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April 1, 2002-February 28, 2003
November 7, 2001- March 30, 2002
I've been on the Rotigotine study since last summer. I am now on the open label phase of the patch study and I feel great. I'm currently on 60mg which is the highest dose. I'd say in the past week I've had very little off times. I have more energy, my mental state is great (don't ask my kids tho lol)I'm paid every week for mileage. My drug coordinator feels this will be FDA approved in 2-3 years. This does nothing for the tremor tho. If anyone has any questions please email me at carolpost@aol.com.
Anyone out there in the Baltimore, Montgomery County, Northern Virginia or DC area interested in taking part in a clinical study for the Rotigotine Patch? The manufacturer is Schwartz Bio-Sciences of Germany, and as many of you probably know is already being used in Europe. Dr. Marc Raphaelson, in Frederick, Maryland is now accepting applications for inclusion in this Phase III, double blind study. The only specific I know about is that you must have “off” times of at least 2-1/2 hours per day, so this study is obviously not for volunteers who are early stage PDers. At first the study will mean weekly visits to the office, but after maintenance dose is reached, office visits will then be once every three months. Volunteers will be paid $50.00 per visit, which will be paid at the end of participation in the study. This request is in advance of newspaper advertising, so anyone who is truly interested will have a better chance of being included. It’s the old “first come, first served” thing. I would LOVE to be able to fill his volunteer requirements from the Forum and PLWP. A word about Dr. Raphaelson. He thinks I’m some kind of activist (boy, do I have him fooled!), and because of that mistaken impression, he asked me if I would be interested in letting my Parky (he didn’t use that word, naturally), friends know about the study. And, of course, I said I would. I will tell you that three days after I joined PLWP he knew all about the group and he does keep a poster on his entrance door for everyone to see. As you might have guessed by this time, he is, indeed, my neurologist, and, personally, I think he walks on water. He has been extremely kind and supportive to me and my family. Dr. R has a history of PD in his family which is why he specialized in neurology. I got my dx within 20 minutes of the standard clinical testing. Now, seven years into PD, if you didn’t know me, you wouldn’t know I have PD. Enough said. If you are interested in volunteering for this study, please let me have your name, address and phone number so that I can turn them into Dr. R for follow-up. One advantage (for me), of this being in Frederick. is, if you are so inclined, that I can direct or lead you easily to his office, hopefully meet some of you I haven’t had the pleasure of meeting before and maybe we can do lunch once in a while. My e-mail is seasongood1@msn.com and my phone number is 301-694-9297. Confidentiality is assured, as far as I am concerned. The extent of my work is only recruitment for a very important clinical study. I hope to hear from some of you soon. Sylvia
Just like all of you to know that on June 28 we will be holding our third annual fundraising bowl-a-thon in Hammond, IN. If any of you are in the area of Olympia Lanes on that date please come on by. All funds go to PD research and education. Kerry Mitchell
Greetings, Parkey family!!! My name is Ron, 34 dx 6 weeks ago. I'm in the process of organizing a concert/dance to benefit pd. "Jimmy and the Soul Blazers. They're very popular on East coast. Motown/oldies music. If there's any one around my neck of the woods, I may need your assistance.I'm excited to get pd awareness strong in Ohio and abroad. I'm extremely experienced in charity fund raising. Since my dx, I want to include helping plwp, YOPA, and Michael J. Fox Foundation. Any one w/ connections to getting ahold of Mohamad Ali, MJF, or any influential celebrity, contact me, please?! Thank You sooooo Much!
I've been doing some research today as part of an herbal apothecary company I've helped form in the past year. I am also a medical transcriptionist and therefore have the knack for more thorough research of drugs both natural and western medicine pharmaceutical. I have discovered that Butcher's Broom aids with the orthostatic hypertension associated with Parkinson's medications as well as the Parkinson's itself, diabetes and other possibly related vasocontriction problems such as migraines. There is also an ancient India herb that has been found in an Ayurvedic Medical Textbook from over 5000 yr. ago. The herb is mucuna puriens, the mucuna bean that is a natural derivative of levadopa and is being manufactured in relation to a disorder specialist, Dr. Bala Manyam, of the Univ. of S. Illinois.
You know Pete, I'd really love to be there. I'm totally serious...if I could afford it, I would be there. Good luck to you!
PARKINSON'S BENEFIT CONCERT SUNDAY 25TH AND MONDAY 26TH MAY ³FILL YOUR HEAD WITH ROCK is my front line in the battle against Parkinson's all monies raised from the event goes to THE PARKINSON'S DISEASE SOCIETY, U.K I have, I think put together a brilliant line up, but there is the problem. that is convincing the people, that such high international acts are coming to play "FILL YOUR HEAD WITH ROCK", I myself have Parkinson's but I refuse to let Parkinson's have me. ****************************************************************************************************************8 PRESS RELEASE PARKINSON'S DISEASE SOCIETY BENEFIT CONCERT JOE D’URSO MAKES FILL YOUR HEAD WITH ROCK PART OF HIS WORLD TOUR “FILL YOUR HEAD WITH ROCK” FILL YOUR HEAD WITH ROCK GOES INTERNATIONAL My name is Pete Boot, [BOOTY] way back in seventies I was the drummer with BUDGIE You see five years ago I was diagnosed “Parkinson’s”, I am now the best tambourine player in the business, coming to terms with Parkinson’s was similar to being told the bands got a fantastic record deal but also a new drummer, you accept it but refuse to give in. I never knew that all those years on the road would help me cope, but in bands as you know you develop the skin of a rhino, with the determination of an ant. I have Parkinson’s it will never have me, I feel sorry for Parkinson’s for he now has Booty disease, FILL YOUR HEAD WITH ROCK, is a two day rock festival I organise to raise funds for the Parkinson's society, now in its fourth year it takes place on Sunday 25th and Monday 26th. I desperately need to heighten the profile of the event, I need to take new ground, I have no intention of giving up, the other option being to lock myself away, but the illness would be locked away with me. That would achieve nothing. I must I fight, yet I'm fully aware this is a fight I may not win, though not able to claim victory I will grasp dignity with both hands [if they keep still] So with every ounce of respect to yourselves I ask that you see if there is a way you can help i , I seek no personal gain or promotion from this request, for there is one simple fact, no one knows what's around the corner. It is for those who have no idea that they will walk the same path as me, that I must make the tunnel shorter and the light brighter I do hope you can help, I ENCLOSE THE FOLLOWING DETAILS AND HOPE YOU FIND THE OF INTEREST FILL YOUR HEAD WITH ROCK it is a two-day rock festival, held in Willenhall, West Midlands. Not quite Woodstock I agree, but they both start with the letter “W” so who knows HA! HA! MISSION STATEMENT The event is organised to raise funds for the PARKINSON'S DISEASE SOCIETY UNITED KINGDOM but of equal importance to fund raising, is the need of peoples awareness to Parkinson's, and the debilitating effect it has on every day life. THE GIG; - TWENTY BANDS PLAY OVER THE TWO DAYS, SUNDAY 25TH AND MONDAY 26TH OF MAY 2003. DOORS OPEN 13.00HRS. CLOSE 24.00 HRS BOTH DAYS...........ADMISSION..........£5.00p EACH DAY THE BANDS:- JOE D’URSO [PART OF HIS WORLD TOUR] www.jdcaravan.com ERIC BLAKELY / MICKY KEMP BAND / SUSAN GIBSON [ GRAMMY AWARD WINNER] www.bandsontour.com CHARLIE MACINTOSH. THAT'S FIVE AMERICAN BANDS, THE BRITISH BANDS ARE - THE TREVOR BURTON BAND. RISE, NOWHERE NEAR THE GARDEN. CLIENTELE, JACKS HOUSE, DIZZY LIZZY. MOUND. CLEAR BLUE SKY. TONY HILLS FICTION. FAR SIDE. PREDATOR. OTHER BANDS TO CONFIRM. OTHER INFORMATION :- www.fillyourheadwithrock.com FOR HISTORY SEARCH PETE BOOT ORGANISER; - PETE BOOT, PHONE NUMBER- 01902-635885. MOBILE :-07989132805. FAX: - 01902-635885. EMAIL peterboot@blueyonder.co.uk / SNAIL MAIL 575 WILLENHALL ROAD. WILLENHALL. WEST MIDLANDS, WV13 3 LP. MANY THANKS FOR YOUR TIME IN READING THIS MESSAGE, YOURS SINCERELY...PETE BOOT..... SHAKEN NOT STIRRED www.fillyourheadwithrock.
Because the Yahoo Group Chatroom and Message Board seem to be growing and creating the nucleus we've been looking for, we encourage you to use it instead of this board. The message before this one tells you a little more about what we're trying to do. The URL for our group site is www.groups.yahoo.com/group/plwp2 Thanks, Nan and Bren
TO ALL PLWP MEMBERS! I have a favor to ask of each of you ... and no, I'm not asking for money nor am I asking you to shed blood for PLWP. (Though I really believe many of you would consider doing it!)<BR> <BR> No, what I'm asking is for you to join the Yahoo Group PLWP2 www.groups.yahoo.com/group/plwp2 as soon as you possibly can. <BR> <BR> Why, you ask? Well because it will make mine and Nan's life so much easier. <BR> <BR> How,you ask? Well, Nan and I have struggled with doing mass emails now for a very long time. We need to be able to communicate with everyone and sometimes it's crucial that we get to you in a hurry...for instance something about advocacy or one of our members needs help, etc. It normally takes about 2 hours to do a mass email to you folks and then many of those are returned for various reasons. The account has been closed, the mail capacity has been reached and you can receive no more mail, etc. <PR> <PR> By utilizing Yahoo Group, it doesn't take us any longer to send hundreds of emails than it does to send one. Nan and I don't have to keep up with each address, it's totally up to you to keep it up to date. <BR> <BR> Let me tell you how Yahoo does it. When anyone posts to the Message Board on Yahoo, it automatically emails all of the members. You, the member controls whether or not you receive the email. In your member setup, there are several choices you can make...instead of me writing them all down, check out the "How do I?" at http://www.plwp.org/how_to.htm#Messages . You can change your member set up at any time. <BR> <BR> So, those of you who already have a login with PLWP2, you may want to double check your email address to make sure it's correct. (There's an option on the front page that will allow you to change your setup. Be sure to read it carefully.) <BR> <BR> For those of you who have not joined PLWP2, please do so without hesitation. If everyone is cooperative and takes care of this immediately, Nan and I will completely do away with our old system and go for Yahoo. Remember, this is a democracy ... majority rules. <BR> <BR> There's other benefits to using Yahoo...the board can be used for sharing, communicating, getting help and/or giving help as well as so many other uses. Think of it as somewhere between a chatroom and a forum like on MGH. The thing that makes it so great is the time factor...when the post is entered on the group site it's automatically sent to the membership, the total interaction on PLWP at Yahoo groups is dependent solely one the member. YOU ARE IN CONTROL! <BR> <BR> So please make sure you are an active member of plwp2, that your email address is correct and that you have the appropriote settings for what you want to do. <BR> <BR> I think we'll all be amazed at the convenience thus the increased commoradory of the entire membership. <BR> <BR> Nan and I really thank you for doing this. You've probably just added another 5 years to my life line. LOL....<BR> <BR> There's more I want to say here but we'll have a better method when we get this job done. <BR> <BR> Thank you! Thank you! Thank you! <BR> Bren and Nan
Happy Birthday Pwnkle, You are a special person and I hope that you are having a very special day. You give so much to so many people!! I wish you the very best and hope to see you soon. Thank you for all you do Much Love, Nan aka TLC
YES all of you are correct! Among other great events April 1st is the first day of Parkinson's Month and IT IS YOUR BIRTHDAY! We at PLWP as a group of the Parkinson's grassroots...as a member of an elite extended family...as people who care to make a difference...ARE OFFICIALLY THREE YEARS OLD! I really want for us to do something to commemorate that day...and I've come up with an idea. It will only work if everyone participates. FIRST, I'm sure each of you have at least one fond memory of interacting with others at PLWP. It may be a special chat session, one of the times we all went to NYC for the Unity Walk, a special email from someone you met at PLWP, a spontaneous visit with someone you met thru PLWP, a funny possibly...maybe an embarrassing moment that you would care to share...either yours or one of you PLWP friends. WELL, let's put it together into a PLWP Remembers, 3rd Birthday webpage that will be permanently in our website. Write it up, send pics if you like and get it to me quick at btucma2000@yahoo.com. I know this is short notice, but if you get to me by the last of March I'll try to have it on site on April 1. NOW FOR THE REST OF THE STORY... Perhaps you've seen one of the photoshows on the website. If you haven't, take a look at one on www.plwp.org (menu bar to the left). WELL, what do you think about sending me, either by US Mail or email, some pictures you cherish of times you've spent with PLWP friends OR just a picture of yourself if you're new...a picture of you if you're an oldie but goodie member OR whatever. I've got a new program that will put these in a format that I can put on CD and you can play it on TV using a DVD player...full screen with music. Sounds like fun doesn't it! Something we can keep forever. If you'll get me the following by April 15, I'll make every effort to have it done and on the website before the end of Parkinson's Month. I've already got an order form on the site and you can order a copy of the CD. (http://plwp.org/photo_show_offer.htm It'll cost me around $5 for materials and shipping, so for $10 ($5 for PLWP) I'll get a copy to you by ... ummm ... let's make it easy on ME (LOL)... let's say by May 15. Here's what I need from you: (1) Picture(s) (duh!!) either by email (btucma2000@yahoo.com) or US mail (Brenda Tucker, 3656 Blue Byrd Lane, Kodak, TN 37764); (2) Captions including names of people in the picture (it's terrible to look at a picture and not know who it is); AND (3) a check for the amount of your order if in fact you placed an order with mailing address. What d'ya think? I like the idea myself. So get off and get on...get to me what I need to do this. Also, please talk it up so everyone will know about this. The long-time member will go down memory lane and you new members can see what you're getting yourself into! Together we make a difference, Bren
Hey everyone. I've been keeping an eye on Jane Stengals efforts to be sponsored as she represents all of PLWP at the Parkinson's Unity Walk on April 26. Please take time to donate something in support of Jane. It doesn't need to be much, just something to show her you're grateful for her efforts. The Parkinson's Unity walk is a great event that raises awareness and research funds. You'll find a link to The Unity Walk page for donation on the frontpage of www.plwp.org Together we make a difference, Bren
Does anyone know what April 1st is? Yea, I know it's April Fool's Day...but do you know what other significance this date has?
The transcript of Greg's testimony is now available at www.plwp.org/library.htm Hopefully, tomorrow we'll have a complete audio. Together we make a difference.
If you missed Greg's testimony, hear it at http://www.plwp.org/library.htm Unfortunately, only the closing of his statement is recorded but we will have a transcript of his testimony on line. Comments following his statement are very intersting. Together we make a difference!
Wednesday MARCH 19th 2003 9:30 a.m. (EST) Senate Judiciary Committee Hearing "Drawing the Line Between Ethical Regenerative Medicine Research and Immoral Human Reproductive Cloning. " Witnesses will include grassroots activist and National Field Representative for PAN, Greg Wasson. For further information: http://www.senate.gov/~judiciary/hearing.cfm?id=622 for audio stream: http://www.capitolhearings.org/ check in with c-span for televised coverage: http://www.c-span.org
There's so much confusion, so many questions...such an important time in the cure of neurological diseases. We have created a special forum for discussing stem cells, therapeutic cloning etc. Our own Joan Snyder (Jes) was the first to post and it makes for very good reading...very enlightening...very thought provoking. Just go to the frontpage at www.plwp.org ... the menu option is to the left directly under Communication Center. You will also see a link to Portraits of Hope. Remember one thing when approaching these and other issues. The only dumb question is the unasked question. I know I feel extremely dumb most of the time BUT as my mentor of 35 years ago told me (and it changed my life)...intelligence is not knowing the answers but knowing where to go to find the answers. And though these are sensitive issues, we feel we need to discuss them openly among the PLWP community. Please join in.
Bren
Dottie, he is a cutie. Katie is still a little jealous, but that will pass. I do, however, have a new title..."Super Pooper Scooper"...I guess I forgot about all of this! LOL >>> Glad to see you "interneting" Dottie.
Bren- Had to laugh when I read about your following around your new baby. I had a permantly attached cloth in my hand for a year when we got our first Jack Russell. He was a terror to house break. - The second one (three years later) was not that bad. He learned from the first. Just don't break his/her spirit. And I mean they are very spirited. Adorable, exasperating but marvelous little companions. Enjoy. Do you have a smooth or rough coat, also what color. We had one each. The rough was tri colored. The smooth brown and white. Both beautiful in their own way and totally lovable. Smart, too. It took them only a week or two to bend two adults to their will. We are still bent. Enjoy! Enjoy!
Sorry I missed everybody today, or yesterday now since it 2am Tuesday morning. The past three days have been strange...nothing I planned happened but it was a GREAT 3 days. Saturday, we worked in the yard all day...70+ degrees and beautiful. I felt absolutely wonderful and I wore myself out. >>> Then Sunday, well I could hardly move! LOL But my hubby wanted to go do some target practice and insisted I get out of the house. Well, I had a ball. I shot the pistol many rounds, hit the target on 50% of them...not bad for a parkie who has never shot at a target. Then today, I had all planned out but ... well, we got us another baby. A Jack Russell who is 3 months old. We adopted him from the animal shelter...so I spent the entire afternoon at the Vet and tonight following him around cleaning up after him. You see, it's Katie's 4th Birthday this weekend and we thought she needed a little friend.>>>>So I'm sorry I missed you guys, but it really has been wonderful. I don't remember feeling this good in a very long time. Hope all of you PLWPs are having spring-like weather too. Does a world of good for our attitudes. Love ya lots, Bren (Oh, by the way. Katie is not a child...she's our baby dog (a Sheltie)! LOL
Jane Stengel who is Co-Director of PLWP's Events Team is going to set up a PLWP Team with the Parkinson's Unity Walk. The walk is scheduled for April 26, 2003 in Central Park, NYC. If you are interested in going to the walk, she will be happy to help you with your arrangements. She can suggest hotels, etc. >>>>> We support the Unity Walk and have attended as a group since 1999. This year we're asking that you support the PLWP Team by sponsoring Jane Stengel who is representing PLWP. Donate directly to the Parkinson's Unity Walk Organization using this URL http://www.plwp.org/default.asp#UnityWalk and clicking HERE. If you plan to go to the walk and want to register yourself, there's a link on Jane's Donation Page that will take you directly to the PLWP Registration form. >>>>>> Together we make a difference!
You may want to check another web site called wemove.org for info on hemi-parkinsonism/hemi-atrophy. This is a particular syndrome in and of itself to my knowledge (which i consider moderate at best). However I myself have had the term hemiparkinsonism used to describe my condition, which at this point remains unclear. Hemi simply refers to only affecting one side of the body. However, as i said, i think you are referring to a specific condition and you may have some luck doing a search on the we move site! Good luck in your search for answers and please let us know what you discover! Beth Bennett
I need to correct my directions just a bit. Before going to the top of the page and clicking on the Communication Center, go to the top of "THIS PAGE" and click Top. Sorry!
I've been watching to see if by chance anyone was familiar with Hemiparkinsonism Hemi Atrophy. I believe if anyone here could give you any insight they would. However, there's a Parkinson's Forum sponsored by Massachusetts General Hospital (Harvard Medical) that I believe someone could help you. I would post their url here but it's so confusing. Instead, do the following: Page up to the very top of the page, click on Communications Center then click on Parkinson's Forum at MGH. Many people use the forum...many of them are very well versed in Neurodegenerative diseases.>>>>Though we may not be familiar with your particular form of Parkinson's, we would love for you to become a part of us. Let us know if we've helped you at all. Together we make a difference, Bren
I am tryng to find information on this variant of PDand would also like to make contact with others who have this particullar version.
Mojo, my prayers are with your son. My son was in the Gulf...I know how you feel. My prayers are with you as well.>>>>>Harley, thanks. I'm sure it could be more user friendly...just let us know if you have any suggestions.
Nan, Sorry to hear your ailing. It's no fun I know. Also sorry to hear of your brother-in-laws Illness. There are tons of people out here pulling for you and he. Know that my prayers are with you both. May God Bless. With love, mojo P.S. Iam asking for prayers for my youngest, my son Nick,who has been sent to Kuwait, to defend our freedoms that we all hold so dearly. Thanks
Hey! Lookin Good here guys.. just wanted to pop in and say a big howdy.. Bren.. CD goes in mail today.. watch your mailbox.
Nan, I am sending this message to let you know that I am thinking about you, and that I have added you and your brother-in-law to my prayer list. There is great stength within God -- both physical and emotional. You are a wonderful servant and angel for Him. You give of your heart and energy to all that need encouraging and all who need a friend to help them in their PD struggles. I thank God for you, and this Tennessean sends his love! David Vaughn
A new thread (Cheers to TLC) has been started in the PLWP MGH Forum by jjjaneR that you may want to post to. It's a very thoughtful effort of support for Nan (screen name TLC). For you newcomers, Nan is the other co-founder of PLWP. Her unselfish, loving nature is what PLWP is all about. She's always there when you need a friend.>>>>>Cancer is in the processs of taking her brother in law and her health is suffering. (I explained in a little more detail in my post on the forum.>>>>If you want to add a note for Nan, I'll make sure she sees the thread. I think it would warm her heart. To help you, I'm going to add a link next to the little talking blonde above!LOL >>>It will be good exposure to the forum for you too. Use the Communication Center to access all the forums, chat rooms, etc.>>>>Together we make a difference! Bren
Travels with Parkinson's will be broadcasting today at 10:00 AM EST regular daily broadcast. Then at 12:00 PM EST Kathrynne Holden's bi-monthly show. At 8:0 PM EST Dr Jill Marjama-Lyons will be interviewed thanks to Tom Berdine and YOPA. And on Friday 5/7/03 Dr Ron Hutton will give his b-monthly from Haversham UK. Right after "TWP" in the morning. www.live365.com/stations/travelswparkinsons to tune in. Check out newly ( still under constructio ) web site at attp://pwnkle.com/travels/index.htp Designed by Carol Mc Cleod. Thanks winks Chy
Travels with Parkinson's will be broadcasting today at 10:00 AM EST regular daily broadcast. Then at 12:00 PM EST Kathrynne Holden's bi-monthly show. At 8:0 PM EST Dr Jill Marjama-Lyons will be interviewed thanks to Tom Berdine and YOPA. And on Friday 5/7/03 Dr Ron Hutton will give his b-monthly from Haversham UK. Right after "TWP" in the morning. www.live365.com/stations/travelswparkinsons to tune in. Check out newly ( still under constructio ) web site at attp://pwnkle.com/travels/index.htp Designed by Carol Mc Cleod. Thanks winks Chy
Heehaw!!! A little after 10PM, Gary had already turned in and I was waiting for my sleeping med to kick in and I felt kinda lonely. You all know what I mean. Well!!! I'm forever checking on the forums, message boards, and the chatrooms...sorta my normal going to bed routine. What to my wondering eyes did appear but a gathering of friends in the CHATROOM!!! It was AMAZING! It was like, wellll let's see...Like being away on a business trip for a week and coming home to find your husband didn't go on that weekend fishing trip after all. You're so prepared to be alone that when you're not...WOW WHAT A ZINGER!! Keep those cards and letters flowing ... the Neighborhood is perking!! Oh, I almost forgot the beauty of it all. I believe it all happened because Nancy out of Cleveland posted on the fridge that she was in the chatroom if anyone wanted to chat. One drop in an ocean of water still makes ripples! Together we make a difference, Bren
hi I AM IN THE CHATROOM IF ANYONE WANTS TO CHAT. NANCY AKA ds401
DEE-136--IF YOU WOULD LIKE TO CHAT I WOULD BE HAPPY TO HEAR FROM YOU AGAIN.I HAVE WORRIED AND WONDEREDABOUT YOU. I NEVER DID GET TO TELL YOU ABOUT MY FAMILY AND YOU DIDNOT TELL ME ABOUT YOURS.BRENDA HASMY E-MAIL NO. AND IF YOU ASK SHE WILL GIVE TO YOU. AS AN OLD GRANDFATHER I AM A GOOD SOUNDING BOARD.
Just got out of the chatroom where jjjaneR discussed the stages of Parkinson's. (Yea, I had the wrong day in mind and thought it was going to be Thursday!!) Even though I arrived really late, everyone was praising her effort. There was a good turn out, but I'd like for Jane to do it again later on down the road at a different time so those who couldn't make it today would have another opportunity. (Oh, and we had another new member there today!) Tomorrow (Wednesday) Dan (v5navy) is the guest host. He's going to discuss Water Therapy. >>>>>>>>Things are happening here at PLWP! It feels great!>>>>>Together we make a difference, Bren (for Nan too)
BREN---WENT TO THE CHAT ROOM THIS MORNING TO CHECK MY VOICE. I WAS PLEASED TO GET ON WITH A VOICE--THIS WAS 7:15AM. I WAS AFRAID TO GET OFF SO I HELD ON UNTIL 8:3OAM AND NO ONE CAME ON I WENT OFF TO SEE IF COULD FIND SOMEONE. WHEN I TRYED TO GET BACK ON I COULD NOT GET VOICE. IF I CANNOT GET MY VOICE TOMORROW WE WILL HAVE TO CANCEL MY PART TIL SOME LATER DATE.
The chat sessions are really going well thanks to the efforts of Michael and Ken. We understand that you may be frustrated with all of the problems we've been having. Yahoo has been working dilligently to solve them. Thank you for your patience. Don't miss Weds and Thurs at 2:30EST...special topics: Water Therapy (Weds) by Dan and Different Stages of Parkinson's (Thurs) by jjjane.
We straightened up the Fridge yesterday. We were conducting science experiments in there and didn't know it! LOL Not much unlike the one in my kitchen! Seriously, we archived the messages. It was taking too long to load. We now have two files of archives that are labelled by dates. Just click on the date of interest. See you at the chatroom sessions! Bren
bren---talked to ken this morning in the chat room,HE ASKED ME TO TALK ABOUT WATER THERAPY ON WED.I TOLD HIM I WOULD BE GLAD TO BUT ONLY IF WE HAVE VOICE. I JUST COULD NOT HANDLE WITH MY ONE FINGER TYPING. IF WE CANOT GET VOICE ON REG CHAT COULD WE DO IT IN "FRIENDS" LIKE WE DID THE OTHER DAY?
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Hi, 39 year old parkie in Rome, Ga. I just wanted to let anyone out there in NW Georgia/NE Alabama that our new support group is up and running. Our next meeting is next Tuesday, Oct. 19th @ 6:00pm. We meet at 5th Ave. Baptist Church fellowship hall, 416 N. 5th Ave., Rome, GA 30161. Our guest speaker this month will be Debbie Walker, Bertek Pharmaceuticals, Inc. She will present a multi-media program on the resuce medication "APOKYN", (injectable ampomorhine) and talk about other up & comming treatments. For more information, please call James at 706-235- 3164 or email james_trussell@yahoo.com. Our website is www.northwestga.net/index2.html
Live Life Like You're Dying!
Help! I am terribly frustrated with the uncertainty of diagnosis. I have been diagnosed with too many neurological disorders. What one is right? My insurance isn't the best. I am on a medication for Parkinsons, it does help some with the tremors but not much for the pain and stiffness. How can an ordinary Joe find good help?
My Hand With Yours Going through rough times alone Is not something that I condone Neither does a friend of mine He becomes your personal lifeline. This has to be the kindest man He is the one we call Mr. Dan He is there to encourage and support you No matter what it is that you must do. When you feel alone and need his love Just put one hand in the other and look above That hand you feel inside your own Is really his so you're never alone. Trust in this and you will find Someone who cares and is always inclined To offer his love in your time of need He is a great man we have all agreed.
How do I go about getting SSI for my wife who is unable to work due to parkinson's?
has anyone tried ginseng for parkinsons. apparantly there was a study done on rats at Dalhousie university. the results were promising.
Hi Everyone, I have a web site called www.effectivespeakingconsultants.com. I am a motivational speaker. On there I have put my story and that of Janet Carlisle. If you have a story that you feel should be told e mail it to me at gerardk@effectivespeakingconsultants.com. I will post your story on my site. I have young onset parkinsons myself.
I am trying to locate the suppliers in the UK of ultra lightweight powered wheelchair. I believe that it is based on NASA technology.
PARKINSONS EXERCISE STUDY AT THE UNIVERSITY OF SOUTHERN CALIFORNIA, LOS ANGELES is currently enrolling subject who: 1. Diagnosed with Parkinsons Disease within the last 3yrs. 2. Not on Sinemet. 3. Demonstrates changes in funtional movement. For more information contact Dr. Beth Fisher at: 323.442.1006, bfisher@usc.edu.
RON MOORE, HAPPY BIRTHDAY HONEY!!!!!!! I LOVE YOU SOOOO MUCH.... YOUR LOVING WIFE
Hello, I am writing to tell you about a possible treatment for Parkinson’s Disease. This treatment employs low-dose olanzapine (1.5 mg, Zyprexa Zydis ORALLY DISINTEGRATING TABLETS) as an adjunctive treatment to levodopa and pramipexole. The use of these three medicines resulted in a marked decrease in PD symptoms for one patient. Discontinuance of treatment resulted in a return of similar signs and symptoms. I am posting because I want to publicize this information to as many PD patients and neurologists as possible. I do know the person who has benefited from this treatment. My only motivation is obtaining anecdotal feedback from others who may benefit from this treatment. If you think that your PD symptoms may be alleviated with this treatment, contact your neurologist. Any responses to the use of olanzapine as an adjunctive treatment to levodopa and pramipexole should be emailed to PDtreatment@hotmail.com or faxed to 212-608-0886. A recent journal article* by Durif et al. (2004) in Neurology describes the use of clozapine in reducing levodopa induced dykinensias. Based on this article and an understanding of olanzapine’s theoretical basis, I believe that low-dose olanzapine (1.5 mg, Zyprexa Orally Disintegrating Tablets), added to levodopa and pramipexole, would benefit PD patients. * Durif, F., Debilly, B., Galitzky, M., et al. (2004). Clozapine improves dyskinesias in PD: A double-blind, placebo-controlled study. Neurology, 62, 381-388.
FDA APPROVES APOKYN FOR TREATING PARKINSON'S PATIENTS (The following is a reformatted version of a press release issued by FDA and received via electronic mail. The release was confirmed by the sender.) April 21, 2004 FDA APPROVES APOKYN FOR THE ACUTE TREATMENT OF EPISODES OF IMMOBILITY IN PARKINSON'S PATIENTS FDA has approved Apokyn (apomorphine) as an injectable drug for treating Parkinson's patients during episodes of "hypomobility," so-called "off periods" in which the patient becomes immobile or unable to perform activities of daily living. Apokyn was given priority review because injectable apomorphine is the first therapy approved to treat these episodes acutely (during the episode). Apokyn was also designated as an orphan product. An estimated 1.5 million Americans have Parkinson's disease, which results in tremors, rigidity, postural instability, slowness, and difficulty moving. Within 3 to 5 years of treatment with standard Parkinson's drug treatments, about ten percent of patients experience episodes of hypomobility (e.g., inability to rise from a chair, to speak, or to walk). The episodes can occur toward the end of a dosing interval with standard background medications (so-called "end-of-dose wearing off") or at unpredictable times (spontaneous "on/off"). Apokyn was designated an orphan drug in l991 to treat the ten percent, or about 112,000 Parkinson's patients who progress to stage four and experience the severe on/off motor fluctuations unresponsive to other therapies. Orphan drugs are drugs that treat a rare disease or condition which affects fewer than 200,000 patients in the U.S. After receiving FDA approval, orphan drugs are eligible for seven years of exclusive marketing. The effectiveness of Apokyn in the acute symptomatic treatment of both types of recurring episodes of hypomobility or "off" episodes associated with advanced Parkinson's disease was established in three randomized, controlled trials. On average, patients participating in these trials had had Parkinson's disease for 11.3 years and were being treated with L-dopa and at least one other agent, usually an oral dopamine agonist. Apokyn must be taken with an antiemetic drug because, when taken alone, it causes severe nausea and vomiting. It must not be taken with one class of very effective anti-nausea drugs, the 5HT3 antagonists (ondansetron and similar drugs), because the combination of Apokyn (apomorphine) and these drugs can lead to very low blood pressure and loss of consciousness. Apokyn is intended for subcutaneous injection only. Other oral drugs, taken chronically, are also used to help decrease the amount of time Parkinson's patients spend in the "off" state. Patients and caregivers should carefully read the Patient Package Insert and Directions for Use on the ampule and dosing pen. Patients should also be instructed to use the drug only as prescribed. Apokyn's labeling also includes specific warnings about low blood pressure, fainting, hallucinations, and excessive sleepiness. The most common adverse events seen in controlled trials were yawning, dyskinesias (abnormal movements), nausea and vomiting, sedation or sleepiness, dizziness, runny nose, hallucinations, edema, chest pain, increased sweating, flushing, and pallor. Apokyn is a new molecular entity - a medication containing an active substance that has never before been approved for marketing in any form in the United States. Apokyn is manufactured for Bertek Pharmaceuticals, Research Triangle Park, NC, by Draxis Pharma Inc., Canada. Media Inquiries: 301-827-6242 Consumer Inquiries: 888-INFO-FDA (km)PN -END- #<662235.940960># Last Updated: April 21, 2004 17:29 EDT
FDA APPROVES APOKYN FOR TREATING PARKINSON'S PATIENTS (The following is a reformatted version of a press release issued by FDA and received via electronic mail. The release was confirmed by the sender.) April 21, 2004 FDA APPROVES APOKYN FOR THE ACUTE TREATMENT OF EPISODES OF IMMOBILITY IN PARKINSON'S PATIENTS FDA has approved Apokyn (apomorphine) as an injectable drug for treating Parkinson's patients during episodes of "hypomobility," so-called "off periods" in which the patient becomes immobile or unable to perform activities of daily living. Apokyn was given priority review because injectable apomorphine is the first therapy approved to treat these episodes acutely (during the episode). Apokyn was also designated as an orphan product. An estimated 1.5 million Americans have Parkinson's disease, which results in tremors, rigidity, postural instability, slowness, and difficulty moving. Within 3 to 5 years of treatment with standard Parkinson's drug treatments, about ten percent of patients experience episodes of hypomobility (e.g., inability to rise from a chair, to speak, or to walk). The episodes can occur toward the end of a dosing interval with standard background medications (so-called "end-of-dose wearing off") or at unpredictable times (spontaneous "on/off"). Apokyn was designated an orphan drug in l991 to treat the ten percent, or about 112,000 Parkinson's patients who progress to stage four and experience the severe on/off motor fluctuations unresponsive to other therapies. Orphan drugs are drugs that treat a rare disease or condition which affects fewer than 200,000 patients in the U.S. After receiving FDA approval, orphan drugs are eligible for seven years of exclusive marketing. The effectiveness of Apokyn in the acute symptomatic treatment of both types of recurring episodes of hypomobility or "off" episodes associated with advanced Parkinson's disease was established in three randomized, controlled trials. On average, patients participating in these trials had had Parkinson's disease for 11.3 years and were being treated with L-dopa and at least one other agent, usually an oral dopamine agonist. Apokyn must be taken with an antiemetic drug because, when taken alone, it causes severe nausea and vomiting. It must not be taken with one class of very effective anti-nausea drugs, the 5HT3 antagonists (ondansetron and similar drugs), because the combination of Apokyn (apomorphine) and these drugs can lead to very low blood pressure and loss of consciousness. Apokyn is intended for subcutaneous injection only. Other oral drugs, taken chronically, are also used to help decrease the amount of time Parkinson's patients spend in the "off" state. Patients and caregivers should carefully read the Patient Package Insert and Directions for Use on the ampule and dosing pen. Patients should also be instructed to use the drug only as prescribed. Apokyn's labeling also includes specific warnings about low blood pressure, fainting, hallucinations, and excessive sleepiness. The most common adverse events seen in controlled trials were yawning, dyskinesias (abnormal movements), nausea and vomiting, sedation or sleepiness, dizziness, runny nose, hallucinations, edema, chest pain, increased sweating, flushing, and pallor. Apokyn is a new molecular entity - a medication containing an active substance that has never before been approved for marketing in any form in the United States. Apokyn is manufactured for Bertek Pharmaceuticals, Research Triangle Park, NC, by Draxis Pharma Inc., Canada. Media Inquiries: 301-827-6242 Consumer Inquiries: 888-INFO-FDA (km)PN -END- #<662235.940960># Last Updated: April 21, 2004 17:29 EDT
As I sit hee thinking how pd has effected my life I wonder if i would have been the same person? I have grown to be a person who understands what it means to say please and thank you. To appreciated what people do and to listen to them when they speak.
when mailing checks for Muhammad Ali gloves, please mail to Midwest Parkinson's Awareness P.O. Box 2785 Alliance, Ohio 44601 In the previous message, I forgot to type in the zip code.
July 9-11 we're holding symposium-unity walk at pro football hall of fame in Canton, Ohio. We're raffling boxing gloves autographed by Muhammad Ali. You may purchase tickets via mail. wheaever amount of tickets you want, we'll put your name and phone number on each one, mail you the stub and on july 11, we'll draw winning ticket. You don't need to be present to win, although we'd love to see you here. We'll ship the gloves to you, Monday July 12, 2004. Ticket prices are: $5.00 for 5 tickets $10.00 for 11 tickets $20.00 for 25 tickets $50.00 for 75 tickets $100.00 for 150 tickets Make checks payable to Midwest Parkinson's Awareness and mail to P.O. Box 2785/ Alliance, Ohio Any questions, please feel free to call Ron Moore at 330-829-2964 or artist4memories@yahoo.com
I am a 50 year old woman with advanced Parkinson's. About 5 months ago my husband, a teacher, told me he was moving out at the end of the school year. A month later he said he was not going to and would be committed to the marriage. Now he states that he believes that his position as a teacher will probably be cut. He has decided he wants to explore starting a home school band. We have no savings of any kind for him to start up his own school. I have asked him to consider applying to other districts. He accuses me of not trusting and supporting him. When my meds are not working I can bearly get around or even breath. I just don't have the ability or strength to start over again. He might have a chance of succeeding if I were no longer in the picture. The situation is leaving me feeling I am nothing more than deadmeat hanging around his neck. Would appreciate hearing any opinions or suggestions by personal e-mail. My email address if vlhperry@hotmail.com. Please help.
Hi I am a 'carer' working in a nursing home in Australia. I am putting together a book/resource to help carers, working in a residential setting, to understand some of the conditions of their residents. I would like to include some personal stories, sooo if anyone out there has their story they would like to share please email me <genteale@dodo.com.au>. My intention is to give the carers not only an increased knowledge, but an empathy and awareness of what it is like, having Parkinson's...the feelings, the difference it makes, etc. Your stories, however short or long would be much appreciated...thanks, Ruth Teale
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I am looking for info about PD and Creatine and possible benefits by taking it as a supplement. I will be pleased to hear from all who have had the courage to use Creatine. Sincerely from Canada
july 9-11, 2004 awesome event. \July 9..meet & greet at Marriott Hotel July 10...Symposium @ Pro Football Hall of Fame, informative speakers, prizes, lunch, lunch and tours of hall of fame and museaum. July 11...Unity Walk-Health Fair, Central Catholic Football stadium, Unity walk, health fair, classic car show, prizes, NFL appearances, games, jugglers, live bands and much more. For hotel reservations, contact Marriott hotel at 1-800-742-0379. rooms are discounted to $79 from $140. To get this special rate, you MUST inform them you're reserving the room for the Parkinson's disease event. Any questions, or if you'd like an information packet, please contact me at 330-829-2964 or artist4memories@yahoo.com
Help with school project ASAP please . I need to interview someone living with PD for my term paper. These are the questions How did this person get this condition? Is this person managing his/her chronic illness well? Explain What is this person doing to treat this condition? and last Which activities of daily living might this person have problems with? explain . Please help me I will be very greatful.
