, both of his parents have been diagnosed with cancer. mom is still getting chemo and dad hasn't started his shots yet. this has been hard for entire family but spirits are soaring high.
hey Sandy, I met another parkie in real life yesterday. Pam Michels from Flower Mound, TX. She graduated from TWU a year before me with a degree in music therapy. Super lady. She has only been diagnosed since April, I think that is what she said. i encouraged her to come to porch and sit and visit. we talked for an hour and half. well got to get some more shut eye. take care my dear friend, and hope everyone has a wonderful rest of holiday weekend. Luvstosew
September 02, 2001
Thank you for a beautiful site.
September 02, 2001
oh, this is too cool Sandy! Chasmo
September 01, 2001
I love the new look! And it's even in my favorite color! This is wonderful.
Sylvia 9-01-01 10:49PM
September 01, 2001
Hello everyone how do you like our new home?
faith and hope,
Sandy
September 5th, 2001 2:20 am
Hello family and friends,
This is my second night in a row without sleep. The dreaded insomnia. Anyone up with me?
faith and hope,
Sandy
September 04, 2001
September 4th, 2001 4:23 AM
Good early morning!! I have been awake all night. I have not been sleepy so I did not even try to go to bed. I know that I would just toss and turn. I have been perusing our new site and loving every bit of it!! Is there anyone awake with me?
faith and hope,
Sandy
September 05, 2001
Hi Sandy , I hope this stays fixed now ... lol ... The order of the posts in here will have to make its way back up to the top. The order is from the newest down to the oldest posts, but since I interupted it to look at it , there's a break in the sequence. It looks ok now though. Uh ....er... can you send me a new copy of your words of welcome to grace the top of this friendly oasis?
September 05, 2001
Wow! and hello all...it is 12:08 wednesday afternoon. Pwnkle has spiffed us up a bit. I love it. I hope everyone is finding their way around okay. I will post more later today. I hope all of you are well.
Faith and hope,
Sandy
September 05, 2001
Hello Carolyn girl,
Oh no...hillbilly city....I am sorry about the difficulties. Gee PC trouble....teeth trouble...I am glad you are up and running and posting. I am really in love with our new Porch home. Carolyn...sit and visit awhile and get caught up. Take a big deep cleansing breath...relax....I will be remembering you in thoughts and prayers dear one.
faith and hope,
Sandy
September 05, 2001
7:12 p.m.
Hello Porch Family;
The new site is awesome. Carol did a superb job and sure gets high praise for her hard work.
Well the news is I've joined our Hillbilly club. You guessed right, I looked in he mirror and a piece of my tooth was gone. How many of us does that make. What a coincidence.
My PC was down again, I've been down more in the last few weeks than on but hopefully it is running in tip top shape now. I've missed posting and hearing from all of you.
Take care everyone, hope your weekend was great.
Joy be with you all, Carolyn G.