The Benevolence Team

 

 

My father used to sing one particular hard luck song out of all the hard luck songs he sang that has always stayed with me as a bit of worldly wisdom, and home comfort. 

 

Once I lived the life of a millionaire,

spending all my money, and I didn't care

Taking my friends out for a mighty good time,

buying high-priced liquor, champagne and wine

 

Then I began to be so low,

Didn't have a dollar, and no place to go

Well, if I  ever get my hands on a dollar again,

I'm gonna hold  till the eagle grins

 

Cuz’ nobody knows you when you’re down and out

In your pocket not one penny,

and when it comes to friends you haven't any

and then you get back on your feet again,

everybody wants to be your long, lost friend

Well, it's mighty strange, without a doubt

Nobody knows you when you down and out

 

I was in high school when that song started to make sense to me. I never lacked for food on my plate even if it was creamed eggs over toast. I never wanted for a roof over my head even though  perhaps it leaked during every  rainstorm of my high school years—right into my room. I never went in need of any medical attention –ever.

 Long out of high school, I look back and see how hard it must have been at times for my parents to keep that roof with six kids in it from not caving in, even though my Dad had a pretty good job – how hard to even keep creamed eggs and toast for six on the table and  to find the wherewithal to continue throughout his working life —at least as much monetarily as mentally. But even then, my parents knew where they were going, and how they would get there. When my father was my age, he had bought his second house in a wealthy suburban neighborhood. But every so often on a Friday or Saturday night, he still would take down his guitar and sing: Nobody knows you, when you’re down and out…

My point was to compare my father’s understanding of what it means to be down and out and my understanding. His was based on having been a child of the Depression who attained a certain amount of wealth and financial ease in the world, and thus a certain social ease and confidence in the world. It is far different from my understanding, based on the change from a childhood of relative privilege and  opportunity to an adulthood of chronic illness, which has brought with it personal poverty and dependence.

 The point is not that I have any “better” understanding of the song than my father, but that the song istself—for all of its worldly wisdom and isolating comfort—isn’t true, as. least not here at PLWP.

 And that is the message of the Benevolence Team as we announce that we have opened or doors for business. Without a doubt, people here stay loyal to each other, support each other as much as they can , through good times and bad.. Think nobody knows you when you’re down and out? Look around. Read the journals, go to the chat rooms, sit on  Sandy’s porch awhile. None of us is alone here.

The Benevolence Team is the latest manifestation of  PLWP’s mission “to create an atmosphere that encourages mutual support and friendship for people living with Parkinson's, their partners, family and friends.” We will work quietly with the utmost discretion  to help PLWP members when financial difficulties come along and a reprieve of a month’s bill payment or a quarterly payment will provide enough breathing space for the PLWP to implement a permanent or long term solution to the problem.

It would be nice if  no one ever had to visit the Benevolence Team pages on the PLWP website, but we know how life can change for us in a moment’s time, and we will be here to help if we can. Let us know what we can do for you.

 

--aj & Greg

 

Read the Benevolence Team Guidelines

Visit the Benevolence Team on the PLWP website