Hello I am doing a school project on Parkinson's disease and I need help!!! I have to interview someone with parkinson's disease and I need to ask them these questions How did this person get this condition? Is this person managing his/ her chronic illness well?Explain. What is this person doing to treat this condition? Which activities of daily living might this person have problems with? explain. Please can someone help me . you can e-mail me at ashleywuttunee63@hotmail.com
Messages Messages Help Reply | Forward | View Source | Unwrap Lines | Delete Message 2485 of 2485 | Previous | Next [ Up Thread ] Message Index Msg # From: "Deborah Stanley" <roadrunner1st2002@y...> Date: Tue Feb 24, 2004 4:11 pm Subject: "Miracles Do Happen"!! I would like to take this opportunity to share this with everyone. As you know my husband, Jason (icethe1st) was dxd with PD nov 03. He lost the ability to speak and walk on 3 January 04. A Miracle has happened. On Saturday (21 Feb 04) at 12:30 AM Jason signed to me (finger spelled-sigh language) that he had clicking noises in his head. He has had them off and on. He signed to me that the clicking noises were getting louder and faster. The clicking noises sounded like someone turning a light switch on and off, on and off. A few minutes later, he said the clicking noises were getting softer and slower. He signed to me that he thinks the clicking noises are going to stop and if they do, he thinks he will be able to talk. A few minutes later Jason begain talking! He got a real bad headache when he first started talking. This is the first time he has been able to speak since 3 January. He stutters when he speaks, but was able to talk. Jason even sang 3 songs to a friend of ours in conference without stuttering even once. He only stutters when he talks. We told our friends who were still on line at that time of night/day about this miracle. We went to bed to get a few hours of sleep. When we woke up that Saturday morning, Jason was still talking. He still stuttered but was talking fine. On Sunday morning when Jason woke up, he said the clicking noises have returned. It was apparent that his stuttering was also getting worse, but he was still able to talk. On Monday, there were no changes. He was still talking. Today Jason is still able to talk, but his stuttering has become real bad. It takes a few seconds for him to get the words to come out, but he can still talk, just like when he first lost his voice. We don't know how long Jason will be able to keep his voice. we are taking it "One Day At A Time". This goes to show you that "Miracles Do Happen"!! You don't know when a miracle will happen, it just happens. We will keep praying for a cure for PD, and keep fighting. From: Debbie Stanley
Hi, anyone up?
I'm 49 and diagnosed with atypical PD. I told my doctor I experienced extreme hand fatigue in the late 1980's. She said it's possible I have had PD since then--formally diagnosed in 2001. I am now experiencing excrutiating calf and foot cramping when I sleep. I am trying to get more potassium in my diet, but I was wondering if others suffer from this painful type of cramping. Is it a common PD symptom?
Francaes O'Sulivan from Dubin Ireland on Travels With Parkinson's www.live365.com/stations/travelswparkinsons at 10:00 AM EST join us Chy
I ran across this in a magazine at the doctors office today. This company is offering 3 years of free webhosting to anyone that signs up. No credit cards, no committment Check it for yourself. It's the best deal I've ever seen, anywhere. www.1and1.com
If you need info on SSDI go to my site at http://pypa.com and click on the "SSDI and PD" link. Get educated and win your claim the first time you file.
Hi All...Has anyone noticed that on the demographics map, that the hgher pd rate co-insides with a high indstrial presence???
Hi all! In looking at the map, I saw that there are two hawaii people. The map just says carol and lou ann. I am on the Big Island & would like to get in touch with them. My e-mail is judithv@aloha.net. If anyone talks to them, please let them know! Aloha, Judi in kona
I want to talk on this chat and i can't get it. WHY
Now with the Holidays coming up, Thanksgiving just a week and half away and Christmas not to far behind. YOPA is going to do it's Annual Christmas Fund for PWP's. The awareness pin that I made up is one source of income for it and did rise a few hundred for this fund but more is needed. Please either buy a pin for $5 dollars or send a couple of dollars to YOPA, PO BOX 50936 Albuquerque, New Mexico 87181-0936. If you know of a needy pwp that needs help send in a 250 word essay about this person and why he/she needs help to directors@yopa.org. Thank you very much and HAPPY HOLIDAYS.
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on wednesday, i am to give a talk to our lgst. area hospice. while they say they only want me to talk about my personal experiences w/ pd...i have been thinking quite alot about end of life issues. couple this with the story of Terri Schiavo, the young woman in Florida who is in the middle of a huge legal debate over removing her feeding tube and i feel that it might be time to face some unsavory issues. would you be so kind as to help me in an unscientific poll? names will be kept completely anonomous. 1) do you have a living will? 2) on a scale of 1-10 (10 bbeing very important), how important do you consider having a living will to be?? 3) when do you consider to be the natural end of life?? 4) would you like to be kept alive by feeding tubes and breathing tubes? 5) what is the governments role in this issue (Gov. Jeb Bush ordered her feeding tube re-inserted)??? 6) on a scale of 1-10 (with 10 being very religious/spiritual), how religious/ spiritual do you consider yourslef to be?
LAPD,Treasonist,http://www.angelfire.com/nb/ugh/dearjohn.html ,urgent,update,2-23-03, see,http://www.angelfire.com/nb/ugh/dearjohn.html , Imperialist,Power,Hungry,Crooks,Kill,Kids,by,their,Negligence, in,regards,to,the,taunting,microwave,weapons,slow,death,of,Walter,Tribe,in,L.A., -------------------------------------------------------------------------------- Electronic,Weapons,Kills,Kids,faster,then,adult,males,in,Sylmar,CA,USA,Luna,http://www.angelfire.com/nb/ugh/dearjohn.html Navarro,Catron,Hate,Group,doing,this,for,over,ten,years,now,Malicious,Crimes, -------------------------------------------------------------------------------- http://www.angelfire.com/nb/ugh/dearjohn.html Terrorist Group of Criminally Insane Maggots tried to murder Walter Tribe and gave him brain damage with their electronic weapons as they woke Walter out of a sound sleep in his bed at 14657 Nurmi Street, Sylmar CA by intersection of Degarmo Av and Lakeside Street in Sylmar at 11:50pm on June 21st, 2002. Right now it is 2:30am on June 22nd, 2002 and the mind wrenching negative soft kill microwave death ray stimulis masked by ultra sonic weapons stimulis has not stopped! Walter has a massive throbbing headache as the result of this attempt on his life! Walter Tribe is in fear for his life and in fear for the safety of all those near and dear to him as a result of this blatant, reckless cowardly terrorist act inflicted and forced upon his person while he is inside his home! Please investigate The Luna residence on Nurmi St, The Catron residence on Nurmi St, and The Navarro residence on Lakeside St.. Their are many others involved as stimulis comes from 360 degress meaning the terrorist hate group members have Walter Tribe's home surrounded all about! see http://sirwally.com see http://www.angelfire.com/nb/ugh/dearjohn.html see HREF="http://winwally.com">http://winwally.com for ALL THE PREVIOUS DOCUMENTATION OF THESE MALICIOUS ATTACKS ON THE PERSON OF TAX-PAYING AMERICAN CITIZEN WALTER TRIBE. Terrorist Group of Criminally Insane Maggots tried to murder Walter Tribe and gave him brain damage with their electronic weapons as they woke Walter out of a sound sleep in his bed at 14657 Nurmi Street, Sylmar CA by intersection of Degarmo Av and Lakeside Street in Sylmar at 11:50pm on June 21st, 2002. Right now it is 2:30am on June 22nd, 2002 and the mind wrenching negative soft kill microwave death ray stimulis masked by ultra sonic weapons stimulis has not stopped! Walter has a massive throbbing headache as the result of this attempt on his life! Walter Tribe is in fear for his life and in fear for the safety of all those near and dear to him as a result of this blatant, reckless cowardly terrorist act inflicted and forced upon his person while he is inside his home! Please investigate The Luna residence on Nurmi St, The Catron residence on Nurmi St, and The Navarro residence on Lakeside St.. Their are many others involved as stimulis comes from 360 degress meaning the terrorist hate group members have Walter Tribe's home surrounded all about! see http://sirwally.com
LAPD,Treasonist,http://www.angelfire.com/nb/ugh/dearjohn.html ,urgent,update,2-23-03, see,http://www.angelfire.com/nb/ugh/dearjohn.html , Imperialist,Power,Hungry,Crooks,Kill,Kids,by,their,Negligence, in,regards,to,the,taunting,microwave,weapons,slow,death,of,Walter,Tribe,in,L.A., -------------------------------------------------------------------------------- Electronic,Weapons,Kills,Kids,faster,then,adult,males,in,Sylmar,CA,USA,Luna,http://www.angelfire.com/nb/ugh/dearjohn.html Navarro,Catron,Hate,Group,doing,this,for,over,ten,years,now,Malicious,Crimes, -------------------------------------------------------------------------------- http://www.angelfire.com/nb/ugh/dearjohn.html Terrorist Group of Criminally Insane Maggots tried to murder Walter Tribe and gave him brain damage with their electronic weapons as they woke Walter out of a sound sleep in his bed at 14657 Nurmi Street, Sylmar CA by intersection of Degarmo Av and Lakeside Street in Sylmar at 11:50pm on June 21st, 2002. Right now it is 2:30am on June 22nd, 2002 and the mind wrenching negative soft kill microwave death ray stimulis masked by ultra sonic weapons stimulis has not stopped! Walter has a massive throbbing headache as the result of this attempt on his life! Walter Tribe is in fear for his life and in fear for the safety of all those near and dear to him as a result of this blatant, reckless cowardly terrorist act inflicted and forced upon his person while he is inside his home! Please investigate The Luna residence on Nurmi St, The Catron residence on Nurmi St, and The Navarro residence on Lakeside St.. Their are many others involved as stimulis comes from 360 degress meaning the terrorist hate group members have Walter Tribe's home surrounded all about! see http://sirwally.com see http://www.angelfire.com/nb/ugh/dearjohn.html see HREF="http://winwally.com">http://winwally.com for ALL THE PREVIOUS DOCUMENTATION OF THESE MALICIOUS ATTACKS ON THE PERSON OF TAX-PAYING AMERICAN CITIZEN WALTER TRIBE. Terrorist Group of Criminally Insane Maggots tried to murder Walter Tribe and gave him brain damage with their electronic weapons as they woke Walter out of a sound sleep in his bed at 14657 Nurmi Street, Sylmar CA by intersection of Degarmo Av and Lakeside Street in Sylmar at 11:50pm on June 21st, 2002. Right now it is 2:30am on June 22nd, 2002 and the mind wrenching negative soft kill microwave death ray stimulis masked by ultra sonic weapons stimulis has not stopped! Walter has a massive throbbing headache as the result of this attempt on his life! Walter Tribe is in fear for his life and in fear for the safety of all those near and dear to him as a result of this blatant, reckless cowardly terrorist act inflicted and forced upon his person while he is inside his home! Please investigate The Luna residence on Nurmi St, The Catron residence on Nurmi St, and The Navarro residence on Lakeside St.. Their are many others involved as stimulis comes from 360 degress meaning the terrorist hate group members have Walter Tribe's home surrounded all about! see http://sirwally.com see http://winwally.com for ALL THE PREVIOUS DOCUMENTATION OF THESE MALICIOUS ATTACKS ON THE PERSON OF TAX-PAYING AMERICAN CITIZEN WALTER TRIBE. -------------------------------------------------------------------------------- Sign Guestbook Read Guestbook MUSIC Long Term Elec Weapons Torture and Attempted Murder Victim Walter Tribe Demands That Hate Group Members Go To Jail Now! 6-22-2002 -------------------------------------------------------------------------------- This page has been accessed 4 times. This page was last updated Fri Jun 21 18:31:31 2002 Pacific time Update: 6-25-2002 6:39pm in Sylmar, CA, Criminally Insane Housewife Addictive Electronic Weapons Abusers Organization is Killing all Human Beings County Wide in Los Angeles CA USA! The last 168 hours has been made a living hell for victim of intentional hate crimes including assault with a deadly electronic weapon with intent to murder and or cause great bodily injury including severe brain damage 6-25-2002 6:45pm :( -------------------------------------------------------------------------------- Sign Guestbook Read Guestbook MUSIC See http://sirwally.com and See http://winwally.com to Stop Communist,Satanic,Gossips,Abusing,Elec,Weapons,24/7,for,over,10 years -------------------------------------------------------------------------------- This page has been accessed 9 times. This page was last updated Tue Jun 25 10:35:57 2002 Pacific time
see below for Pete Boots' entry, its a worthwhile trip, if you can make it over to the UK.
Tune into "Travels with Parrkinson's" "Oldies Night" on www.live365.com/stations/travelswparkinsons The Internet's only radio station for Parkinson's Disease 9:00 PM EST
Hello, all! An update, since it's been awhile since I was here. Tom and I have been married now for a little over a year and a half! Time has flown, but neither of us has ever been happier! Tom has had one DBS adjustment, in July, with great success. He has weaned himself completely off the Mirapex, and he was taking three a day! I saw a new neuro last Friday, and he was very good. Did not doubt my dx, which is a first!, prescribed the new drug Stalevo, which is a combination of regular Sinemet 25/100 and Comtan 200mg, which I take every day. He also added another dose of the Stalevo in the evening, which is new. I think that was to help me move in bed during the night. It was a sobering visit, however, as it was the first time I have ever had a doctor tell me to remove all the throw rugs from my house, and also the first time a doctor has told me that I need my laundry on the first floor of my home instead of in the basement. Anyway, just wanted to drop all a note to let you know we did not drop off the face of the earth when we got married!!
CHY IS BACK & SO IS “TRAVELS WITH PARKINSON’S” On the radio show by parkies and for parkies, Chy Cassavant will be once again manning the microphone and hitting the airwaves again. Joan Blessington Snyder will pitch in as the Program Director in charge of lining up guests for the show. In the first show of this new collaboration, we will be interviewing and speaking with Bob Benjamin-the executive producer of the newly released 2-cd set: LIGHT OF DAY-A TRIBUTE TO BRUCE SPRINGSTEEN. Bob is a PWP and also manages some of the musicians who play on this album and he has named the Parkinson Disease Foundation as one of the recipients of the proceeds from this venture. With artists like Elvis Costello, Graham Parker, Joe Grosheky and Dion all doing cover songs of Springsteen tunes, you can bet that this conversation will be a spirited and fun way to start Chy’s comeback tour. The interview will air on Monday, September 29th at 10 AM eastern time and you can find out how to connect your computer to radio station by clicking on: http://www.live365.com/stations/travelswparkinsons and following the directions on the website.
Hi all, I was wondering if anyone has or heard of the type of parkinsons that makes you rigid. My father has been diagnosed with a type of parkinson but I can't find anything that specifiies the rigidness that my father is experiencing. He can not move or talk at all. I have read a lot on the parikinson that causes tremors but, not the ridgidness can someone help me. Thanks
I am seeking an assistive writing aid for my father who has a tremor which affects the legibility of his writing. He needs to find a store/supplier that will allow a trial of tools prior to purchase. He lives in the Ottawa area.
Hi All, Bren and I have been asked to speak at this Symposium...if any of you happen to be in the area, please stop by!!! It looks to be a very informative day! Parkinson’s Disease Symposium, 2003 Blazing Toward A Cure Presented by the University Of Rochester and the Parkinson’s Support Group of Upstate New York, an Affiliate of the National Parkinson’s Foundation Saturday, September 20th 8:30-#:00 Radisson Inn 175 Jefferson Road Rochester New York 14623 Pre- Registation is appreciated by 9/17/03 (585) 234 5355 Warmest Regards, Nan
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As a nurse case manager, I have lots of patients with lots of medication and they told me about a place where you can get free info about free and discount medication. I received information about various ways to get free and discount prescription medication and it really works. I want to share this with others who are like me and have to pay lots of money for their medicaton. It didn't cost me a cent. I mailed a self addressed stamped envelope to: CCP P.O. Box 823838 South Florida, Fl 33082-3838 and they sent me the information. It told me how to get my money back from medication that I had an allergic reaction to and I did get reimbursed for the medication. It told me how to apply to get free medication. Please pass this message on to others to will benefit from this important information. Here is what was in the packet. 1)The contact information for a company that works with the drug manufacturers and supplies the application to get medication for free. 2) How to locate the pharmaceutical manufacturers for their drug programs. 3)Prescription savings cards. 4) Money saving ideas 5) How to get Canadian drugs at a substantial savings. Here are some examples of costs: Sinemet CR (brand) all 100 tabs but you must buy a 3 month supply: 25/250 = $77.40 100/10 = $46.44 100/25 = $54.71 200/50 = $126.15 Generic Sinemet 25/100 = $38.86 and 10/100 = $26.62. Requip is brand only no generic Sold in 100 tabs and you need to buy a 3 month supply .25 mg $28.33 1 mg = $113.30 2 mg = $124.63 Amantadine the generic for symmetrel 100 tabs 100 mg $56.97 Mirapex is only Brand and 100 tabs .25 mg = $98.01 .5 mg = 196.02 1 mg = $196.02 1.5 mg = $196.02 Comtan is brand only 100 tabs 200 mg $154.00 Selegeline generic for Eldepryl 60 tabs 5 mg = $83.49 Benztropine generic for Cogentin sold in 100 tabs 1 mg = $22.37 and 2 mg = $15.94 Trihexyphenidyl generic for Artane 100 tabs only 2 mg = $23.30 and 5 mg = $15.94 Permax is brand only 30 tabs of .05 mg = $18.20 100 tabs of .25 mg = $100.19 and 100 tabs of 1 mg = $341.55 There are many more bargains for all your medications. This information is all free and costs you nothing but saves you money. Send today for the free information and compare prices!
i would like to thank everyone who made te trip to illinois (either in person or in their hearts) this year! it was more of a "love-in" than anything, and my special thanks to toad for the beatiful write up.
Yahoo! Messenger is a free service that uses the connection you have established with your Internet service provider (ISP). Just download the Messenger software and sign up for a free Yahoo! Account.. http://messenger.yahoo.com/ We will have a group chat Sunday around 8:00 pm CST for folks with ET. I would like to invite you to join us so you can get the know the posters up close and personal. You might hear harley7898367 In Washington sing us a song. Grand61angle in Eastern Tennessee may tell us what she personally knows about Elvis. If you would like to participate, please add one of the following to your yahoo IM friend’s list and watch for us to be on line on Sunday night. You would need a mike and headphones attached to your sound card. If you have not tried voice before, I would like to have a test chat with you. If you do not understand the help explanation for Yahoo IM, please email me directly gary_coplin@yahoo.com Or call me @ 713-721-3314 or send me your phone # and I will call you. This kind of format works best for voice chat. I'd also hope many of you would include some info about yourself in your yahoo user ID profile . See mine http://profiles.yahoo.com/gary_coplin for ideas on what you might want to include.
I am writing an article on the effects of physical, occupational and/or speech therapy on PD. I'm looking for a few patients to interview who can share their experience with PT/OT and/or ST with others. The article will be featured in the New Hope for Parkinson's newsletter, which will be available both online and in printed form. The newsletter is designed to provide information to help PD patients live better with the disease. It is being produced by Medtronic Activa Therapy, which makes the pacemaker-like devices used in DBS. The newsletter is not a promotional vehicle for Activa Therapy. If you're interested in talking with me, please e-mail me at leah.galle@attbi.com. Thanks!
I have had Parkinson's for 12 years the last 4 years in its advanced stages. I recently had bilateral stimulation surgery and it has helped dramatically. I lost my life's savings, my retirement savings, my health insurance and even my car. I am penniless but still do not feel like it is futile. I have written a book titles Evertone Has An Everest. It is about my denial of the disease, my being a principal in an inner city school in Miami and how I dealt with it and so on. I do not want to bore you, but I am looking for a doctor to write an introduction for the book. I first asked Janet Reno to do it but she just backed down. The book is really good! I can send you a copy. I found a professional ghostwriter to fine tune it and polish it for no cost to me. He says the story is worth telling. If you are willing to do this for me please write me at edandrew@stis.net or call 954/739-7699.
Congratulations to all the people involved in putting together the "PLWP 3rd Aniversary Photo/Music Show"!! It is a fantastic and very professional piece of work, that brought back many wonderful memories. With much thanks and appreciation; Sincerely, :) Ryan
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I've been on the Rotigotine study since last summer. I am now on the open label phase of the patch study and I feel great. I'm currently on 60mg which is the highest dose. I'd say in the past week I've had very little off times. I have more energy, my mental state is great (don't ask my kids tho lol)I'm paid every week for mileage. My drug coordinator feels this will be FDA approved in 2-3 years. This does nothing for the tremor tho. If anyone has any questions please email me at carolpost@aol.com.
Anyone out there in the Baltimore, Montgomery County, Northern Virginia or DC area interested in taking part in a clinical study for the Rotigotine Patch? The manufacturer is Schwartz Bio-Sciences of Germany, and as many of you probably know is already being used in Europe. Dr. Marc Raphaelson, in Frederick, Maryland is now accepting applications for inclusion in this Phase III, double blind study. The only specific I know about is that you must have “off” times of at least 2-1/2 hours per day, so this study is obviously not for volunteers who are early stage PDers. At first the study will mean weekly visits to the office, but after maintenance dose is reached, office visits will then be once every three months. Volunteers will be paid $50.00 per visit, which will be paid at the end of participation in the study. This request is in advance of newspaper advertising, so anyone who is truly interested will have a better chance of being included. It’s the old “first come, first served” thing. I would LOVE to be able to fill his volunteer requirements from the Forum and PLWP. A word about Dr. Raphaelson. He thinks I’m some kind of activist (boy, do I have him fooled!), and because of that mistaken impression, he asked me if I would be interested in letting my Parky (he didn’t use that word, naturally), friends know about the study. And, of course, I said I would. I will tell you that three days after I joined PLWP he knew all about the group and he does keep a poster on his entrance door for everyone to see. As you might have guessed by this time, he is, indeed, my neurologist, and, personally, I think he walks on water. He has been extremely kind and supportive to me and my family. Dr. R has a history of PD in his family which is why he specialized in neurology. I got my dx within 20 minutes of the standard clinical testing. Now, seven years into PD, if you didn’t know me, you wouldn’t know I have PD. Enough said. If you are interested in volunteering for this study, please let me have your name, address and phone number so that I can turn them into Dr. R for follow-up. One advantage (for me), of this being in Frederick. is, if you are so inclined, that I can direct or lead you easily to his office, hopefully meet some of you I haven’t had the pleasure of meeting before and maybe we can do lunch once in a while. My e-mail is seasongood1@msn.com and my phone number is 301-694-9297. Confidentiality is assured, as far as I am concerned. The extent of my work is only recruitment for a very important clinical study. I hope to hear from some of you soon. Sylvia
Just like all of you to know that on June 28 we will be holding our third annual fundraising bowl-a-thon in Hammond, IN. If any of you are in the area of Olympia Lanes on that date please come on by. All funds go to PD research and education. Kerry Mitchell
Greetings, Parkey family!!! My name is Ron, 34 dx 6 weeks ago. I'm in the process of organizing a concert/dance to benefit pd. "Jimmy and the Soul Blazers. They're very popular on East coast. Motown/oldies music. If there's any one around my neck of the woods, I may need your assistance.I'm excited to get pd awareness strong in Ohio and abroad. I'm extremely experienced in charity fund raising. Since my dx, I want to include helping plwp, YOPA, and Michael J. Fox Foundation. Any one w/ connections to getting ahold of Mohamad Ali, MJF, or any influential celebrity, contact me, please?! Thank You sooooo Much!
I've been doing some research today as part of an herbal apothecary company I've helped form in the past year. I am also a medical transcriptionist and therefore have the knack for more thorough research of drugs both natural and western medicine pharmaceutical. I have discovered that Butcher's Broom aids with the orthostatic hypertension associated with Parkinson's medications as well as the Parkinson's itself, diabetes and other possibly related vasocontriction problems such as migraines. There is also an ancient India herb that has been found in an Ayurvedic Medical Textbook from over 5000 yr. ago. The herb is mucuna puriens, the mucuna bean that is a natural derivative of levadopa and is being manufactured in relation to a disorder specialist, Dr. Bala Manyam, of the Univ. of S. Illinois.
You know Pete, I'd really love to be there. I'm totally serious...if I could afford it, I would be there. Good luck to you!
PARKINSON'S BENEFIT CONCERT SUNDAY 25TH AND MONDAY 26TH MAY ³FILL YOUR HEAD WITH ROCK is my front line in the battle against Parkinson's all monies raised from the event goes to THE PARKINSON'S DISEASE SOCIETY, U.K I have, I think put together a brilliant line up, but there is the problem. that is convincing the people, that such high international acts are coming to play "FILL YOUR HEAD WITH ROCK", I myself have Parkinson's but I refuse to let Parkinson's have me. ****************************************************************************************************************8 PRESS RELEASE PARKINSON'S DISEASE SOCIETY BENEFIT CONCERT JOE D’URSO MAKES FILL YOUR HEAD WITH ROCK PART OF HIS WORLD TOUR “FILL YOUR HEAD WITH ROCK” FILL YOUR HEAD WITH ROCK GOES INTERNATIONAL My name is Pete Boot, [BOOTY] way back in seventies I was the drummer with BUDGIE You see five years ago I was diagnosed “Parkinson’s”, I am now the best tambourine player in the business, coming to terms with Parkinson’s was similar to being told the bands got a fantastic record deal but also a new drummer, you accept it but refuse to give in. I never knew that all those years on the road would help me cope, but in bands as you know you develop the skin of a rhino, with the determination of an ant. I have Parkinson’s it will never have me, I feel sorry for Parkinson’s for he now has Booty disease, FILL YOUR HEAD WITH ROCK, is a two day rock festival I organise to raise funds for the Parkinson's society, now in its fourth year it takes place on Sunday 25th and Monday 26th. I desperately need to heighten the profile of the event, I need to take new ground, I have no intention of giving up, the other option being to lock myself away, but the illness would be locked away with me. That would achieve nothing. I must I fight, yet I'm fully aware this is a fight I may not win, though not able to claim victory I will grasp dignity with both hands [if they keep still] So with every ounce of respect to yourselves I ask that you see if there is a way you can help i , I seek no personal gain or promotion from this request, for there is one simple fact, no one knows what's around the corner. It is for those who have no idea that they will walk the same path as me, that I must make the tunnel shorter and the light brighter I do hope you can help, I ENCLOSE THE FOLLOWING DETAILS AND HOPE YOU FIND THE OF INTEREST FILL YOUR HEAD WITH ROCK it is a two-day rock festival, held in Willenhall, West Midlands. Not quite Woodstock I agree, but they both start with the letter “W” so who knows HA! HA! MISSION STATEMENT The event is organised to raise funds for the PARKINSON'S DISEASE SOCIETY UNITED KINGDOM but of equal importance to fund raising, is the need of peoples awareness to Parkinson's, and the debilitating effect it has on every day life. THE GIG; - TWENTY BANDS PLAY OVER THE TWO DAYS, SUNDAY 25TH AND MONDAY 26TH OF MAY 2003. DOORS OPEN 13.00HRS. CLOSE 24.00 HRS BOTH DAYS...........ADMISSION..........£5.00p EACH DAY THE BANDS:- JOE D’URSO [PART OF HIS WORLD TOUR] www.jdcaravan.com ERIC BLAKELY / MICKY KEMP BAND / SUSAN GIBSON [ GRAMMY AWARD WINNER] www.bandsontour.com CHARLIE MACINTOSH. THAT'S FIVE AMERICAN BANDS, THE BRITISH BANDS ARE - THE TREVOR BURTON BAND. RISE, NOWHERE NEAR THE GARDEN. CLIENTELE, JACKS HOUSE, DIZZY LIZZY. MOUND. CLEAR BLUE SKY. TONY HILLS FICTION. FAR SIDE. PREDATOR. OTHER BANDS TO CONFIRM. OTHER INFORMATION :- www.fillyourheadwithrock.com FOR HISTORY SEARCH PETE BOOT ORGANISER; - PETE BOOT, PHONE NUMBER- 01902-635885. MOBILE :-07989132805. FAX: - 01902-635885. EMAIL peterboot@blueyonder.co.uk / SNAIL MAIL 575 WILLENHALL ROAD. WILLENHALL. WEST MIDLANDS, WV13 3 LP. MANY THANKS FOR YOUR TIME IN READING THIS MESSAGE, YOURS SINCERELY...PETE BOOT..... SHAKEN NOT STIRRED www.fillyourheadwithrock.
Because the Yahoo Group Chatroom and Message Board seem to be growing and creating the nucleus we've been looking for, we encourage you to use it instead of this board. The message before this one tells you a little more about what we're trying to do. The URL for our group site is www.groups.yahoo.com/group/plwp2 Thanks, Nan and Bren
TO ALL PLWP MEMBERS! I have a favor to ask of each of you ... and no, I'm not asking for money nor am I asking you to shed blood for PLWP. (Though I really believe many of you would consider doing it!)<BR> <BR> No, what I'm asking is for you to join the Yahoo Group PLWP2 www.groups.yahoo.com/group/plwp2 as soon as you possibly can. <BR> <BR> Why, you ask? Well because it will make mine and Nan's life so much easier. <BR> <BR> How,you ask? Well, Nan and I have struggled with doing mass emails now for a very long time. We need to be able to communicate with everyone and sometimes it's crucial that we get to you in a hurry...for instance something about advocacy or one of our members needs help, etc. It normally takes about 2 hours to do a mass email to you folks and then many of those are returned for various reasons. The account has been closed, the mail capacity has been reached and you can receive no more mail, etc. <PR> <PR> By utilizing Yahoo Group, it doesn't take us any longer to send hundreds of emails than it does to send one. Nan and I don't have to keep up with each address, it's totally up to you to keep it up to date. <BR> <BR> Let me tell you how Yahoo does it. When anyone posts to the Message Board on Yahoo, it automatically emails all of the members. You, the member controls whether or not you receive the email. In your member setup, there are several choices you can make...instead of me writing them all down, check out the "How do I?" at http://www.plwp.org/how_to.htm#Messages . You can change your member set up at any time. <BR> <BR> So, those of you who already have a login with PLWP2, you may want to double check your email address to make sure it's correct. (There's an option on the front page that will allow you to change your setup. Be sure to read it carefully.) <BR> <BR> For those of you who have not joined PLWP2, please do so without hesitation. If everyone is cooperative and takes care of this immediately, Nan and I will completely do away with our old system and go for Yahoo. Remember, this is a democracy ... majority rules. <BR> <BR> There's other benefits to using Yahoo...the board can be used for sharing, communicating, getting help and/or giving help as well as so many other uses. Think of it as somewhere between a chatroom and a forum like on MGH. The thing that makes it so great is the time factor...when the post is entered on the group site it's automatically sent to the membership, the total interaction on PLWP at Yahoo groups is dependent solely one the member. YOU ARE IN CONTROL! <BR> <BR> So please make sure you are an active member of plwp2, that your email address is correct and that you have the appropriote settings for what you want to do. <BR> <BR> I think we'll all be amazed at the convenience thus the increased commoradory of the entire membership. <BR> <BR> Nan and I really thank you for doing this. You've probably just added another 5 years to my life line. LOL....<BR> <BR> There's more I want to say here but we'll have a better method when we get this job done. <BR> <BR> Thank you! Thank you! Thank you! <BR> Bren and Nan
Happy Birthday Pwnkle, You are a special person and I hope that you are having a very special day. You give so much to so many people!! I wish you the very best and hope to see you soon. Thank you for all you do Much Love, Nan aka TLC
YES all of you are correct! Among other great events April 1st is the first day of Parkinson's Month and IT IS YOUR BIRTHDAY! We at PLWP as a group of the Parkinson's grassroots...as a member of an elite extended family...as people who care to make a difference...ARE OFFICIALLY THREE YEARS OLD! I really want for us to do something to commemorate that day...and I've come up with an idea. It will only work if everyone participates. FIRST, I'm sure each of you have at least one fond memory of interacting with others at PLWP. It may be a special chat session, one of the times we all went to NYC for the Unity Walk, a special email from someone you met at PLWP, a spontaneous visit with someone you met thru PLWP, a funny possibly...maybe an embarrassing moment that you would care to share...either yours or one of you PLWP friends. WELL, let's put it together into a PLWP Remembers, 3rd Birthday webpage that will be permanently in our website. Write it up, send pics if you like and get it to me quick at btucma2000@yahoo.com. I know this is short notice, but if you get to me by the last of March I'll try to have it on site on April 1. NOW FOR THE REST OF THE STORY... Perhaps you've seen one of the photoshows on the website. If you haven't, take a look at one on www.plwp.org (menu bar to the left). WELL, what do you think about sending me, either by US Mail or email, some pictures you cherish of times you've spent with PLWP friends OR just a picture of yourself if you're new...a picture of you if you're an oldie but goodie member OR whatever. I've got a new program that will put these in a format that I can put on CD and you can play it on TV using a DVD player...full screen with music. Sounds like fun doesn't it! Something we can keep forever. If you'll get me the following by April 15, I'll make every effort to have it done and on the website before the end of Parkinson's Month. I've already got an order form on the site and you can order a copy of the CD. (http://plwp.org/photo_show_offer.htm It'll cost me around $5 for materials and shipping, so for $10 ($5 for PLWP) I'll get a copy to you by ... ummm ... let's make it easy on ME (LOL)... let's say by May 15. Here's what I need from you: (1) Picture(s) (duh!!) either by email (btucma2000@yahoo.com) or US mail (Brenda Tucker, 3656 Blue Byrd Lane, Kodak, TN 37764); (2) Captions including names of people in the picture (it's terrible to look at a picture and not know who it is); AND (3) a check for the amount of your order if in fact you placed an order with mailing address. What d'ya think? I like the idea myself. So get off and get on...get to me what I need to do this. Also, please talk it up so everyone will know about this. The long-time member will go down memory lane and you new members can see what you're getting yourself into! Together we make a difference, Bren
Hey everyone. I've been keeping an eye on Jane Stengals efforts to be sponsored as she represents all of PLWP at the Parkinson's Unity Walk on April 26. Please take time to donate something in support of Jane. It doesn't need to be much, just something to show her you're grateful for her efforts. The Parkinson's Unity walk is a great event that raises awareness and research funds. You'll find a link to The Unity Walk page for donation on the frontpage of www.plwp.org Together we make a difference, Bren
Does anyone know what April 1st is? Yea, I know it's April Fool's Day...but do you know what other significance this date has?
The transcript of Greg's testimony is now available at www.plwp.org/library.htm Hopefully, tomorrow we'll have a complete audio. Together we make a difference.
If you missed Greg's testimony, hear it at http://www.plwp.org/library.htm Unfortunately, only the closing of his statement is recorded but we will have a transcript of his testimony on line. Comments following his statement are very intersting. Together we make a difference!
Wednesday MARCH 19th 2003 9:30 a.m. (EST) Senate Judiciary Committee Hearing "Drawing the Line Between Ethical Regenerative Medicine Research and Immoral Human Reproductive Cloning. " Witnesses will include grassroots activist and National Field Representative for PAN, Greg Wasson. For further information: http://www.senate.gov/~judiciary/hearing.cfm?id=622 for audio stream: http://www.capitolhearings.org/ check in with c-span for televised coverage: http://www.c-span.org
There's so much confusion, so many questions...such an important time in the cure of neurological diseases. We have created a special forum for discussing stem cells, therapeutic cloning etc. Our own Joan Snyder (Jes) was the first to post and it makes for very good reading...very enlightening...very thought provoking. Just go to the frontpage at www.plwp.org ... the menu option is to the left directly under Communication Center. You will also see a link to Portraits of Hope. Remember one thing when approaching these and other issues. The only dumb question is the unasked question. I know I feel extremely dumb most of the time BUT as my mentor of 35 years ago told me (and it changed my life)...intelligence is not knowing the answers but knowing where to go to find the answers. And though these are sensitive issues, we feel we need to discuss them openly among the PLWP community. Please join in.
Bren
Dottie, he is a cutie. Katie is still a little jealous, but that will pass. I do, however, have a new title..."Super Pooper Scooper"...I guess I forgot about all of this! LOL >>> Glad to see you "interneting" Dottie.
Bren- Had to laugh when I read about your following around your new baby. I had a permantly attached cloth in my hand for a year when we got our first Jack Russell. He was a terror to house break. - The second one (three years later) was not that bad. He learned from the first. Just don't break his/her spirit. And I mean they are very spirited. Adorable, exasperating but marvelous little companions. Enjoy. Do you have a smooth or rough coat, also what color. We had one each. The rough was tri colored. The smooth brown and white. Both beautiful in their own way and totally lovable. Smart, too. It took them only a week or two to bend two adults to their will. We are still bent. Enjoy! Enjoy!
Sorry I missed everybody today, or yesterday now since it 2am Tuesday morning. The past three days have been strange...nothing I planned happened but it was a GREAT 3 days. Saturday, we worked in the yard all day...70+ degrees and beautiful. I felt absolutely wonderful and I wore myself out. >>> Then Sunday, well I could hardly move! LOL But my hubby wanted to go do some target practice and insisted I get out of the house. Well, I had a ball. I shot the pistol many rounds, hit the target on 50% of them...not bad for a parkie who has never shot at a target. Then today, I had all planned out but ... well, we got us another baby. A Jack Russell who is 3 months old. We adopted him from the animal shelter...so I spent the entire afternoon at the Vet and tonight following him around cleaning up after him. You see, it's Katie's 4th Birthday this weekend and we thought she needed a little friend.>>>>So I'm sorry I missed you guys, but it really has been wonderful. I don't remember feeling this good in a very long time. Hope all of you PLWPs are having spring-like weather too. Does a world of good for our attitudes. Love ya lots, Bren (Oh, by the way. Katie is not a child...she's our baby dog (a Sheltie)! LOL
Jane Stengel who is Co-Director of PLWP's Events Team is going to set up a PLWP Team with the Parkinson's Unity Walk. The walk is scheduled for April 26, 2003 in Central Park, NYC. If you are interested in going to the walk, she will be happy to help you with your arrangements. She can suggest hotels, etc. >>>>> We support the Unity Walk and have attended as a group since 1999. This year we're asking that you support the PLWP Team by sponsoring Jane Stengel who is representing PLWP. Donate directly to the Parkinson's Unity Walk Organization using this URL http://www.plwp.org/default.asp#UnityWalk and clicking HERE. If you plan to go to the walk and want to register yourself, there's a link on Jane's Donation Page that will take you directly to the PLWP Registration form. >>>>>> Together we make a difference!
You may want to check another web site called wemove.org for info on hemi-parkinsonism/hemi-atrophy. This is a particular syndrome in and of itself to my knowledge (which i consider moderate at best). However I myself have had the term hemiparkinsonism used to describe my condition, which at this point remains unclear. Hemi simply refers to only affecting one side of the body. However, as i said, i think you are referring to a specific condition and you may have some luck doing a search on the we move site! Good luck in your search for answers and please let us know what you discover! Beth Bennett
I need to correct my directions just a bit. Before going to the top of the page and clicking on the Communication Center, go to the top of "THIS PAGE" and click Top. Sorry!
I've been watching to see if by chance anyone was familiar with Hemiparkinsonism Hemi Atrophy. I believe if anyone here could give you any insight they would. However, there's a Parkinson's Forum sponsored by Massachusetts General Hospital (Harvard Medical) that I believe someone could help you. I would post their url here but it's so confusing. Instead, do the following: Page up to the very top of the page, click on Communications Center then click on Parkinson's Forum at MGH. Many people use the forum...many of them are very well versed in Neurodegenerative diseases.>>>>Though we may not be familiar with your particular form of Parkinson's, we would love for you to become a part of us. Let us know if we've helped you at all. Together we make a difference, Bren
I am tryng to find information on this variant of PDand would also like to make contact with others who have this particullar version.
Mojo, my prayers are with your son. My son was in the Gulf...I know how you feel. My prayers are with you as well.>>>>>Harley, thanks. I'm sure it could be more user friendly...just let us know if you have any suggestions.
Nan, Sorry to hear your ailing. It's no fun I know. Also sorry to hear of your brother-in-laws Illness. There are tons of people out here pulling for you and he. Know that my prayers are with you both. May God Bless. With love, mojo P.S. Iam asking for prayers for my youngest, my son Nick,who has been sent to Kuwait, to defend our freedoms that we all hold so dearly. Thanks
Hey! Lookin Good here guys.. just wanted to pop in and say a big howdy.. Bren.. CD goes in mail today.. watch your mailbox.
Nan, I am sending this message to let you know that I am thinking about you, and that I have added you and your brother-in-law to my prayer list. There is great stength within God -- both physical and emotional. You are a wonderful servant and angel for Him. You give of your heart and energy to all that need encouraging and all who need a friend to help them in their PD struggles. I thank God for you, and this Tennessean sends his love! David Vaughn
A new thread (Cheers to TLC) has been started in the PLWP MGH Forum by jjjaneR that you may want to post to. It's a very thoughtful effort of support for Nan (screen name TLC). For you newcomers, Nan is the other co-founder of PLWP. Her unselfish, loving nature is what PLWP is all about. She's always there when you need a friend.>>>>>Cancer is in the processs of taking her brother in law and her health is suffering. (I explained in a little more detail in my post on the forum.>>>>If you want to add a note for Nan, I'll make sure she sees the thread. I think it would warm her heart. To help you, I'm going to add a link next to the little talking blonde above!LOL >>>It will be good exposure to the forum for you too. Use the Communication Center to access all the forums, chat rooms, etc.>>>>Together we make a difference! Bren
Travels with Parkinson's will be broadcasting today at 10:00 AM EST regular daily broadcast. Then at 12:00 PM EST Kathrynne Holden's bi-monthly show. At 8:0 PM EST Dr Jill Marjama-Lyons will be interviewed thanks to Tom Berdine and YOPA. And on Friday 5/7/03 Dr Ron Hutton will give his b-monthly from Haversham UK. Right after "TWP" in the morning. www.live365.com/stations/travelswparkinsons to tune in. Check out newly ( still under constructio ) web site at attp://pwnkle.com/travels/index.htp Designed by Carol Mc Cleod. Thanks winks Chy
Travels with Parkinson's will be broadcasting today at 10:00 AM EST regular daily broadcast. Then at 12:00 PM EST Kathrynne Holden's bi-monthly show. At 8:0 PM EST Dr Jill Marjama-Lyons will be interviewed thanks to Tom Berdine and YOPA. And on Friday 5/7/03 Dr Ron Hutton will give his b-monthly from Haversham UK. Right after "TWP" in the morning. www.live365.com/stations/travelswparkinsons to tune in. Check out newly ( still under constructio ) web site at attp://pwnkle.com/travels/index.htp Designed by Carol Mc Cleod. Thanks winks Chy
Heehaw!!! A little after 10PM, Gary had already turned in and I was waiting for my sleeping med to kick in and I felt kinda lonely. You all know what I mean. Well!!! I'm forever checking on the forums, message boards, and the chatrooms...sorta my normal going to bed routine. What to my wondering eyes did appear but a gathering of friends in the CHATROOM!!! It was AMAZING! It was like, wellll let's see...Like being away on a business trip for a week and coming home to find your husband didn't go on that weekend fishing trip after all. You're so prepared to be alone that when you're not...WOW WHAT A ZINGER!! Keep those cards and letters flowing ... the Neighborhood is perking!! Oh, I almost forgot the beauty of it all. I believe it all happened because Nancy out of Cleveland posted on the fridge that she was in the chatroom if anyone wanted to chat. One drop in an ocean of water still makes ripples! Together we make a difference, Bren
hi I AM IN THE CHATROOM IF ANYONE WANTS TO CHAT. NANCY AKA ds401
DEE-136--IF YOU WOULD LIKE TO CHAT I WOULD BE HAPPY TO HEAR FROM YOU AGAIN.I HAVE WORRIED AND WONDEREDABOUT YOU. I NEVER DID GET TO TELL YOU ABOUT MY FAMILY AND YOU DIDNOT TELL ME ABOUT YOURS.BRENDA HASMY E-MAIL NO. AND IF YOU ASK SHE WILL GIVE TO YOU. AS AN OLD GRANDFATHER I AM A GOOD SOUNDING BOARD.
Just got out of the chatroom where jjjaneR discussed the stages of Parkinson's. (Yea, I had the wrong day in mind and thought it was going to be Thursday!!) Even though I arrived really late, everyone was praising her effort. There was a good turn out, but I'd like for Jane to do it again later on down the road at a different time so those who couldn't make it today would have another opportunity. (Oh, and we had another new member there today!) Tomorrow (Wednesday) Dan (v5navy) is the guest host. He's going to discuss Water Therapy. >>>>>>>>Things are happening here at PLWP! It feels great!>>>>>Together we make a difference, Bren (for Nan too)
BREN---WENT TO THE CHAT ROOM THIS MORNING TO CHECK MY VOICE. I WAS PLEASED TO GET ON WITH A VOICE--THIS WAS 7:15AM. I WAS AFRAID TO GET OFF SO I HELD ON UNTIL 8:3OAM AND NO ONE CAME ON I WENT OFF TO SEE IF COULD FIND SOMEONE. WHEN I TRYED TO GET BACK ON I COULD NOT GET VOICE. IF I CANNOT GET MY VOICE TOMORROW WE WILL HAVE TO CANCEL MY PART TIL SOME LATER DATE.
The chat sessions are really going well thanks to the efforts of Michael and Ken. We understand that you may be frustrated with all of the problems we've been having. Yahoo has been working dilligently to solve them. Thank you for your patience. Don't miss Weds and Thurs at 2:30EST...special topics: Water Therapy (Weds) by Dan and Different Stages of Parkinson's (Thurs) by jjjane.
We straightened up the Fridge yesterday. We were conducting science experiments in there and didn't know it! LOL Not much unlike the one in my kitchen! Seriously, we archived the messages. It was taking too long to load. We now have two files of archives that are labelled by dates. Just click on the date of interest. See you at the chatroom sessions! Bren
bren---talked to ken this morning in the chat room,HE ASKED ME TO TALK ABOUT WATER THERAPY ON WED.I TOLD HIM I WOULD BE GLAD TO BUT ONLY IF WE HAVE VOICE. I JUST COULD NOT HANDLE WITH MY ONE FINGER TYPING. IF WE CANOT GET VOICE ON REG CHAT COULD WE DO IT IN "FRIENDS" LIKE WE DID THE OTHER DAY?
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HI WHAT IS YOUR NAME
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MY NAME IS STEVE TAGGART IM 15 YEARS OLD HOW OLD ARE YOU
MY NAME IS STEVE TAGGART IM 15 YEARS OLD HOW OLD ARE YOU
MY NAME IS STEVE TAGGART IM 15 YEARS OLD
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Live Life Like You're Dying!
Help! I am terribly frustrated with the uncertainty of diagnosis. I have been diagnosed with too many neurological disorders. What one is right? My insurance isn't the best. I am on a medication for Parkinsons, it does help some with the tremors but not much for the pain and stiffness. How can an ordinary Joe find good help?
My Hand With Yours Going through rough times alone Is not something that I condone Neither does a friend of mine He becomes your personal lifeline. This has to be the kindest man He is the one we call Mr. Dan He is there to encourage and support you No matter what it is that you must do. When you feel alone and need his love Just put one hand in the other and look above That hand you feel inside your own Is really his so you're never alone. Trust in this and you will find Someone who cares and is always inclined To offer his love in your time of need He is a great man we have all agreed.
How do I go about getting SSI for my wife who is unable to work due to parkinson's?
has anyone tried ginseng for parkinsons. apparantly there was a study done on rats at Dalhousie university. the results were promising.
Hi Everyone, I have a web site called www.effectivespeakingconsultants.com. I am a motivational speaker. On there I have put my story and that of Janet Carlisle. If you have a story that you feel should be told e mail it to me at gerardk@effectivespeakingconsultants.com. I will post your story on my site. I have young onset parkinsons myself.
I am trying to locate the suppliers in the UK of ultra lightweight powered wheelchair. I believe that it is based on NASA technology.
PARKINSONS EXERCISE STUDY AT THE UNIVERSITY OF SOUTHERN CALIFORNIA, LOS ANGELES is currently enrolling subject who: 1. Diagnosed with Parkinsons Disease within the last 3yrs. 2. Not on Sinemet. 3. Demonstrates changes in funtional movement. For more information contact Dr. Beth Fisher at: 323.442.1006, bfisher@usc.edu.
RON MOORE, HAPPY BIRTHDAY HONEY!!!!!!! I LOVE YOU SOOOO MUCH.... YOUR LOVING WIFE
Hello, I am writing to tell you about a possible treatment for Parkinson’s Disease. This treatment employs low-dose olanzapine (1.5 mg, Zyprexa Zydis ORALLY DISINTEGRATING TABLETS) as an adjunctive treatment to levodopa and pramipexole. The use of these three medicines resulted in a marked decrease in PD symptoms for one patient. Discontinuance of treatment resulted in a return of similar signs and symptoms. I am posting because I want to publicize this information to as many PD patients and neurologists as possible. I do know the person who has benefited from this treatment. My only motivation is obtaining anecdotal feedback from others who may benefit from this treatment. If you think that your PD symptoms may be alleviated with this treatment, contact your neurologist. Any responses to the use of olanzapine as an adjunctive treatment to levodopa and pramipexole should be emailed to PDtreatment@hotmail.com or faxed to 212-608-0886. A recent journal article* by Durif et al. (2004) in Neurology describes the use of clozapine in reducing levodopa induced dykinensias. Based on this article and an understanding of olanzapine’s theoretical basis, I believe that low-dose olanzapine (1.5 mg, Zyprexa Orally Disintegrating Tablets), added to levodopa and pramipexole, would benefit PD patients. * Durif, F., Debilly, B., Galitzky, M., et al. (2004). Clozapine improves dyskinesias in PD: A double-blind, placebo-controlled study. Neurology, 62, 381-388.
FDA APPROVES APOKYN FOR TREATING PARKINSON'S PATIENTS (The following is a reformatted version of a press release issued by FDA and received via electronic mail. The release was confirmed by the sender.) April 21, 2004 FDA APPROVES APOKYN FOR THE ACUTE TREATMENT OF EPISODES OF IMMOBILITY IN PARKINSON'S PATIENTS FDA has approved Apokyn (apomorphine) as an injectable drug for treating Parkinson's patients during episodes of "hypomobility," so-called "off periods" in which the patient becomes immobile or unable to perform activities of daily living. Apokyn was given priority review because injectable apomorphine is the first therapy approved to treat these episodes acutely (during the episode). Apokyn was also designated as an orphan product. An estimated 1.5 million Americans have Parkinson's disease, which results in tremors, rigidity, postural instability, slowness, and difficulty moving. Within 3 to 5 years of treatment with standard Parkinson's drug treatments, about ten percent of patients experience episodes of hypomobility (e.g., inability to rise from a chair, to speak, or to walk). The episodes can occur toward the end of a dosing interval with standard background medications (so-called "end-of-dose wearing off") or at unpredictable times (spontaneous "on/off"). Apokyn was designated an orphan drug in l991 to treat the ten percent, or about 112,000 Parkinson's patients who progress to stage four and experience the severe on/off motor fluctuations unresponsive to other therapies. Orphan drugs are drugs that treat a rare disease or condition which affects fewer than 200,000 patients in the U.S. After receiving FDA approval, orphan drugs are eligible for seven years of exclusive marketing. The effectiveness of Apokyn in the acute symptomatic treatment of both types of recurring episodes of hypomobility or "off" episodes associated with advanced Parkinson's disease was established in three randomized, controlled trials. On average, patients participating in these trials had had Parkinson's disease for 11.3 years and were being treated with L-dopa and at least one other agent, usually an oral dopamine agonist. Apokyn must be taken with an antiemetic drug because, when taken alone, it causes severe nausea and vomiting. It must not be taken with one class of very effective anti-nausea drugs, the 5HT3 antagonists (ondansetron and similar drugs), because the combination of Apokyn (apomorphine) and these drugs can lead to very low blood pressure and loss of consciousness. Apokyn is intended for subcutaneous injection only. Other oral drugs, taken chronically, are also used to help decrease the amount of time Parkinson's patients spend in the "off" state. Patients and caregivers should carefully read the Patient Package Insert and Directions for Use on the ampule and dosing pen. Patients should also be instructed to use the drug only as prescribed. Apokyn's labeling also includes specific warnings about low blood pressure, fainting, hallucinations, and excessive sleepiness. The most common adverse events seen in controlled trials were yawning, dyskinesias (abnormal movements), nausea and vomiting, sedation or sleepiness, dizziness, runny nose, hallucinations, edema, chest pain, increased sweating, flushing, and pallor. Apokyn is a new molecular entity - a medication containing an active substance that has never before been approved for marketing in any form in the United States. Apokyn is manufactured for Bertek Pharmaceuticals, Research Triangle Park, NC, by Draxis Pharma Inc., Canada. Media Inquiries: 301-827-6242 Consumer Inquiries: 888-INFO-FDA (km)PN -END- #<662235.940960># Last Updated: April 21, 2004 17:29 EDT
FDA APPROVES APOKYN FOR TREATING PARKINSON'S PATIENTS (The following is a reformatted version of a press release issued by FDA and received via electronic mail. The release was confirmed by the sender.) April 21, 2004 FDA APPROVES APOKYN FOR THE ACUTE TREATMENT OF EPISODES OF IMMOBILITY IN PARKINSON'S PATIENTS FDA has approved Apokyn (apomorphine) as an injectable drug for treating Parkinson's patients during episodes of "hypomobility," so-called "off periods" in which the patient becomes immobile or unable to perform activities of daily living. Apokyn was given priority review because injectable apomorphine is the first therapy approved to treat these episodes acutely (during the episode). Apokyn was also designated as an orphan product. An estimated 1.5 million Americans have Parkinson's disease, which results in tremors, rigidity, postural instability, slowness, and difficulty moving. Within 3 to 5 years of treatment with standard Parkinson's drug treatments, about ten percent of patients experience episodes of hypomobility (e.g., inability to rise from a chair, to speak, or to walk). The episodes can occur toward the end of a dosing interval with standard background medications (so-called "end-of-dose wearing off") or at unpredictable times (spontaneous "on/off"). Apokyn was designated an orphan drug in l991 to treat the ten percent, or about 112,000 Parkinson's patients who progress to stage four and experience the severe on/off motor fluctuations unresponsive to other therapies. Orphan drugs are drugs that treat a rare disease or condition which affects fewer than 200,000 patients in the U.S. After receiving FDA approval, orphan drugs are eligible for seven years of exclusive marketing. The effectiveness of Apokyn in the acute symptomatic treatment of both types of recurring episodes of hypomobility or "off" episodes associated with advanced Parkinson's disease was established in three randomized, controlled trials. On average, patients participating in these trials had had Parkinson's disease for 11.3 years and were being treated with L-dopa and at least one other agent, usually an oral dopamine agonist. Apokyn must be taken with an antiemetic drug because, when taken alone, it causes severe nausea and vomiting. It must not be taken with one class of very effective anti-nausea drugs, the 5HT3 antagonists (ondansetron and similar drugs), because the combination of Apokyn (apomorphine) and these drugs can lead to very low blood pressure and loss of consciousness. Apokyn is intended for subcutaneous injection only. Other oral drugs, taken chronically, are also used to help decrease the amount of time Parkinson's patients spend in the "off" state. Patients and caregivers should carefully read the Patient Package Insert and Directions for Use on the ampule and dosing pen. Patients should also be instructed to use the drug only as prescribed. Apokyn's labeling also includes specific warnings about low blood pressure, fainting, hallucinations, and excessive sleepiness. The most common adverse events seen in controlled trials were yawning, dyskinesias (abnormal movements), nausea and vomiting, sedation or sleepiness, dizziness, runny nose, hallucinations, edema, chest pain, increased sweating, flushing, and pallor. Apokyn is a new molecular entity - a medication containing an active substance that has never before been approved for marketing in any form in the United States. Apokyn is manufactured for Bertek Pharmaceuticals, Research Triangle Park, NC, by Draxis Pharma Inc., Canada. Media Inquiries: 301-827-6242 Consumer Inquiries: 888-INFO-FDA (km)PN -END- #<662235.940960># Last Updated: April 21, 2004 17:29 EDT
As I sit hee thinking how pd has effected my life I wonder if i would have been the same person? I have grown to be a person who understands what it means to say please and thank you. To appreciated what people do and to listen to them when they speak.
when mailing checks for Muhammad Ali gloves, please mail to Midwest Parkinson's Awareness P.O. Box 2785 Alliance, Ohio 44601 In the previous message, I forgot to type in the zip code.
July 9-11 we're holding symposium-unity walk at pro football hall of fame in Canton, Ohio. We're raffling boxing gloves autographed by Muhammad Ali. You may purchase tickets via mail. wheaever amount of tickets you want, we'll put your name and phone number on each one, mail you the stub and on july 11, we'll draw winning ticket. You don't need to be present to win, although we'd love to see you here. We'll ship the gloves to you, Monday July 12, 2004. Ticket prices are: $5.00 for 5 tickets $10.00 for 11 tickets $20.00 for 25 tickets $50.00 for 75 tickets $100.00 for 150 tickets Make checks payable to Midwest Parkinson's Awareness and mail to P.O. Box 2785/ Alliance, Ohio Any questions, please feel free to call Ron Moore at 330-829-2964 or artist4memories@yahoo.com
I am a 50 year old woman with advanced Parkinson's. About 5 months ago my husband, a teacher, told me he was moving out at the end of the school year. A month later he said he was not going to and would be committed to the marriage. Now he states that he believes that his position as a teacher will probably be cut. He has decided he wants to explore starting a home school band. We have no savings of any kind for him to start up his own school. I have asked him to consider applying to other districts. He accuses me of not trusting and supporting him. When my meds are not working I can bearly get around or even breath. I just don't have the ability or strength to start over again. He might have a chance of succeeding if I were no longer in the picture. The situation is leaving me feeling I am nothing more than deadmeat hanging around his neck. Would appreciate hearing any opinions or suggestions by personal e-mail. My email address if vlhperry@hotmail.com. Please help.
Hi I am a 'carer' working in a nursing home in Australia. I am putting together a book/resource to help carers, working in a residential setting, to understand some of the conditions of their residents. I would like to include some personal stories, sooo if anyone out there has their story they would like to share please email me <genteale@dodo.com.au>. My intention is to give the carers not only an increased knowledge, but an empathy and awareness of what it is like, having Parkinson's...the feelings, the difference it makes, etc. Your stories, however short or long would be much appreciated...thanks, Ruth Teale
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I am looking for info about PD and Creatine and possible benefits by taking it as a supplement. I will be pleased to hear from all who have had the courage to use Creatine. Sincerely from Canada
july 9-11, 2004 awesome event. \July 9..meet & greet at Marriott Hotel July 10...Symposium @ Pro Football Hall of Fame, informative speakers, prizes, lunch, lunch and tours of hall of fame and museaum. July 11...Unity Walk-Health Fair, Central Catholic Football stadium, Unity walk, health fair, classic car show, prizes, NFL appearances, games, jugglers, live bands and much more. For hotel reservations, contact Marriott hotel at 1-800-742-0379. rooms are discounted to $79 from $140. To get this special rate, you MUST inform them you're reserving the room for the Parkinson's disease event. Any questions, or if you'd like an information packet, please contact me at 330-829-2964 or artist4memories@yahoo.com
Help with school project ASAP please . I need to interview someone living with PD for my term paper. These are the questions How did this person get this condition? Is this person managing his/her chronic illness well? Explain What is this person doing to treat this condition? and last Which activities of daily living might this person have problems with? explain . Please help me I will be very greatful.
Hello I am doing a school project on Parkinson's disease and I need help!!! I have to interview someone with parkinson's disease and I need to ask them these questions How did this person get this condition? Is this person managing his/ her chronic illness well?Explain. What is this person doing to treat this condition? Which activities of daily living might this person have problems with? explain. Please can someone help me . you can e-mail me at ashleywuttunee63@hotmail.com
Messages Messages Help Reply | Forward | View Source | Unwrap Lines | Delete Message 2485 of 2485 | Previous | Next [ Up Thread ] Message Index Msg # From: "Deborah Stanley" <roadrunner1st2002@y...> Date: Tue Feb 24, 2004 4:11 pm Subject: "Miracles Do Happen"!! I would like to take this opportunity to share this with everyone. As you know my husband, Jason (icethe1st) was dxd with PD nov 03. He lost the ability to speak and walk on 3 January 04. A Miracle has happened. On Saturday (21 Feb 04) at 12:30 AM Jason signed to me (finger spelled-sigh language) that he had clicking noises in his head. He has had them off and on. He signed to me that the clicking noises were getting louder and faster. The clicking noises sounded like someone turning a light switch on and off, on and off. A few minutes later, he said the clicking noises were getting softer and slower. He signed to me that he thinks the clicking noises are going to stop and if they do, he thinks he will be able to talk. A few minutes later Jason begain talking! He got a real bad headache when he first started talking. This is the first time he has been able to speak since 3 January. He stutters when he speaks, but was able to talk. Jason even sang 3 songs to a friend of ours in conference without stuttering even once. He only stutters when he talks. We told our friends who were still on line at that time of night/day about this miracle. We went to bed to get a few hours of sleep. When we woke up that Saturday morning, Jason was still talking. He still stuttered but was talking fine. On Sunday morning when Jason woke up, he said the clicking noises have returned. It was apparent that his stuttering was also getting worse, but he was still able to talk. On Monday, there were no changes. He was still talking. Today Jason is still able to talk, but his stuttering has become real bad. It takes a few seconds for him to get the words to come out, but he can still talk, just like when he first lost his voice. We don't know how long Jason will be able to keep his voice. we are taking it "One Day At A Time". This goes to show you that "Miracles Do Happen"!! You don't know when a miracle will happen, it just happens. We will keep praying for a cure for PD, and keep fighting. From: Debbie Stanley
Hi, anyone up?
I'm 49 and diagnosed with atypical PD. I told my doctor I experienced extreme hand fatigue in the late 1980's. She said it's possible I have had PD since then--formally diagnosed in 2001. I am now experiencing excrutiating calf and foot cramping when I sleep. I am trying to get more potassium in my diet, but I was wondering if others suffer from this painful type of cramping. Is it a common PD symptom?
Francaes O'Sulivan from Dubin Ireland on Travels With Parkinson's www.live365.com/stations/travelswparkinsons at 10:00 AM EST join us Chy
I ran across this in a magazine at the doctors office today. This company is offering 3 years of free webhosting to anyone that signs up. No credit cards, no committment Check it for yourself. It's the best deal I've ever seen, anywhere. www.1and1.com
If you need info on SSDI go to my site at http://pypa.com and click on the "SSDI and PD" link. Get educated and win your claim the first time you file.
Hi All...Has anyone noticed that on the demographics map, that the hgher pd rate co-insides with a high indstrial presence???
Hi all! In looking at the map, I saw that there are two hawaii people. The map just says carol and lou ann. I am on the Big Island & would like to get in touch with them. My e-mail is judithv@aloha.net. If anyone talks to them, please let them know! Aloha, Judi in kona
I want to talk on this chat and i can't get it. WHY
Now with the Holidays coming up, Thanksgiving just a week and half away and Christmas not to far behind. YOPA is going to do it's Annual Christmas Fund for PWP's. The awareness pin that I made up is one source of income for it and did rise a few hundred for this fund but more is needed. Please either buy a pin for $5 dollars or send a couple of dollars to YOPA, PO BOX 50936 Albuquerque, New Mexico 87181-0936. If you know of a needy pwp that needs help send in a 250 word essay about this person and why he/she needs help to directors@yopa.org. Thank you very much and HAPPY HOLIDAYS.
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on wednesday, i am to give a talk to our lgst. area hospice. while they say they only want me to talk about my personal experiences w/ pd...i have been thinking quite alot about end of life issues. couple this with the story of Terri Schiavo, the young woman in Florida who is in the middle of a huge legal debate over removing her feeding tube and i feel that it might be time to face some unsavory issues. would you be so kind as to help me in an unscientific poll? names will be kept completely anonomous. 1) do you have a living will? 2) on a scale of 1-10 (10 bbeing very important), how important do you consider having a living will to be?? 3) when do you consider to be the natural end of life?? 4) would you like to be kept alive by feeding tubes and breathing tubes? 5) what is the governments role in this issue (Gov. Jeb Bush ordered her feeding tube re-inserted)??? 6) on a scale of 1-10 (with 10 being very religious/spiritual), how religious/ spiritual do you consider yourslef to be?
LAPD,Treasonist,http://www.angelfire.com/nb/ugh/dearjohn.html ,urgent,update,2-23-03, see,http://www.angelfire.com/nb/ugh/dearjohn.html , Imperialist,Power,Hungry,Crooks,Kill,Kids,by,their,Negligence, in,regards,to,the,taunting,microwave,weapons,slow,death,of,Walter,Tribe,in,L.A., -------------------------------------------------------------------------------- Electronic,Weapons,Kills,Kids,faster,then,adult,males,in,Sylmar,CA,USA,Luna,http://www.angelfire.com/nb/ugh/dearjohn.html Navarro,Catron,Hate,Group,doing,this,for,over,ten,years,now,Malicious,Crimes, -------------------------------------------------------------------------------- http://www.angelfire.com/nb/ugh/dearjohn.html Terrorist Group of Criminally Insane Maggots tried to murder Walter Tribe and gave him brain damage with their electronic weapons as they woke Walter out of a sound sleep in his bed at 14657 Nurmi Street, Sylmar CA by intersection of Degarmo Av and Lakeside Street in Sylmar at 11:50pm on June 21st, 2002. Right now it is 2:30am on June 22nd, 2002 and the mind wrenching negative soft kill microwave death ray stimulis masked by ultra sonic weapons stimulis has not stopped! Walter has a massive throbbing headache as the result of this attempt on his life! Walter Tribe is in fear for his life and in fear for the safety of all those near and dear to him as a result of this blatant, reckless cowardly terrorist act inflicted and forced upon his person while he is inside his home! Please investigate The Luna residence on Nurmi St, The Catron residence on Nurmi St, and The Navarro residence on Lakeside St.. Their are many others involved as stimulis comes from 360 degress meaning the terrorist hate group members have Walter Tribe's home surrounded all about! see http://sirwally.com see http://www.angelfire.com/nb/ugh/dearjohn.html see HREF="http://winwally.com">http://winwally.com for ALL THE PREVIOUS DOCUMENTATION OF THESE MALICIOUS ATTACKS ON THE PERSON OF TAX-PAYING AMERICAN CITIZEN WALTER TRIBE. Terrorist Group of Criminally Insane Maggots tried to murder Walter Tribe and gave him brain damage with their electronic weapons as they woke Walter out of a sound sleep in his bed at 14657 Nurmi Street, Sylmar CA by intersection of Degarmo Av and Lakeside Street in Sylmar at 11:50pm on June 21st, 2002. Right now it is 2:30am on June 22nd, 2002 and the mind wrenching negative soft kill microwave death ray stimulis masked by ultra sonic weapons stimulis has not stopped! Walter has a massive throbbing headache as the result of this attempt on his life! Walter Tribe is in fear for his life and in fear for the safety of all those near and dear to him as a result of this blatant, reckless cowardly terrorist act inflicted and forced upon his person while he is inside his home! Please investigate The Luna residence on Nurmi St, The Catron residence on Nurmi St, and The Navarro residence on Lakeside St.. Their are many others involved as stimulis comes from 360 degress meaning the terrorist hate group members have Walter Tribe's home surrounded all about! see http://sirwally.com
LAPD,Treasonist,http://www.angelfire.com/nb/ugh/dearjohn.html ,urgent,update,2-23-03, see,http://www.angelfire.com/nb/ugh/dearjohn.html , Imperialist,Power,Hungry,Crooks,Kill,Kids,by,their,Negligence, in,regards,to,the,taunting,microwave,weapons,slow,death,of,Walter,Tribe,in,L.A., -------------------------------------------------------------------------------- Electronic,Weapons,Kills,Kids,faster,then,adult,males,in,Sylmar,CA,USA,Luna,http://www.angelfire.com/nb/ugh/dearjohn.html Navarro,Catron,Hate,Group,doing,this,for,over,ten,years,now,Malicious,Crimes, -------------------------------------------------------------------------------- http://www.angelfire.com/nb/ugh/dearjohn.html Terrorist Group of Criminally Insane Maggots tried to murder Walter Tribe and gave him brain damage with their electronic weapons as they woke Walter out of a sound sleep in his bed at 14657 Nurmi Street, Sylmar CA by intersection of Degarmo Av and Lakeside Street in Sylmar at 11:50pm on June 21st, 2002. Right now it is 2:30am on June 22nd, 2002 and the mind wrenching negative soft kill microwave death ray stimulis masked by ultra sonic weapons stimulis has not stopped! Walter has a massive throbbing headache as the result of this attempt on his life! Walter Tribe is in fear for his life and in fear for the safety of all those near and dear to him as a result of this blatant, reckless cowardly terrorist act inflicted and forced upon his person while he is inside his home! Please investigate The Luna residence on Nurmi St, The Catron residence on Nurmi St, and The Navarro residence on Lakeside St.. Their are many others involved as stimulis comes from 360 degress meaning the terrorist hate group members have Walter Tribe's home surrounded all about! see http://sirwally.com see http://www.angelfire.com/nb/ugh/dearjohn.html see HREF="http://winwally.com">http://winwally.com for ALL THE PREVIOUS DOCUMENTATION OF THESE MALICIOUS ATTACKS ON THE PERSON OF TAX-PAYING AMERICAN CITIZEN WALTER TRIBE. Terrorist Group of Criminally Insane Maggots tried to murder Walter Tribe and gave him brain damage with their electronic weapons as they woke Walter out of a sound sleep in his bed at 14657 Nurmi Street, Sylmar CA by intersection of Degarmo Av and Lakeside Street in Sylmar at 11:50pm on June 21st, 2002. Right now it is 2:30am on June 22nd, 2002 and the mind wrenching negative soft kill microwave death ray stimulis masked by ultra sonic weapons stimulis has not stopped! Walter has a massive throbbing headache as the result of this attempt on his life! Walter Tribe is in fear for his life and in fear for the safety of all those near and dear to him as a result of this blatant, reckless cowardly terrorist act inflicted and forced upon his person while he is inside his home! Please investigate The Luna residence on Nurmi St, The Catron residence on Nurmi St, and The Navarro residence on Lakeside St.. Their are many others involved as stimulis comes from 360 degress meaning the terrorist hate group members have Walter Tribe's home surrounded all about! see http://sirwally.com see http://winwally.com for ALL THE PREVIOUS DOCUMENTATION OF THESE MALICIOUS ATTACKS ON THE PERSON OF TAX-PAYING AMERICAN CITIZEN WALTER TRIBE. -------------------------------------------------------------------------------- Sign Guestbook Read Guestbook MUSIC Long Term Elec Weapons Torture and Attempted Murder Victim Walter Tribe Demands That Hate Group Members Go To Jail Now! 6-22-2002 -------------------------------------------------------------------------------- This page has been accessed 4 times. This page was last updated Fri Jun 21 18:31:31 2002 Pacific time Update: 6-25-2002 6:39pm in Sylmar, CA, Criminally Insane Housewife Addictive Electronic Weapons Abusers Organization is Killing all Human Beings County Wide in Los Angeles CA USA! The last 168 hours has been made a living hell for victim of intentional hate crimes including assault with a deadly electronic weapon with intent to murder and or cause great bodily injury including severe brain damage 6-25-2002 6:45pm :( -------------------------------------------------------------------------------- Sign Guestbook Read Guestbook MUSIC See http://sirwally.com and See http://winwally.com to Stop Communist,Satanic,Gossips,Abusing,Elec,Weapons,24/7,for,over,10 years -------------------------------------------------------------------------------- This page has been accessed 9 times. This page was last updated Tue Jun 25 10:35:57 2002 Pacific time
see below for Pete Boots' entry, its a worthwhile trip, if you can make it over to the UK.
Tune into "Travels with Parrkinson's" "Oldies Night" on www.live365.com/stations/travelswparkinsons The Internet's only radio station for Parkinson's Disease 9:00 PM EST
Hello, all! An update, since it's been awhile since I was here. Tom and I have been married now for a little over a year and a half! Time has flown, but neither of us has ever been happier! Tom has had one DBS adjustment, in July, with great success. He has weaned himself completely off the Mirapex, and he was taking three a day! I saw a new neuro last Friday, and he was very good. Did not doubt my dx, which is a first!, prescribed the new drug Stalevo, which is a combination of regular Sinemet 25/100 and Comtan 200mg, which I take every day. He also added another dose of the Stalevo in the evening, which is new. I think that was to help me move in bed during the night. It was a sobering visit, however, as it was the first time I have ever had a doctor tell me to remove all the throw rugs from my house, and also the first time a doctor has told me that I need my laundry on the first floor of my home instead of in the basement. Anyway, just wanted to drop all a note to let you know we did not drop off the face of the earth when we got married!!
CHY IS BACK & SO IS “TRAVELS WITH PARKINSON’S” On the radio show by parkies and for parkies, Chy Cassavant will be once again manning the microphone and hitting the airwaves again. Joan Blessington Snyder will pitch in as the Program Director in charge of lining up guests for the show. In the first show of this new collaboration, we will be interviewing and speaking with Bob Benjamin-the executive producer of the newly released 2-cd set: LIGHT OF DAY-A TRIBUTE TO BRUCE SPRINGSTEEN. Bob is a PWP and also manages some of the musicians who play on this album and he has named the Parkinson Disease Foundation as one of the recipients of the proceeds from this venture. With artists like Elvis Costello, Graham Parker, Joe Grosheky and Dion all doing cover songs of Springsteen tunes, you can bet that this conversation will be a spirited and fun way to start Chy’s comeback tour. The interview will air on Monday, September 29th at 10 AM eastern time and you can find out how to connect your computer to radio station by clicking on: http://www.live365.com/stations/travelswparkinsons and following the directions on the website.
Hi all, I was wondering if anyone has or heard of the type of parkinsons that makes you rigid. My father has been diagnosed with a type of parkinson but I can't find anything that specifiies the rigidness that my father is experiencing. He can not move or talk at all. I have read a lot on the parikinson that causes tremors but, not the ridgidness can someone help me. Thanks
I am seeking an assistive writing aid for my father who has a tremor which affects the legibility of his writing. He needs to find a store/supplier that will allow a trial of tools prior to purchase. He lives in the Ottawa area.
Hi All, Bren and I have been asked to speak at this Symposium...if any of you happen to be in the area, please stop by!!! It looks to be a very informative day! Parkinson’s Disease Symposium, 2003 Blazing Toward A Cure Presented by the University Of Rochester and the Parkinson’s Support Group of Upstate New York, an Affiliate of the National Parkinson’s Foundation Saturday, September 20th 8:30-#:00 Radisson Inn 175 Jefferson Road Rochester New York 14623 Pre- Registation is appreciated by 9/17/03 (585) 234 5355 Warmest Regards, Nan
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As a nurse case manager, I have lots of patients with lots of medication and they told me about a place where you can get free info about free and discount medication. I received information about various ways to get free and discount prescription medication and it really works. I want to share this with others who are like me and have to pay lots of money for their medicaton. It didn't cost me a cent. I mailed a self addressed stamped envelope to: CCP P.O. Box 823838 South Florida, Fl 33082-3838 and they sent me the information. It told me how to get my money back from medication that I had an allergic reaction to and I did get reimbursed for the medication. It told me how to apply to get free medication. Please pass this message on to others to will benefit from this important information. Here is what was in the packet. 1)The contact information for a company that works with the drug manufacturers and supplies the application to get medication for free. 2) How to locate the pharmaceutical manufacturers for their drug programs. 3)Prescription savings cards. 4) Money saving ideas 5) How to get Canadian drugs at a substantial savings. Here are some examples of costs: Sinemet CR (brand) all 100 tabs but you must buy a 3 month supply: 25/250 = $77.40 100/10 = $46.44 100/25 = $54.71 200/50 = $126.15 Generic Sinemet 25/100 = $38.86 and 10/100 = $26.62. Requip is brand only no generic Sold in 100 tabs and you need to buy a 3 month supply .25 mg $28.33 1 mg = $113.30 2 mg = $124.63 Amantadine the generic for symmetrel 100 tabs 100 mg $56.97 Mirapex is only Brand and 100 tabs .25 mg = $98.01 .5 mg = 196.02 1 mg = $196.02 1.5 mg = $196.02 Comtan is brand only 100 tabs 200 mg $154.00 Selegeline generic for Eldepryl 60 tabs 5 mg = $83.49 Benztropine generic for Cogentin sold in 100 tabs 1 mg = $22.37 and 2 mg = $15.94 Trihexyphenidyl generic for Artane 100 tabs only 2 mg = $23.30 and 5 mg = $15.94 Permax is brand only 30 tabs of .05 mg = $18.20 100 tabs of .25 mg = $100.19 and 100 tabs of 1 mg = $341.55 There are many more bargains for all your medications. This information is all free and costs you nothing but saves you money. Send today for the free information and compare prices!
i would like to thank everyone who made te trip to illinois (either in person or in their hearts) this year! it was more of a "love-in" than anything, and my special thanks to toad for the beatiful write up.
Yahoo! Messenger is a free service that uses the connection you have established with your Internet service provider (ISP). Just download the Messenger software and sign up for a free Yahoo! Account.. http://messenger.yahoo.com/ We will have a group chat Sunday around 8:00 pm CST for folks with ET. I would like to invite you to join us so you can get the know the posters up close and personal. You might hear harley7898367 In Washington sing us a song. Grand61angle in Eastern Tennessee may tell us what she personally knows about Elvis. If you would like to participate, please add one of the following to your yahoo IM friend’s list and watch for us to be on line on Sunday night. You would need a mike and headphones attached to your sound card. If you have not tried voice before, I would like to have a test chat with you. If you do not understand the help explanation for Yahoo IM, please email me directly gary_coplin@yahoo.com Or call me @ 713-721-3314 or send me your phone # and I will call you. This kind of format works best for voice chat. I'd also hope many of you would include some info about yourself in your yahoo user ID profile . See mine http://profiles.yahoo.com/gary_coplin for ideas on what you might want to include.
I am writing an article on the effects of physical, occupational and/or speech therapy on PD. I'm looking for a few patients to interview who can share their experience with PT/OT and/or ST with others. The article will be featured in the New Hope for Parkinson's newsletter, which will be available both online and in printed form. The newsletter is designed to provide information to help PD patients live better with the disease. It is being produced by Medtronic Activa Therapy, which makes the pacemaker-like devices used in DBS. The newsletter is not a promotional vehicle for Activa Therapy. If you're interested in talking with me, please e-mail me at leah.galle@attbi.com. Thanks!
I have had Parkinson's for 12 years the last 4 years in its advanced stages. I recently had bilateral stimulation surgery and it has helped dramatically. I lost my life's savings, my retirement savings, my health insurance and even my car. I am penniless but still do not feel like it is futile. I have written a book titles Evertone Has An Everest. It is about my denial of the disease, my being a principal in an inner city school in Miami and how I dealt with it and so on. I do not want to bore you, but I am looking for a doctor to write an introduction for the book. I first asked Janet Reno to do it but she just backed down. The book is really good! I can send you a copy. I found a professional ghostwriter to fine tune it and polish it for no cost to me. He says the story is worth telling. If you are willing to do this for me please write me at edandrew@stis.net or call 954/739-7699.
Congratulations to all the people involved in putting together the "PLWP 3rd Aniversary Photo/Music Show"!! It is a fantastic and very professional piece of work, that brought back many wonderful memories. With much thanks and appreciation; Sincerely, :) Ryan
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April 1, 2002-February 28, 2003
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I've been on the Rotigotine study since last summer. I am now on the open label phase of the patch study and I feel great. I'm currently on 60mg which is the highest dose. I'd say in the past week I've had very little off times. I have more energy, my mental state is great (don't ask my kids tho lol)I'm paid every week for mileage. My drug coordinator feels this will be FDA approved in 2-3 years. This does nothing for the tremor tho. If anyone has any questions please email me at carolpost@aol.com.
Anyone out there in the Baltimore, Montgomery County, Northern Virginia or DC area interested in taking part in a clinical study for the Rotigotine Patch? The manufacturer is Schwartz Bio-Sciences of Germany, and as many of you probably know is already being used in Europe. Dr. Marc Raphaelson, in Frederick, Maryland is now accepting applications for inclusion in this Phase III, double blind study. The only specific I know about is that you must have “off” times of at least 2-1/2 hours per day, so this study is obviously not for volunteers who are early stage PDers. At first the study will mean weekly visits to the office, but after maintenance dose is reached, office visits will then be once every three months. Volunteers will be paid $50.00 per visit, which will be paid at the end of participation in the study. This request is in advance of newspaper advertising, so anyone who is truly interested will have a better chance of being included. It’s the old “first come, first served” thing. I would LOVE to be able to fill his volunteer requirements from the Forum and PLWP. A word about Dr. Raphaelson. He thinks I’m some kind of activist (boy, do I have him fooled!), and because of that mistaken impression, he asked me if I would be interested in letting my Parky (he didn’t use that word, naturally), friends know about the study. And, of course, I said I would. I will tell you that three days after I joined PLWP he knew all about the group and he does keep a poster on his entrance door for everyone to see. As you might have guessed by this time, he is, indeed, my neurologist, and, personally, I think he walks on water. He has been extremely kind and supportive to me and my family. Dr. R has a history of PD in his family which is why he specialized in neurology. I got my dx within 20 minutes of the standard clinical testing. Now, seven years into PD, if you didn’t know me, you wouldn’t know I have PD. Enough said. If you are interested in volunteering for this study, please let me have your name, address and phone number so that I can turn them into Dr. R for follow-up. One advantage (for me), of this being in Frederick. is, if you are so inclined, that I can direct or lead you easily to his office, hopefully meet some of you I haven’t had the pleasure of meeting before and maybe we can do lunch once in a while. My e-mail is seasongood1@msn.com and my phone number is 301-694-9297. Confidentiality is assured, as far as I am concerned. The extent of my work is only recruitment for a very important clinical study. I hope to hear from some of you soon. Sylvia
Just like all of you to know that on June 28 we will be holding our third annual fundraising bowl-a-thon in Hammond, IN. If any of you are in the area of Olympia Lanes on that date please come on by. All funds go to PD research and education. Kerry Mitchell
Greetings, Parkey family!!! My name is Ron, 34 dx 6 weeks ago. I'm in the process of organizing a concert/dance to benefit pd. "Jimmy and the Soul Blazers. They're very popular on East coast. Motown/oldies music. If there's any one around my neck of the woods, I may need your assistance.I'm excited to get pd awareness strong in Ohio and abroad. I'm extremely experienced in charity fund raising. Since my dx, I want to include helping plwp, YOPA, and Michael J. Fox Foundation. Any one w/ connections to getting ahold of Mohamad Ali, MJF, or any influential celebrity, contact me, please?! Thank You sooooo Much!
I've been doing some research today as part of an herbal apothecary company I've helped form in the past year. I am also a medical transcriptionist and therefore have the knack for more thorough research of drugs both natural and western medicine pharmaceutical. I have discovered that Butcher's Broom aids with the orthostatic hypertension associated with Parkinson's medications as well as the Parkinson's itself, diabetes and other possibly related vasocontriction problems such as migraines. There is also an ancient India herb that has been found in an Ayurvedic Medical Textbook from over 5000 yr. ago. The herb is mucuna puriens, the mucuna bean that is a natural derivative of levadopa and is being manufactured in relation to a disorder specialist, Dr. Bala Manyam, of the Univ. of S. Illinois.
You know Pete, I'd really love to be there. I'm totally serious...if I could afford it, I would be there. Good luck to you!
PARKINSON'S BENEFIT CONCERT SUNDAY 25TH AND MONDAY 26TH MAY ³FILL YOUR HEAD WITH ROCK is my front line in the battle against Parkinson's all monies raised from the event goes to THE PARKINSON'S DISEASE SOCIETY, U.K I have, I think put together a brilliant line up, but there is the problem. that is convincing the people, that such high international acts are coming to play "FILL YOUR HEAD WITH ROCK", I myself have Parkinson's but I refuse to let Parkinson's have me. ****************************************************************************************************************8 PRESS RELEASE PARKINSON'S DISEASE SOCIETY BENEFIT CONCERT JOE D’URSO MAKES FILL YOUR HEAD WITH ROCK PART OF HIS WORLD TOUR “FILL YOUR HEAD WITH ROCK” FILL YOUR HEAD WITH ROCK GOES INTERNATIONAL My name is Pete Boot, [BOOTY] way back in seventies I was the drummer with BUDGIE You see five years ago I was diagnosed “Parkinson’s”, I am now the best tambourine player in the business, coming to terms with Parkinson’s was similar to being told the bands got a fantastic record deal but also a new drummer, you accept it but refuse to give in. I never knew that all those years on the road would help me cope, but in bands as you know you develop the skin of a rhino, with the determination of an ant. I have Parkinson’s it will never have me, I feel sorry for Parkinson’s for he now has Booty disease, FILL YOUR HEAD WITH ROCK, is a two day rock festival I organise to raise funds for the Parkinson's society, now in its fourth year it takes place on Sunday 25th and Monday 26th. I desperately need to heighten the profile of the event, I need to take new ground, I have no intention of giving up, the other option being to lock myself away, but the illness would be locked away with me. That would achieve nothing. I must I fight, yet I'm fully aware this is a fight I may not win, though not able to claim victory I will grasp dignity with both hands [if they keep still] So with every ounce of respect to yourselves I ask that you see if there is a way you can help i , I seek no personal gain or promotion from this request, for there is one simple fact, no one knows what's around the corner. It is for those who have no idea that they will walk the same path as me, that I must make the tunnel shorter and the light brighter I do hope you can help, I ENCLOSE THE FOLLOWING DETAILS AND HOPE YOU FIND THE OF INTEREST FILL YOUR HEAD WITH ROCK it is a two-day rock festival, held in Willenhall, West Midlands. Not quite Woodstock I agree, but they both start with the letter “W” so who knows HA! HA! MISSION STATEMENT The event is organised to raise funds for the PARKINSON'S DISEASE SOCIETY UNITED KINGDOM but of equal importance to fund raising, is the need of peoples awareness to Parkinson's, and the debilitating effect it has on every day life. THE GIG; - TWENTY BANDS PLAY OVER THE TWO DAYS, SUNDAY 25TH AND MONDAY 26TH OF MAY 2003. DOORS OPEN 13.00HRS. CLOSE 24.00 HRS BOTH DAYS...........ADMISSION..........£5.00p EACH DAY THE BANDS:- JOE D’URSO [PART OF HIS WORLD TOUR] www.jdcaravan.com ERIC BLAKELY / MICKY KEMP BAND / SUSAN GIBSON [ GRAMMY AWARD WINNER] www.bandsontour.com CHARLIE MACINTOSH. THAT'S FIVE AMERICAN BANDS, THE BRITISH BANDS ARE - THE TREVOR BURTON BAND. RISE, NOWHERE NEAR THE GARDEN. CLIENTELE, JACKS HOUSE, DIZZY LIZZY. MOUND. CLEAR BLUE SKY. TONY HILLS FICTION. FAR SIDE. PREDATOR. OTHER BANDS TO CONFIRM. OTHER INFORMATION :- www.fillyourheadwithrock.com FOR HISTORY SEARCH PETE BOOT ORGANISER; - PETE BOOT, PHONE NUMBER- 01902-635885. MOBILE :-07989132805. FAX: - 01902-635885. EMAIL peterboot@blueyonder.co.uk / SNAIL MAIL 575 WILLENHALL ROAD. WILLENHALL. WEST MIDLANDS, WV13 3 LP. MANY THANKS FOR YOUR TIME IN READING THIS MESSAGE, YOURS SINCERELY...PETE BOOT..... SHAKEN NOT STIRRED www.fillyourheadwithrock.
Because the Yahoo Group Chatroom and Message Board seem to be growing and creating the nucleus we've been looking for, we encourage you to use it instead of this board. The message before this one tells you a little more about what we're trying to do. The URL for our group site is www.groups.yahoo.com/group/plwp2 Thanks, Nan and Bren
TO ALL PLWP MEMBERS! I have a favor to ask of each of you ... and no, I'm not asking for money nor am I asking you to shed blood for PLWP. (Though I really believe many of you would consider doing it!)<BR> <BR> No, what I'm asking is for you to join the Yahoo Group PLWP2 www.groups.yahoo.com/group/plwp2 as soon as you possibly can. <BR> <BR> Why, you ask? Well because it will make mine and Nan's life so much easier. <BR> <BR> How,you ask? Well, Nan and I have struggled with doing mass emails now for a very long time. We need to be able to communicate with everyone and sometimes it's crucial that we get to you in a hurry...for instance something about advocacy or one of our members needs help, etc. It normally takes about 2 hours to do a mass email to you folks and then many of those are returned for various reasons. The account has been closed, the mail capacity has been reached and you can receive no more mail, etc. <PR> <PR> By utilizing Yahoo Group, it doesn't take us any longer to send hundreds of emails than it does to send one. Nan and I don't have to keep up with each address, it's totally up to you to keep it up to date. <BR> <BR> Let me tell you how Yahoo does it. When anyone posts to the Message Board on Yahoo, it automatically emails all of the members. You, the member controls whether or not you receive the email. In your member setup, there are several choices you can make...instead of me writing them all down, check out the "How do I?" at http://www.plwp.org/how_to.htm#Messages . You can change your member set up at any time. <BR> <BR> So, those of you who already have a login with PLWP2, you may want to double check your email address to make sure it's correct. (There's an option on the front page that will allow you to change your setup. Be sure to read it carefully.) <BR> <BR> For those of you who have not joined PLWP2, please do so without hesitation. If everyone is cooperative and takes care of this immediately, Nan and I will completely do away with our old system and go for Yahoo. Remember, this is a democracy ... majority rules. <BR> <BR> There's other benefits to using Yahoo...the board can be used for sharing, communicating, getting help and/or giving help as well as so many other uses. Think of it as somewhere between a chatroom and a forum like on MGH. The thing that makes it so great is the time factor...when the post is entered on the group site it's automatically sent to the membership, the total interaction on PLWP at Yahoo groups is dependent solely one the member. YOU ARE IN CONTROL! <BR> <BR> So please make sure you are an active member of plwp2, that your email address is correct and that you have the appropriote settings for what you want to do. <BR> <BR> I think we'll all be amazed at the convenience thus the increased commoradory of the entire membership. <BR> <BR> Nan and I really thank you for doing this. You've probably just added another 5 years to my life line. LOL....<BR> <BR> There's more I want to say here but we'll have a better method when we get this job done. <BR> <BR> Thank you! Thank you! Thank you! <BR> Bren and Nan
Happy Birthday Pwnkle, You are a special person and I hope that you are having a very special day. You give so much to so many people!! I wish you the very best and hope to see you soon. Thank you for all you do Much Love, Nan aka TLC
YES all of you are correct! Among other great events April 1st is the first day of Parkinson's Month and IT IS YOUR BIRTHDAY! We at PLWP as a group of the Parkinson's grassroots...as a member of an elite extended family...as people who care to make a difference...ARE OFFICIALLY THREE YEARS OLD! I really want for us to do something to commemorate that day...and I've come up with an idea. It will only work if everyone participates. FIRST, I'm sure each of you have at least one fond memory of interacting with others at PLWP. It may be a special chat session, one of the times we all went to NYC for the Unity Walk, a special email from someone you met at PLWP, a spontaneous visit with someone you met thru PLWP, a funny possibly...maybe an embarrassing moment that you would care to share...either yours or one of you PLWP friends. WELL, let's put it together into a PLWP Remembers, 3rd Birthday webpage that will be permanently in our website. Write it up, send pics if you like and get it to me quick at btucma2000@yahoo.com. I know this is short notice, but if you get to me by the last of March I'll try to have it on site on April 1. NOW FOR THE REST OF THE STORY... Perhaps you've seen one of the photoshows on the website. If you haven't, take a look at one on www.plwp.org (menu bar to the left). WELL, what do you think about sending me, either by US Mail or email, some pictures you cherish of times you've spent with PLWP friends OR just a picture of yourself if you're new...a picture of you if you're an oldie but goodie member OR whatever. I've got a new program that will put these in a format that I can put on CD and you can play it on TV using a DVD player...full screen with music. Sounds like fun doesn't it! Something we can keep forever. If you'll get me the following by April 15, I'll make every effort to have it done and on the website before the end of Parkinson's Month. I've already got an order form on the site and you can order a copy of the CD. (http://plwp.org/photo_show_offer.htm It'll cost me around $5 for materials and shipping, so for $10 ($5 for PLWP) I'll get a copy to you by ... ummm ... let's make it easy on ME (LOL)... let's say by May 15. Here's what I need from you: (1) Picture(s) (duh!!) either by email (btucma2000@yahoo.com) or US mail (Brenda Tucker, 3656 Blue Byrd Lane, Kodak, TN 37764); (2) Captions including names of people in the picture (it's terrible to look at a picture and not know who it is); AND (3) a check for the amount of your order if in fact you placed an order with mailing address. What d'ya think? I like the idea myself. So get off and get on...get to me what I need to do this. Also, please talk it up so everyone will know about this. The long-time member will go down memory lane and you new members can see what you're getting yourself into! Together we make a difference, Bren
Hey everyone. I've been keeping an eye on Jane Stengals efforts to be sponsored as she represents all of PLWP at the Parkinson's Unity Walk on April 26. Please take time to donate something in support of Jane. It doesn't need to be much, just something to show her you're grateful for her efforts. The Parkinson's Unity walk is a great event that raises awareness and research funds. You'll find a link to The Unity Walk page for donation on the frontpage of www.plwp.org Together we make a difference, Bren
Does anyone know what April 1st is? Yea, I know it's April Fool's Day...but do you know what other significance this date has?
The transcript of Greg's testimony is now available at www.plwp.org/library.htm Hopefully, tomorrow we'll have a complete audio. Together we make a difference.
If you missed Greg's testimony, hear it at http://www.plwp.org/library.htm Unfortunately, only the closing of his statement is recorded but we will have a transcript of his testimony on line. Comments following his statement are very intersting. Together we make a difference!
Wednesday MARCH 19th 2003 9:30 a.m. (EST) Senate Judiciary Committee Hearing "Drawing the Line Between Ethical Regenerative Medicine Research and Immoral Human Reproductive Cloning. " Witnesses will include grassroots activist and National Field Representative for PAN, Greg Wasson. For further information: http://www.senate.gov/~judiciary/hearing.cfm?id=622 for audio stream: http://www.capitolhearings.org/ check in with c-span for televised coverage: http://www.c-span.org
There's so much confusion, so many questions...such an important time in the cure of neurological diseases. We have created a special forum for discussing stem cells, therapeutic cloning etc. Our own Joan Snyder (Jes) was the first to post and it makes for very good reading...very enlightening...very thought provoking. Just go to the frontpage at www.plwp.org ... the menu option is to the left directly under Communication Center. You will also see a link to Portraits of Hope. Remember one thing when approaching these and other issues. The only dumb question is the unasked question. I know I feel extremely dumb most of the time BUT as my mentor of 35 years ago told me (and it changed my life)...intelligence is not knowing the answers but knowing where to go to find the answers. And though these are sensitive issues, we feel we need to discuss them openly among the PLWP community. Please join in.
Bren
Dottie, he is a cutie. Katie is still a little jealous, but that will pass. I do, however, have a new title..."Super Pooper Scooper"...I guess I forgot about all of this! LOL >>> Glad to see you "interneting" Dottie.
Bren- Had to laugh when I read about your following around your new baby. I had a permantly attached cloth in my hand for a year when we got our first Jack Russell. He was a terror to house break. - The second one (three years later) was not that bad. He learned from the first. Just don't break his/her spirit. And I mean they are very spirited. Adorable, exasperating but marvelous little companions. Enjoy. Do you have a smooth or rough coat, also what color. We had one each. The rough was tri colored. The smooth brown and white. Both beautiful in their own way and totally lovable. Smart, too. It took them only a week or two to bend two adults to their will. We are still bent. Enjoy! Enjoy!
Sorry I missed everybody today, or yesterday now since it 2am Tuesday morning. The past three days have been strange...nothing I planned happened but it was a GREAT 3 days. Saturday, we worked in the yard all day...70+ degrees and beautiful. I felt absolutely wonderful and I wore myself out. >>> Then Sunday, well I could hardly move! LOL But my hubby wanted to go do some target practice and insisted I get out of the house. Well, I had a ball. I shot the pistol many rounds, hit the target on 50% of them...not bad for a parkie who has never shot at a target. Then today, I had all planned out but ... well, we got us another baby. A Jack Russell who is 3 months old. We adopted him from the animal shelter...so I spent the entire afternoon at the Vet and tonight following him around cleaning up after him. You see, it's Katie's 4th Birthday this weekend and we thought she needed a little friend.>>>>So I'm sorry I missed you guys, but it really has been wonderful. I don't remember feeling this good in a very long time. Hope all of you PLWPs are having spring-like weather too. Does a world of good for our attitudes. Love ya lots, Bren (Oh, by the way. Katie is not a child...she's our baby dog (a Sheltie)! LOL
Jane Stengel who is Co-Director of PLWP's Events Team is going to set up a PLWP Team with the Parkinson's Unity Walk. The walk is scheduled for April 26, 2003 in Central Park, NYC. If you are interested in going to the walk, she will be happy to help you with your arrangements. She can suggest hotels, etc. >>>>> We support the Unity Walk and have attended as a group since 1999. This year we're asking that you support the PLWP Team by sponsoring Jane Stengel who is representing PLWP. Donate directly to the Parkinson's Unity Walk Organization using this URL http://www.plwp.org/default.asp#UnityWalk and clicking HERE. If you plan to go to the walk and want to register yourself, there's a link on Jane's Donation Page that will take you directly to the PLWP Registration form. >>>>>> Together we make a difference!
You may want to check another web site called wemove.org for info on hemi-parkinsonism/hemi-atrophy. This is a particular syndrome in and of itself to my knowledge (which i consider moderate at best). However I myself have had the term hemiparkinsonism used to describe my condition, which at this point remains unclear. Hemi simply refers to only affecting one side of the body. However, as i said, i think you are referring to a specific condition and you may have some luck doing a search on the we move site! Good luck in your search for answers and please let us know what you discover! Beth Bennett
I need to correct my directions just a bit. Before going to the top of the page and clicking on the Communication Center, go to the top of "THIS PAGE" and click Top. Sorry!
I've been watching to see if by chance anyone was familiar with Hemiparkinsonism Hemi Atrophy. I believe if anyone here could give you any insight they would. However, there's a Parkinson's Forum sponsored by Massachusetts General Hospital (Harvard Medical) that I believe someone could help you. I would post their url here but it's so confusing. Instead, do the following: Page up to the very top of the page, click on Communications Center then click on Parkinson's Forum at MGH. Many people use the forum...many of them are very well versed in Neurodegenerative diseases.>>>>Though we may not be familiar with your particular form of Parkinson's, we would love for you to become a part of us. Let us know if we've helped you at all. Together we make a difference, Bren
I am tryng to find information on this variant of PDand would also like to make contact with others who have this particullar version.
Mojo, my prayers are with your son. My son was in the Gulf...I know how you feel. My prayers are with you as well.>>>>>Harley, thanks. I'm sure it could be more user friendly...just let us know if you have any suggestions.
Nan, Sorry to hear your ailing. It's no fun I know. Also sorry to hear of your brother-in-laws Illness. There are tons of people out here pulling for you and he. Know that my prayers are with you both. May God Bless. With love, mojo P.S. Iam asking for prayers for my youngest, my son Nick,who has been sent to Kuwait, to defend our freedoms that we all hold so dearly. Thanks
Hey! Lookin Good here guys.. just wanted to pop in and say a big howdy.. Bren.. CD goes in mail today.. watch your mailbox.
Nan, I am sending this message to let you know that I am thinking about you, and that I have added you and your brother-in-law to my prayer list. There is great stength within God -- both physical and emotional. You are a wonderful servant and angel for Him. You give of your heart and energy to all that need encouraging and all who need a friend to help them in their PD struggles. I thank God for you, and this Tennessean sends his love! David Vaughn
A new thread (Cheers to TLC) has been started in the PLWP MGH Forum by jjjaneR that you may want to post to. It's a very thoughtful effort of support for Nan (screen name TLC). For you newcomers, Nan is the other co-founder of PLWP. Her unselfish, loving nature is what PLWP is all about. She's always there when you need a friend.>>>>>Cancer is in the processs of taking her brother in law and her health is suffering. (I explained in a little more detail in my post on the forum.>>>>If you want to add a note for Nan, I'll make sure she sees the thread. I think it would warm her heart. To help you, I'm going to add a link next to the little talking blonde above!LOL >>>It will be good exposure to the forum for you too. Use the Communication Center to access all the forums, chat rooms, etc.>>>>Together we make a difference! Bren
Travels with Parkinson's will be broadcasting today at 10:00 AM EST regular daily broadcast. Then at 12:00 PM EST Kathrynne Holden's bi-monthly show. At 8:0 PM EST Dr Jill Marjama-Lyons will be interviewed thanks to Tom Berdine and YOPA. And on Friday 5/7/03 Dr Ron Hutton will give his b-monthly from Haversham UK. Right after "TWP" in the morning. www.live365.com/stations/travelswparkinsons to tune in. Check out newly ( still under constructio ) web site at attp://pwnkle.com/travels/index.htp Designed by Carol Mc Cleod. Thanks winks Chy
Travels with Parkinson's will be broadcasting today at 10:00 AM EST regular daily broadcast. Then at 12:00 PM EST Kathrynne Holden's bi-monthly show. At 8:0 PM EST Dr Jill Marjama-Lyons will be interviewed thanks to Tom Berdine and YOPA. And on Friday 5/7/03 Dr Ron Hutton will give his b-monthly from Haversham UK. Right after "TWP" in the morning. www.live365.com/stations/travelswparkinsons to tune in. Check out newly ( still under constructio ) web site at attp://pwnkle.com/travels/index.htp Designed by Carol Mc Cleod. Thanks winks Chy
Heehaw!!! A little after 10PM, Gary had already turned in and I was waiting for my sleeping med to kick in and I felt kinda lonely. You all know what I mean. Well!!! I'm forever checking on the forums, message boards, and the chatrooms...sorta my normal going to bed routine. What to my wondering eyes did appear but a gathering of friends in the CHATROOM!!! It was AMAZING! It was like, wellll let's see...Like being away on a business trip for a week and coming home to find your husband didn't go on that weekend fishing trip after all. You're so prepared to be alone that when you're not...WOW WHAT A ZINGER!! Keep those cards and letters flowing ... the Neighborhood is perking!! Oh, I almost forgot the beauty of it all. I believe it all happened because Nancy out of Cleveland posted on the fridge that she was in the chatroom if anyone wanted to chat. One drop in an ocean of water still makes ripples! Together we make a difference, Bren
hi I AM IN THE CHATROOM IF ANYONE WANTS TO CHAT. NANCY AKA ds401
DEE-136--IF YOU WOULD LIKE TO CHAT I WOULD BE HAPPY TO HEAR FROM YOU AGAIN.I HAVE WORRIED AND WONDEREDABOUT YOU. I NEVER DID GET TO TELL YOU ABOUT MY FAMILY AND YOU DIDNOT TELL ME ABOUT YOURS.BRENDA HASMY E-MAIL NO. AND IF YOU ASK SHE WILL GIVE TO YOU. AS AN OLD GRANDFATHER I AM A GOOD SOUNDING BOARD.
Just got out of the chatroom where jjjaneR discussed the stages of Parkinson's. (Yea, I had the wrong day in mind and thought it was going to be Thursday!!) Even though I arrived really late, everyone was praising her effort. There was a good turn out, but I'd like for Jane to do it again later on down the road at a different time so those who couldn't make it today would have another opportunity. (Oh, and we had another new member there today!) Tomorrow (Wednesday) Dan (v5navy) is the guest host. He's going to discuss Water Therapy. >>>>>>>>Things are happening here at PLWP! It feels great!>>>>>Together we make a difference, Bren (for Nan too)
BREN---WENT TO THE CHAT ROOM THIS MORNING TO CHECK MY VOICE. I WAS PLEASED TO GET ON WITH A VOICE--THIS WAS 7:15AM. I WAS AFRAID TO GET OFF SO I HELD ON UNTIL 8:3OAM AND NO ONE CAME ON I WENT OFF TO SEE IF COULD FIND SOMEONE. WHEN I TRYED TO GET BACK ON I COULD NOT GET VOICE. IF I CANNOT GET MY VOICE TOMORROW WE WILL HAVE TO CANCEL MY PART TIL SOME LATER DATE.
The chat sessions are really going well thanks to the efforts of Michael and Ken. We understand that you may be frustrated with all of the problems we've been having. Yahoo has been working dilligently to solve them. Thank you for your patience. Don't miss Weds and Thurs at 2:30EST...special topics: Water Therapy (Weds) by Dan and Different Stages of Parkinson's (Thurs) by jjjane.
We straightened up the Fridge yesterday. We were conducting science experiments in there and didn't know it! LOL Not much unlike the one in my kitchen! Seriously, we archived the messages. It was taking too long to load. We now have two files of archives that are labelled by dates. Just click on the date of interest. See you at the chatroom sessions! Bren
bren---talked to ken this morning in the chat room,HE ASKED ME TO TALK ABOUT WATER THERAPY ON WED.I TOLD HIM I WOULD BE GLAD TO BUT ONLY IF WE HAVE VOICE. I JUST COULD NOT HANDLE WITH MY ONE FINGER TYPING. IF WE CANOT GET VOICE ON REG CHAT COULD WE DO IT IN "FRIENDS" LIKE WE DID THE OTHER DAY?
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Hi, 39 year old parkie in Rome, Ga. I just wanted to let anyone out there in NW Georgia/NE Alabama that our new support group is up and running. Our next meeting is next Tuesday, Oct. 19th @ 6:00pm. We meet at 5th Ave. Baptist Church fellowship hall, 416 N. 5th Ave., Rome, GA 30161. Our guest speaker this month will be Debbie Walker, Bertek Pharmaceuticals, Inc. She will present a multi-media program on the resuce medication "APOKYN", (injectable ampomorhine) and talk about other up & comming treatments. For more information, please call James at 706-235- 3164 or email james_trussell@yahoo.com. Our website is www.northwestga.net/index2.html
Live Life Like You're Dying!
Help! I am terribly frustrated with the uncertainty of diagnosis. I have been diagnosed with too many neurological disorders. What one is right? My insurance isn't the best. I am on a medication for Parkinsons, it does help some with the tremors but not much for the pain and stiffness. How can an ordinary Joe find good help?
My Hand With Yours Going through rough times alone Is not something that I condone Neither does a friend of mine He becomes your personal lifeline. This has to be the kindest man He is the one we call Mr. Dan He is there to encourage and support you No matter what it is that you must do. When you feel alone and need his love Just put one hand in the other and look above That hand you feel inside your own Is really his so you're never alone. Trust in this and you will find Someone who cares and is always inclined To offer his love in your time of need He is a great man we have all agreed.
How do I go about getting SSI for my wife who is unable to work due to parkinson's?
has anyone tried ginseng for parkinsons. apparantly there was a study done on rats at Dalhousie university. the results were promising.
Hi Everyone, I have a web site called www.effectivespeakingconsultants.com. I am a motivational speaker. On there I have put my story and that of Janet Carlisle. If you have a story that you feel should be told e mail it to me at gerardk@effectivespeakingconsultants.com. I will post your story on my site. I have young onset parkinsons myself.
I am trying to locate the suppliers in the UK of ultra lightweight powered wheelchair. I believe that it is based on NASA technology.
PARKINSONS EXERCISE STUDY AT THE UNIVERSITY OF SOUTHERN CALIFORNIA, LOS ANGELES is currently enrolling subject who: 1. Diagnosed with Parkinsons Disease within the last 3yrs. 2. Not on Sinemet. 3. Demonstrates changes in funtional movement. For more information contact Dr. Beth Fisher at: 323.442.1006, bfisher@usc.edu.
RON MOORE, HAPPY BIRTHDAY HONEY!!!!!!! I LOVE YOU SOOOO MUCH.... YOUR LOVING WIFE
Hello, I am writing to tell you about a possible treatment for Parkinson’s Disease. This treatment employs low-dose olanzapine (1.5 mg, Zyprexa Zydis ORALLY DISINTEGRATING TABLETS) as an adjunctive treatment to levodopa and pramipexole. The use of these three medicines resulted in a marked decrease in PD symptoms for one patient. Discontinuance of treatment resulted in a return of similar signs and symptoms. I am posting because I want to publicize this information to as many PD patients and neurologists as possible. I do know the person who has benefited from this treatment. My only motivation is obtaining anecdotal feedback from others who may benefit from this treatment. If you think that your PD symptoms may be alleviated with this treatment, contact your neurologist. Any responses to the use of olanzapine as an adjunctive treatment to levodopa and pramipexole should be emailed to PDtreatment@hotmail.com or faxed to 212-608-0886. A recent journal article* by Durif et al. (2004) in Neurology describes the use of clozapine in reducing levodopa induced dykinensias. Based on this article and an understanding of olanzapine’s theoretical basis, I believe that low-dose olanzapine (1.5 mg, Zyprexa Orally Disintegrating Tablets), added to levodopa and pramipexole, would benefit PD patients. * Durif, F., Debilly, B., Galitzky, M., et al. (2004). Clozapine improves dyskinesias in PD: A double-blind, placebo-controlled study. Neurology, 62, 381-388.
FDA APPROVES APOKYN FOR TREATING PARKINSON'S PATIENTS (The following is a reformatted version of a press release issued by FDA and received via electronic mail. The release was confirmed by the sender.) April 21, 2004 FDA APPROVES APOKYN FOR THE ACUTE TREATMENT OF EPISODES OF IMMOBILITY IN PARKINSON'S PATIENTS FDA has approved Apokyn (apomorphine) as an injectable drug for treating Parkinson's patients during episodes of "hypomobility," so-called "off periods" in which the patient becomes immobile or unable to perform activities of daily living. Apokyn was given priority review because injectable apomorphine is the first therapy approved to treat these episodes acutely (during the episode). Apokyn was also designated as an orphan product. An estimated 1.5 million Americans have Parkinson's disease, which results in tremors, rigidity, postural instability, slowness, and difficulty moving. Within 3 to 5 years of treatment with standard Parkinson's drug treatments, about ten percent of patients experience episodes of hypomobility (e.g., inability to rise from a chair, to speak, or to walk). The episodes can occur toward the end of a dosing interval with standard background medications (so-called "end-of-dose wearing off") or at unpredictable times (spontaneous "on/off"). Apokyn was designated an orphan drug in l991 to treat the ten percent, or about 112,000 Parkinson's patients who progress to stage four and experience the severe on/off motor fluctuations unresponsive to other therapies. Orphan drugs are drugs that treat a rare disease or condition which affects fewer than 200,000 patients in the U.S. After receiving FDA approval, orphan drugs are eligible for seven years of exclusive marketing. The effectiveness of Apokyn in the acute symptomatic treatment of both types of recurring episodes of hypomobility or "off" episodes associated with advanced Parkinson's disease was established in three randomized, controlled trials. On average, patients participating in these trials had had Parkinson's disease for 11.3 years and were being treated with L-dopa and at least one other agent, usually an oral dopamine agonist. Apokyn must be taken with an antiemetic drug because, when taken alone, it causes severe nausea and vomiting. It must not be taken with one class of very effective anti-nausea drugs, the 5HT3 antagonists (ondansetron and similar drugs), because the combination of Apokyn (apomorphine) and these drugs can lead to very low blood pressure and loss of consciousness. Apokyn is intended for subcutaneous injection only. Other oral drugs, taken chronically, are also used to help decrease the amount of time Parkinson's patients spend in the "off" state. Patients and caregivers should carefully read the Patient Package Insert and Directions for Use on the ampule and dosing pen. Patients should also be instructed to use the drug only as prescribed. Apokyn's labeling also includes specific warnings about low blood pressure, fainting, hallucinations, and excessive sleepiness. The most common adverse events seen in controlled trials were yawning, dyskinesias (abnormal movements), nausea and vomiting, sedation or sleepiness, dizziness, runny nose, hallucinations, edema, chest pain, increased sweating, flushing, and pallor. Apokyn is a new molecular entity - a medication containing an active substance that has never before been approved for marketing in any form in the United States. Apokyn is manufactured for Bertek Pharmaceuticals, Research Triangle Park, NC, by Draxis Pharma Inc., Canada. Media Inquiries: 301-827-6242 Consumer Inquiries: 888-INFO-FDA (km)PN -END- #<662235.940960># Last Updated: April 21, 2004 17:29 EDT
FDA APPROVES APOKYN FOR TREATING PARKINSON'S PATIENTS (The following is a reformatted version of a press release issued by FDA and received via electronic mail. The release was confirmed by the sender.) April 21, 2004 FDA APPROVES APOKYN FOR THE ACUTE TREATMENT OF EPISODES OF IMMOBILITY IN PARKINSON'S PATIENTS FDA has approved Apokyn (apomorphine) as an injectable drug for treating Parkinson's patients during episodes of "hypomobility," so-called "off periods" in which the patient becomes immobile or unable to perform activities of daily living. Apokyn was given priority review because injectable apomorphine is the first therapy approved to treat these episodes acutely (during the episode). Apokyn was also designated as an orphan product. An estimated 1.5 million Americans have Parkinson's disease, which results in tremors, rigidity, postural instability, slowness, and difficulty moving. Within 3 to 5 years of treatment with standard Parkinson's drug treatments, about ten percent of patients experience episodes of hypomobility (e.g., inability to rise from a chair, to speak, or to walk). The episodes can occur toward the end of a dosing interval with standard background medications (so-called "end-of-dose wearing off") or at unpredictable times (spontaneous "on/off"). Apokyn was designated an orphan drug in l991 to treat the ten percent, or about 112,000 Parkinson's patients who progress to stage four and experience the severe on/off motor fluctuations unresponsive to other therapies. Orphan drugs are drugs that treat a rare disease or condition which affects fewer than 200,000 patients in the U.S. After receiving FDA approval, orphan drugs are eligible for seven years of exclusive marketing. The effectiveness of Apokyn in the acute symptomatic treatment of both types of recurring episodes of hypomobility or "off" episodes associated with advanced Parkinson's disease was established in three randomized, controlled trials. On average, patients participating in these trials had had Parkinson's disease for 11.3 years and were being treated with L-dopa and at least one other agent, usually an oral dopamine agonist. Apokyn must be taken with an antiemetic drug because, when taken alone, it causes severe nausea and vomiting. It must not be taken with one class of very effective anti-nausea drugs, the 5HT3 antagonists (ondansetron and similar drugs), because the combination of Apokyn (apomorphine) and these drugs can lead to very low blood pressure and loss of consciousness. Apokyn is intended for subcutaneous injection only. Other oral drugs, taken chronically, are also used to help decrease the amount of time Parkinson's patients spend in the "off" state. Patients and caregivers should carefully read the Patient Package Insert and Directions for Use on the ampule and dosing pen. Patients should also be instructed to use the drug only as prescribed. Apokyn's labeling also includes specific warnings about low blood pressure, fainting, hallucinations, and excessive sleepiness. The most common adverse events seen in controlled trials were yawning, dyskinesias (abnormal movements), nausea and vomiting, sedation or sleepiness, dizziness, runny nose, hallucinations, edema, chest pain, increased sweating, flushing, and pallor. Apokyn is a new molecular entity - a medication containing an active substance that has never before been approved for marketing in any form in the United States. Apokyn is manufactured for Bertek Pharmaceuticals, Research Triangle Park, NC, by Draxis Pharma Inc., Canada. Media Inquiries: 301-827-6242 Consumer Inquiries: 888-INFO-FDA (km)PN -END- #<662235.940960># Last Updated: April 21, 2004 17:29 EDT
As I sit hee thinking how pd has effected my life I wonder if i would have been the same person? I have grown to be a person who understands what it means to say please and thank you. To appreciated what people do and to listen to them when they speak.
when mailing checks for Muhammad Ali gloves, please mail to Midwest Parkinson's Awareness P.O. Box 2785 Alliance, Ohio 44601 In the previous message, I forgot to type in the zip code.
July 9-11 we're holding symposium-unity walk at pro football hall of fame in Canton, Ohio. We're raffling boxing gloves autographed by Muhammad Ali. You may purchase tickets via mail. wheaever amount of tickets you want, we'll put your name and phone number on each one, mail you the stub and on july 11, we'll draw winning ticket. You don't need to be present to win, although we'd love to see you here. We'll ship the gloves to you, Monday July 12, 2004. Ticket prices are: $5.00 for 5 tickets $10.00 for 11 tickets $20.00 for 25 tickets $50.00 for 75 tickets $100.00 for 150 tickets Make checks payable to Midwest Parkinson's Awareness and mail to P.O. Box 2785/ Alliance, Ohio Any questions, please feel free to call Ron Moore at 330-829-2964 or artist4memories@yahoo.com
I am a 50 year old woman with advanced Parkinson's. About 5 months ago my husband, a teacher, told me he was moving out at the end of the school year. A month later he said he was not going to and would be committed to the marriage. Now he states that he believes that his position as a teacher will probably be cut. He has decided he wants to explore starting a home school band. We have no savings of any kind for him to start up his own school. I have asked him to consider applying to other districts. He accuses me of not trusting and supporting him. When my meds are not working I can bearly get around or even breath. I just don't have the ability or strength to start over again. He might have a chance of succeeding if I were no longer in the picture. The situation is leaving me feeling I am nothing more than deadmeat hanging around his neck. Would appreciate hearing any opinions or suggestions by personal e-mail. My email address if vlhperry@hotmail.com. Please help.
Hi I am a 'carer' working in a nursing home in Australia. I am putting together a book/resource to help carers, working in a residential setting, to understand some of the conditions of their residents. I would like to include some personal stories, sooo if anyone out there has their story they would like to share please email me <genteale@dodo.com.au>. My intention is to give the carers not only an increased knowledge, but an empathy and awareness of what it is like, having Parkinson's...the feelings, the difference it makes, etc. Your stories, however short or long would be much appreciated...thanks, Ruth Teale
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I am looking for info about PD and Creatine and possible benefits by taking it as a supplement. I will be pleased to hear from all who have had the courage to use Creatine. Sincerely from Canada
july 9-11, 2004 awesome event. \July 9..meet & greet at Marriott Hotel July 10...Symposium @ Pro Football Hall of Fame, informative speakers, prizes, lunch, lunch and tours of hall of fame and museaum. July 11...Unity Walk-Health Fair, Central Catholic Football stadium, Unity walk, health fair, classic car show, prizes, NFL appearances, games, jugglers, live bands and much more. For hotel reservations, contact Marriott hotel at 1-800-742-0379. rooms are discounted to $79 from $140. To get this special rate, you MUST inform them you're reserving the room for the Parkinson's disease event. Any questions, or if you'd like an information packet, please contact me at 330-829-2964 or artist4memories@yahoo.com
Help with school project ASAP please . I need to interview someone living with PD for my term paper. These are the questions How did this person get this condition? Is this person managing his/her chronic illness well? Explain What is this person doing to treat this condition? and last Which activities of daily living might this person have problems with? explain . Please help me I will be very greatful.
Hello I am doing a school project on Parkinson's disease and I need help!!! I have to interview someone with parkinson's disease and I need to ask them these questions How did this person get this condition? Is this person managing his/ her chronic illness well?Explain. What is this person doing to treat this condition? Which activities of daily living might this person have problems with? explain. Please can someone help me . you can e-mail me at ashleywuttunee63@hotmail.com
Messages Messages Help Reply | Forward | View Source | Unwrap Lines | Delete Message 2485 of 2485 | Previous | Next [ Up Thread ] Message Index Msg # From: "Deborah Stanley" <roadrunner1st2002@y...> Date: Tue Feb 24, 2004 4:11 pm Subject: "Miracles Do Happen"!! I would like to take this opportunity to share this with everyone. As you know my husband, Jason (icethe1st) was dxd with PD nov 03. He lost the ability to speak and walk on 3 January 04. A Miracle has happened. On Saturday (21 Feb 04) at 12:30 AM Jason signed to me (finger spelled-sigh language) that he had clicking noises in his head. He has had them off and on. He signed to me that the clicking noises were getting louder and faster. The clicking noises sounded like someone turning a light switch on and off, on and off. A few minutes later, he said the clicking noises were getting softer and slower. He signed to me that he thinks the clicking noises are going to stop and if they do, he thinks he will be able to talk. A few minutes later Jason begain talking! He got a real bad headache when he first started talking. This is the first time he has been able to speak since 3 January. He stutters when he speaks, but was able to talk. Jason even sang 3 songs to a friend of ours in conference without stuttering even once. He only stutters when he talks. We told our friends who were still on line at that time of night/day about this miracle. We went to bed to get a few hours of sleep. When we woke up that Saturday morning, Jason was still talking. He still stuttered but was talking fine. On Sunday morning when Jason woke up, he said the clicking noises have returned. It was apparent that his stuttering was also getting worse, but he was still able to talk. On Monday, there were no changes. He was still talking. Today Jason is still able to talk, but his stuttering has become real bad. It takes a few seconds for him to get the words to come out, but he can still talk, just like when he first lost his voice. We don't know how long Jason will be able to keep his voice. we are taking it "One Day At A Time". This goes to show you that "Miracles Do Happen"!! You don't know when a miracle will happen, it just happens. We will keep praying for a cure for PD, and keep fighting. From: Debbie Stanley
Hi, anyone up?
I'm 49 and diagnosed with atypical PD. I told my doctor I experienced extreme hand fatigue in the late 1980's. She said it's possible I have had PD since then--formally diagnosed in 2001. I am now experiencing excrutiating calf and foot cramping when I sleep. I am trying to get more potassium in my diet, but I was wondering if others suffer from this painful type of cramping. Is it a common PD symptom?
Francaes O'Sulivan from Dubin Ireland on Travels With Parkinson's www.live365.com/stations/travelswparkinsons at 10:00 AM EST join us Chy
I ran across this in a magazine at the doctors office today. This company is offering 3 years of free webhosting to anyone that signs up. No credit cards, no committment Check it for yourself. It's the best deal I've ever seen, anywhere. www.1and1.com
If you need info on SSDI go to my site at http://pypa.com and click on the "SSDI and PD" link. Get educated and win your claim the first time you file.
Hi All...Has anyone noticed that on the demographics map, that the hgher pd rate co-insides with a high indstrial presence???
Hi all! In looking at the map, I saw that there are two hawaii people. The map just says carol and lou ann. I am on the Big Island & would like to get in touch with them. My e-mail is judithv@aloha.net. If anyone talks to them, please let them know! Aloha, Judi in kona
I want to talk on this chat and i can't get it. WHY
Now with the Holidays coming up, Thanksgiving just a week and half away and Christmas not to far behind. YOPA is going to do it's Annual Christmas Fund for PWP's. The awareness pin that I made up is one source of income for it and did rise a few hundred for this fund but more is needed. Please either buy a pin for $5 dollars or send a couple of dollars to YOPA, PO BOX 50936 Albuquerque, New Mexico 87181-0936. If you know of a needy pwp that needs help send in a 250 word essay about this person and why he/she needs help to directors@yopa.org. Thank you very much and HAPPY HOLIDAYS.
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on wednesday, i am to give a talk to our lgst. area hospice. while they say they only want me to talk about my personal experiences w/ pd...i have been thinking quite alot about end of life issues. couple this with the story of Terri Schiavo, the young woman in Florida who is in the middle of a huge legal debate over removing her feeding tube and i feel that it might be time to face some unsavory issues. would you be so kind as to help me in an unscientific poll? names will be kept completely anonomous. 1) do you have a living will? 2) on a scale of 1-10 (10 bbeing very important), how important do you consider having a living will to be?? 3) when do you consider to be the natural end of life?? 4) would you like to be kept alive by feeding tubes and breathing tubes? 5) what is the governments role in this issue (Gov. Jeb Bush ordered her feeding tube re-inserted)??? 6) on a scale of 1-10 (with 10 being very religious/spiritual), how religious/ spiritual do you consider yourslef to be?
LAPD,Treasonist,http://www.angelfire.com/nb/ugh/dearjohn.html ,urgent,update,2-23-03, see,http://www.angelfire.com/nb/ugh/dearjohn.html , Imperialist,Power,Hungry,Crooks,Kill,Kids,by,their,Negligence, in,regards,to,the,taunting,microwave,weapons,slow,death,of,Walter,Tribe,in,L.A., -------------------------------------------------------------------------------- Electronic,Weapons,Kills,Kids,faster,then,adult,males,in,Sylmar,CA,USA,Luna,http://www.angelfire.com/nb/ugh/dearjohn.html Navarro,Catron,Hate,Group,doing,this,for,over,ten,years,now,Malicious,Crimes, -------------------------------------------------------------------------------- http://www.angelfire.com/nb/ugh/dearjohn.html Terrorist Group of Criminally Insane Maggots tried to murder Walter Tribe and gave him brain damage with their electronic weapons as they woke Walter out of a sound sleep in his bed at 14657 Nurmi Street, Sylmar CA by intersection of Degarmo Av and Lakeside Street in Sylmar at 11:50pm on June 21st, 2002. Right now it is 2:30am on June 22nd, 2002 and the mind wrenching negative soft kill microwave death ray stimulis masked by ultra sonic weapons stimulis has not stopped! Walter has a massive throbbing headache as the result of this attempt on his life! Walter Tribe is in fear for his life and in fear for the safety of all those near and dear to him as a result of this blatant, reckless cowardly terrorist act inflicted and forced upon his person while he is inside his home! Please investigate The Luna residence on Nurmi St, The Catron residence on Nurmi St, and The Navarro residence on Lakeside St.. Their are many others involved as stimulis comes from 360 degress meaning the terrorist hate group members have Walter Tribe's home surrounded all about! see http://sirwally.com see http://www.angelfire.com/nb/ugh/dearjohn.html see HREF="http://winwally.com">http://winwally.com for ALL THE PREVIOUS DOCUMENTATION OF THESE MALICIOUS ATTACKS ON THE PERSON OF TAX-PAYING AMERICAN CITIZEN WALTER TRIBE. Terrorist Group of Criminally Insane Maggots tried to murder Walter Tribe and gave him brain damage with their electronic weapons as they woke Walter out of a sound sleep in his bed at 14657 Nurmi Street, Sylmar CA by intersection of Degarmo Av and Lakeside Street in Sylmar at 11:50pm on June 21st, 2002. Right now it is 2:30am on June 22nd, 2002 and the mind wrenching negative soft kill microwave death ray stimulis masked by ultra sonic weapons stimulis has not stopped! Walter has a massive throbbing headache as the result of this attempt on his life! Walter Tribe is in fear for his life and in fear for the safety of all those near and dear to him as a result of this blatant, reckless cowardly terrorist act inflicted and forced upon his person while he is inside his home! Please investigate The Luna residence on Nurmi St, The Catron residence on Nurmi St, and The Navarro residence on Lakeside St.. Their are many others involved as stimulis comes from 360 degress meaning the terrorist hate group members have Walter Tribe's home surrounded all about! see http://sirwally.com
LAPD,Treasonist,http://www.angelfire.com/nb/ugh/dearjohn.html ,urgent,update,2-23-03, see,http://www.angelfire.com/nb/ugh/dearjohn.html , Imperialist,Power,Hungry,Crooks,Kill,Kids,by,their,Negligence, in,regards,to,the,taunting,microwave,weapons,slow,death,of,Walter,Tribe,in,L.A., -------------------------------------------------------------------------------- Electronic,Weapons,Kills,Kids,faster,then,adult,males,in,Sylmar,CA,USA,Luna,http://www.angelfire.com/nb/ugh/dearjohn.html Navarro,Catron,Hate,Group,doing,this,for,over,ten,years,now,Malicious,Crimes, -------------------------------------------------------------------------------- http://www.angelfire.com/nb/ugh/dearjohn.html Terrorist Group of Criminally Insane Maggots tried to murder Walter Tribe and gave him brain damage with their electronic weapons as they woke Walter out of a sound sleep in his bed at 14657 Nurmi Street, Sylmar CA by intersection of Degarmo Av and Lakeside Street in Sylmar at 11:50pm on June 21st, 2002. Right now it is 2:30am on June 22nd, 2002 and the mind wrenching negative soft kill microwave death ray stimulis masked by ultra sonic weapons stimulis has not stopped! Walter has a massive throbbing headache as the result of this attempt on his life! Walter Tribe is in fear for his life and in fear for the safety of all those near and dear to him as a result of this blatant, reckless cowardly terrorist act inflicted and forced upon his person while he is inside his home! Please investigate The Luna residence on Nurmi St, The Catron residence on Nurmi St, and The Navarro residence on Lakeside St.. Their are many others involved as stimulis comes from 360 degress meaning the terrorist hate group members have Walter Tribe's home surrounded all about! see http://sirwally.com see http://www.angelfire.com/nb/ugh/dearjohn.html see HREF="http://winwally.com">http://winwally.com for ALL THE PREVIOUS DOCUMENTATION OF THESE MALICIOUS ATTACKS ON THE PERSON OF TAX-PAYING AMERICAN CITIZEN WALTER TRIBE. Terrorist Group of Criminally Insane Maggots tried to murder Walter Tribe and gave him brain damage with their electronic weapons as they woke Walter out of a sound sleep in his bed at 14657 Nurmi Street, Sylmar CA by intersection of Degarmo Av and Lakeside Street in Sylmar at 11:50pm on June 21st, 2002. Right now it is 2:30am on June 22nd, 2002 and the mind wrenching negative soft kill microwave death ray stimulis masked by ultra sonic weapons stimulis has not stopped! Walter has a massive throbbing headache as the result of this attempt on his life! Walter Tribe is in fear for his life and in fear for the safety of all those near and dear to him as a result of this blatant, reckless cowardly terrorist act inflicted and forced upon his person while he is inside his home! Please investigate The Luna residence on Nurmi St, The Catron residence on Nurmi St, and The Navarro residence on Lakeside St.. Their are many others involved as stimulis comes from 360 degress meaning the terrorist hate group members have Walter Tribe's home surrounded all about! see http://sirwally.com see http://winwally.com for ALL THE PREVIOUS DOCUMENTATION OF THESE MALICIOUS ATTACKS ON THE PERSON OF TAX-PAYING AMERICAN CITIZEN WALTER TRIBE. -------------------------------------------------------------------------------- Sign Guestbook Read Guestbook MUSIC Long Term Elec Weapons Torture and Attempted Murder Victim Walter Tribe Demands That Hate Group Members Go To Jail Now! 6-22-2002 -------------------------------------------------------------------------------- This page has been accessed 4 times. This page was last updated Fri Jun 21 18:31:31 2002 Pacific time Update: 6-25-2002 6:39pm in Sylmar, CA, Criminally Insane Housewife Addictive Electronic Weapons Abusers Organization is Killing all Human Beings County Wide in Los Angeles CA USA! The last 168 hours has been made a living hell for victim of intentional hate crimes including assault with a deadly electronic weapon with intent to murder and or cause great bodily injury including severe brain damage 6-25-2002 6:45pm :( -------------------------------------------------------------------------------- Sign Guestbook Read Guestbook MUSIC See http://sirwally.com and See http://winwally.com to Stop Communist,Satanic,Gossips,Abusing,Elec,Weapons,24/7,for,over,10 years -------------------------------------------------------------------------------- This page has been accessed 9 times. This page was last updated Tue Jun 25 10:35:57 2002 Pacific time
see below for Pete Boots' entry, its a worthwhile trip, if you can make it over to the UK.
Tune into "Travels with Parrkinson's" "Oldies Night" on www.live365.com/stations/travelswparkinsons The Internet's only radio station for Parkinson's Disease 9:00 PM EST
Hello, all! An update, since it's been awhile since I was here. Tom and I have been married now for a little over a year and a half! Time has flown, but neither of us has ever been happier! Tom has had one DBS adjustment, in July, with great success. He has weaned himself completely off the Mirapex, and he was taking three a day! I saw a new neuro last Friday, and he was very good. Did not doubt my dx, which is a first!, prescribed the new drug Stalevo, which is a combination of regular Sinemet 25/100 and Comtan 200mg, which I take every day. He also added another dose of the Stalevo in the evening, which is new. I think that was to help me move in bed during the night. It was a sobering visit, however, as it was the first time I have ever had a doctor tell me to remove all the throw rugs from my house, and also the first time a doctor has told me that I need my laundry on the first floor of my home instead of in the basement. Anyway, just wanted to drop all a note to let you know we did not drop off the face of the earth when we got married!!
CHY IS BACK & SO IS “TRAVELS WITH PARKINSON’S” On the radio show by parkies and for parkies, Chy Cassavant will be once again manning the microphone and hitting the airwaves again. Joan Blessington Snyder will pitch in as the Program Director in charge of lining up guests for the show. In the first show of this new collaboration, we will be interviewing and speaking with Bob Benjamin-the executive producer of the newly released 2-cd set: LIGHT OF DAY-A TRIBUTE TO BRUCE SPRINGSTEEN. Bob is a PWP and also manages some of the musicians who play on this album and he has named the Parkinson Disease Foundation as one of the recipients of the proceeds from this venture. With artists like Elvis Costello, Graham Parker, Joe Grosheky and Dion all doing cover songs of Springsteen tunes, you can bet that this conversation will be a spirited and fun way to start Chy’s comeback tour. The interview will air on Monday, September 29th at 10 AM eastern time and you can find out how to connect your computer to radio station by clicking on: http://www.live365.com/stations/travelswparkinsons and following the directions on the website.
Hi all, I was wondering if anyone has or heard of the type of parkinsons that makes you rigid. My father has been diagnosed with a type of parkinson but I can't find anything that specifiies the rigidness that my father is experiencing. He can not move or talk at all. I have read a lot on the parikinson that causes tremors but, not the ridgidness can someone help me. Thanks
I am seeking an assistive writing aid for my father who has a tremor which affects the legibility of his writing. He needs to find a store/supplier that will allow a trial of tools prior to purchase. He lives in the Ottawa area.
Hi All, Bren and I have been asked to speak at this Symposium...if any of you happen to be in the area, please stop by!!! It looks to be a very informative day! Parkinson’s Disease Symposium, 2003 Blazing Toward A Cure Presented by the University Of Rochester and the Parkinson’s Support Group of Upstate New York, an Affiliate of the National Parkinson’s Foundation Saturday, September 20th 8:30-#:00 Radisson Inn 175 Jefferson Road Rochester New York 14623 Pre- Registation is appreciated by 9/17/03 (585) 234 5355 Warmest Regards, Nan
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As a nurse case manager, I have lots of patients with lots of medication and they told me about a place where you can get free info about free and discount medication. I received information about various ways to get free and discount prescription medication and it really works. I want to share this with others who are like me and have to pay lots of money for their medicaton. It didn't cost me a cent. I mailed a self addressed stamped envelope to: CCP P.O. Box 823838 South Florida, Fl 33082-3838 and they sent me the information. It told me how to get my money back from medication that I had an allergic reaction to and I did get reimbursed for the medication. It told me how to apply to get free medication. Please pass this message on to others to will benefit from this important information. Here is what was in the packet. 1)The contact information for a company that works with the drug manufacturers and supplies the application to get medication for free. 2) How to locate the pharmaceutical manufacturers for their drug programs. 3)Prescription savings cards. 4) Money saving ideas 5) How to get Canadian drugs at a substantial savings. Here are some examples of costs: Sinemet CR (brand) all 100 tabs but you must buy a 3 month supply: 25/250 = $77.40 100/10 = $46.44 100/25 = $54.71 200/50 = $126.15 Generic Sinemet 25/100 = $38.86 and 10/100 = $26.62. Requip is brand only no generic Sold in 100 tabs and you need to buy a 3 month supply .25 mg $28.33 1 mg = $113.30 2 mg = $124.63 Amantadine the generic for symmetrel 100 tabs 100 mg $56.97 Mirapex is only Brand and 100 tabs .25 mg = $98.01 .5 mg = 196.02 1 mg = $196.02 1.5 mg = $196.02 Comtan is brand only 100 tabs 200 mg $154.00 Selegeline generic for Eldepryl 60 tabs 5 mg = $83.49 Benztropine generic for Cogentin sold in 100 tabs 1 mg = $22.37 and 2 mg = $15.94 Trihexyphenidyl generic for Artane 100 tabs only 2 mg = $23.30 and 5 mg = $15.94 Permax is brand only 30 tabs of .05 mg = $18.20 100 tabs of .25 mg = $100.19 and 100 tabs of 1 mg = $341.55 There are many more bargains for all your medications. This information is all free and costs you nothing but saves you money. Send today for the free information and compare prices!
i would like to thank everyone who made te trip to illinois (either in person or in their hearts) this year! it was more of a "love-in" than anything, and my special thanks to toad for the beatiful write up.
Yahoo! Messenger is a free service that uses the connection you have established with your Internet service provider (ISP). Just download the Messenger software and sign up for a free Yahoo! Account.. http://messenger.yahoo.com/ We will have a group chat Sunday around 8:00 pm CST for folks with ET. I would like to invite you to join us so you can get the know the posters up close and personal. You might hear harley7898367 In Washington sing us a song. Grand61angle in Eastern Tennessee may tell us what she personally knows about Elvis. If you would like to participate, please add one of the following to your yahoo IM friend’s list and watch for us to be on line on Sunday night. You would need a mike and headphones attached to your sound card. If you have not tried voice before, I would like to have a test chat with you. If you do not understand the help explanation for Yahoo IM, please email me directly gary_coplin@yahoo.com Or call me @ 713-721-3314 or send me your phone # and I will call you. This kind of format works best for voice chat. I'd also hope many of you would include some info about yourself in your yahoo user ID profile . See mine http://profiles.yahoo.com/gary_coplin for ideas on what you might want to include.
I am writing an article on the effects of physical, occupational and/or speech therapy on PD. I'm looking for a few patients to interview who can share their experience with PT/OT and/or ST with others. The article will be featured in the New Hope for Parkinson's newsletter, which will be available both online and in printed form. The newsletter is designed to provide information to help PD patients live better with the disease. It is being produced by Medtronic Activa Therapy, which makes the pacemaker-like devices used in DBS. The newsletter is not a promotional vehicle for Activa Therapy. If you're interested in talking with me, please e-mail me at leah.galle@attbi.com. Thanks!
I have had Parkinson's for 12 years the last 4 years in its advanced stages. I recently had bilateral stimulation surgery and it has helped dramatically. I lost my life's savings, my retirement savings, my health insurance and even my car. I am penniless but still do not feel like it is futile. I have written a book titles Evertone Has An Everest. It is about my denial of the disease, my being a principal in an inner city school in Miami and how I dealt with it and so on. I do not want to bore you, but I am looking for a doctor to write an introduction for the book. I first asked Janet Reno to do it but she just backed down. The book is really good! I can send you a copy. I found a professional ghostwriter to fine tune it and polish it for no cost to me. He says the story is worth telling. If you are willing to do this for me please write me at edandrew@stis.net or call 954/739-7699.
Congratulations to all the people involved in putting together the "PLWP 3rd Aniversary Photo/Music Show"!! It is a fantastic and very professional piece of work, that brought back many wonderful memories. With much thanks and appreciation; Sincerely, :) Ryan
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I've been on the Rotigotine study since last summer. I am now on the open label phase of the patch study and I feel great. I'm currently on 60mg which is the highest dose. I'd say in the past week I've had very little off times. I have more energy, my mental state is great (don't ask my kids tho lol)I'm paid every week for mileage. My drug coordinator feels this will be FDA approved in 2-3 years. This does nothing for the tremor tho. If anyone has any questions please email me at carolpost@aol.com.
Anyone out there in the Baltimore, Montgomery County, Northern Virginia or DC area interested in taking part in a clinical study for the Rotigotine Patch? The manufacturer is Schwartz Bio-Sciences of Germany, and as many of you probably know is already being used in Europe. Dr. Marc Raphaelson, in Frederick, Maryland is now accepting applications for inclusion in this Phase III, double blind study. The only specific I know about is that you must have “off” times of at least 2-1/2 hours per day, so this study is obviously not for volunteers who are early stage PDers. At first the study will mean weekly visits to the office, but after maintenance dose is reached, office visits will then be once every three months. Volunteers will be paid $50.00 per visit, which will be paid at the end of participation in the study. This request is in advance of newspaper advertising, so anyone who is truly interested will have a better chance of being included. It’s the old “first come, first served” thing. I would LOVE to be able to fill his volunteer requirements from the Forum and PLWP. A word about Dr. Raphaelson. He thinks I’m some kind of activist (boy, do I have him fooled!), and because of that mistaken impression, he asked me if I would be interested in letting my Parky (he didn’t use that word, naturally), friends know about the study. And, of course, I said I would. I will tell you that three days after I joined PLWP he knew all about the group and he does keep a poster on his entrance door for everyone to see. As you might have guessed by this time, he is, indeed, my neurologist, and, personally, I think he walks on water. He has been extremely kind and supportive to me and my family. Dr. R has a history of PD in his family which is why he specialized in neurology. I got my dx within 20 minutes of the standard clinical testing. Now, seven years into PD, if you didn’t know me, you wouldn’t know I have PD. Enough said. If you are interested in volunteering for this study, please let me have your name, address and phone number so that I can turn them into Dr. R for follow-up. One advantage (for me), of this being in Frederick. is, if you are so inclined, that I can direct or lead you easily to his office, hopefully meet some of you I haven’t had the pleasure of meeting before and maybe we can do lunch once in a while. My e-mail is seasongood1@msn.com and my phone number is 301-694-9297. Confidentiality is assured, as far as I am concerned. The extent of my work is only recruitment for a very important clinical study. I hope to hear from some of you soon. Sylvia
Just like all of you to know that on June 28 we will be holding our third annual fundraising bowl-a-thon in Hammond, IN. If any of you are in the area of Olympia Lanes on that date please come on by. All funds go to PD research and education. Kerry Mitchell
Greetings, Parkey family!!! My name is Ron, 34 dx 6 weeks ago. I'm in the process of organizing a concert/dance to benefit pd. "Jimmy and the Soul Blazers. They're very popular on East coast. Motown/oldies music. If there's any one around my neck of the woods, I may need your assistance.I'm excited to get pd awareness strong in Ohio and abroad. I'm extremely experienced in charity fund raising. Since my dx, I want to include helping plwp, YOPA, and Michael J. Fox Foundation. Any one w/ connections to getting ahold of Mohamad Ali, MJF, or any influential celebrity, contact me, please?! Thank You sooooo Much!
I've been doing some research today as part of an herbal apothecary company I've helped form in the past year. I am also a medical transcriptionist and therefore have the knack for more thorough research of drugs both natural and western medicine pharmaceutical. I have discovered that Butcher's Broom aids with the orthostatic hypertension associated with Parkinson's medications as well as the Parkinson's itself, diabetes and other possibly related vasocontriction problems such as migraines. There is also an ancient India herb that has been found in an Ayurvedic Medical Textbook from over 5000 yr. ago. The herb is mucuna puriens, the mucuna bean that is a natural derivative of levadopa and is being manufactured in relation to a disorder specialist, Dr. Bala Manyam, of the Univ. of S. Illinois.
You know Pete, I'd really love to be there. I'm totally serious...if I could afford it, I would be there. Good luck to you!
PARKINSON'S BENEFIT CONCERT SUNDAY 25TH AND MONDAY 26TH MAY ³FILL YOUR HEAD WITH ROCK is my front line in the battle against Parkinson's all monies raised from the event goes to THE PARKINSON'S DISEASE SOCIETY, U.K I have, I think put together a brilliant line up, but there is the problem. that is convincing the people, that such high international acts are coming to play "FILL YOUR HEAD WITH ROCK", I myself have Parkinson's but I refuse to let Parkinson's have me. ****************************************************************************************************************8 PRESS RELEASE PARKINSON'S DISEASE SOCIETY BENEFIT CONCERT JOE D’URSO MAKES FILL YOUR HEAD WITH ROCK PART OF HIS WORLD TOUR “FILL YOUR HEAD WITH ROCK” FILL YOUR HEAD WITH ROCK GOES INTERNATIONAL My name is Pete Boot, [BOOTY] way back in seventies I was the drummer with BUDGIE You see five years ago I was diagnosed “Parkinson’s”, I am now the best tambourine player in the business, coming to terms with Parkinson’s was similar to being told the bands got a fantastic record deal but also a new drummer, you accept it but refuse to give in. I never knew that all those years on the road would help me cope, but in bands as you know you develop the skin of a rhino, with the determination of an ant. I have Parkinson’s it will never have me, I feel sorry for Parkinson’s for he now has Booty disease, FILL YOUR HEAD WITH ROCK, is a two day rock festival I organise to raise funds for the Parkinson's society, now in its fourth year it takes place on Sunday 25th and Monday 26th. I desperately need to heighten the profile of the event, I need to take new ground, I have no intention of giving up, the other option being to lock myself away, but the illness would be locked away with me. That would achieve nothing. I must I fight, yet I'm fully aware this is a fight I may not win, though not able to claim victory I will grasp dignity with both hands [if they keep still] So with every ounce of respect to yourselves I ask that you see if there is a way you can help i , I seek no personal gain or promotion from this request, for there is one simple fact, no one knows what's around the corner. It is for those who have no idea that they will walk the same path as me, that I must make the tunnel shorter and the light brighter I do hope you can help, I ENCLOSE THE FOLLOWING DETAILS AND HOPE YOU FIND THE OF INTEREST FILL YOUR HEAD WITH ROCK it is a two-day rock festival, held in Willenhall, West Midlands. Not quite Woodstock I agree, but they both start with the letter “W” so who knows HA! HA! MISSION STATEMENT The event is organised to raise funds for the PARKINSON'S DISEASE SOCIETY UNITED KINGDOM but of equal importance to fund raising, is the need of peoples awareness to Parkinson's, and the debilitating effect it has on every day life. THE GIG; - TWENTY BANDS PLAY OVER THE TWO DAYS, SUNDAY 25TH AND MONDAY 26TH OF MAY 2003. DOORS OPEN 13.00HRS. CLOSE 24.00 HRS BOTH DAYS...........ADMISSION..........£5.00p EACH DAY THE BANDS:- JOE D’URSO [PART OF HIS WORLD TOUR] www.jdcaravan.com ERIC BLAKELY / MICKY KEMP BAND / SUSAN GIBSON [ GRAMMY AWARD WINNER] www.bandsontour.com CHARLIE MACINTOSH. THAT'S FIVE AMERICAN BANDS, THE BRITISH BANDS ARE - THE TREVOR BURTON BAND. RISE, NOWHERE NEAR THE GARDEN. CLIENTELE, JACKS HOUSE, DIZZY LIZZY. MOUND. CLEAR BLUE SKY. TONY HILLS FICTION. FAR SIDE. PREDATOR. OTHER BANDS TO CONFIRM. OTHER INFORMATION :- www.fillyourheadwithrock.com FOR HISTORY SEARCH PETE BOOT ORGANISER; - PETE BOOT, PHONE NUMBER- 01902-635885. MOBILE :-07989132805. FAX: - 01902-635885. EMAIL peterboot@blueyonder.co.uk / SNAIL MAIL 575 WILLENHALL ROAD. WILLENHALL. WEST MIDLANDS, WV13 3 LP. MANY THANKS FOR YOUR TIME IN READING THIS MESSAGE, YOURS SINCERELY...PETE BOOT..... SHAKEN NOT STIRRED www.fillyourheadwithrock.
Because the Yahoo Group Chatroom and Message Board seem to be growing and creating the nucleus we've been looking for, we encourage you to use it instead of this board. The message before this one tells you a little more about what we're trying to do. The URL for our group site is www.groups.yahoo.com/group/plwp2 Thanks, Nan and Bren
TO ALL PLWP MEMBERS! I have a favor to ask of each of you ... and no, I'm not asking for money nor am I asking you to shed blood for PLWP. (Though I really believe many of you would consider doing it!)<BR> <BR> No, what I'm asking is for you to join the Yahoo Group PLWP2 www.groups.yahoo.com/group/plwp2 as soon as you possibly can. <BR> <BR> Why, you ask? Well because it will make mine and Nan's life so much easier. <BR> <BR> How,you ask? Well, Nan and I have struggled with doing mass emails now for a very long time. We need to be able to communicate with everyone and sometimes it's crucial that we get to you in a hurry...for instance something about advocacy or one of our members needs help, etc. It normally takes about 2 hours to do a mass email to you folks and then many of those are returned for various reasons. The account has been closed, the mail capacity has been reached and you can receive no more mail, etc. <PR> <PR> By utilizing Yahoo Group, it doesn't take us any longer to send hundreds of emails than it does to send one. Nan and I don't have to keep up with each address, it's totally up to you to keep it up to date. <BR> <BR> Let me tell you how Yahoo does it. When anyone posts to the Message Board on Yahoo, it automatically emails all of the members. You, the member controls whether or not you receive the email. In your member setup, there are several choices you can make...instead of me writing them all down, check out the "How do I?" at http://www.plwp.org/how_to.htm#Messages . You can change your member set up at any time. <BR> <BR> So, those of you who already have a login with PLWP2, you may want to double check your email address to make sure it's correct. (There's an option on the front page that will allow you to change your setup. Be sure to read it carefully.) <BR> <BR> For those of you who have not joined PLWP2, please do so without hesitation. If everyone is cooperative and takes care of this immediately, Nan and I will completely do away with our old system and go for Yahoo. Remember, this is a democracy ... majority rules. <BR> <BR> There's other benefits to using Yahoo...the board can be used for sharing, communicating, getting help and/or giving help as well as so many other uses. Think of it as somewhere between a chatroom and a forum like on MGH. The thing that makes it so great is the time factor...when the post is entered on the group site it's automatically sent to the membership, the total interaction on PLWP at Yahoo groups is dependent solely one the member. YOU ARE IN CONTROL! <BR> <BR> So please make sure you are an active member of plwp2, that your email address is correct and that you have the appropriote settings for what you want to do. <BR> <BR> I think we'll all be amazed at the convenience thus the increased commoradory of the entire membership. <BR> <BR> Nan and I really thank you for doing this. You've probably just added another 5 years to my life line. LOL....<BR> <BR> There's more I want to say here but we'll have a better method when we get this job done. <BR> <BR> Thank you! Thank you! Thank you! <BR> Bren and Nan
Happy Birthday Pwnkle, You are a special person and I hope that you are having a very special day. You give so much to so many people!! I wish you the very best and hope to see you soon. Thank you for all you do Much Love, Nan aka TLC
YES all of you are correct! Among other great events April 1st is the first day of Parkinson's Month and IT IS YOUR BIRTHDAY! We at PLWP as a group of the Parkinson's grassroots...as a member of an elite extended family...as people who care to make a difference...ARE OFFICIALLY THREE YEARS OLD! I really want for us to do something to commemorate that day...and I've come up with an idea. It will only work if everyone participates. FIRST, I'm sure each of you have at least one fond memory of interacting with others at PLWP. It may be a special chat session, one of the times we all went to NYC for the Unity Walk, a special email from someone you met at PLWP, a spontaneous visit with someone you met thru PLWP, a funny possibly...maybe an embarrassing moment that you would care to share...either yours or one of you PLWP friends. WELL, let's put it together into a PLWP Remembers, 3rd Birthday webpage that will be permanently in our website. Write it up, send pics if you like and get it to me quick at btucma2000@yahoo.com. I know this is short notice, but if you get to me by the last of March I'll try to have it on site on April 1. NOW FOR THE REST OF THE STORY... Perhaps you've seen one of the photoshows on the website. If you haven't, take a look at one on www.plwp.org (menu bar to the left). WELL, what do you think about sending me, either by US Mail or email, some pictures you cherish of times you've spent with PLWP friends OR just a picture of yourself if you're new...a picture of you if you're an oldie but goodie member OR whatever. I've got a new program that will put these in a format that I can put on CD and you can play it on TV using a DVD player...full screen with music. Sounds like fun doesn't it! Something we can keep forever. If you'll get me the following by April 15, I'll make every effort to have it done and on the website before the end of Parkinson's Month. I've already got an order form on the site and you can order a copy of the CD. (http://plwp.org/photo_show_offer.htm It'll cost me around $5 for materials and shipping, so for $10 ($5 for PLWP) I'll get a copy to you by ... ummm ... let's make it easy on ME (LOL)... let's say by May 15. Here's what I need from you: (1) Picture(s) (duh!!) either by email (btucma2000@yahoo.com) or US mail (Brenda Tucker, 3656 Blue Byrd Lane, Kodak, TN 37764); (2) Captions including names of people in the picture (it's terrible to look at a picture and not know who it is); AND (3) a check for the amount of your order if in fact you placed an order with mailing address. What d'ya think? I like the idea myself. So get off and get on...get to me what I need to do this. Also, please talk it up so everyone will know about this. The long-time member will go down memory lane and you new members can see what you're getting yourself into! Together we make a difference, Bren
Hey everyone. I've been keeping an eye on Jane Stengals efforts to be sponsored as she represents all of PLWP at the Parkinson's Unity Walk on April 26. Please take time to donate something in support of Jane. It doesn't need to be much, just something to show her you're grateful for her efforts. The Parkinson's Unity walk is a great event that raises awareness and research funds. You'll find a link to The Unity Walk page for donation on the frontpage of www.plwp.org Together we make a difference, Bren
Does anyone know what April 1st is? Yea, I know it's April Fool's Day...but do you know what other significance this date has?
The transcript of Greg's testimony is now available at www.plwp.org/library.htm Hopefully, tomorrow we'll have a complete audio. Together we make a difference.
If you missed Greg's testimony, hear it at http://www.plwp.org/library.htm Unfortunately, only the closing of his statement is recorded but we will have a transcript of his testimony on line. Comments following his statement are very intersting. Together we make a difference!
Wednesday MARCH 19th 2003 9:30 a.m. (EST) Senate Judiciary Committee Hearing "Drawing the Line Between Ethical Regenerative Medicine Research and Immoral Human Reproductive Cloning. " Witnesses will include grassroots activist and National Field Representative for PAN, Greg Wasson. For further information: http://www.senate.gov/~judiciary/hearing.cfm?id=622 for audio stream: http://www.capitolhearings.org/ check in with c-span for televised coverage: http://www.c-span.org
There's so much confusion, so many questions...such an important time in the cure of neurological diseases. We have created a special forum for discussing stem cells, therapeutic cloning etc. Our own Joan Snyder (Jes) was the first to post and it makes for very good reading...very enlightening...very thought provoking. Just go to the frontpage at www.plwp.org ... the menu option is to the left directly under Communication Center. You will also see a link to Portraits of Hope. Remember one thing when approaching these and other issues. The only dumb question is the unasked question. I know I feel extremely dumb most of the time BUT as my mentor of 35 years ago told me (and it changed my life)...intelligence is not knowing the answers but knowing where to go to find the answers. And though these are sensitive issues, we feel we need to discuss them openly among the PLWP community. Please join in.
Bren
Dottie, he is a cutie. Katie is still a little jealous, but that will pass. I do, however, have a new title..."Super Pooper Scooper"...I guess I forgot about all of this! LOL >>> Glad to see you "interneting" Dottie.
Bren- Had to laugh when I read about your following around your new baby. I had a permantly attached cloth in my hand for a year when we got our first Jack Russell. He was a terror to house break. - The second one (three years later) was not that bad. He learned from the first. Just don't break his/her spirit. And I mean they are very spirited. Adorable, exasperating but marvelous little companions. Enjoy. Do you have a smooth or rough coat, also what color. We had one each. The rough was tri colored. The smooth brown and white. Both beautiful in their own way and totally lovable. Smart, too. It took them only a week or two to bend two adults to their will. We are still bent. Enjoy! Enjoy!
Sorry I missed everybody today, or yesterday now since it 2am Tuesday morning. The past three days have been strange...nothing I planned happened but it was a GREAT 3 days. Saturday, we worked in the yard all day...70+ degrees and beautiful. I felt absolutely wonderful and I wore myself out. >>> Then Sunday, well I could hardly move! LOL But my hubby wanted to go do some target practice and insisted I get out of the house. Well, I had a ball. I shot the pistol many rounds, hit the target on 50% of them...not bad for a parkie who has never shot at a target. Then today, I had all planned out but ... well, we got us another baby. A Jack Russell who is 3 months old. We adopted him from the animal shelter...so I spent the entire afternoon at the Vet and tonight following him around cleaning up after him. You see, it's Katie's 4th Birthday this weekend and we thought she needed a little friend.>>>>So I'm sorry I missed you guys, but it really has been wonderful. I don't remember feeling this good in a very long time. Hope all of you PLWPs are having spring-like weather too. Does a world of good for our attitudes. Love ya lots, Bren (Oh, by the way. Katie is not a child...she's our baby dog (a Sheltie)! LOL
Jane Stengel who is Co-Director of PLWP's Events Team is going to set up a PLWP Team with the Parkinson's Unity Walk. The walk is scheduled for April 26, 2003 in Central Park, NYC. If you are interested in going to the walk, she will be happy to help you with your arrangements. She can suggest hotels, etc. >>>>> We support the Unity Walk and have attended as a group since 1999. This year we're asking that you support the PLWP Team by sponsoring Jane Stengel who is representing PLWP. Donate directly to the Parkinson's Unity Walk Organization using this URL http://www.plwp.org/default.asp#UnityWalk and clicking HERE. If you plan to go to the walk and want to register yourself, there's a link on Jane's Donation Page that will take you directly to the PLWP Registration form. >>>>>> Together we make a difference!
You may want to check another web site called wemove.org for info on hemi-parkinsonism/hemi-atrophy. This is a particular syndrome in and of itself to my knowledge (which i consider moderate at best). However I myself have had the term hemiparkinsonism used to describe my condition, which at this point remains unclear. Hemi simply refers to only affecting one side of the body. However, as i said, i think you are referring to a specific condition and you may have some luck doing a search on the we move site! Good luck in your search for answers and please let us know what you discover! Beth Bennett
I need to correct my directions just a bit. Before going to the top of the page and clicking on the Communication Center, go to the top of "THIS PAGE" and click Top. Sorry!
I've been watching to see if by chance anyone was familiar with Hemiparkinsonism Hemi Atrophy. I believe if anyone here could give you any insight they would. However, there's a Parkinson's Forum sponsored by Massachusetts General Hospital (Harvard Medical) that I believe someone could help you. I would post their url here but it's so confusing. Instead, do the following: Page up to the very top of the page, click on Communications Center then click on Parkinson's Forum at MGH. Many people use the forum...many of them are very well versed in Neurodegenerative diseases.>>>>Though we may not be familiar with your particular form of Parkinson's, we would love for you to become a part of us. Let us know if we've helped you at all. Together we make a difference, Bren
I am tryng to find information on this variant of PDand would also like to make contact with others who have this particullar version.
Mojo, my prayers are with your son. My son was in the Gulf...I know how you feel. My prayers are with you as well.>>>>>Harley, thanks. I'm sure it could be more user friendly...just let us know if you have any suggestions.
Nan, Sorry to hear your ailing. It's no fun I know. Also sorry to hear of your brother-in-laws Illness. There are tons of people out here pulling for you and he. Know that my prayers are with you both. May God Bless. With love, mojo P.S. Iam asking for prayers for my youngest, my son Nick,who has been sent to Kuwait, to defend our freedoms that we all hold so dearly. Thanks
Hey! Lookin Good here guys.. just wanted to pop in and say a big howdy.. Bren.. CD goes in mail today.. watch your mailbox.
Nan, I am sending this message to let you know that I am thinking about you, and that I have added you and your brother-in-law to my prayer list. There is great stength within God -- both physical and emotional. You are a wonderful servant and angel for Him. You give of your heart and energy to all that need encouraging and all who need a friend to help them in their PD struggles. I thank God for you, and this Tennessean sends his love! David Vaughn
A new thread (Cheers to TLC) has been started in the PLWP MGH Forum by jjjaneR that you may want to post to. It's a very thoughtful effort of support for Nan (screen name TLC). For you newcomers, Nan is the other co-founder of PLWP. Her unselfish, loving nature is what PLWP is all about. She's always there when you need a friend.>>>>>Cancer is in the processs of taking her brother in law and her health is suffering. (I explained in a little more detail in my post on the forum.>>>>If you want to add a note for Nan, I'll make sure she sees the thread. I think it would warm her heart. To help you, I'm going to add a link next to the little talking blonde above!LOL >>>It will be good exposure to the forum for you too. Use the Communication Center to access all the forums, chat rooms, etc.>>>>Together we make a difference! Bren
Travels with Parkinson's will be broadcasting today at 10:00 AM EST regular daily broadcast. Then at 12:00 PM EST Kathrynne Holden's bi-monthly show. At 8:0 PM EST Dr Jill Marjama-Lyons will be interviewed thanks to Tom Berdine and YOPA. And on Friday 5/7/03 Dr Ron Hutton will give his b-monthly from Haversham UK. Right after "TWP" in the morning. www.live365.com/stations/travelswparkinsons to tune in. Check out newly ( still under constructio ) web site at attp://pwnkle.com/travels/index.htp Designed by Carol Mc Cleod. Thanks winks Chy
Travels with Parkinson's will be broadcasting today at 10:00 AM EST regular daily broadcast. Then at 12:00 PM EST Kathrynne Holden's bi-monthly show. At 8:0 PM EST Dr Jill Marjama-Lyons will be interviewed thanks to Tom Berdine and YOPA. And on Friday 5/7/03 Dr Ron Hutton will give his b-monthly from Haversham UK. Right after "TWP" in the morning. www.live365.com/stations/travelswparkinsons to tune in. Check out newly ( still under constructio ) web site at attp://pwnkle.com/travels/index.htp Designed by Carol Mc Cleod. Thanks winks Chy
Heehaw!!! A little after 10PM, Gary had already turned in and I was waiting for my sleeping med to kick in and I felt kinda lonely. You all know what I mean. Well!!! I'm forever checking on the forums, message boards, and the chatrooms...sorta my normal going to bed routine. What to my wondering eyes did appear but a gathering of friends in the CHATROOM!!! It was AMAZING! It was like, wellll let's see...Like being away on a business trip for a week and coming home to find your husband didn't go on that weekend fishing trip after all. You're so prepared to be alone that when you're not...WOW WHAT A ZINGER!! Keep those cards and letters flowing ... the Neighborhood is perking!! Oh, I almost forgot the beauty of it all. I believe it all happened because Nancy out of Cleveland posted on the fridge that she was in the chatroom if anyone wanted to chat. One drop in an ocean of water still makes ripples! Together we make a difference, Bren
hi I AM IN THE CHATROOM IF ANYONE WANTS TO CHAT. NANCY AKA ds401
DEE-136--IF YOU WOULD LIKE TO CHAT I WOULD BE HAPPY TO HEAR FROM YOU AGAIN.I HAVE WORRIED AND WONDEREDABOUT YOU. I NEVER DID GET TO TELL YOU ABOUT MY FAMILY AND YOU DIDNOT TELL ME ABOUT YOURS.BRENDA HASMY E-MAIL NO. AND IF YOU ASK SHE WILL GIVE TO YOU. AS AN OLD GRANDFATHER I AM A GOOD SOUNDING BOARD.
Just got out of the chatroom where jjjaneR discussed the stages of Parkinson's. (Yea, I had the wrong day in mind and thought it was going to be Thursday!!) Even though I arrived really late, everyone was praising her effort. There was a good turn out, but I'd like for Jane to do it again later on down the road at a different time so those who couldn't make it today would have another opportunity. (Oh, and we had another new member there today!) Tomorrow (Wednesday) Dan (v5navy) is the guest host. He's going to discuss Water Therapy. >>>>>>>>Things are happening here at PLWP! It feels great!>>>>>Together we make a difference, Bren (for Nan too)
BREN---WENT TO THE CHAT ROOM THIS MORNING TO CHECK MY VOICE. I WAS PLEASED TO GET ON WITH A VOICE--THIS WAS 7:15AM. I WAS AFRAID TO GET OFF SO I HELD ON UNTIL 8:3OAM AND NO ONE CAME ON I WENT OFF TO SEE IF COULD FIND SOMEONE. WHEN I TRYED TO GET BACK ON I COULD NOT GET VOICE. IF I CANNOT GET MY VOICE TOMORROW WE WILL HAVE TO CANCEL MY PART TIL SOME LATER DATE.
The chat sessions are really going well thanks to the efforts of Michael and Ken. We understand that you may be frustrated with all of the problems we've been having. Yahoo has been working dilligently to solve them. Thank you for your patience. Don't miss Weds and Thurs at 2:30EST...special topics: Water Therapy (Weds) by Dan and Different Stages of Parkinson's (Thurs) by jjjane.
We straightened up the Fridge yesterday. We were conducting science experiments in there and didn't know it! LOL Not much unlike the one in my kitchen! Seriously, we archived the messages. It was taking too long to load. We now have two files of archives that are labelled by dates. Just click on the date of interest. See you at the chatroom sessions! Bren
bren---talked to ken this morning in the chat room,HE ASKED ME TO TALK ABOUT WATER THERAPY ON WED.I TOLD HIM I WOULD BE GLAD TO BUT ONLY IF WE HAVE VOICE. I JUST COULD NOT HANDLE WITH MY ONE FINGER TYPING. IF WE CANOT GET VOICE ON REG CHAT COULD WE DO IT IN "FRIENDS" LIKE WE DID THE OTHER DAY?
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HI WHAT IS YOUR NAME
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MY NAME IS STEVE TAGGART IM 15 YEARS OLD HOW OLD ARE YOU
MY NAME IS STEVE TAGGART IM 15 YEARS OLD HOW OLD ARE YOU
MY NAME IS STEVE TAGGART IM 15 YEARS OLD
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Live Life Like You're Dying!
Help! I am terribly frustrated with the uncertainty of diagnosis. I have been diagnosed with too many neurological disorders. What one is right? My insurance isn't the best. I am on a medication for Parkinsons, it does help some with the tremors but not much for the pain and stiffness. How can an ordinary Joe find good help?
My Hand With Yours Going through rough times alone Is not something that I condone Neither does a friend of mine He becomes your personal lifeline. This has to be the kindest man He is the one we call Mr. Dan He is there to encourage and support you No matter what it is that you must do. When you feel alone and need his love Just put one hand in the other and look above That hand you feel inside your own Is really his so you're never alone. Trust in this and you will find Someone who cares and is always inclined To offer his love in your time of need He is a great man we have all agreed.
How do I go about getting SSI for my wife who is unable to work due to parkinson's?
has anyone tried ginseng for parkinsons. apparantly there was a study done on rats at Dalhousie university. the results were promising.
Hi Everyone, I have a web site called www.effectivespeakingconsultants.com. I am a motivational speaker. On there I have put my story and that of Janet Carlisle. If you have a story that you feel should be told e mail it to me at gerardk@effectivespeakingconsultants.com. I will post your story on my site. I have young onset parkinsons myself.
I am trying to locate the suppliers in the UK of ultra lightweight powered wheelchair. I believe that it is based on NASA technology.
PARKINSONS EXERCISE STUDY AT THE UNIVERSITY OF SOUTHERN CALIFORNIA, LOS ANGELES is currently enrolling subject who: 1. Diagnosed with Parkinsons Disease within the last 3yrs. 2. Not on Sinemet. 3. Demonstrates changes in funtional movement. For more information contact Dr. Beth Fisher at: 323.442.1006, bfisher@usc.edu.
RON MOORE, HAPPY BIRTHDAY HONEY!!!!!!! I LOVE YOU SOOOO MUCH.... YOUR LOVING WIFE
Hello, I am writing to tell you about a possible treatment for Parkinson’s Disease. This treatment employs low-dose olanzapine (1.5 mg, Zyprexa Zydis ORALLY DISINTEGRATING TABLETS) as an adjunctive treatment to levodopa and pramipexole. The use of these three medicines resulted in a marked decrease in PD symptoms for one patient. Discontinuance of treatment resulted in a return of similar signs and symptoms. I am posting because I want to publicize this information to as many PD patients and neurologists as possible. I do know the person who has benefited from this treatment. My only motivation is obtaining anecdotal feedback from others who may benefit from this treatment. If you think that your PD symptoms may be alleviated with this treatment, contact your neurologist. Any responses to the use of olanzapine as an adjunctive treatment to levodopa and pramipexole should be emailed to PDtreatment@hotmail.com or faxed to 212-608-0886. A recent journal article* by Durif et al. (2004) in Neurology describes the use of clozapine in reducing levodopa induced dykinensias. Based on this article and an understanding of olanzapine’s theoretical basis, I believe that low-dose olanzapine (1.5 mg, Zyprexa Orally Disintegrating Tablets), added to levodopa and pramipexole, would benefit PD patients. * Durif, F., Debilly, B., Galitzky, M., et al. (2004). Clozapine improves dyskinesias in PD: A double-blind, placebo-controlled study. Neurology, 62, 381-388.
FDA APPROVES APOKYN FOR TREATING PARKINSON'S PATIENTS (The following is a reformatted version of a press release issued by FDA and received via electronic mail. The release was confirmed by the sender.) April 21, 2004 FDA APPROVES APOKYN FOR THE ACUTE TREATMENT OF EPISODES OF IMMOBILITY IN PARKINSON'S PATIENTS FDA has approved Apokyn (apomorphine) as an injectable drug for treating Parkinson's patients during episodes of "hypomobility," so-called "off periods" in which the patient becomes immobile or unable to perform activities of daily living. Apokyn was given priority review because injectable apomorphine is the first therapy approved to treat these episodes acutely (during the episode). Apokyn was also designated as an orphan product. An estimated 1.5 million Americans have Parkinson's disease, which results in tremors, rigidity, postural instability, slowness, and difficulty moving. Within 3 to 5 years of treatment with standard Parkinson's drug treatments, about ten percent of patients experience episodes of hypomobility (e.g., inability to rise from a chair, to speak, or to walk). The episodes can occur toward the end of a dosing interval with standard background medications (so-called "end-of-dose wearing off") or at unpredictable times (spontaneous "on/off"). Apokyn was designated an orphan drug in l991 to treat the ten percent, or about 112,000 Parkinson's patients who progress to stage four and experience the severe on/off motor fluctuations unresponsive to other therapies. Orphan drugs are drugs that treat a rare disease or condition which affects fewer than 200,000 patients in the U.S. After receiving FDA approval, orphan drugs are eligible for seven years of exclusive marketing. The effectiveness of Apokyn in the acute symptomatic treatment of both types of recurring episodes of hypomobility or "off" episodes associated with advanced Parkinson's disease was established in three randomized, controlled trials. On average, patients participating in these trials had had Parkinson's disease for 11.3 years and were being treated with L-dopa and at least one other agent, usually an oral dopamine agonist. Apokyn must be taken with an antiemetic drug because, when taken alone, it causes severe nausea and vomiting. It must not be taken with one class of very effective anti-nausea drugs, the 5HT3 antagonists (ondansetron and similar drugs), because the combination of Apokyn (apomorphine) and these drugs can lead to very low blood pressure and loss of consciousness. Apokyn is intended for subcutaneous injection only. Other oral drugs, taken chronically, are also used to help decrease the amount of time Parkinson's patients spend in the "off" state. Patients and caregivers should carefully read the Patient Package Insert and Directions for Use on the ampule and dosing pen. Patients should also be instructed to use the drug only as prescribed. Apokyn's labeling also includes specific warnings about low blood pressure, fainting, hallucinations, and excessive sleepiness. The most common adverse events seen in controlled trials were yawning, dyskinesias (abnormal movements), nausea and vomiting, sedation or sleepiness, dizziness, runny nose, hallucinations, edema, chest pain, increased sweating, flushing, and pallor. Apokyn is a new molecular entity - a medication containing an active substance that has never before been approved for marketing in any form in the United States. Apokyn is manufactured for Bertek Pharmaceuticals, Research Triangle Park, NC, by Draxis Pharma Inc., Canada. Media Inquiries: 301-827-6242 Consumer Inquiries: 888-INFO-FDA (km)PN -END- #<662235.940960># Last Updated: April 21, 2004 17:29 EDT
FDA APPROVES APOKYN FOR TREATING PARKINSON'S PATIENTS (The following is a reformatted version of a press release issued by FDA and received via electronic mail. The release was confirmed by the sender.) April 21, 2004 FDA APPROVES APOKYN FOR THE ACUTE TREATMENT OF EPISODES OF IMMOBILITY IN PARKINSON'S PATIENTS FDA has approved Apokyn (apomorphine) as an injectable drug for treating Parkinson's patients during episodes of "hypomobility," so-called "off periods" in which the patient becomes immobile or unable to perform activities of daily living. Apokyn was given priority review because injectable apomorphine is the first therapy approved to treat these episodes acutely (during the episode). Apokyn was also designated as an orphan product. An estimated 1.5 million Americans have Parkinson's disease, which results in tremors, rigidity, postural instability, slowness, and difficulty moving. Within 3 to 5 years of treatment with standard Parkinson's drug treatments, about ten percent of patients experience episodes of hypomobility (e.g., inability to rise from a chair, to speak, or to walk). The episodes can occur toward the end of a dosing interval with standard background medications (so-called "end-of-dose wearing off") or at unpredictable times (spontaneous "on/off"). Apokyn was designated an orphan drug in l991 to treat the ten percent, or about 112,000 Parkinson's patients who progress to stage four and experience the severe on/off motor fluctuations unresponsive to other therapies. Orphan drugs are drugs that treat a rare disease or condition which affects fewer than 200,000 patients in the U.S. After receiving FDA approval, orphan drugs are eligible for seven years of exclusive marketing. The effectiveness of Apokyn in the acute symptomatic treatment of both types of recurring episodes of hypomobility or "off" episodes associated with advanced Parkinson's disease was established in three randomized, controlled trials. On average, patients participating in these trials had had Parkinson's disease for 11.3 years and were being treated with L-dopa and at least one other agent, usually an oral dopamine agonist. Apokyn must be taken with an antiemetic drug because, when taken alone, it causes severe nausea and vomiting. It must not be taken with one class of very effective anti-nausea drugs, the 5HT3 antagonists (ondansetron and similar drugs), because the combination of Apokyn (apomorphine) and these drugs can lead to very low blood pressure and loss of consciousness. Apokyn is intended for subcutaneous injection only. Other oral drugs, taken chronically, are also used to help decrease the amount of time Parkinson's patients spend in the "off" state. Patients and caregivers should carefully read the Patient Package Insert and Directions for Use on the ampule and dosing pen. Patients should also be instructed to use the drug only as prescribed. Apokyn's labeling also includes specific warnings about low blood pressure, fainting, hallucinations, and excessive sleepiness. The most common adverse events seen in controlled trials were yawning, dyskinesias (abnormal movements), nausea and vomiting, sedation or sleepiness, dizziness, runny nose, hallucinations, edema, chest pain, increased sweating, flushing, and pallor. Apokyn is a new molecular entity - a medication containing an active substance that has never before been approved for marketing in any form in the United States. Apokyn is manufactured for Bertek Pharmaceuticals, Research Triangle Park, NC, by Draxis Pharma Inc., Canada. Media Inquiries: 301-827-6242 Consumer Inquiries: 888-INFO-FDA (km)PN -END- #<662235.940960># Last Updated: April 21, 2004 17:29 EDT
As I sit hee thinking how pd has effected my life I wonder if i would have been the same person? I have grown to be a person who understands what it means to say please and thank you. To appreciated what people do and to listen to them when they speak.
when mailing checks for Muhammad Ali gloves, please mail to Midwest Parkinson's Awareness P.O. Box 2785 Alliance, Ohio 44601 In the previous message, I forgot to type in the zip code.
July 9-11 we're holding symposium-unity walk at pro football hall of fame in Canton, Ohio. We're raffling boxing gloves autographed by Muhammad Ali. You may purchase tickets via mail. wheaever amount of tickets you want, we'll put your name and phone number on each one, mail you the stub and on july 11, we'll draw winning ticket. You don't need to be present to win, although we'd love to see you here. We'll ship the gloves to you, Monday July 12, 2004. Ticket prices are: $5.00 for 5 tickets $10.00 for 11 tickets $20.00 for 25 tickets $50.00 for 75 tickets $100.00 for 150 tickets Make checks payable to Midwest Parkinson's Awareness and mail to P.O. Box 2785/ Alliance, Ohio Any questions, please feel free to call Ron Moore at 330-829-2964 or artist4memories@yahoo.com
I am a 50 year old woman with advanced Parkinson's. About 5 months ago my husband, a teacher, told me he was moving out at the end of the school year. A month later he said he was not going to and would be committed to the marriage. Now he states that he believes that his position as a teacher will probably be cut. He has decided he wants to explore starting a home school band. We have no savings of any kind for him to start up his own school. I have asked him to consider applying to other districts. He accuses me of not trusting and supporting him. When my meds are not working I can bearly get around or even breath. I just don't have the ability or strength to start over again. He might have a chance of succeeding if I were no longer in the picture. The situation is leaving me feeling I am nothing more than deadmeat hanging around his neck. Would appreciate hearing any opinions or suggestions by personal e-mail. My email address if vlhperry@hotmail.com. Please help.
Hi I am a 'carer' working in a nursing home in Australia. I am putting together a book/resource to help carers, working in a residential setting, to understand some of the conditions of their residents. I would like to include some personal stories, sooo if anyone out there has their story they would like to share please email me <genteale@dodo.com.au>. My intention is to give the carers not only an increased knowledge, but an empathy and awareness of what it is like, having Parkinson's...the feelings, the difference it makes, etc. Your stories, however short or long would be much appreciated...thanks, Ruth Teale
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I am looking for info about PD and Creatine and possible benefits by taking it as a supplement. I will be pleased to hear from all who have had the courage to use Creatine. Sincerely from Canada
july 9-11, 2004 awesome event. \July 9..meet & greet at Marriott Hotel July 10...Symposium @ Pro Football Hall of Fame, informative speakers, prizes, lunch, lunch and tours of hall of fame and museaum. July 11...Unity Walk-Health Fair, Central Catholic Football stadium, Unity walk, health fair, classic car show, prizes, NFL appearances, games, jugglers, live bands and much more. For hotel reservations, contact Marriott hotel at 1-800-742-0379. rooms are discounted to $79 from $140. To get this special rate, you MUST inform them you're reserving the room for the Parkinson's disease event. Any questions, or if you'd like an information packet, please contact me at 330-829-2964 or artist4memories@yahoo.com
Help with school project ASAP please . I need to interview someone living with PD for my term paper. These are the questions How did this person get this condition? Is this person managing his/her chronic illness well? Explain What is this person doing to treat this condition? and last Which activities of daily living might this person have problems with? explain . Please help me I will be very greatful.
Hello I am doing a school project on Parkinson's disease and I need help!!! I have to interview someone with parkinson's disease and I need to ask them these questions How did this person get this condition? Is this person managing his/ her chronic illness well?Explain. What is this person doing to treat this condition? Which activities of daily living might this person have problems with? explain. Please can someone help me . you can e-mail me at ashleywuttunee63@hotmail.com
Messages Messages Help Reply | Forward | View Source | Unwrap Lines | Delete Message 2485 of 2485 | Previous | Next [ Up Thread ] Message Index Msg # From: "Deborah Stanley" <roadrunner1st2002@y...> Date: Tue Feb 24, 2004 4:11 pm Subject: "Miracles Do Happen"!! I would like to take this opportunity to share this with everyone. As you know my husband, Jason (icethe1st) was dxd with PD nov 03. He lost the ability to speak and walk on 3 January 04. A Miracle has happened. On Saturday (21 Feb 04) at 12:30 AM Jason signed to me (finger spelled-sigh language) that he had clicking noises in his head. He has had them off and on. He signed to me that the clicking noises were getting louder and faster. The clicking noises sounded like someone turning a light switch on and off, on and off. A few minutes later, he said the clicking noises were getting softer and slower. He signed to me that he thinks the clicking noises are going to stop and if they do, he thinks he will be able to talk. A few minutes later Jason begain talking! He got a real bad headache when he first started talking. This is the first time he has been able to speak since 3 January. He stutters when he speaks, but was able to talk. Jason even sang 3 songs to a friend of ours in conference without stuttering even once. He only stutters when he talks. We told our friends who were still on line at that time of night/day about this miracle. We went to bed to get a few hours of sleep. When we woke up that Saturday morning, Jason was still talking. He still stuttered but was talking fine. On Sunday morning when Jason woke up, he said the clicking noises have returned. It was apparent that his stuttering was also getting worse, but he was still able to talk. On Monday, there were no changes. He was still talking. Today Jason is still able to talk, but his stuttering has become real bad. It takes a few seconds for him to get the words to come out, but he can still talk, just like when he first lost his voice. We don't know how long Jason will be able to keep his voice. we are taking it "One Day At A Time". This goes to show you that "Miracles Do Happen"!! You don't know when a miracle will happen, it just happens. We will keep praying for a cure for PD, and keep fighting. From: Debbie Stanley
Hi, anyone up?
I'm 49 and diagnosed with atypical PD. I told my doctor I experienced extreme hand fatigue in the late 1980's. She said it's possible I have had PD since then--formally diagnosed in 2001. I am now experiencing excrutiating calf and foot cramping when I sleep. I am trying to get more potassium in my diet, but I was wondering if others suffer from this painful type of cramping. Is it a common PD symptom?
Francaes O'Sulivan from Dubin Ireland on Travels With Parkinson's www.live365.com/stations/travelswparkinsons at 10:00 AM EST join us Chy
I ran across this in a magazine at the doctors office today. This company is offering 3 years of free webhosting to anyone that signs up. No credit cards, no committment Check it for yourself. It's the best deal I've ever seen, anywhere. www.1and1.com
If you need info on SSDI go to my site at http://pypa.com and click on the "SSDI and PD" link. Get educated and win your claim the first time you file.
Hi All...Has anyone noticed that on the demographics map, that the hgher pd rate co-insides with a high indstrial presence???
Hi all! In looking at the map, I saw that there are two hawaii people. The map just says carol and lou ann. I am on the Big Island & would like to get in touch with them. My e-mail is judithv@aloha.net. If anyone talks to them, please let them know! Aloha, Judi in kona
I want to talk on this chat and i can't get it. WHY
Now with the Holidays coming up, Thanksgiving just a week and half away and Christmas not to far behind. YOPA is going to do it's Annual Christmas Fund for PWP's. The awareness pin that I made up is one source of income for it and did rise a few hundred for this fund but more is needed. Please either buy a pin for $5 dollars or send a couple of dollars to YOPA, PO BOX 50936 Albuquerque, New Mexico 87181-0936. If you know of a needy pwp that needs help send in a 250 word essay about this person and why he/she needs help to directors@yopa.org. Thank you very much and HAPPY HOLIDAYS.
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on wednesday, i am to give a talk to our lgst. area hospice. while they say they only want me to talk about my personal experiences w/ pd...i have been thinking quite alot about end of life issues. couple this with the story of Terri Schiavo, the young woman in Florida who is in the middle of a huge legal debate over removing her feeding tube and i feel that it might be time to face some unsavory issues. would you be so kind as to help me in an unscientific poll? names will be kept completely anonomous. 1) do you have a living will? 2) on a scale of 1-10 (10 bbeing very important), how important do you consider having a living will to be?? 3) when do you consider to be the natural end of life?? 4) would you like to be kept alive by feeding tubes and breathing tubes? 5) what is the governments role in this issue (Gov. Jeb Bush ordered her feeding tube re-inserted)??? 6) on a scale of 1-10 (with 10 being very religious/spiritual), how religious/ spiritual do you consider yourslef to be?
LAPD,Treasonist,http://www.angelfire.com/nb/ugh/dearjohn.html ,urgent,update,2-23-03, see,http://www.angelfire.com/nb/ugh/dearjohn.html , Imperialist,Power,Hungry,Crooks,Kill,Kids,by,their,Negligence, in,regards,to,the,taunting,microwave,weapons,slow,death,of,Walter,Tribe,in,L.A., -------------------------------------------------------------------------------- Electronic,Weapons,Kills,Kids,faster,then,adult,males,in,Sylmar,CA,USA,Luna,http://www.angelfire.com/nb/ugh/dearjohn.html Navarro,Catron,Hate,Group,doing,this,for,over,ten,years,now,Malicious,Crimes, -------------------------------------------------------------------------------- http://www.angelfire.com/nb/ugh/dearjohn.html Terrorist Group of Criminally Insane Maggots tried to murder Walter Tribe and gave him brain damage with their electronic weapons as they woke Walter out of a sound sleep in his bed at 14657 Nurmi Street, Sylmar CA by intersection of Degarmo Av and Lakeside Street in Sylmar at 11:50pm on June 21st, 2002. Right now it is 2:30am on June 22nd, 2002 and the mind wrenching negative soft kill microwave death ray stimulis masked by ultra sonic weapons stimulis has not stopped! Walter has a massive throbbing headache as the result of this attempt on his life! Walter Tribe is in fear for his life and in fear for the safety of all those near and dear to him as a result of this blatant, reckless cowardly terrorist act inflicted and forced upon his person while he is inside his home! Please investigate The Luna residence on Nurmi St, The Catron residence on Nurmi St, and The Navarro residence on Lakeside St.. Their are many others involved as stimulis comes from 360 degress meaning the terrorist hate group members have Walter Tribe's home surrounded all about! see http://sirwally.com see http://www.angelfire.com/nb/ugh/dearjohn.html see HREF="http://winwally.com">http://winwally.com for ALL THE PREVIOUS DOCUMENTATION OF THESE MALICIOUS ATTACKS ON THE PERSON OF TAX-PAYING AMERICAN CITIZEN WALTER TRIBE. Terrorist Group of Criminally Insane Maggots tried to murder Walter Tribe and gave him brain damage with their electronic weapons as they woke Walter out of a sound sleep in his bed at 14657 Nurmi Street, Sylmar CA by intersection of Degarmo Av and Lakeside Street in Sylmar at 11:50pm on June 21st, 2002. Right now it is 2:30am on June 22nd, 2002 and the mind wrenching negative soft kill microwave death ray stimulis masked by ultra sonic weapons stimulis has not stopped! Walter has a massive throbbing headache as the result of this attempt on his life! Walter Tribe is in fear for his life and in fear for the safety of all those near and dear to him as a result of this blatant, reckless cowardly terrorist act inflicted and forced upon his person while he is inside his home! Please investigate The Luna residence on Nurmi St, The Catron residence on Nurmi St, and The Navarro residence on Lakeside St.. Their are many others involved as stimulis comes from 360 degress meaning the terrorist hate group members have Walter Tribe's home surrounded all about! see http://sirwally.com
LAPD,Treasonist,http://www.angelfire.com/nb/ugh/dearjohn.html ,urgent,update,2-23-03, see,http://www.angelfire.com/nb/ugh/dearjohn.html , Imperialist,Power,Hungry,Crooks,Kill,Kids,by,their,Negligence, in,regards,to,the,taunting,microwave,weapons,slow,death,of,Walter,Tribe,in,L.A., -------------------------------------------------------------------------------- Electronic,Weapons,Kills,Kids,faster,then,adult,males,in,Sylmar,CA,USA,Luna,http://www.angelfire.com/nb/ugh/dearjohn.html Navarro,Catron,Hate,Group,doing,this,for,over,ten,years,now,Malicious,Crimes, -------------------------------------------------------------------------------- http://www.angelfire.com/nb/ugh/dearjohn.html Terrorist Group of Criminally Insane Maggots tried to murder Walter Tribe and gave him brain damage with their electronic weapons as they woke Walter out of a sound sleep in his bed at 14657 Nurmi Street, Sylmar CA by intersection of Degarmo Av and Lakeside Street in Sylmar at 11:50pm on June 21st, 2002. Right now it is 2:30am on June 22nd, 2002 and the mind wrenching negative soft kill microwave death ray stimulis masked by ultra sonic weapons stimulis has not stopped! Walter has a massive throbbing headache as the result of this attempt on his life! Walter Tribe is in fear for his life and in fear for the safety of all those near and dear to him as a result of this blatant, reckless cowardly terrorist act inflicted and forced upon his person while he is inside his home! Please investigate The Luna residence on Nurmi St, The Catron residence on Nurmi St, and The Navarro residence on Lakeside St.. Their are many others involved as stimulis comes from 360 degress meaning the terrorist hate group members have Walter Tribe's home surrounded all about! see http://sirwally.com see http://www.angelfire.com/nb/ugh/dearjohn.html see HREF="http://winwally.com">http://winwally.com for ALL THE PREVIOUS DOCUMENTATION OF THESE MALICIOUS ATTACKS ON THE PERSON OF TAX-PAYING AMERICAN CITIZEN WALTER TRIBE. Terrorist Group of Criminally Insane Maggots tried to murder Walter Tribe and gave him brain damage with their electronic weapons as they woke Walter out of a sound sleep in his bed at 14657 Nurmi Street, Sylmar CA by intersection of Degarmo Av and Lakeside Street in Sylmar at 11:50pm on June 21st, 2002. Right now it is 2:30am on June 22nd, 2002 and the mind wrenching negative soft kill microwave death ray stimulis masked by ultra sonic weapons stimulis has not stopped! Walter has a massive throbbing headache as the result of this attempt on his life! Walter Tribe is in fear for his life and in fear for the safety of all those near and dear to him as a result of this blatant, reckless cowardly terrorist act inflicted and forced upon his person while he is inside his home! Please investigate The Luna residence on Nurmi St, The Catron residence on Nurmi St, and The Navarro residence on Lakeside St.. Their are many others involved as stimulis comes from 360 degress meaning the terrorist hate group members have Walter Tribe's home surrounded all about! see http://sirwally.com see http://winwally.com for ALL THE PREVIOUS DOCUMENTATION OF THESE MALICIOUS ATTACKS ON THE PERSON OF TAX-PAYING AMERICAN CITIZEN WALTER TRIBE. -------------------------------------------------------------------------------- Sign Guestbook Read Guestbook MUSIC Long Term Elec Weapons Torture and Attempted Murder Victim Walter Tribe Demands That Hate Group Members Go To Jail Now! 6-22-2002 -------------------------------------------------------------------------------- This page has been accessed 4 times. This page was last updated Fri Jun 21 18:31:31 2002 Pacific time Update: 6-25-2002 6:39pm in Sylmar, CA, Criminally Insane Housewife Addictive Electronic Weapons Abusers Organization is Killing all Human Beings County Wide in Los Angeles CA USA! The last 168 hours has been made a living hell for victim of intentional hate crimes including assault with a deadly electronic weapon with intent to murder and or cause great bodily injury including severe brain damage 6-25-2002 6:45pm :( -------------------------------------------------------------------------------- Sign Guestbook Read Guestbook MUSIC See http://sirwally.com and See http://winwally.com to Stop Communist,Satanic,Gossips,Abusing,Elec,Weapons,24/7,for,over,10 years -------------------------------------------------------------------------------- This page has been accessed 9 times. This page was last updated Tue Jun 25 10:35:57 2002 Pacific time
see below for Pete Boots' entry, its a worthwhile trip, if you can make it over to the UK.
Tune into "Travels with Parrkinson's" "Oldies Night" on www.live365.com/stations/travelswparkinsons The Internet's only radio station for Parkinson's Disease 9:00 PM EST
Hello, all! An update, since it's been awhile since I was here. Tom and I have been married now for a little over a year and a half! Time has flown, but neither of us has ever been happier! Tom has had one DBS adjustment, in July, with great success. He has weaned himself completely off the Mirapex, and he was taking three a day! I saw a new neuro last Friday, and he was very good. Did not doubt my dx, which is a first!, prescribed the new drug Stalevo, which is a combination of regular Sinemet 25/100 and Comtan 200mg, which I take every day. He also added another dose of the Stalevo in the evening, which is new. I think that was to help me move in bed during the night. It was a sobering visit, however, as it was the first time I have ever had a doctor tell me to remove all the throw rugs from my house, and also the first time a doctor has told me that I need my laundry on the first floor of my home instead of in the basement. Anyway, just wanted to drop all a note to let you know we did not drop off the face of the earth when we got married!!
CHY IS BACK & SO IS “TRAVELS WITH PARKINSON’S” On the radio show by parkies and for parkies, Chy Cassavant will be once again manning the microphone and hitting the airwaves again. Joan Blessington Snyder will pitch in as the Program Director in charge of lining up guests for the show. In the first show of this new collaboration, we will be interviewing and speaking with Bob Benjamin-the executive producer of the newly released 2-cd set: LIGHT OF DAY-A TRIBUTE TO BRUCE SPRINGSTEEN. Bob is a PWP and also manages some of the musicians who play on this album and he has named the Parkinson Disease Foundation as one of the recipients of the proceeds from this venture. With artists like Elvis Costello, Graham Parker, Joe Grosheky and Dion all doing cover songs of Springsteen tunes, you can bet that this conversation will be a spirited and fun way to start Chy’s comeback tour. The interview will air on Monday, September 29th at 10 AM eastern time and you can find out how to connect your computer to radio station by clicking on: http://www.live365.com/stations/travelswparkinsons and following the directions on the website.
Hi all, I was wondering if anyone has or heard of the type of parkinsons that makes you rigid. My father has been diagnosed with a type of parkinson but I can't find anything that specifiies the rigidness that my father is experiencing. He can not move or talk at all. I have read a lot on the parikinson that causes tremors but, not the ridgidness can someone help me. Thanks
I am seeking an assistive writing aid for my father who has a tremor which affects the legibility of his writing. He needs to find a store/supplier that will allow a trial of tools prior to purchase. He lives in the Ottawa area.
Hi All, Bren and I have been asked to speak at this Symposium...if any of you happen to be in the area, please stop by!!! It looks to be a very informative day! Parkinson’s Disease Symposium, 2003 Blazing Toward A Cure Presented by the University Of Rochester and the Parkinson’s Support Group of Upstate New York, an Affiliate of the National Parkinson’s Foundation Saturday, September 20th 8:30-#:00 Radisson Inn 175 Jefferson Road Rochester New York 14623 Pre- Registation is appreciated by 9/17/03 (585) 234 5355 Warmest Regards, Nan
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As a nurse case manager, I have lots of patients with lots of medication and they told me about a place where you can get free info about free and discount medication. I received information about various ways to get free and discount prescription medication and it really works. I want to share this with others who are like me and have to pay lots of money for their medicaton. It didn't cost me a cent. I mailed a self addressed stamped envelope to: CCP P.O. Box 823838 South Florida, Fl 33082-3838 and they sent me the information. It told me how to get my money back from medication that I had an allergic reaction to and I did get reimbursed for the medication. It told me how to apply to get free medication. Please pass this message on to others to will benefit from this important information. Here is what was in the packet. 1)The contact information for a company that works with the drug manufacturers and supplies the application to get medication for free. 2) How to locate the pharmaceutical manufacturers for their drug programs. 3)Prescription savings cards. 4) Money saving ideas 5) How to get Canadian drugs at a substantial savings. Here are some examples of costs: Sinemet CR (brand) all 100 tabs but you must buy a 3 month supply: 25/250 = $77.40 100/10 = $46.44 100/25 = $54.71 200/50 = $126.15 Generic Sinemet 25/100 = $38.86 and 10/100 = $26.62. Requip is brand only no generic Sold in 100 tabs and you need to buy a 3 month supply .25 mg $28.33 1 mg = $113.30 2 mg = $124.63 Amantadine the generic for symmetrel 100 tabs 100 mg $56.97 Mirapex is only Brand and 100 tabs .25 mg = $98.01 .5 mg = 196.02 1 mg = $196.02 1.5 mg = $196.02 Comtan is brand only 100 tabs 200 mg $154.00 Selegeline generic for Eldepryl 60 tabs 5 mg = $83.49 Benztropine generic for Cogentin sold in 100 tabs 1 mg = $22.37 and 2 mg = $15.94 Trihexyphenidyl generic for Artane 100 tabs only 2 mg = $23.30 and 5 mg = $15.94 Permax is brand only 30 tabs of .05 mg = $18.20 100 tabs of .25 mg = $100.19 and 100 tabs of 1 mg = $341.55 There are many more bargains for all your medications. This information is all free and costs you nothing but saves you money. Send today for the free information and compare prices!
i would like to thank everyone who made te trip to illinois (either in person or in their hearts) this year! it was more of a "love-in" than anything, and my special thanks to toad for the beatiful write up.
Yahoo! Messenger is a free service that uses the connection you have established with your Internet service provider (ISP). Just download the Messenger software and sign up for a free Yahoo! Account.. http://messenger.yahoo.com/ We will have a group chat Sunday around 8:00 pm CST for folks with ET. I would like to invite you to join us so you can get the know the posters up close and personal. You might hear harley7898367 In Washington sing us a song. Grand61angle in Eastern Tennessee may tell us what she personally knows about Elvis. If you would like to participate, please add one of the following to your yahoo IM friend’s list and watch for us to be on line on Sunday night. You would need a mike and headphones attached to your sound card. If you have not tried voice before, I would like to have a test chat with you. If you do not understand the help explanation for Yahoo IM, please email me directly gary_coplin@yahoo.com Or call me @ 713-721-3314 or send me your phone # and I will call you. This kind of format works best for voice chat. I'd also hope many of you would include some info about yourself in your yahoo user ID profile . See mine http://profiles.yahoo.com/gary_coplin for ideas on what you might want to include.
I am writing an article on the effects of physical, occupational and/or speech therapy on PD. I'm looking for a few patients to interview who can share their experience with PT/OT and/or ST with others. The article will be featured in the New Hope for Parkinson's newsletter, which will be available both online and in printed form. The newsletter is designed to provide information to help PD patients live better with the disease. It is being produced by Medtronic Activa Therapy, which makes the pacemaker-like devices used in DBS. The newsletter is not a promotional vehicle for Activa Therapy. If you're interested in talking with me, please e-mail me at leah.galle@attbi.com. Thanks!
I have had Parkinson's for 12 years the last 4 years in its advanced stages. I recently had bilateral stimulation surgery and it has helped dramatically. I lost my life's savings, my retirement savings, my health insurance and even my car. I am penniless but still do not feel like it is futile. I have written a book titles Evertone Has An Everest. It is about my denial of the disease, my being a principal in an inner city school in Miami and how I dealt with it and so on. I do not want to bore you, but I am looking for a doctor to write an introduction for the book. I first asked Janet Reno to do it but she just backed down. The book is really good! I can send you a copy. I found a professional ghostwriter to fine tune it and polish it for no cost to me. He says the story is worth telling. If you are willing to do this for me please write me at edandrew@stis.net or call 954/739-7699.
Congratulations to all the people involved in putting together the "PLWP 3rd Aniversary Photo/Music Show"!! It is a fantastic and very professional piece of work, that brought back many wonderful memories. With much thanks and appreciation; Sincerely, :) Ryan
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April 1, 2002-February 28, 2003
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I've been on the Rotigotine study since last summer. I am now on the open label phase of the patch study and I feel great. I'm currently on 60mg which is the highest dose. I'd say in the past week I've had very little off times. I have more energy, my mental state is great (don't ask my kids tho lol)I'm paid every week for mileage. My drug coordinator feels this will be FDA approved in 2-3 years. This does nothing for the tremor tho. If anyone has any questions please email me at carolpost@aol.com.
Anyone out there in the Baltimore, Montgomery County, Northern Virginia or DC area interested in taking part in a clinical study for the Rotigotine Patch? The manufacturer is Schwartz Bio-Sciences of Germany, and as many of you probably know is already being used in Europe. Dr. Marc Raphaelson, in Frederick, Maryland is now accepting applications for inclusion in this Phase III, double blind study. The only specific I know about is that you must have “off” times of at least 2-1/2 hours per day, so this study is obviously not for volunteers who are early stage PDers. At first the study will mean weekly visits to the office, but after maintenance dose is reached, office visits will then be once every three months. Volunteers will be paid $50.00 per visit, which will be paid at the end of participation in the study. This request is in advance of newspaper advertising, so anyone who is truly interested will have a better chance of being included. It’s the old “first come, first served” thing. I would LOVE to be able to fill his volunteer requirements from the Forum and PLWP. A word about Dr. Raphaelson. He thinks I’m some kind of activist (boy, do I have him fooled!), and because of that mistaken impression, he asked me if I would be interested in letting my Parky (he didn’t use that word, naturally), friends know about the study. And, of course, I said I would. I will tell you that three days after I joined PLWP he knew all about the group and he does keep a poster on his entrance door for everyone to see. As you might have guessed by this time, he is, indeed, my neurologist, and, personally, I think he walks on water. He has been extremely kind and supportive to me and my family. Dr. R has a history of PD in his family which is why he specialized in neurology. I got my dx within 20 minutes of the standard clinical testing. Now, seven years into PD, if you didn’t know me, you wouldn’t know I have PD. Enough said. If you are interested in volunteering for this study, please let me have your name, address and phone number so that I can turn them into Dr. R for follow-up. One advantage (for me), of this being in Frederick. is, if you are so inclined, that I can direct or lead you easily to his office, hopefully meet some of you I haven’t had the pleasure of meeting before and maybe we can do lunch once in a while. My e-mail is seasongood1@msn.com and my phone number is 301-694-9297. Confidentiality is assured, as far as I am concerned. The extent of my work is only recruitment for a very important clinical study. I hope to hear from some of you soon. Sylvia
Just like all of you to know that on June 28 we will be holding our third annual fundraising bowl-a-thon in Hammond, IN. If any of you are in the area of Olympia Lanes on that date please come on by. All funds go to PD research and education. Kerry Mitchell
Greetings, Parkey family!!! My name is Ron, 34 dx 6 weeks ago. I'm in the process of organizing a concert/dance to benefit pd. "Jimmy and the Soul Blazers. They're very popular on East coast. Motown/oldies music. If there's any one around my neck of the woods, I may need your assistance.I'm excited to get pd awareness strong in Ohio and abroad. I'm extremely experienced in charity fund raising. Since my dx, I want to include helping plwp, YOPA, and Michael J. Fox Foundation. Any one w/ connections to getting ahold of Mohamad Ali, MJF, or any influential celebrity, contact me, please?! Thank You sooooo Much!
I've been doing some research today as part of an herbal apothecary company I've helped form in the past year. I am also a medical transcriptionist and therefore have the knack for more thorough research of drugs both natural and western medicine pharmaceutical. I have discovered that Butcher's Broom aids with the orthostatic hypertension associated with Parkinson's medications as well as the Parkinson's itself, diabetes and other possibly related vasocontriction problems such as migraines. There is also an ancient India herb that has been found in an Ayurvedic Medical Textbook from over 5000 yr. ago. The herb is mucuna puriens, the mucuna bean that is a natural derivative of levadopa and is being manufactured in relation to a disorder specialist, Dr. Bala Manyam, of the Univ. of S. Illinois.
You know Pete, I'd really love to be there. I'm totally serious...if I could afford it, I would be there. Good luck to you!
PARKINSON'S BENEFIT CONCERT SUNDAY 25TH AND MONDAY 26TH MAY ³FILL YOUR HEAD WITH ROCK is my front line in the battle against Parkinson's all monies raised from the event goes to THE PARKINSON'S DISEASE SOCIETY, U.K I have, I think put together a brilliant line up, but there is the problem. that is convincing the people, that such high international acts are coming to play "FILL YOUR HEAD WITH ROCK", I myself have Parkinson's but I refuse to let Parkinson's have me. ****************************************************************************************************************8 PRESS RELEASE PARKINSON'S DISEASE SOCIETY BENEFIT CONCERT JOE D’URSO MAKES FILL YOUR HEAD WITH ROCK PART OF HIS WORLD TOUR “FILL YOUR HEAD WITH ROCK” FILL YOUR HEAD WITH ROCK GOES INTERNATIONAL My name is Pete Boot, [BOOTY] way back in seventies I was the drummer with BUDGIE You see five years ago I was diagnosed “Parkinson’s”, I am now the best tambourine player in the business, coming to terms with Parkinson’s was similar to being told the bands got a fantastic record deal but also a new drummer, you accept it but refuse to give in. I never knew that all those years on the road would help me cope, but in bands as you know you develop the skin of a rhino, with the determination of an ant. I have Parkinson’s it will never have me, I feel sorry for Parkinson’s for he now has Booty disease, FILL YOUR HEAD WITH ROCK, is a two day rock festival I organise to raise funds for the Parkinson's society, now in its fourth year it takes place on Sunday 25th and Monday 26th. I desperately need to heighten the profile of the event, I need to take new ground, I have no intention of giving up, the other option being to lock myself away, but the illness would be locked away with me. That would achieve nothing. I must I fight, yet I'm fully aware this is a fight I may not win, though not able to claim victory I will grasp dignity with both hands [if they keep still] So with every ounce of respect to yourselves I ask that you see if there is a way you can help i , I seek no personal gain or promotion from this request, for there is one simple fact, no one knows what's around the corner. It is for those who have no idea that they will walk the same path as me, that I must make the tunnel shorter and the light brighter I do hope you can help, I ENCLOSE THE FOLLOWING DETAILS AND HOPE YOU FIND THE OF INTEREST FILL YOUR HEAD WITH ROCK it is a two-day rock festival, held in Willenhall, West Midlands. Not quite Woodstock I agree, but they both start with the letter “W” so who knows HA! HA! MISSION STATEMENT The event is organised to raise funds for the PARKINSON'S DISEASE SOCIETY UNITED KINGDOM but of equal importance to fund raising, is the need of peoples awareness to Parkinson's, and the debilitating effect it has on every day life. THE GIG; - TWENTY BANDS PLAY OVER THE TWO DAYS, SUNDAY 25TH AND MONDAY 26TH OF MAY 2003. DOORS OPEN 13.00HRS. CLOSE 24.00 HRS BOTH DAYS...........ADMISSION..........£5.00p EACH DAY THE BANDS:- JOE D’URSO [PART OF HIS WORLD TOUR] www.jdcaravan.com ERIC BLAKELY / MICKY KEMP BAND / SUSAN GIBSON [ GRAMMY AWARD WINNER] www.bandsontour.com CHARLIE MACINTOSH. THAT'S FIVE AMERICAN BANDS, THE BRITISH BANDS ARE - THE TREVOR BURTON BAND. RISE, NOWHERE NEAR THE GARDEN. CLIENTELE, JACKS HOUSE, DIZZY LIZZY. MOUND. CLEAR BLUE SKY. TONY HILLS FICTION. FAR SIDE. PREDATOR. OTHER BANDS TO CONFIRM. OTHER INFORMATION :- www.fillyourheadwithrock.com FOR HISTORY SEARCH PETE BOOT ORGANISER; - PETE BOOT, PHONE NUMBER- 01902-635885. MOBILE :-07989132805. FAX: - 01902-635885. EMAIL peterboot@blueyonder.co.uk / SNAIL MAIL 575 WILLENHALL ROAD. WILLENHALL. WEST MIDLANDS, WV13 3 LP. MANY THANKS FOR YOUR TIME IN READING THIS MESSAGE, YOURS SINCERELY...PETE BOOT..... SHAKEN NOT STIRRED www.fillyourheadwithrock.
Because the Yahoo Group Chatroom and Message Board seem to be growing and creating the nucleus we've been looking for, we encourage you to use it instead of this board. The message before this one tells you a little more about what we're trying to do. The URL for our group site is www.groups.yahoo.com/group/plwp2 Thanks, Nan and Bren
TO ALL PLWP MEMBERS! I have a favor to ask of each of you ... and no, I'm not asking for money nor am I asking you to shed blood for PLWP. (Though I really believe many of you would consider doing it!)<BR> <BR> No, what I'm asking is for you to join the Yahoo Group PLWP2 www.groups.yahoo.com/group/plwp2 as soon as you possibly can. <BR> <BR> Why, you ask? Well because it will make mine and Nan's life so much easier. <BR> <BR> How,you ask? Well, Nan and I have struggled with doing mass emails now for a very long time. We need to be able to communicate with everyone and sometimes it's crucial that we get to you in a hurry...for instance something about advocacy or one of our members needs help, etc. It normally takes about 2 hours to do a mass email to you folks and then many of those are returned for various reasons. The account has been closed, the mail capacity has been reached and you can receive no more mail, etc. <PR> <PR> By utilizing Yahoo Group, it doesn't take us any longer to send hundreds of emails than it does to send one. Nan and I don't have to keep up with each address, it's totally up to you to keep it up to date. <BR> <BR> Let me tell you how Yahoo does it. When anyone posts to the Message Board on Yahoo, it automatically emails all of the members. You, the member controls whether or not you receive the email. In your member setup, there are several choices you can make...instead of me writing them all down, check out the "How do I?" at http://www.plwp.org/how_to.htm#Messages . You can change your member set up at any time. <BR> <BR> So, those of you who already have a login with PLWP2, you may want to double check your email address to make sure it's correct. (There's an option on the front page that will allow you to change your setup. Be sure to read it carefully.) <BR> <BR> For those of you who have not joined PLWP2, please do so without hesitation. If everyone is cooperative and takes care of this immediately, Nan and I will completely do away with our old system and go for Yahoo. Remember, this is a democracy ... majority rules. <BR> <BR> There's other benefits to using Yahoo...the board can be used for sharing, communicating, getting help and/or giving help as well as so many other uses. Think of it as somewhere between a chatroom and a forum like on MGH. The thing that makes it so great is the time factor...when the post is entered on the group site it's automatically sent to the membership, the total interaction on PLWP at Yahoo groups is dependent solely one the member. YOU ARE IN CONTROL! <BR> <BR> So please make sure you are an active member of plwp2, that your email address is correct and that you have the appropriote settings for what you want to do. <BR> <BR> I think we'll all be amazed at the convenience thus the increased commoradory of the entire membership. <BR> <BR> Nan and I really thank you for doing this. You've probably just added another 5 years to my life line. LOL....<BR> <BR> There's more I want to say here but we'll have a better method when we get this job done. <BR> <BR> Thank you! Thank you! Thank you! <BR> Bren and Nan
Happy Birthday Pwnkle, You are a special person and I hope that you are having a very special day. You give so much to so many people!! I wish you the very best and hope to see you soon. Thank you for all you do Much Love, Nan aka TLC
YES all of you are correct! Among other great events April 1st is the first day of Parkinson's Month and IT IS YOUR BIRTHDAY! We at PLWP as a group of the Parkinson's grassroots...as a member of an elite extended family...as people who care to make a difference...ARE OFFICIALLY THREE YEARS OLD! I really want for us to do something to commemorate that day...and I've come up with an idea. It will only work if everyone participates. FIRST, I'm sure each of you have at least one fond memory of interacting with others at PLWP. It may be a special chat session, one of the times we all went to NYC for the Unity Walk, a special email from someone you met at PLWP, a spontaneous visit with someone you met thru PLWP, a funny possibly...maybe an embarrassing moment that you would care to share...either yours or one of you PLWP friends. WELL, let's put it together into a PLWP Remembers, 3rd Birthday webpage that will be permanently in our website. Write it up, send pics if you like and get it to me quick at btucma2000@yahoo.com. I know this is short notice, but if you get to me by the last of March I'll try to have it on site on April 1. NOW FOR THE REST OF THE STORY... Perhaps you've seen one of the photoshows on the website. If you haven't, take a look at one on www.plwp.org (menu bar to the left). WELL, what do you think about sending me, either by US Mail or email, some pictures you cherish of times you've spent with PLWP friends OR just a picture of yourself if you're new...a picture of you if you're an oldie but goodie member OR whatever. I've got a new program that will put these in a format that I can put on CD and you can play it on TV using a DVD player...full screen with music. Sounds like fun doesn't it! Something we can keep forever. If you'll get me the following by April 15, I'll make every effort to have it done and on the website before the end of Parkinson's Month. I've already got an order form on the site and you can order a copy of the CD. (http://plwp.org/photo_show_offer.htm It'll cost me around $5 for materials and shipping, so for $10 ($5 for PLWP) I'll get a copy to you by ... ummm ... let's make it easy on ME (LOL)... let's say by May 15. Here's what I need from you: (1) Picture(s) (duh!!) either by email (btucma2000@yahoo.com) or US mail (Brenda Tucker, 3656 Blue Byrd Lane, Kodak, TN 37764); (2) Captions including names of people in the picture (it's terrible to look at a picture and not know who it is); AND (3) a check for the amount of your order if in fact you placed an order with mailing address. What d'ya think? I like the idea myself. So get off and get on...get to me what I need to do this. Also, please talk it up so everyone will know about this. The long-time member will go down memory lane and you new members can see what you're getting yourself into! Together we make a difference, Bren
Hey everyone. I've been keeping an eye on Jane Stengals efforts to be sponsored as she represents all of PLWP at the Parkinson's Unity Walk on April 26. Please take time to donate something in support of Jane. It doesn't need to be much, just something to show her you're grateful for her efforts. The Parkinson's Unity walk is a great event that raises awareness and research funds. You'll find a link to The Unity Walk page for donation on the frontpage of www.plwp.org Together we make a difference, Bren
Does anyone know what April 1st is? Yea, I know it's April Fool's Day...but do you know what other significance this date has?
The transcript of Greg's testimony is now available at www.plwp.org/library.htm Hopefully, tomorrow we'll have a complete audio. Together we make a difference.
If you missed Greg's testimony, hear it at http://www.plwp.org/library.htm Unfortunately, only the closing of his statement is recorded but we will have a transcript of his testimony on line. Comments following his statement are very intersting. Together we make a difference!
Wednesday MARCH 19th 2003 9:30 a.m. (EST) Senate Judiciary Committee Hearing "Drawing the Line Between Ethical Regenerative Medicine Research and Immoral Human Reproductive Cloning. " Witnesses will include grassroots activist and National Field Representative for PAN, Greg Wasson. For further information: http://www.senate.gov/~judiciary/hearing.cfm?id=622 for audio stream: http://www.capitolhearings.org/ check in with c-span for televised coverage: http://www.c-span.org
There's so much confusion, so many questions...such an important time in the cure of neurological diseases. We have created a special forum for discussing stem cells, therapeutic cloning etc. Our own Joan Snyder (Jes) was the first to post and it makes for very good reading...very enlightening...very thought provoking. Just go to the frontpage at www.plwp.org ... the menu option is to the left directly under Communication Center. You will also see a link to Portraits of Hope. Remember one thing when approaching these and other issues. The only dumb question is the unasked question. I know I feel extremely dumb most of the time BUT as my mentor of 35 years ago told me (and it changed my life)...intelligence is not knowing the answers but knowing where to go to find the answers. And though these are sensitive issues, we feel we need to discuss them openly among the PLWP community. Please join in.
Bren
Dottie, he is a cutie. Katie is still a little jealous, but that will pass. I do, however, have a new title..."Super Pooper Scooper"...I guess I forgot about all of this! LOL >>> Glad to see you "interneting" Dottie.
Bren- Had to laugh when I read about your following around your new baby. I had a permantly attached cloth in my hand for a year when we got our first Jack Russell. He was a terror to house break. - The second one (three years later) was not that bad. He learned from the first. Just don't break his/her spirit. And I mean they are very spirited. Adorable, exasperating but marvelous little companions. Enjoy. Do you have a smooth or rough coat, also what color. We had one each. The rough was tri colored. The smooth brown and white. Both beautiful in their own way and totally lovable. Smart, too. It took them only a week or two to bend two adults to their will. We are still bent. Enjoy! Enjoy!
Sorry I missed everybody today, or yesterday now since it 2am Tuesday morning. The past three days have been strange...nothing I planned happened but it was a GREAT 3 days. Saturday, we worked in the yard all day...70+ degrees and beautiful. I felt absolutely wonderful and I wore myself out. >>> Then Sunday, well I could hardly move! LOL But my hubby wanted to go do some target practice and insisted I get out of the house. Well, I had a ball. I shot the pistol many rounds, hit the target on 50% of them...not bad for a parkie who has never shot at a target. Then today, I had all planned out but ... well, we got us another baby. A Jack Russell who is 3 months old. We adopted him from the animal shelter...so I spent the entire afternoon at the Vet and tonight following him around cleaning up after him. You see, it's Katie's 4th Birthday this weekend and we thought she needed a little friend.>>>>So I'm sorry I missed you guys, but it really has been wonderful. I don't remember feeling this good in a very long time. Hope all of you PLWPs are having spring-like weather too. Does a world of good for our attitudes. Love ya lots, Bren (Oh, by the way. Katie is not a child...she's our baby dog (a Sheltie)! LOL
Jane Stengel who is Co-Director of PLWP's Events Team is going to set up a PLWP Team with the Parkinson's Unity Walk. The walk is scheduled for April 26, 2003 in Central Park, NYC. If you are interested in going to the walk, she will be happy to help you with your arrangements. She can suggest hotels, etc. >>>>> We support the Unity Walk and have attended as a group since 1999. This year we're asking that you support the PLWP Team by sponsoring Jane Stengel who is representing PLWP. Donate directly to the Parkinson's Unity Walk Organization using this URL http://www.plwp.org/default.asp#UnityWalk and clicking HERE. If you plan to go to the walk and want to register yourself, there's a link on Jane's Donation Page that will take you directly to the PLWP Registration form. >>>>>> Together we make a difference!
You may want to check another web site called wemove.org for info on hemi-parkinsonism/hemi-atrophy. This is a particular syndrome in and of itself to my knowledge (which i consider moderate at best). However I myself have had the term hemiparkinsonism used to describe my condition, which at this point remains unclear. Hemi simply refers to only affecting one side of the body. However, as i said, i think you are referring to a specific condition and you may have some luck doing a search on the we move site! Good luck in your search for answers and please let us know what you discover! Beth Bennett
I need to correct my directions just a bit. Before going to the top of the page and clicking on the Communication Center, go to the top of "THIS PAGE" and click Top. Sorry!
I've been watching to see if by chance anyone was familiar with Hemiparkinsonism Hemi Atrophy. I believe if anyone here could give you any insight they would. However, there's a Parkinson's Forum sponsored by Massachusetts General Hospital (Harvard Medical) that I believe someone could help you. I would post their url here but it's so confusing. Instead, do the following: Page up to the very top of the page, click on Communications Center then click on Parkinson's Forum at MGH. Many people use the forum...many of them are very well versed in Neurodegenerative diseases.>>>>Though we may not be familiar with your particular form of Parkinson's, we would love for you to become a part of us. Let us know if we've helped you at all. Together we make a difference, Bren
I am tryng to find information on this variant of PDand would also like to make contact with others who have this particullar version.
Mojo, my prayers are with your son. My son was in the Gulf...I know how you feel. My prayers are with you as well.>>>>>Harley, thanks. I'm sure it could be more user friendly...just let us know if you have any suggestions.
Nan, Sorry to hear your ailing. It's no fun I know. Also sorry to hear of your brother-in-laws Illness. There are tons of people out here pulling for you and he. Know that my prayers are with you both. May God Bless. With love, mojo P.S. Iam asking for prayers for my youngest, my son Nick,who has been sent to Kuwait, to defend our freedoms that we all hold so dearly. Thanks
Hey! Lookin Good here guys.. just wanted to pop in and say a big howdy.. Bren.. CD goes in mail today.. watch your mailbox.
Nan, I am sending this message to let you know that I am thinking about you, and that I have added you and your brother-in-law to my prayer list. There is great stength within God -- both physical and emotional. You are a wonderful servant and angel for Him. You give of your heart and energy to all that need encouraging and all who need a friend to help them in their PD struggles. I thank God for you, and this Tennessean sends his love! David Vaughn
A new thread (Cheers to TLC) has been started in the PLWP MGH Forum by jjjaneR that you may want to post to. It's a very thoughtful effort of support for Nan (screen name TLC). For you newcomers, Nan is the other co-founder of PLWP. Her unselfish, loving nature is what PLWP is all about. She's always there when you need a friend.>>>>>Cancer is in the processs of taking her brother in law and her health is suffering. (I explained in a little more detail in my post on the forum.>>>>If you want to add a note for Nan, I'll make sure she sees the thread. I think it would warm her heart. To help you, I'm going to add a link next to the little talking blonde above!LOL >>>It will be good exposure to the forum for you too. Use the Communication Center to access all the forums, chat rooms, etc.>>>>Together we make a difference! Bren
Travels with Parkinson's will be broadcasting today at 10:00 AM EST regular daily broadcast. Then at 12:00 PM EST Kathrynne Holden's bi-monthly show. At 8:0 PM EST Dr Jill Marjama-Lyons will be interviewed thanks to Tom Berdine and YOPA. And on Friday 5/7/03 Dr Ron Hutton will give his b-monthly from Haversham UK. Right after "TWP" in the morning. www.live365.com/stations/travelswparkinsons to tune in. Check out newly ( still under constructio ) web site at attp://pwnkle.com/travels/index.htp Designed by Carol Mc Cleod. Thanks winks Chy
Travels with Parkinson's will be broadcasting today at 10:00 AM EST regular daily broadcast. Then at 12:00 PM EST Kathrynne Holden's bi-monthly show. At 8:0 PM EST Dr Jill Marjama-Lyons will be interviewed thanks to Tom Berdine and YOPA. And on Friday 5/7/03 Dr Ron Hutton will give his b-monthly from Haversham UK. Right after "TWP" in the morning. www.live365.com/stations/travelswparkinsons to tune in. Check out newly ( still under constructio ) web site at attp://pwnkle.com/travels/index.htp Designed by Carol Mc Cleod. Thanks winks Chy
Heehaw!!! A little after 10PM, Gary had already turned in and I was waiting for my sleeping med to kick in and I felt kinda lonely. You all know what I mean. Well!!! I'm forever checking on the forums, message boards, and the chatrooms...sorta my normal going to bed routine. What to my wondering eyes did appear but a gathering of friends in the CHATROOM!!! It was AMAZING! It was like, wellll let's see...Like being away on a business trip for a week and coming home to find your husband didn't go on that weekend fishing trip after all. You're so prepared to be alone that when you're not...WOW WHAT A ZINGER!! Keep those cards and letters flowing ... the Neighborhood is perking!! Oh, I almost forgot the beauty of it all. I believe it all happened because Nancy out of Cleveland posted on the fridge that she was in the chatroom if anyone wanted to chat. One drop in an ocean of water still makes ripples! Together we make a difference, Bren
hi I AM IN THE CHATROOM IF ANYONE WANTS TO CHAT. NANCY AKA ds401
DEE-136--IF YOU WOULD LIKE TO CHAT I WOULD BE HAPPY TO HEAR FROM YOU AGAIN.I HAVE WORRIED AND WONDEREDABOUT YOU. I NEVER DID GET TO TELL YOU ABOUT MY FAMILY AND YOU DIDNOT TELL ME ABOUT YOURS.BRENDA HASMY E-MAIL NO. AND IF YOU ASK SHE WILL GIVE TO YOU. AS AN OLD GRANDFATHER I AM A GOOD SOUNDING BOARD.
Just got out of the chatroom where jjjaneR discussed the stages of Parkinson's. (Yea, I had the wrong day in mind and thought it was going to be Thursday!!) Even though I arrived really late, everyone was praising her effort. There was a good turn out, but I'd like for Jane to do it again later on down the road at a different time so those who couldn't make it today would have another opportunity. (Oh, and we had another new member there today!) Tomorrow (Wednesday) Dan (v5navy) is the guest host. He's going to discuss Water Therapy. >>>>>>>>Things are happening here at PLWP! It feels great!>>>>>Together we make a difference, Bren (for Nan too)
BREN---WENT TO THE CHAT ROOM THIS MORNING TO CHECK MY VOICE. I WAS PLEASED TO GET ON WITH A VOICE--THIS WAS 7:15AM. I WAS AFRAID TO GET OFF SO I HELD ON UNTIL 8:3OAM AND NO ONE CAME ON I WENT OFF TO SEE IF COULD FIND SOMEONE. WHEN I TRYED TO GET BACK ON I COULD NOT GET VOICE. IF I CANNOT GET MY VOICE TOMORROW WE WILL HAVE TO CANCEL MY PART TIL SOME LATER DATE.
The chat sessions are really going well thanks to the efforts of Michael and Ken. We understand that you may be frustrated with all of the problems we've been having. Yahoo has been working dilligently to solve them. Thank you for your patience. Don't miss Weds and Thurs at 2:30EST...special topics: Water Therapy (Weds) by Dan and Different Stages of Parkinson's (Thurs) by jjjane.
We straightened up the Fridge yesterday. We were conducting science experiments in there and didn't know it! LOL Not much unlike the one in my kitchen! Seriously, we archived the messages. It was taking too long to load. We now have two files of archives that are labelled by dates. Just click on the date of interest. See you at the chatroom sessions! Bren
bren---talked to ken this morning in the chat room,HE ASKED ME TO TALK ABOUT WATER THERAPY ON WED.I TOLD HIM I WOULD BE GLAD TO BUT ONLY IF WE HAVE VOICE. I JUST COULD NOT HANDLE WITH MY ONE FINGER TYPING. IF WE CANOT GET VOICE ON REG CHAT COULD WE DO IT IN "FRIENDS" LIKE WE DID THE OTHER DAY?
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HI WHAT IS YOUR NAME
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MY NAME IS STEVE TAGGART IM 15 YEARS OLD HOW OLD ARE YOU
MY NAME IS STEVE TAGGART IM 15 YEARS OLD HOW OLD ARE YOU
MY NAME IS STEVE TAGGART IM 15 YEARS OLD
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Live Life Like You're Dying!
Help! I am terribly frustrated with the uncertainty of diagnosis. I have been diagnosed with too many neurological disorders. What one is right? My insurance isn't the best. I am on a medication for Parkinsons, it does help some with the tremors but not much for the pain and stiffness. How can an ordinary Joe find good help?
My Hand With Yours Going through rough times alone Is not something that I condone Neither does a friend of mine He becomes your personal lifeline. This has to be the kindest man He is the one we call Mr. Dan He is there to encourage and support you No matter what it is that you must do. When you feel alone and need his love Just put one hand in the other and look above That hand you feel inside your own Is really his so you're never alone. Trust in this and you will find Someone who cares and is always inclined To offer his love in your time of need He is a great man we have all agreed.
How do I go about getting SSI for my wife who is unable to work due to parkinson's?
has anyone tried ginseng for parkinsons. apparantly there was a study done on rats at Dalhousie university. the results were promising.
Hi Everyone, I have a web site called www.effectivespeakingconsultants.com. I am a motivational speaker. On there I have put my story and that of Janet Carlisle. If you have a story that you feel should be told e mail it to me at gerardk@effectivespeakingconsultants.com. I will post your story on my site. I have young onset parkinsons myself.
I am trying to locate the suppliers in the UK of ultra lightweight powered wheelchair. I believe that it is based on NASA technology.
PARKINSONS EXERCISE STUDY AT THE UNIVERSITY OF SOUTHERN CALIFORNIA, LOS ANGELES is currently enrolling subject who: 1. Diagnosed with Parkinsons Disease within the last 3yrs. 2. Not on Sinemet. 3. Demonstrates changes in funtional movement. For more information contact Dr. Beth Fisher at: 323.442.1006, bfisher@usc.edu.
RON MOORE, HAPPY BIRTHDAY HONEY!!!!!!! I LOVE YOU SOOOO MUCH.... YOUR LOVING WIFE
Hello, I am writing to tell you about a possible treatment for Parkinson’s Disease. This treatment employs low-dose olanzapine (1.5 mg, Zyprexa Zydis ORALLY DISINTEGRATING TABLETS) as an adjunctive treatment to levodopa and pramipexole. The use of these three medicines resulted in a marked decrease in PD symptoms for one patient. Discontinuance of treatment resulted in a return of similar signs and symptoms. I am posting because I want to publicize this information to as many PD patients and neurologists as possible. I do know the person who has benefited from this treatment. My only motivation is obtaining anecdotal feedback from others who may benefit from this treatment. If you think that your PD symptoms may be alleviated with this treatment, contact your neurologist. Any responses to the use of olanzapine as an adjunctive treatment to levodopa and pramipexole should be emailed to PDtreatment@hotmail.com or faxed to 212-608-0886. A recent journal article* by Durif et al. (2004) in Neurology describes the use of clozapine in reducing levodopa induced dykinensias. Based on this article and an understanding of olanzapine’s theoretical basis, I believe that low-dose olanzapine (1.5 mg, Zyprexa Orally Disintegrating Tablets), added to levodopa and pramipexole, would benefit PD patients. * Durif, F., Debilly, B., Galitzky, M., et al. (2004). Clozapine improves dyskinesias in PD: A double-blind, placebo-controlled study. Neurology, 62, 381-388.
FDA APPROVES APOKYN FOR TREATING PARKINSON'S PATIENTS (The following is a reformatted version of a press release issued by FDA and received via electronic mail. The release was confirmed by the sender.) April 21, 2004 FDA APPROVES APOKYN FOR THE ACUTE TREATMENT OF EPISODES OF IMMOBILITY IN PARKINSON'S PATIENTS FDA has approved Apokyn (apomorphine) as an injectable drug for treating Parkinson's patients during episodes of "hypomobility," so-called "off periods" in which the patient becomes immobile or unable to perform activities of daily living. Apokyn was given priority review because injectable apomorphine is the first therapy approved to treat these episodes acutely (during the episode). Apokyn was also designated as an orphan product. An estimated 1.5 million Americans have Parkinson's disease, which results in tremors, rigidity, postural instability, slowness, and difficulty moving. Within 3 to 5 years of treatment with standard Parkinson's drug treatments, about ten percent of patients experience episodes of hypomobility (e.g., inability to rise from a chair, to speak, or to walk). The episodes can occur toward the end of a dosing interval with standard background medications (so-called "end-of-dose wearing off") or at unpredictable times (spontaneous "on/off"). Apokyn was designated an orphan drug in l991 to treat the ten percent, or about 112,000 Parkinson's patients who progress to stage four and experience the severe on/off motor fluctuations unresponsive to other therapies. Orphan drugs are drugs that treat a rare disease or condition which affects fewer than 200,000 patients in the U.S. After receiving FDA approval, orphan drugs are eligible for seven years of exclusive marketing. The effectiveness of Apokyn in the acute symptomatic treatment of both types of recurring episodes of hypomobility or "off" episodes associated with advanced Parkinson's disease was established in three randomized, controlled trials. On average, patients participating in these trials had had Parkinson's disease for 11.3 years and were being treated with L-dopa and at least one other agent, usually an oral dopamine agonist. Apokyn must be taken with an antiemetic drug because, when taken alone, it causes severe nausea and vomiting. It must not be taken with one class of very effective anti-nausea drugs, the 5HT3 antagonists (ondansetron and similar drugs), because the combination of Apokyn (apomorphine) and these drugs can lead to very low blood pressure and loss of consciousness. Apokyn is intended for subcutaneous injection only. Other oral drugs, taken chronically, are also used to help decrease the amount of time Parkinson's patients spend in the "off" state. Patients and caregivers should carefully read the Patient Package Insert and Directions for Use on the ampule and dosing pen. Patients should also be instructed to use the drug only as prescribed. Apokyn's labeling also includes specific warnings about low blood pressure, fainting, hallucinations, and excessive sleepiness. The most common adverse events seen in controlled trials were yawning, dyskinesias (abnormal movements), nausea and vomiting, sedation or sleepiness, dizziness, runny nose, hallucinations, edema, chest pain, increased sweating, flushing, and pallor. Apokyn is a new molecular entity - a medication containing an active substance that has never before been approved for marketing in any form in the United States. Apokyn is manufactured for Bertek Pharmaceuticals, Research Triangle Park, NC, by Draxis Pharma Inc., Canada. Media Inquiries: 301-827-6242 Consumer Inquiries: 888-INFO-FDA (km)PN -END- #<662235.940960># Last Updated: April 21, 2004 17:29 EDT
FDA APPROVES APOKYN FOR TREATING PARKINSON'S PATIENTS (The following is a reformatted version of a press release issued by FDA and received via electronic mail. The release was confirmed by the sender.) April 21, 2004 FDA APPROVES APOKYN FOR THE ACUTE TREATMENT OF EPISODES OF IMMOBILITY IN PARKINSON'S PATIENTS FDA has approved Apokyn (apomorphine) as an injectable drug for treating Parkinson's patients during episodes of "hypomobility," so-called "off periods" in which the patient becomes immobile or unable to perform activities of daily living. Apokyn was given priority review because injectable apomorphine is the first therapy approved to treat these episodes acutely (during the episode). Apokyn was also designated as an orphan product. An estimated 1.5 million Americans have Parkinson's disease, which results in tremors, rigidity, postural instability, slowness, and difficulty moving. Within 3 to 5 years of treatment with standard Parkinson's drug treatments, about ten percent of patients experience episodes of hypomobility (e.g., inability to rise from a chair, to speak, or to walk). The episodes can occur toward the end of a dosing interval with standard background medications (so-called "end-of-dose wearing off") or at unpredictable times (spontaneous "on/off"). Apokyn was designated an orphan drug in l991 to treat the ten percent, or about 112,000 Parkinson's patients who progress to stage four and experience the severe on/off motor fluctuations unresponsive to other therapies. Orphan drugs are drugs that treat a rare disease or condition which affects fewer than 200,000 patients in the U.S. After receiving FDA approval, orphan drugs are eligible for seven years of exclusive marketing. The effectiveness of Apokyn in the acute symptomatic treatment of both types of recurring episodes of hypomobility or "off" episodes associated with advanced Parkinson's disease was established in three randomized, controlled trials. On average, patients participating in these trials had had Parkinson's disease for 11.3 years and were being treated with L-dopa and at least one other agent, usually an oral dopamine agonist. Apokyn must be taken with an antiemetic drug because, when taken alone, it causes severe nausea and vomiting. It must not be taken with one class of very effective anti-nausea drugs, the 5HT3 antagonists (ondansetron and similar drugs), because the combination of Apokyn (apomorphine) and these drugs can lead to very low blood pressure and loss of consciousness. Apokyn is intended for subcutaneous injection only. Other oral drugs, taken chronically, are also used to help decrease the amount of time Parkinson's patients spend in the "off" state. Patients and caregivers should carefully read the Patient Package Insert and Directions for Use on the ampule and dosing pen. Patients should also be instructed to use the drug only as prescribed. Apokyn's labeling also includes specific warnings about low blood pressure, fainting, hallucinations, and excessive sleepiness. The most common adverse events seen in controlled trials were yawning, dyskinesias (abnormal movements), nausea and vomiting, sedation or sleepiness, dizziness, runny nose, hallucinations, edema, chest pain, increased sweating, flushing, and pallor. Apokyn is a new molecular entity - a medication containing an active substance that has never before been approved for marketing in any form in the United States. Apokyn is manufactured for Bertek Pharmaceuticals, Research Triangle Park, NC, by Draxis Pharma Inc., Canada. Media Inquiries: 301-827-6242 Consumer Inquiries: 888-INFO-FDA (km)PN -END- #<662235.940960># Last Updated: April 21, 2004 17:29 EDT
As I sit hee thinking how pd has effected my life I wonder if i would have been the same person? I have grown to be a person who understands what it means to say please and thank you. To appreciated what people do and to listen to them when they speak.
when mailing checks for Muhammad Ali gloves, please mail to Midwest Parkinson's Awareness P.O. Box 2785 Alliance, Ohio 44601 In the previous message, I forgot to type in the zip code.
July 9-11 we're holding symposium-unity walk at pro football hall of fame in Canton, Ohio. We're raffling boxing gloves autographed by Muhammad Ali. You may purchase tickets via mail. wheaever amount of tickets you want, we'll put your name and phone number on each one, mail you the stub and on july 11, we'll draw winning ticket. You don't need to be present to win, although we'd love to see you here. We'll ship the gloves to you, Monday July 12, 2004. Ticket prices are: $5.00 for 5 tickets $10.00 for 11 tickets $20.00 for 25 tickets $50.00 for 75 tickets $100.00 for 150 tickets Make checks payable to Midwest Parkinson's Awareness and mail to P.O. Box 2785/ Alliance, Ohio Any questions, please feel free to call Ron Moore at 330-829-2964 or artist4memories@yahoo.com
I am a 50 year old woman with advanced Parkinson's. About 5 months ago my husband, a teacher, told me he was moving out at the end of the school year. A month later he said he was not going to and would be committed to the marriage. Now he states that he believes that his position as a teacher will probably be cut. He has decided he wants to explore starting a home school band. We have no savings of any kind for him to start up his own school. I have asked him to consider applying to other districts. He accuses me of not trusting and supporting him. When my meds are not working I can bearly get around or even breath. I just don't have the ability or strength to start over again. He might have a chance of succeeding if I were no longer in the picture. The situation is leaving me feeling I am nothing more than deadmeat hanging around his neck. Would appreciate hearing any opinions or suggestions by personal e-mail. My email address if vlhperry@hotmail.com. Please help.
Hi I am a 'carer' working in a nursing home in Australia. I am putting together a book/resource to help carers, working in a residential setting, to understand some of the conditions of their residents. I would like to include some personal stories, sooo if anyone out there has their story they would like to share please email me <genteale@dodo.com.au>. My intention is to give the carers not only an increased knowledge, but an empathy and awareness of what it is like, having Parkinson's...the feelings, the difference it makes, etc. Your stories, however short or long would be much appreciated...thanks, Ruth Teale
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I am looking for info about PD and Creatine and possible benefits by taking it as a supplement. I will be pleased to hear from all who have had the courage to use Creatine. Sincerely from Canada
july 9-11, 2004 awesome event. \July 9..meet & greet at Marriott Hotel July 10...Symposium @ Pro Football Hall of Fame, informative speakers, prizes, lunch, lunch and tours of hall of fame and museaum. July 11...Unity Walk-Health Fair, Central Catholic Football stadium, Unity walk, health fair, classic car show, prizes, NFL appearances, games, jugglers, live bands and much more. For hotel reservations, contact Marriott hotel at 1-800-742-0379. rooms are discounted to $79 from $140. To get this special rate, you MUST inform them you're reserving the room for the Parkinson's disease event. Any questions, or if you'd like an information packet, please contact me at 330-829-2964 or artist4memories@yahoo.com
Help with school project ASAP please . I need to interview someone living with PD for my term paper. These are the questions How did this person get this condition? Is this person managing his/her chronic illness well? Explain What is this person doing to treat this condition? and last Which activities of daily living might this person have problems with? explain . Please help me I will be very greatful.
Hello I am doing a school project on Parkinson's disease and I need help!!! I have to interview someone with parkinson's disease and I need to ask them these questions How did this person get this condition? Is this person managing his/ her chronic illness well?Explain. What is this person doing to treat this condition? Which activities of daily living might this person have problems with? explain. Please can someone help me . you can e-mail me at ashleywuttunee63@hotmail.com
Messages Messages Help Reply | Forward | View Source | Unwrap Lines | Delete Message 2485 of 2485 | Previous | Next [ Up Thread ] Message Index Msg # From: "Deborah Stanley" <roadrunner1st2002@y...> Date: Tue Feb 24, 2004 4:11 pm Subject: "Miracles Do Happen"!! I would like to take this opportunity to share this with everyone. As you know my husband, Jason (icethe1st) was dxd with PD nov 03. He lost the ability to speak and walk on 3 January 04. A Miracle has happened. On Saturday (21 Feb 04) at 12:30 AM Jason signed to me (finger spelled-sigh language) that he had clicking noises in his head. He has had them off and on. He signed to me that the clicking noises were getting louder and faster. The clicking noises sounded like someone turning a light switch on and off, on and off. A few minutes later, he said the clicking noises were getting softer and slower. He signed to me that he thinks the clicking noises are going to stop and if they do, he thinks he will be able to talk. A few minutes later Jason begain talking! He got a real bad headache when he first started talking. This is the first time he has been able to speak since 3 January. He stutters when he speaks, but was able to talk. Jason even sang 3 songs to a friend of ours in conference without stuttering even once. He only stutters when he talks. We told our friends who were still on line at that time of night/day about this miracle. We went to bed to get a few hours of sleep. When we woke up that Saturday morning, Jason was still talking. He still stuttered but was talking fine. On Sunday morning when Jason woke up, he said the clicking noises have returned. It was apparent that his stuttering was also getting worse, but he was still able to talk. On Monday, there were no changes. He was still talking. Today Jason is still able to talk, but his stuttering has become real bad. It takes a few seconds for him to get the words to come out, but he can still talk, just like when he first lost his voice. We don't know how long Jason will be able to keep his voice. we are taking it "One Day At A Time". This goes to show you that "Miracles Do Happen"!! You don't know when a miracle will happen, it just happens. We will keep praying for a cure for PD, and keep fighting. From: Debbie Stanley
Hi, anyone up?
I'm 49 and diagnosed with atypical PD. I told my doctor I experienced extreme hand fatigue in the late 1980's. She said it's possible I have had PD since then--formally diagnosed in 2001. I am now experiencing excrutiating calf and foot cramping when I sleep. I am trying to get more potassium in my diet, but I was wondering if others suffer from this painful type of cramping. Is it a common PD symptom?
Francaes O'Sulivan from Dubin Ireland on Travels With Parkinson's www.live365.com/stations/travelswparkinsons at 10:00 AM EST join us Chy
I ran across this in a magazine at the doctors office today. This company is offering 3 years of free webhosting to anyone that signs up. No credit cards, no committment Check it for yourself. It's the best deal I've ever seen, anywhere. www.1and1.com
If you need info on SSDI go to my site at http://pypa.com and click on the "SSDI and PD" link. Get educated and win your claim the first time you file.
Hi All...Has anyone noticed that on the demographics map, that the hgher pd rate co-insides with a high indstrial presence???
Hi all! In looking at the map, I saw that there are two hawaii people. The map just says carol and lou ann. I am on the Big Island & would like to get in touch with them. My e-mail is judithv@aloha.net. If anyone talks to them, please let them know! Aloha, Judi in kona
I want to talk on this chat and i can't get it. WHY
Now with the Holidays coming up, Thanksgiving just a week and half away and Christmas not to far behind. YOPA is going to do it's Annual Christmas Fund for PWP's. The awareness pin that I made up is one source of income for it and did rise a few hundred for this fund but more is needed. Please either buy a pin for $5 dollars or send a couple of dollars to YOPA, PO BOX 50936 Albuquerque, New Mexico 87181-0936. If you know of a needy pwp that needs help send in a 250 word essay about this person and why he/she needs help to directors@yopa.org. Thank you very much and HAPPY HOLIDAYS.
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on wednesday, i am to give a talk to our lgst. area hospice. while they say they only want me to talk about my personal experiences w/ pd...i have been thinking quite alot about end of life issues. couple this with the story of Terri Schiavo, the young woman in Florida who is in the middle of a huge legal debate over removing her feeding tube and i feel that it might be time to face some unsavory issues. would you be so kind as to help me in an unscientific poll? names will be kept completely anonomous. 1) do you have a living will? 2) on a scale of 1-10 (10 bbeing very important), how important do you consider having a living will to be?? 3) when do you consider to be the natural end of life?? 4) would you like to be kept alive by feeding tubes and breathing tubes? 5) what is the governments role in this issue (Gov. Jeb Bush ordered her feeding tube re-inserted)??? 6) on a scale of 1-10 (with 10 being very religious/spiritual), how religious/ spiritual do you consider yourslef to be?
LAPD,Treasonist,http://www.angelfire.com/nb/ugh/dearjohn.html ,urgent,update,2-23-03, see,http://www.angelfire.com/nb/ugh/dearjohn.html , Imperialist,Power,Hungry,Crooks,Kill,Kids,by,their,Negligence, in,regards,to,the,taunting,microwave,weapons,slow,death,of,Walter,Tribe,in,L.A., -------------------------------------------------------------------------------- Electronic,Weapons,Kills,Kids,faster,then,adult,males,in,Sylmar,CA,USA,Luna,http://www.angelfire.com/nb/ugh/dearjohn.html Navarro,Catron,Hate,Group,doing,this,for,over,ten,years,now,Malicious,Crimes, -------------------------------------------------------------------------------- http://www.angelfire.com/nb/ugh/dearjohn.html Terrorist Group of Criminally Insane Maggots tried to murder Walter Tribe and gave him brain damage with their electronic weapons as they woke Walter out of a sound sleep in his bed at 14657 Nurmi Street, Sylmar CA by intersection of Degarmo Av and Lakeside Street in Sylmar at 11:50pm on June 21st, 2002. Right now it is 2:30am on June 22nd, 2002 and the mind wrenching negative soft kill microwave death ray stimulis masked by ultra sonic weapons stimulis has not stopped! Walter has a massive throbbing headache as the result of this attempt on his life! Walter Tribe is in fear for his life and in fear for the safety of all those near and dear to him as a result of this blatant, reckless cowardly terrorist act inflicted and forced upon his person while he is inside his home! Please investigate The Luna residence on Nurmi St, The Catron residence on Nurmi St, and The Navarro residence on Lakeside St.. Their are many others involved as stimulis comes from 360 degress meaning the terrorist hate group members have Walter Tribe's home surrounded all about! see http://sirwally.com see http://www.angelfire.com/nb/ugh/dearjohn.html see HREF="http://winwally.com">http://winwally.com for ALL THE PREVIOUS DOCUMENTATION OF THESE MALICIOUS ATTACKS ON THE PERSON OF TAX-PAYING AMERICAN CITIZEN WALTER TRIBE. Terrorist Group of Criminally Insane Maggots tried to murder Walter Tribe and gave him brain damage with their electronic weapons as they woke Walter out of a sound sleep in his bed at 14657 Nurmi Street, Sylmar CA by intersection of Degarmo Av and Lakeside Street in Sylmar at 11:50pm on June 21st, 2002. Right now it is 2:30am on June 22nd, 2002 and the mind wrenching negative soft kill microwave death ray stimulis masked by ultra sonic weapons stimulis has not stopped! Walter has a massive throbbing headache as the result of this attempt on his life! Walter Tribe is in fear for his life and in fear for the safety of all those near and dear to him as a result of this blatant, reckless cowardly terrorist act inflicted and forced upon his person while he is inside his home! Please investigate The Luna residence on Nurmi St, The Catron residence on Nurmi St, and The Navarro residence on Lakeside St.. Their are many others involved as stimulis comes from 360 degress meaning the terrorist hate group members have Walter Tribe's home surrounded all about! see http://sirwally.com
LAPD,Treasonist,http://www.angelfire.com/nb/ugh/dearjohn.html ,urgent,update,2-23-03, see,http://www.angelfire.com/nb/ugh/dearjohn.html , Imperialist,Power,Hungry,Crooks,Kill,Kids,by,their,Negligence, in,regards,to,the,taunting,microwave,weapons,slow,death,of,Walter,Tribe,in,L.A., -------------------------------------------------------------------------------- Electronic,Weapons,Kills,Kids,faster,then,adult,males,in,Sylmar,CA,USA,Luna,http://www.angelfire.com/nb/ugh/dearjohn.html Navarro,Catron,Hate,Group,doing,this,for,over,ten,years,now,Malicious,Crimes, -------------------------------------------------------------------------------- http://www.angelfire.com/nb/ugh/dearjohn.html Terrorist Group of Criminally Insane Maggots tried to murder Walter Tribe and gave him brain damage with their electronic weapons as they woke Walter out of a sound sleep in his bed at 14657 Nurmi Street, Sylmar CA by intersection of Degarmo Av and Lakeside Street in Sylmar at 11:50pm on June 21st, 2002. Right now it is 2:30am on June 22nd, 2002 and the mind wrenching negative soft kill microwave death ray stimulis masked by ultra sonic weapons stimulis has not stopped! Walter has a massive throbbing headache as the result of this attempt on his life! Walter Tribe is in fear for his life and in fear for the safety of all those near and dear to him as a result of this blatant, reckless cowardly terrorist act inflicted and forced upon his person while he is inside his home! Please investigate The Luna residence on Nurmi St, The Catron residence on Nurmi St, and The Navarro residence on Lakeside St.. Their are many others involved as stimulis comes from 360 degress meaning the terrorist hate group members have Walter Tribe's home surrounded all about! see http://sirwally.com see http://www.angelfire.com/nb/ugh/dearjohn.html see HREF="http://winwally.com">http://winwally.com for ALL THE PREVIOUS DOCUMENTATION OF THESE MALICIOUS ATTACKS ON THE PERSON OF TAX-PAYING AMERICAN CITIZEN WALTER TRIBE. Terrorist Group of Criminally Insane Maggots tried to murder Walter Tribe and gave him brain damage with their electronic weapons as they woke Walter out of a sound sleep in his bed at 14657 Nurmi Street, Sylmar CA by intersection of Degarmo Av and Lakeside Street in Sylmar at 11:50pm on June 21st, 2002. Right now it is 2:30am on June 22nd, 2002 and the mind wrenching negative soft kill microwave death ray stimulis masked by ultra sonic weapons stimulis has not stopped! Walter has a massive throbbing headache as the result of this attempt on his life! Walter Tribe is in fear for his life and in fear for the safety of all those near and dear to him as a result of this blatant, reckless cowardly terrorist act inflicted and forced upon his person while he is inside his home! Please investigate The Luna residence on Nurmi St, The Catron residence on Nurmi St, and The Navarro residence on Lakeside St.. Their are many others involved as stimulis comes from 360 degress meaning the terrorist hate group members have Walter Tribe's home surrounded all about! see http://sirwally.com see http://winwally.com for ALL THE PREVIOUS DOCUMENTATION OF THESE MALICIOUS ATTACKS ON THE PERSON OF TAX-PAYING AMERICAN CITIZEN WALTER TRIBE. -------------------------------------------------------------------------------- Sign Guestbook Read Guestbook MUSIC Long Term Elec Weapons Torture and Attempted Murder Victim Walter Tribe Demands That Hate Group Members Go To Jail Now! 6-22-2002 -------------------------------------------------------------------------------- This page has been accessed 4 times. This page was last updated Fri Jun 21 18:31:31 2002 Pacific time Update: 6-25-2002 6:39pm in Sylmar, CA, Criminally Insane Housewife Addictive Electronic Weapons Abusers Organization is Killing all Human Beings County Wide in Los Angeles CA USA! The last 168 hours has been made a living hell for victim of intentional hate crimes including assault with a deadly electronic weapon with intent to murder and or cause great bodily injury including severe brain damage 6-25-2002 6:45pm :( -------------------------------------------------------------------------------- Sign Guestbook Read Guestbook MUSIC See http://sirwally.com and See http://winwally.com to Stop Communist,Satanic,Gossips,Abusing,Elec,Weapons,24/7,for,over,10 years -------------------------------------------------------------------------------- This page has been accessed 9 times. This page was last updated Tue Jun 25 10:35:57 2002 Pacific time
see below for Pete Boots' entry, its a worthwhile trip, if you can make it over to the UK.
Tune into "Travels with Parrkinson's" "Oldies Night" on www.live365.com/stations/travelswparkinsons The Internet's only radio station for Parkinson's Disease 9:00 PM EST
Hello, all! An update, since it's been awhile since I was here. Tom and I have been married now for a little over a year and a half! Time has flown, but neither of us has ever been happier! Tom has had one DBS adjustment, in July, with great success. He has weaned himself completely off the Mirapex, and he was taking three a day! I saw a new neuro last Friday, and he was very good. Did not doubt my dx, which is a first!, prescribed the new drug Stalevo, which is a combination of regular Sinemet 25/100 and Comtan 200mg, which I take every day. He also added another dose of the Stalevo in the evening, which is new. I think that was to help me move in bed during the night. It was a sobering visit, however, as it was the first time I have ever had a doctor tell me to remove all the throw rugs from my house, and also the first time a doctor has told me that I need my laundry on the first floor of my home instead of in the basement. Anyway, just wanted to drop all a note to let you know we did not drop off the face of the earth when we got married!!
CHY IS BACK & SO IS “TRAVELS WITH PARKINSON’S” On the radio show by parkies and for parkies, Chy Cassavant will be once again manning the microphone and hitting the airwaves again. Joan Blessington Snyder will pitch in as the Program Director in charge of lining up guests for the show. In the first show of this new collaboration, we will be interviewing and speaking with Bob Benjamin-the executive producer of the newly released 2-cd set: LIGHT OF DAY-A TRIBUTE TO BRUCE SPRINGSTEEN. Bob is a PWP and also manages some of the musicians who play on this album and he has named the Parkinson Disease Foundation as one of the recipients of the proceeds from this venture. With artists like Elvis Costello, Graham Parker, Joe Grosheky and Dion all doing cover songs of Springsteen tunes, you can bet that this conversation will be a spirited and fun way to start Chy’s comeback tour. The interview will air on Monday, September 29th at 10 AM eastern time and you can find out how to connect your computer to radio station by clicking on: http://www.live365.com/stations/travelswparkinsons and following the directions on the website.
Hi all, I was wondering if anyone has or heard of the type of parkinsons that makes you rigid. My father has been diagnosed with a type of parkinson but I can't find anything that specifiies the rigidness that my father is experiencing. He can not move or talk at all. I have read a lot on the parikinson that causes tremors but, not the ridgidness can someone help me. Thanks
I am seeking an assistive writing aid for my father who has a tremor which affects the legibility of his writing. He needs to find a store/supplier that will allow a trial of tools prior to purchase. He lives in the Ottawa area.
Hi All, Bren and I have been asked to speak at this Symposium...if any of you happen to be in the area, please stop by!!! It looks to be a very informative day! Parkinson’s Disease Symposium, 2003 Blazing Toward A Cure Presented by the University Of Rochester and the Parkinson’s Support Group of Upstate New York, an Affiliate of the National Parkinson’s Foundation Saturday, September 20th 8:30-#:00 Radisson Inn 175 Jefferson Road Rochester New York 14623 Pre- Registation is appreciated by 9/17/03 (585) 234 5355 Warmest Regards, Nan
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As a nurse case manager, I have lots of patients with lots of medication and they told me about a place where you can get free info about free and discount medication. I received information about various ways to get free and discount prescription medication and it really works. I want to share this with others who are like me and have to pay lots of money for their medicaton. It didn't cost me a cent. I mailed a self addressed stamped envelope to: CCP P.O. Box 823838 South Florida, Fl 33082-3838 and they sent me the information. It told me how to get my money back from medication that I had an allergic reaction to and I did get reimbursed for the medication. It told me how to apply to get free medication. Please pass this message on to others to will benefit from this important information. Here is what was in the packet. 1)The contact information for a company that works with the drug manufacturers and supplies the application to get medication for free. 2) How to locate the pharmaceutical manufacturers for their drug programs. 3)Prescription savings cards. 4) Money saving ideas 5) How to get Canadian drugs at a substantial savings. Here are some examples of costs: Sinemet CR (brand) all 100 tabs but you must buy a 3 month supply: 25/250 = $77.40 100/10 = $46.44 100/25 = $54.71 200/50 = $126.15 Generic Sinemet 25/100 = $38.86 and 10/100 = $26.62. Requip is brand only no generic Sold in 100 tabs and you need to buy a 3 month supply .25 mg $28.33 1 mg = $113.30 2 mg = $124.63 Amantadine the generic for symmetrel 100 tabs 100 mg $56.97 Mirapex is only Brand and 100 tabs .25 mg = $98.01 .5 mg = 196.02 1 mg = $196.02 1.5 mg = $196.02 Comtan is brand only 100 tabs 200 mg $154.00 Selegeline generic for Eldepryl 60 tabs 5 mg = $83.49 Benztropine generic for Cogentin sold in 100 tabs 1 mg = $22.37 and 2 mg = $15.94 Trihexyphenidyl generic for Artane 100 tabs only 2 mg = $23.30 and 5 mg = $15.94 Permax is brand only 30 tabs of .05 mg = $18.20 100 tabs of .25 mg = $100.19 and 100 tabs of 1 mg = $341.55 There are many more bargains for all your medications. This information is all free and costs you nothing but saves you money. Send today for the free information and compare prices!
i would like to thank everyone who made te trip to illinois (either in person or in their hearts) this year! it was more of a "love-in" than anything, and my special thanks to toad for the beatiful write up.
Yahoo! Messenger is a free service that uses the connection you have established with your Internet service provider (ISP). Just download the Messenger software and sign up for a free Yahoo! Account.. http://messenger.yahoo.com/ We will have a group chat Sunday around 8:00 pm CST for folks with ET. I would like to invite you to join us so you can get the know the posters up close and personal. You might hear harley7898367 In Washington sing us a song. Grand61angle in Eastern Tennessee may tell us what she personally knows about Elvis. If you would like to participate, please add one of the following to your yahoo IM friend’s list and watch for us to be on line on Sunday night. You would need a mike and headphones attached to your sound card. If you have not tried voice before, I would like to have a test chat with you. If you do not understand the help explanation for Yahoo IM, please email me directly gary_coplin@yahoo.com Or call me @ 713-721-3314 or send me your phone # and I will call you. This kind of format works best for voice chat. I'd also hope many of you would include some info about yourself in your yahoo user ID profile . See mine http://profiles.yahoo.com/gary_coplin for ideas on what you might want to include.
I am writing an article on the effects of physical, occupational and/or speech therapy on PD. I'm looking for a few patients to interview who can share their experience with PT/OT and/or ST with others. The article will be featured in the New Hope for Parkinson's newsletter, which will be available both online and in printed form. The newsletter is designed to provide information to help PD patients live better with the disease. It is being produced by Medtronic Activa Therapy, which makes the pacemaker-like devices used in DBS. The newsletter is not a promotional vehicle for Activa Therapy. If you're interested in talking with me, please e-mail me at leah.galle@attbi.com. Thanks!
I have had Parkinson's for 12 years the last 4 years in its advanced stages. I recently had bilateral stimulation surgery and it has helped dramatically. I lost my life's savings, my retirement savings, my health insurance and even my car. I am penniless but still do not feel like it is futile. I have written a book titles Evertone Has An Everest. It is about my denial of the disease, my being a principal in an inner city school in Miami and how I dealt with it and so on. I do not want to bore you, but I am looking for a doctor to write an introduction for the book. I first asked Janet Reno to do it but she just backed down. The book is really good! I can send you a copy. I found a professional ghostwriter to fine tune it and polish it for no cost to me. He says the story is worth telling. If you are willing to do this for me please write me at edandrew@stis.net or call 954/739-7699.
Congratulations to all the people involved in putting together the "PLWP 3rd Aniversary Photo/Music Show"!! It is a fantastic and very professional piece of work, that brought back many wonderful memories. With much thanks and appreciation; Sincerely, :) Ryan
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April 1, 2002-February 28, 2003
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I've been on the Rotigotine study since last summer. I am now on the open label phase of the patch study and I feel great. I'm currently on 60mg which is the highest dose. I'd say in the past week I've had very little off times. I have more energy, my mental state is great (don't ask my kids tho lol)I'm paid every week for mileage. My drug coordinator feels this will be FDA approved in 2-3 years. This does nothing for the tremor tho. If anyone has any questions please email me at carolpost@aol.com.
Anyone out there in the Baltimore, Montgomery County, Northern Virginia or DC area interested in taking part in a clinical study for the Rotigotine Patch? The manufacturer is Schwartz Bio-Sciences of Germany, and as many of you probably know is already being used in Europe. Dr. Marc Raphaelson, in Frederick, Maryland is now accepting applications for inclusion in this Phase III, double blind study. The only specific I know about is that you must have “off” times of at least 2-1/2 hours per day, so this study is obviously not for volunteers who are early stage PDers. At first the study will mean weekly visits to the office, but after maintenance dose is reached, office visits will then be once every three months. Volunteers will be paid $50.00 per visit, which will be paid at the end of participation in the study. This request is in advance of newspaper advertising, so anyone who is truly interested will have a better chance of being included. It’s the old “first come, first served” thing. I would LOVE to be able to fill his volunteer requirements from the Forum and PLWP. A word about Dr. Raphaelson. He thinks I’m some kind of activist (boy, do I have him fooled!), and because of that mistaken impression, he asked me if I would be interested in letting my Parky (he didn’t use that word, naturally), friends know about the study. And, of course, I said I would. I will tell you that three days after I joined PLWP he knew all about the group and he does keep a poster on his entrance door for everyone to see. As you might have guessed by this time, he is, indeed, my neurologist, and, personally, I think he walks on water. He has been extremely kind and supportive to me and my family. Dr. R has a history of PD in his family which is why he specialized in neurology. I got my dx within 20 minutes of the standard clinical testing. Now, seven years into PD, if you didn’t know me, you wouldn’t know I have PD. Enough said. If you are interested in volunteering for this study, please let me have your name, address and phone number so that I can turn them into Dr. R for follow-up. One advantage (for me), of this being in Frederick. is, if you are so inclined, that I can direct or lead you easily to his office, hopefully meet some of you I haven’t had the pleasure of meeting before and maybe we can do lunch once in a while. My e-mail is seasongood1@msn.com and my phone number is 301-694-9297. Confidentiality is assured, as far as I am concerned. The extent of my work is only recruitment for a very important clinical study. I hope to hear from some of you soon. Sylvia
Just like all of you to know that on June 28 we will be holding our third annual fundraising bowl-a-thon in Hammond, IN. If any of you are in the area of Olympia Lanes on that date please come on by. All funds go to PD research and education. Kerry Mitchell
Greetings, Parkey family!!! My name is Ron, 34 dx 6 weeks ago. I'm in the process of organizing a concert/dance to benefit pd. "Jimmy and the Soul Blazers. They're very popular on East coast. Motown/oldies music. If there's any one around my neck of the woods, I may need your assistance.I'm excited to get pd awareness strong in Ohio and abroad. I'm extremely experienced in charity fund raising. Since my dx, I want to include helping plwp, YOPA, and Michael J. Fox Foundation. Any one w/ connections to getting ahold of Mohamad Ali, MJF, or any influential celebrity, contact me, please?! Thank You sooooo Much!
I've been doing some research today as part of an herbal apothecary company I've helped form in the past year. I am also a medical transcriptionist and therefore have the knack for more thorough research of drugs both natural and western medicine pharmaceutical. I have discovered that Butcher's Broom aids with the orthostatic hypertension associated with Parkinson's medications as well as the Parkinson's itself, diabetes and other possibly related vasocontriction problems such as migraines. There is also an ancient India herb that has been found in an Ayurvedic Medical Textbook from over 5000 yr. ago. The herb is mucuna puriens, the mucuna bean that is a natural derivative of levadopa and is being manufactured in relation to a disorder specialist, Dr. Bala Manyam, of the Univ. of S. Illinois.
You know Pete, I'd really love to be there. I'm totally serious...if I could afford it, I would be there. Good luck to you!
PARKINSON'S BENEFIT CONCERT SUNDAY 25TH AND MONDAY 26TH MAY ³FILL YOUR HEAD WITH ROCK is my front line in the battle against Parkinson's all monies raised from the event goes to THE PARKINSON'S DISEASE SOCIETY, U.K I have, I think put together a brilliant line up, but there is the problem. that is convincing the people, that such high international acts are coming to play "FILL YOUR HEAD WITH ROCK", I myself have Parkinson's but I refuse to let Parkinson's have me. ****************************************************************************************************************8 PRESS RELEASE PARKINSON'S DISEASE SOCIETY BENEFIT CONCERT JOE D’URSO MAKES FILL YOUR HEAD WITH ROCK PART OF HIS WORLD TOUR “FILL YOUR HEAD WITH ROCK” FILL YOUR HEAD WITH ROCK GOES INTERNATIONAL My name is Pete Boot, [BOOTY] way back in seventies I was the drummer with BUDGIE You see five years ago I was diagnosed “Parkinson’s”, I am now the best tambourine player in the business, coming to terms with Parkinson’s was similar to being told the bands got a fantastic record deal but also a new drummer, you accept it but refuse to give in. I never knew that all those years on the road would help me cope, but in bands as you know you develop the skin of a rhino, with the determination of an ant. I have Parkinson’s it will never have me, I feel sorry for Parkinson’s for he now has Booty disease, FILL YOUR HEAD WITH ROCK, is a two day rock festival I organise to raise funds for the Parkinson's society, now in its fourth year it takes place on Sunday 25th and Monday 26th. I desperately need to heighten the profile of the event, I need to take new ground, I have no intention of giving up, the other option being to lock myself away, but the illness would be locked away with me. That would achieve nothing. I must I fight, yet I'm fully aware this is a fight I may not win, though not able to claim victory I will grasp dignity with both hands [if they keep still] So with every ounce of respect to yourselves I ask that you see if there is a way you can help i , I seek no personal gain or promotion from this request, for there is one simple fact, no one knows what's around the corner. It is for those who have no idea that they will walk the same path as me, that I must make the tunnel shorter and the light brighter I do hope you can help, I ENCLOSE THE FOLLOWING DETAILS AND HOPE YOU FIND THE OF INTEREST FILL YOUR HEAD WITH ROCK it is a two-day rock festival, held in Willenhall, West Midlands. Not quite Woodstock I agree, but they both start with the letter “W” so who knows HA! HA! MISSION STATEMENT The event is organised to raise funds for the PARKINSON'S DISEASE SOCIETY UNITED KINGDOM but of equal importance to fund raising, is the need of peoples awareness to Parkinson's, and the debilitating effect it has on every day life. THE GIG; - TWENTY BANDS PLAY OVER THE TWO DAYS, SUNDAY 25TH AND MONDAY 26TH OF MAY 2003. DOORS OPEN 13.00HRS. CLOSE 24.00 HRS BOTH DAYS...........ADMISSION..........£5.00p EACH DAY THE BANDS:- JOE D’URSO [PART OF HIS WORLD TOUR] www.jdcaravan.com ERIC BLAKELY / MICKY KEMP BAND / SUSAN GIBSON [ GRAMMY AWARD WINNER] www.bandsontour.com CHARLIE MACINTOSH. THAT'S FIVE AMERICAN BANDS, THE BRITISH BANDS ARE - THE TREVOR BURTON BAND. RISE, NOWHERE NEAR THE GARDEN. CLIENTELE, JACKS HOUSE, DIZZY LIZZY. MOUND. CLEAR BLUE SKY. TONY HILLS FICTION. FAR SIDE. PREDATOR. OTHER BANDS TO CONFIRM. OTHER INFORMATION :- www.fillyourheadwithrock.com FOR HISTORY SEARCH PETE BOOT ORGANISER; - PETE BOOT, PHONE NUMBER- 01902-635885. MOBILE :-07989132805. FAX: - 01902-635885. EMAIL peterboot@blueyonder.co.uk / SNAIL MAIL 575 WILLENHALL ROAD. WILLENHALL. WEST MIDLANDS, WV13 3 LP. MANY THANKS FOR YOUR TIME IN READING THIS MESSAGE, YOURS SINCERELY...PETE BOOT..... SHAKEN NOT STIRRED www.fillyourheadwithrock.
Because the Yahoo Group Chatroom and Message Board seem to be growing and creating the nucleus we've been looking for, we encourage you to use it instead of this board. The message before this one tells you a little more about what we're trying to do. The URL for our group site is www.groups.yahoo.com/group/plwp2 Thanks, Nan and Bren
TO ALL PLWP MEMBERS! I have a favor to ask of each of you ... and no, I'm not asking for money nor am I asking you to shed blood for PLWP. (Though I really believe many of you would consider doing it!)<BR> <BR> No, what I'm asking is for you to join the Yahoo Group PLWP2 www.groups.yahoo.com/group/plwp2 as soon as you possibly can. <BR> <BR> Why, you ask? Well because it will make mine and Nan's life so much easier. <BR> <BR> How,you ask? Well, Nan and I have struggled with doing mass emails now for a very long time. We need to be able to communicate with everyone and sometimes it's crucial that we get to you in a hurry...for instance something about advocacy or one of our members needs help, etc. It normally takes about 2 hours to do a mass email to you folks and then many of those are returned for various reasons. The account has been closed, the mail capacity has been reached and you can receive no more mail, etc. <PR> <PR> By utilizing Yahoo Group, it doesn't take us any longer to send hundreds of emails than it does to send one. Nan and I don't have to keep up with each address, it's totally up to you to keep it up to date. <BR> <BR> Let me tell you how Yahoo does it. When anyone posts to the Message Board on Yahoo, it automatically emails all of the members. You, the member controls whether or not you receive the email. In your member setup, there are several choices you can make...instead of me writing them all down, check out the "How do I?" at http://www.plwp.org/how_to.htm#Messages . You can change your member set up at any time. <BR> <BR> So, those of you who already have a login with PLWP2, you may want to double check your email address to make sure it's correct. (There's an option on the front page that will allow you to change your setup. Be sure to read it carefully.) <BR> <BR> For those of you who have not joined PLWP2, please do so without hesitation. If everyone is cooperative and takes care of this immediately, Nan and I will completely do away with our old system and go for Yahoo. Remember, this is a democracy ... majority rules. <BR> <BR> There's other benefits to using Yahoo...the board can be used for sharing, communicating, getting help and/or giving help as well as so many other uses. Think of it as somewhere between a chatroom and a forum like on MGH. The thing that makes it so great is the time factor...when the post is entered on the group site it's automatically sent to the membership, the total interaction on PLWP at Yahoo groups is dependent solely one the member. YOU ARE IN CONTROL! <BR> <BR> So please make sure you are an active member of plwp2, that your email address is correct and that you have the appropriote settings for what you want to do. <BR> <BR> I think we'll all be amazed at the convenience thus the increased commoradory of the entire membership. <BR> <BR> Nan and I really thank you for doing this. You've probably just added another 5 years to my life line. LOL....<BR> <BR> There's more I want to say here but we'll have a better method when we get this job done. <BR> <BR> Thank you! Thank you! Thank you! <BR> Bren and Nan
Happy Birthday Pwnkle, You are a special person and I hope that you are having a very special day. You give so much to so many people!! I wish you the very best and hope to see you soon. Thank you for all you do Much Love, Nan aka TLC
YES all of you are correct! Among other great events April 1st is the first day of Parkinson's Month and IT IS YOUR BIRTHDAY! We at PLWP as a group of the Parkinson's grassroots...as a member of an elite extended family...as people who care to make a difference...ARE OFFICIALLY THREE YEARS OLD! I really want for us to do something to commemorate that day...and I've come up with an idea. It will only work if everyone participates. FIRST, I'm sure each of you have at least one fond memory of interacting with others at PLWP. It may be a special chat session, one of the times we all went to NYC for the Unity Walk, a special email from someone you met at PLWP, a spontaneous visit with someone you met thru PLWP, a funny possibly...maybe an embarrassing moment that you would care to share...either yours or one of you PLWP friends. WELL, let's put it together into a PLWP Remembers, 3rd Birthday webpage that will be permanently in our website. Write it up, send pics if you like and get it to me quick at btucma2000@yahoo.com. I know this is short notice, but if you get to me by the last of March I'll try to have it on site on April 1. NOW FOR THE REST OF THE STORY... Perhaps you've seen one of the photoshows on the website. If you haven't, take a look at one on www.plwp.org (menu bar to the left). WELL, what do you think about sending me, either by US Mail or email, some pictures you cherish of times you've spent with PLWP friends OR just a picture of yourself if you're new...a picture of you if you're an oldie but goodie member OR whatever. I've got a new program that will put these in a format that I can put on CD and you can play it on TV using a DVD player...full screen with music. Sounds like fun doesn't it! Something we can keep forever. If you'll get me the following by April 15, I'll make every effort to have it done and on the website before the end of Parkinson's Month. I've already got an order form on the site and you can order a copy of the CD. (http://plwp.org/photo_show_offer.htm It'll cost me around $5 for materials and shipping, so for $10 ($5 for PLWP) I'll get a copy to you by ... ummm ... let's make it easy on ME (LOL)... let's say by May 15. Here's what I need from you: (1) Picture(s) (duh!!) either by email (btucma2000@yahoo.com) or US mail (Brenda Tucker, 3656 Blue Byrd Lane, Kodak, TN 37764); (2) Captions including names of people in the picture (it's terrible to look at a picture and not know who it is); AND (3) a check for the amount of your order if in fact you placed an order with mailing address. What d'ya think? I like the idea myself. So get off and get on...get to me what I need to do this. Also, please talk it up so everyone will know about this. The long-time member will go down memory lane and you new members can see what you're getting yourself into! Together we make a difference, Bren
Hey everyone. I've been keeping an eye on Jane Stengals efforts to be sponsored as she represents all of PLWP at the Parkinson's Unity Walk on April 26. Please take time to donate something in support of Jane. It doesn't need to be much, just something to show her you're grateful for her efforts. The Parkinson's Unity walk is a great event that raises awareness and research funds. You'll find a link to The Unity Walk page for donation on the frontpage of www.plwp.org Together we make a difference, Bren
Does anyone know what April 1st is? Yea, I know it's April Fool's Day...but do you know what other significance this date has?
The transcript of Greg's testimony is now available at www.plwp.org/library.htm Hopefully, tomorrow we'll have a complete audio. Together we make a difference.
If you missed Greg's testimony, hear it at http://www.plwp.org/library.htm Unfortunately, only the closing of his statement is recorded but we will have a transcript of his testimony on line. Comments following his statement are very intersting. Together we make a difference!
Wednesday MARCH 19th 2003 9:30 a.m. (EST) Senate Judiciary Committee Hearing "Drawing the Line Between Ethical Regenerative Medicine Research and Immoral Human Reproductive Cloning. " Witnesses will include grassroots activist and National Field Representative for PAN, Greg Wasson. For further information: http://www.senate.gov/~judiciary/hearing.cfm?id=622 for audio stream: http://www.capitolhearings.org/ check in with c-span for televised coverage: http://www.c-span.org
There's so much confusion, so many questions...such an important time in the cure of neurological diseases. We have created a special forum for discussing stem cells, therapeutic cloning etc. Our own Joan Snyder (Jes) was the first to post and it makes for very good reading...very enlightening...very thought provoking. Just go to the frontpage at www.plwp.org ... the menu option is to the left directly under Communication Center. You will also see a link to Portraits of Hope. Remember one thing when approaching these and other issues. The only dumb question is the unasked question. I know I feel extremely dumb most of the time BUT as my mentor of 35 years ago told me (and it changed my life)...intelligence is not knowing the answers but knowing where to go to find the answers. And though these are sensitive issues, we feel we need to discuss them openly among the PLWP community. Please join in.
Bren
Dottie, he is a cutie. Katie is still a little jealous, but that will pass. I do, however, have a new title..."Super Pooper Scooper"...I guess I forgot about all of this! LOL >>> Glad to see you "interneting" Dottie.
Bren- Had to laugh when I read about your following around your new baby. I had a permantly attached cloth in my hand for a year when we got our first Jack Russell. He was a terror to house break. - The second one (three years later) was not that bad. He learned from the first. Just don't break his/her spirit. And I mean they are very spirited. Adorable, exasperating but marvelous little companions. Enjoy. Do you have a smooth or rough coat, also what color. We had one each. The rough was tri colored. The smooth brown and white. Both beautiful in their own way and totally lovable. Smart, too. It took them only a week or two to bend two adults to their will. We are still bent. Enjoy! Enjoy!
Sorry I missed everybody today, or yesterday now since it 2am Tuesday morning. The past three days have been strange...nothing I planned happened but it was a GREAT 3 days. Saturday, we worked in the yard all day...70+ degrees and beautiful. I felt absolutely wonderful and I wore myself out. >>> Then Sunday, well I could hardly move! LOL But my hubby wanted to go do some target practice and insisted I get out of the house. Well, I had a ball. I shot the pistol many rounds, hit the target on 50% of them...not bad for a parkie who has never shot at a target. Then today, I had all planned out but ... well, we got us another baby. A Jack Russell who is 3 months old. We adopted him from the animal shelter...so I spent the entire afternoon at the Vet and tonight following him around cleaning up after him. You see, it's Katie's 4th Birthday this weekend and we thought she needed a little friend.>>>>So I'm sorry I missed you guys, but it really has been wonderful. I don't remember feeling this good in a very long time. Hope all of you PLWPs are having spring-like weather too. Does a world of good for our attitudes. Love ya lots, Bren (Oh, by the way. Katie is not a child...she's our baby dog (a Sheltie)! LOL
Jane Stengel who is Co-Director of PLWP's Events Team is going to set up a PLWP Team with the Parkinson's Unity Walk. The walk is scheduled for April 26, 2003 in Central Park, NYC. If you are interested in going to the walk, she will be happy to help you with your arrangements. She can suggest hotels, etc. >>>>> We support the Unity Walk and have attended as a group since 1999. This year we're asking that you support the PLWP Team by sponsoring Jane Stengel who is representing PLWP. Donate directly to the Parkinson's Unity Walk Organization using this URL http://www.plwp.org/default.asp#UnityWalk and clicking HERE. If you plan to go to the walk and want to register yourself, there's a link on Jane's Donation Page that will take you directly to the PLWP Registration form. >>>>>> Together we make a difference!
You may want to check another web site called wemove.org for info on hemi-parkinsonism/hemi-atrophy. This is a particular syndrome in and of itself to my knowledge (which i consider moderate at best). However I myself have had the term hemiparkinsonism used to describe my condition, which at this point remains unclear. Hemi simply refers to only affecting one side of the body. However, as i said, i think you are referring to a specific condition and you may have some luck doing a search on the we move site! Good luck in your search for answers and please let us know what you discover! Beth Bennett
I need to correct my directions just a bit. Before going to the top of the page and clicking on the Communication Center, go to the top of "THIS PAGE" and click Top. Sorry!
I've been watching to see if by chance anyone was familiar with Hemiparkinsonism Hemi Atrophy. I believe if anyone here could give you any insight they would. However, there's a Parkinson's Forum sponsored by Massachusetts General Hospital (Harvard Medical) that I believe someone could help you. I would post their url here but it's so confusing. Instead, do the following: Page up to the very top of the page, click on Communications Center then click on Parkinson's Forum at MGH. Many people use the forum...many of them are very well versed in Neurodegenerative diseases.>>>>Though we may not be familiar with your particular form of Parkinson's, we would love for you to become a part of us. Let us know if we've helped you at all. Together we make a difference, Bren
I am tryng to find information on this variant of PDand would also like to make contact with others who have this particullar version.
Mojo, my prayers are with your son. My son was in the Gulf...I know how you feel. My prayers are with you as well.>>>>>Harley, thanks. I'm sure it could be more user friendly...just let us know if you have any suggestions.
Nan, Sorry to hear your ailing. It's no fun I know. Also sorry to hear of your brother-in-laws Illness. There are tons of people out here pulling for you and he. Know that my prayers are with you both. May God Bless. With love, mojo P.S. Iam asking for prayers for my youngest, my son Nick,who has been sent to Kuwait, to defend our freedoms that we all hold so dearly. Thanks
Hey! Lookin Good here guys.. just wanted to pop in and say a big howdy.. Bren.. CD goes in mail today.. watch your mailbox.
Nan, I am sending this message to let you know that I am thinking about you, and that I have added you and your brother-in-law to my prayer list. There is great stength within God -- both physical and emotional. You are a wonderful servant and angel for Him. You give of your heart and energy to all that need encouraging and all who need a friend to help them in their PD struggles. I thank God for you, and this Tennessean sends his love! David Vaughn
A new thread (Cheers to TLC) has been started in the PLWP MGH Forum by jjjaneR that you may want to post to. It's a very thoughtful effort of support for Nan (screen name TLC). For you newcomers, Nan is the other co-founder of PLWP. Her unselfish, loving nature is what PLWP is all about. She's always there when you need a friend.>>>>>Cancer is in the processs of taking her brother in law and her health is suffering. (I explained in a little more detail in my post on the forum.>>>>If you want to add a note for Nan, I'll make sure she sees the thread. I think it would warm her heart. To help you, I'm going to add a link next to the little talking blonde above!LOL >>>It will be good exposure to the forum for you too. Use the Communication Center to access all the forums, chat rooms, etc.>>>>Together we make a difference! Bren
Travels with Parkinson's will be broadcasting today at 10:00 AM EST regular daily broadcast. Then at 12:00 PM EST Kathrynne Holden's bi-monthly show. At 8:0 PM EST Dr Jill Marjama-Lyons will be interviewed thanks to Tom Berdine and YOPA. And on Friday 5/7/03 Dr Ron Hutton will give his b-monthly from Haversham UK. Right after "TWP" in the morning. www.live365.com/stations/travelswparkinsons to tune in. Check out newly ( still under constructio ) web site at attp://pwnkle.com/travels/index.htp Designed by Carol Mc Cleod. Thanks winks Chy
Travels with Parkinson's will be broadcasting today at 10:00 AM EST regular daily broadcast. Then at 12:00 PM EST Kathrynne Holden's bi-monthly show. At 8:0 PM EST Dr Jill Marjama-Lyons will be interviewed thanks to Tom Berdine and YOPA. And on Friday 5/7/03 Dr Ron Hutton will give his b-monthly from Haversham UK. Right after "TWP" in the morning. www.live365.com/stations/travelswparkinsons to tune in. Check out newly ( still under constructio ) web site at attp://pwnkle.com/travels/index.htp Designed by Carol Mc Cleod. Thanks winks Chy
Heehaw!!! A little after 10PM, Gary had already turned in and I was waiting for my sleeping med to kick in and I felt kinda lonely. You all know what I mean. Well!!! I'm forever checking on the forums, message boards, and the chatrooms...sorta my normal going to bed routine. What to my wondering eyes did appear but a gathering of friends in the CHATROOM!!! It was AMAZING! It was like, wellll let's see...Like being away on a business trip for a week and coming home to find your husband didn't go on that weekend fishing trip after all. You're so prepared to be alone that when you're not...WOW WHAT A ZINGER!! Keep those cards and letters flowing ... the Neighborhood is perking!! Oh, I almost forgot the beauty of it all. I believe it all happened because Nancy out of Cleveland posted on the fridge that she was in the chatroom if anyone wanted to chat. One drop in an ocean of water still makes ripples! Together we make a difference, Bren
hi I AM IN THE CHATROOM IF ANYONE WANTS TO CHAT. NANCY AKA ds401
DEE-136--IF YOU WOULD LIKE TO CHAT I WOULD BE HAPPY TO HEAR FROM YOU AGAIN.I HAVE WORRIED AND WONDEREDABOUT YOU. I NEVER DID GET TO TELL YOU ABOUT MY FAMILY AND YOU DIDNOT TELL ME ABOUT YOURS.BRENDA HASMY E-MAIL NO. AND IF YOU ASK SHE WILL GIVE TO YOU. AS AN OLD GRANDFATHER I AM A GOOD SOUNDING BOARD.
Just got out of the chatroom where jjjaneR discussed the stages of Parkinson's. (Yea, I had the wrong day in mind and thought it was going to be Thursday!!) Even though I arrived really late, everyone was praising her effort. There was a good turn out, but I'd like for Jane to do it again later on down the road at a different time so those who couldn't make it today would have another opportunity. (Oh, and we had another new member there today!) Tomorrow (Wednesday) Dan (v5navy) is the guest host. He's going to discuss Water Therapy. >>>>>>>>Things are happening here at PLWP! It feels great!>>>>>Together we make a difference, Bren (for Nan too)
BREN---WENT TO THE CHAT ROOM THIS MORNING TO CHECK MY VOICE. I WAS PLEASED TO GET ON WITH A VOICE--THIS WAS 7:15AM. I WAS AFRAID TO GET OFF SO I HELD ON UNTIL 8:3OAM AND NO ONE CAME ON I WENT OFF TO SEE IF COULD FIND SOMEONE. WHEN I TRYED TO GET BACK ON I COULD NOT GET VOICE. IF I CANNOT GET MY VOICE TOMORROW WE WILL HAVE TO CANCEL MY PART TIL SOME LATER DATE.
The chat sessions are really going well thanks to the efforts of Michael and Ken. We understand that you may be frustrated with all of the problems we've been having. Yahoo has been working dilligently to solve them. Thank you for your patience. Don't miss Weds and Thurs at 2:30EST...special topics: Water Therapy (Weds) by Dan and Different Stages of Parkinson's (Thurs) by jjjane.
We straightened up the Fridge yesterday. We were conducting science experiments in there and didn't know it! LOL Not much unlike the one in my kitchen! Seriously, we archived the messages. It was taking too long to load. We now have two files of archives that are labelled by dates. Just click on the date of interest. See you at the chatroom sessions! Bren
bren---talked to ken this morning in the chat room,HE ASKED ME TO TALK ABOUT WATER THERAPY ON WED.I TOLD HIM I WOULD BE GLAD TO BUT ONLY IF WE HAVE VOICE. I JUST COULD NOT HANDLE WITH MY ONE FINGER TYPING. IF WE CANOT GET VOICE ON REG CHAT COULD WE DO IT IN "FRIENDS" LIKE WE DID THE OTHER DAY?
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